Orthostatic Intolerance Part 1: Diagnosis

May 31, 2022
Bateman Horne Center has partnered with the University of Utah Health to conduct a Long COVID and Post-Viral Syndromes ECHO (Project ECHO). This series delivers information to healthcare professionals utilizing short didactics and case-based learning to enhance their ability to manage patients with long COVID, ME/CFS, FM, and related comorbid conditions.
Brayden Yellman, MD, addresses the assessment of orthostatic intolerance (OI) syndromes:
- OI syndromes and physiologic happenings
- Patient presentation
- Triggers
- Assessment tools and testing
- Hours of Upright Activity (HUA)
- Cognitive impact (testing results, research, ways to assess)
Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen.
Bateman Horne Center’s involvement in this program is made possible with the additional support of the Open Medicine Foundation.

[@sarahturnbull7610]

I have OCHOS, orthostatic cerebral hypoperfusion syndrome, as described by Dr Peter Novak. It’s important to note, as described in this lecture, that you can have a drop in cerebral blood flow when upright even while your heart rate and blood pressure are normal. Many doctors are not aware of this.

[@KittenCasserole]

Great presentation, thanks for sharing ❤️

[@solar979]

My daughter has severe ME/CFS and Dysautonomia. She can't even sit. What is strange she can't watch videos and movies at all. Not for a second.

[@FionaEm]

Great summary; thank you. Another good video to recommend to my GP 🙂

[@CG_Hali]

Good recap. One of the worse thing about ME right now (and these past two years) has been the dysautonomia. Not even the fatigue or pain. I wonder if there is more data about the link with perimenopause as well. I noticed my symptoms have been getting much worse leading up to my periods since age 41 last year, and for a week instead of 3 days. Very little info about it.

[@FionaEm]

I agree. Considering that most ME patients are women, it's ridiculous that there are not more studies on how our ME symptoms and severity change over the lifespan. A reflection of the overall lack of research funding for this awful disease, methinks.

[@beckyscreativespooniebeehive]

I agree there is some sort of relation between ME/CFS, dysautonomia, and menopause. For me, Menopause started at age 44, (I just turned 46), just 7 months after my ME/CFS and 4 months after my Orthostatic hypotension started (after having had perimenopause for a long time (after I had a large cyst and one ovary removed), and minor symptoms of the OI and ME/CFS for abt 2 years prior to onset.

[@susantisdell1725]

Dysautonomia is something i thought I had but no diagnosis yet. I have fallen so many times since 1994. I sold my house with steps. i hurt my neck earlier here in August. Now I have weak hands and arms from neck injury.

[@barbararosenstreich6489]

Can't get any volume

[@Mark-pm4mi]

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