ONE YEAR AFTER DBS SURGERY

November 13, 2010 was my one-year anniversary. I had bi-lateral DBS at Stanford University Medical Center on this date in 2009. With the stimulator turnd OFF, the Parkinson's symptoms return with a vengence. Watch how a few milliamps of current can change a person's life.
check out this followup video: • DBS - 3 years after su...

[@jooste]

Great stuff! I am very glad that you had this miracle! I hope that you will never have to suffer again! I had the privilige as n employee at a bank to finance the same operation for one of my clients last week. The feeling I got when I told them the money was already paid to the hospital, watching them reacting in pure hapiness was something out of this world.

[@ltee12658]

I have bilateral Essential Tremor (since 2008) and had DBS surgery May of 2019. The results are amazing, no tremors at all in both hands. I have only turned my stimulation off twice ( for MRIs) and hated it, couldn't wait to turn it back on. Thanks for sharing your experience and wish you continued luck

[@azthundercloud]

I had mine done 2 years ago (april 2010). havent looked back. it is like a new life. you had alot of courage turning your unit off. i never have turned mine off.

[@jasonbisdead]

You're a living miracle and an inspiration sir. Thank you for sharing!

[@peteraustin9715]

Thank you for making this series of videos. I am 56 years old and was diagnosed with PD when I was 42. I think I will soon have DBS. There are times when I can only move around by walking backwards! The brain fog is so debilitating and many hours are spent sitting in a comfy chair looking into space. I want my brain back! I wish you well. :) Peter.

[@Fefop1981]

God bless you and i hope you´ll do ok with DBS. My father was diagnosed with PD about 1 year ago, someday i think DBS will be an option.

[@hagipsy9482]

Boоoоost yоur brаin рower in 14 dауууs? twitter.com/fb2aa39aaffa15fd5/status/822776974745550848 ОNE YEAR AFТTER DBS SURGЕRY

[@f82man]

l have parkinson's too and in April 2018 l developed Bad brain fog and felt like l had a strap around my head. lt would last from 2 to 8 hours every day. l started taking Chinese herbs in October and finally in November l could function again. Drs, MRI, Brain Scans etc., nothing helped.....After spending thousands of dollars, the Doc said if the herbs work, Take Them..So now that my fog is gone, l'm waiting to get my DBS Surgery.......

[@Rosie_Apple_Delight]

Thank you for posting this! It helps alleviate my fears

[@mmedeuxchevaux]

thanks so much for your personal account. i appreciate your vulnerability, and i am happy that you were fortunate enough to have dbs.

[@berryfrizz]

My dad is waiting for his procedure. I am very hopeful, thank You for sharing your experience!

[@crystaljoy4272]

Thank you for sharing your personal experience. This video has been posted in one of my classes for my Master's Degree in Nursing. I am thankful that you live in a time with the technology that can increase your quality of life. I am thankful to the people that mad ethat happen for you as well!

[@kenmiller9047]

Thank you, Crystal. It's an honor to be part of your program. This November it will be nine years since my surgery. My tremor is still gone and I'm totally off the carbidopa/levodopa. The only problems I'm having are some balance issues and speech. I'm not convinced that the speech challenge is directly related to the DBS, but rather is a direct symptom of PD.

[@JC-yy5nf]

Extremely educational video. Answered all my questions in 3 minutes. Thank you for taking the time making this video.

[@marcellenassif1029]

I am so happy for you sir, We are considering this surgery for my dad who have your exact symptoms since 17 years, hopefully we will have the same results

[@marcellenassif1029]

No, the neurosurgeon says his brain has been way too damaged after almost 20 years of medicine-taking that a surgery would now be too risky and costly for any tangible worthwhile results, especially that he is now 76 years old Still I am so happy to see that this surgery is working for someone else. Parkinson's is a real pain you know!

[@alans3935]

Thanks for sharing this wonderful video. I hope you live a long life.

