Orthostatic Intolerance Part 1: Diagnosis

[@KittenCasserole]

Great presentation, thanks for sharing ❤️

[@solar979]

My daughter has severe ME/CFS and Dysautonomia. She can't even sit. What is strange she can't watch videos and movies at all. Not for a second.

[@CG_Hali]

Good recap. One of the worse thing about ME right now (and these past two years) has been the dysautonomia. Not even the fatigue or pain. I wonder if there is more data about the link with perimenopause as well. I noticed my symptoms have been getting much worse leading up to my periods since age 41 last year, and for a week instead of 3 days. Very little info about it.

[@FionaEm]

I agree. Considering that most ME patients are women, it's ridiculous that there are not more studies on how our ME symptoms and severity change over the lifespan. A reflection of the overall lack of research funding for this awful disease, methinks.

[@beckyscreativespooniebeehive]

I agree there is some sort of relation between ME/CFS, dysautonomia, and menopause. For me, Menopause started at age 44, (I just turned 46), just 7 months after my ME/CFS and 4 months after my Orthostatic hypotension started (after having had perimenopause for a long time (after I had a large cyst and one ovary removed), and minor symptoms of the OI and ME/CFS for abt 2 years prior to onset.

[@FionaEm]

Great summary; thank you. Another good video to recommend to my GP 🙂

[@susantisdell1725]

Dysautonomia is something i thought I had but no diagnosis yet. I have fallen so many times since 1994. I sold my house with steps. i hurt my neck earlier here in August. Now I have weak hands and arms from neck injury.

[@barbararosenstreich6489]

Can't get any volume

[@MattHering]

i did this test as i have fasciculations, and since summer after a bronchitis what took me like 2 month to recover except caughing .. i feel sometimes dizziness and cold feelings like a re infection after sports... i have laying down a HR between 50-70... and standing 90-105 ... but no heavy symptoms... and does anxiety cause this disfunction of autonomus nervous system?

[@batemanhornecenter]

Thank you for your comment. We recommend watching part two to have your questions answered.

[@mariawallstrom4731]

Astrocytic pH regulator (SLC4a4 genevariants) New research. Ehlersdanlos syndromes BBB, stroke etc,....

[@Mark-pm4mi]

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