[@april13kid]

Thanks for your post. I'm just now going back through the messages and wanted to encourage. Don't worry about being awake for the procedure. Actually in the beginning they keep you in a 'twilight' zone until they're ready to have you interact with them. Once you get past all the lights, activity and electronic equipment, it's no problem. There's no pain. I think birthing 7 children would be a much more difficult task... IMHO. Keep me in the loop. Thanks, Kenny

[@80sruler]

Kenny - fascinating stuff and God bless. I'm starting to embark on this journey with my father

[@sammillia5004]

This is amazing! I hope, that you are doing good!

[@lbopp8661]

Thank you. So happy for you. My 17 year old son will be getting this for his retractable seizures.

[@jimbo2000jw]

Nice video and congratulations on having a successful DBS surgery. I hope your still symptom free. I will be having the DBS surgery in approximately 6 weeks to treat my chronic depression. Ive had clinical depression for alost 30 years and really hope the surgery works for me.

[@Dan-sc9lq]

I am having DBS surgery next week. Thanks for the encouraging video.

[@tomelifeisjustonebig]

What a brilliant result.

[@stephenboulton1347]

Incredible tech and surgeons.

[@tiffanyguinn2692]

Thank you so much for sharing this video.

[@debiva]

Thank you for sharing. I have a friend about to undergo the procedure. I have so much hope for him....

[@marandarae9740]

absolutely amazing!

[@mlnags2829]

Thank you sir for showing us the new modern medical systems to enhance your life❤️👍🏻

[@vids4review105]

You are vey welcome.

[@april13kid]

(contd) As far as the DBS surgery itself, I can't say it was painful .... only ever needed Ibuprofen or Tylenol for the discomfort associated with the incisions. I just had my battery replaced Jan 2013, and it was a quick 20 minute procedure this time -- a little sore, but healed quickly. My best to you Ari --- believing you'll find hope & a full life.

[@kenmiller9047]

You're welcome. It's been 13 years since surgery and I'm still going strong...

[@april13kid]

Thank you for your comment. I appreciate it very much. kw

[@garci2k2]

Wow, very deep video. You're very brave.

[@rabbit00000dog00000]

Thank you very much for your sharing!!

[@hillarydelima9546]

God bless you!

[@toriann56]

I am so happy for you.. I have had CD for 4 yrs and counting.. just a couple months ago or so I started doing the granny shuffle.. Last Tues before Thanksgiving, I got out of bed only to find out that my legs felt so rubbery and weighted down that I could hardly walk.. Plus my one neuro said I have CD, and PD..along with a host of other issues.. I think I will be finding myself a new neuro, #8 and see what he or she thinks.. and who knows I might have to redo some of the tests over.. but I have to find a clear answer!! I Wish you all the Best!!

[@davidparham2489]

I get one in four weeks, can’t wait

[@TheGanjam]

thats amazingly amazing. Thank you very much for the video

[@Imagineurthere]

god bless you sir.

[@RBLong0928]

Praise God!

[@sherrylklingelhofer2574]

wonderful video! Thank you for sharing...

[@april13kid]

It's been 2 years and 10 months since surgery. I haven't turned my IPG off for over a year and a half. However, soon I'll repeat the process and we'll find out what happen's this time. Stay tuned!!! Kenny

[@laliarboleda711]

How are you going? Today 2 jan 2023

[@april13kid]

Finally getting to my messages. It was approved about 10 years ago... Dr. Henderson (my Stanford surgeon) had personally performed more that 500 of these with great success.

[@kenmiller9047]

I'm doing great. Quality of life is fantastic compared to what my life would've been like without the surgery. Kenny

[@cnjchassie]

Bless you!

[@perezsroberto]

hi mi name is roberto perez im very gratefull for your video my mom is going to have the surgery tomorrow feel positive and confident that it will help my mom. thanks again

[@azthundercloud]

@JoBetization i had this procedure done a year ago also for essential tremors. getting the halo on and the shots were the hardest part. i was awake and did not feel anything. the second part i was under when they wired the unit to the stimulator under my left chest. absloutely no regrets having it done. i am a new person, no tremors, bobble head, leg tremors, nothing.

[@georgeryder5807]

Amazing, thanks so much

[@april13kid]

Thanks. Reading back through my posts... 2 and 1/2 years and still no tremor! Hoorah! How did your surgery go? Did it do what you had hoped? Kenny

[@peterhoefele9118]

Thanks for video. Considering DBS for PD.

[@bhstone1]

Thank you for posting this. How are you feeling these days?

[@noorabdelhalim]

thank you

[@justicialist]

Awesome video

[@lukepodmore7810]

That's fantastic video

[@sneakerssellor150]

This video has inspired me. it takes great courage to do what you did. but I must mention this and I'm really curious to know your condition now. its been a while since you posted something . hope everything is ok.

[@rawclavdia6349]

very good. Thank you for sharing.I like the video.This is real life.

[@anjaherceg870]

amazing!!!

[@CPRailSD90]

Thank you for sharing,I'm hoping to get DBS done soon, my tremors are getting very bad. What brand did you get installed?

[@jimbo2000jw]

@JoBetization Hi...Im a 46 year old male with chroinc clinical depression and I too will be having the DBS surgery soon. Dont worry, Im sure you will be fine. This surgery has been around a pretty long time and seems to be quite safe. Good luck with it and please let me know how it goes. You will be in my prayers.

[@terrymiller2562]

Incredible example of how DBS worked for you. I have a friend that is exploring this surgery and it can be very scary. She is watching many videos. I wonder if the expertise and positive outcomes from surgery performed at Stanford University Medical Center is the same for other, less funded medical centers?

[@noorabdelhalim]

where have u done the operation please and with which doctor , thank you

[@april13kid]

@COLmegoCOLma Sorry to take so long to respond... I had the surgery at Stanford Medical Center in Palo Alto California. It was FDA approved in the early 2000's. Stanford has completed about 600 of these. Dr. Jamie Henderson was the surgeon and Dr. Helen Bronte-Stewart is my movement disorder specialist. I had to qualify by age and health. Kenny

[@group20productions81]

That was my own voice as narrator. Thanks for the compliment. Kenny. (It's been four years now - since surgery - and my voice has deteriorated significantly)

[@debbiemclaughlin9770]

Hi, are you the person in this video? How are you after 4 years? My email is [e-mail] I would really like to hear from you. Like I posted under your video, my friend (boyfriend) has parkinsons and so far we have been afraid to seriously concider dbs. The doctors say there is a time line and he is a good candidate for it now. So its like we are afraid to wait and afraid to go for it. It would be so nice to talk to someone who had experienced it. Thank you.

[@clarkewi]

Amazing.

[@april13kid]

@COLmegoCOLma Side effects: As long as the electrodes are placed accurately and the programmers are experienced, side effects are minimal. I had a programming session two weeks ago and my meds have been reduced to only 2 sinnemet 25/100 daily. Two months ago, I was taking 6 a day. Before DBS my sinnemet dosage was 6 - 50/250. Consequently, I was always in a drug induced funk. Much better now! Anthem Blue Cross paid for the surgery and MediCal paid the balance.

[@mayaybailey4822]

Hi I just wondering how do you doing now God bless you

[@Respected2010]

The narrator sounds exactly like the guy who does the hemi-sync hypnotherapy CD's. Very calming voice tone.

[@Mr.Reality]

It's really fascinating how the brain works, It's almost like a computer that's having errors. Updating and installing new software fixes those errors.

[@arifelsen]

I'm 14 and have dystonia. It's just in my right arm, but it's getting bad to the point where I've been thinking about the DBS. If you read this, could you please tell me if it works like 90%, 100%, 75%, etc.? And if it sometimes stops working as well during the day? And if the surgery itself is painful or the pacer surgeries? Thanks and I hope you stay happy and cured.

[@Rosumisorimu]

Amazing! Technology is an amazing thing!

[@winduhernowo5890]

Yes please, or any kind of this similar surgery like artificial neuro for stroke etc

[@JeremyLeach1987]

Thank Science, this is awsome

[@Ouski]

I'm only 27 and I'm probably going to need to go through with this same surgery. I have really bad multiple sclerosis and I am running out of options.

[@JoBetization]

thanks so much for this video. I am a 32 year old female with essential tremor is quite severe and mine is also a resting tremor I have been refered to the mayfield clinic at uc hospital in cincinnati ohio for dbs. I have 7 children and I am quite scared to have this procedure done I think what scares me the most is being awake for the procedure. I am still deciding whether to have it done any input would be appreciated.# scared in ohio

[@Daffodilgirl-bo5hr]

What is the cost of this surgery ! Is it good for Parkinson patient stage 4

[@1955JAFO]

Excellent vid!!

[@MichaelVanderpool]

Curiously, whats number 232?

[@sorayab269]

It is nice when someone shares videos like this and we can have a Vision how it really works . I have a question , which device is the best and the name of the providers. Are they complicated ? How long does it works ? Do I need to have an operation to change it when the bateries are not working any more. Thank for the help.

[@kenmiller9047]

My surgery was in November of 2009. The hardware was by Medtronics...an Activa PC model. The impulse generators have lasted an average of 2.2 years each. My fourth one was implanted in September 2017. Yes you will need to be sedated and it's an out-patient procedure that takes about 30 minutes. Thanks for your questions

[@winduhernowo5890]

Will this DBS could help post strokesurvivor ?

[@sarwarimustafa3367]

Iam 32 and I have parkinson. I dont know how proggressive it will be and when will I need such stimulator in my brain

[@april13kid]

I'm not certain if DBS would work for paralysis. My neurologist (movement disorder specialist) is Dr. Helen Bronte-Stewart at Stanford Medical Center. I will see her again in October. Would you like me to ask her about it? Kenny

[@april13kid]

@COLmegoCOLma -wouldn't that be amazing it something like DBS were eventually to be used for treatment of ALS, etc!! My best friend died of ALS @ 45 yrs of age, and my mother-in-law of ALS @ 57. a horrendous disease.

[@garymoore3159]

It's now 2021. How are you doing? Has the device been able to keep pace with the advance of the disease? I am hoping to get DBS before Park destroys me.

[@vids4review105]

Gary... For the most part it has kept up. I can't talk worth beans and my balance is slowly decreasing, but IT?S STILL BETTER than what it would have been if I never had it. I had 4 battery replacements until the last one which was two years ago. I switched from Medtronics to Boston Scientific rechargeable and very glad I did.

[@garymoore3159]

@@vids4review105 Thank you for your candid reply. The doctor is still mulling over doing a HIFU (lobotomy) or the DBS. I am open to either as that will be progress. I take note of your preference for the Boston device. Be well, my friend!

[@winduhernowo5890]

I got a stroke attack 11 years ago. and made me paralysis on my left hand and leg. Would it be possible this surgery help me ?,by the way I am 55 by now

[@april13kid]

don't know if it's courage or foolishness!! I don't do it often, since my wife hates it when I do, plus, since my settings are pretty high, I find going from '0' to full 'on' position can give my brain kind of a jolt..... not a great feeling.

[@Fien334]

my mother underwent the same surgery almost 2 years ago. But her balance and speech has deteriorated a lot since then. She shuffles just like you do when the machine is turned off otherwise she looses her balance.

[@vemparlarammohan392]

F g to

[@april13kid]

@jok2011er --- going thru comments on my blog & wondering how your father's surgery went? hopefully, you've seen good results

[@jok2011er]

Hello , I hope to remain in excellent health, after amonth my father will undergo such surgery, I hope to return as it was, my father's age now 52 years old, 8 years of disease, Parkinson's

[@l0lkaster]

Dlaczego wyłączony został stymulator po prawej stronie i po prawej stronie zaczęły się drżenia?

[@april13kid]

Dorota Kozyrska Dorota, I have only one stimulator that feeds both the left and right brain. There is a stereo wire going up my neck the splits into two separate wires near the top of my head before entering the brain.

[@jeanniegeiser9676]

My husband had this surgery in Philadelphia. He has early onset Parkinsons for 16 years. Sorry to say, it was the worst decision that we ever made! He is like a stranger to me now! Very bad!

[@april13kid]

+Jeannie Geiser : We're sorry that your husband has not had the results you expected. That has got to be discouraging. If we were able to sit down with the two of you, there would be a list of questions we'd ask to try to get a sense of what direction we could give to be encouraging. If you'd like to chat via email, please feel free to connect with us: [e-mail] -- Ken & Beckie Miller --- ps: we grew up in SE PA and know Philly fairly well.

[@jackjohn189]

+Jeannie Geiser Could you describe what happened wrong? In what way is he a stranger to you?

[@justarandomchannelname6583]

+Jack John I second that I am curious to hear that story

[@georgevouranis4618]

HI APRIL13KID i saw both your videos and i must say that you are doing very well. I had the dbs in march 2015 in chicago and a year later still i can not walk and also it affect my speach--- when i turn my dbs off my speach comes back

[@Fien334]

my mother has the same problem her speech went downhill very fast after she got the surgery.

[@PaardjenNoot4]

@@Fien334 ​ @George Vouranis Hi hope you are doing well George, same for your mother Fien. Can I ask you how it's been since then?

[@laliarboleda711]

2023 how are you now. Please let me know.

[@april13kid]

use the address in my description for a three year update...

[@april13kid]

Hi Ari --- thanks for your comments. I'm sorry that at your young age you are having to deal with such a huge issue as dystonia. I can really only comment about how DBS helps with Parkinsons related problems, but I belong to a yahoo group for DBS, and there are a number of members who have/are struggling with dystonia and some have had the DBS surgery for it. See: health.groups.yahoo.com/group/DBSsurgery/ (see next comment)

[@mychannel594]

I think you need to "optimize" the placement of your furniture. Your couch is blocking the cabinet - how do you open it?

[@haileyleach9839]

Yeah, me too I have one of those shots sucks because I can’t be in a normal classroom of people because I don’t know lol move don’t know who Mr. having a deep brain stimulation as soon as it came on it, change my life the moment to great

[@mayaybailey4822]

Hi! Are you still feeling good with your DBS?

[@harbindersinghbhavra4691]

Yes I'm feeling well but my speed is slow

[@Anubhavtech01]

What is the cost of dbs

[@l0lkaster]

Prawy stymulator działa na lewą część ciała a lewy na prawą.. Mam męża ze stymulatorem, owszem działa to dobrze, dziękujemy za to bogu, ale ... ale nie do końca jest to tak jak by się chciało...

[@sweiland75]

"Thank God." You should thank your surgeon.

[@michaelfarmhand]

sweiland75 Your comment disrespects this man. Nothing to say he didn’t thank his surgeon; thank God is also a proper response especially if you are deep thinking - besides it’s his video, his choice, not yours.

[@azthundercloud]

i refer to it like sticking my tongue on a 9 volt battery. but hey the surgery works.

[@ario-5925]

Holy shit...

[@danishlady1721]

❤❤

[@jamesh3837]

For whom is this procedure not a solution?

[@greyeyed123]

If the best results a Parkinson's patient has on medication is poor, the stimulator will not improve symptoms beyond that result (if the patient has any periods of the medication working well during a typical day, the stimulator is supposed to get you to that result all the time). It's also generally not recommended until the fluctuations with medication are disruptive to everyday living, as there are risks (although low). Neurologists also have to do tests to be certain to rule out other conditions like Multiple Systems Atrophy, which can look very much like Parkinson's. (DBS does not work for MSA, and will make the patient much worse.) My mom is getting her final consultation appointment for DBS on Tuesday, and we are told the procedure might be scheduled as soon as two weeks later. I've read that they may not turn it on for a few weeks after that, but that info might be out of date. I guess we'll find out Tuesday.

[@Levani022]

💖✊🏼💖

[@LavaCreeperPeople]

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