OUR BIGGEST SECRET IS OUT….‼️ Chapter 1: WTF is a chronic illness?!!! 😱

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ALT BLK ERA

ALT BLK ERA

Күн бұрын

Пікірлер: 15
@yaghulargh2375
@yaghulargh2375 Ай бұрын
Obviously, this disability doesn't prevent you from producing great music. Thank you for sharing. Sending love and support from Switzerland ❤
@ALTBLKERA
@ALTBLKERA Ай бұрын
I won’t ever let it stop us from creating 🫶🏿 can’t wait for you to hear our debut album ‼️
@yaghulargh2375
@yaghulargh2375 Ай бұрын
​@@ALTBLKERACan't wait either. I've already pre-ordered the vinyl version
@bungledinho
@bungledinho 27 күн бұрын
oh I feel this so much. I was doing phase 1 training but kept getting struck down by crippling stomach pains. ... skipping forward, discharged myself after the compulsory 30 days, went to a civvy docs and turned out I have colitis. (Also told the reason they wouldn't diagnose me was because it would have been a medical discharge and they'd have had to give me the pension... in full) Anyway... I've been mocked at some old work places for needing to go toilet and told I don't have any issue/disability etc it's just in my head. I've also lost "friends" because I have to be really carful where/what I ate. If we were going out, I'd need to know where so I could plan ahead. They stopped inviting me to nights out because "i was too much hassle". We don't need those ppl in our lives, if anyone thinks making adjustments is too much, then they're not your friend really.
@barefoothippyrabbit
@barefoothippyrabbit Ай бұрын
Thank you for opening up about this ❤ I have ME/CFS too, since I was 17 so I know how hard it is to see people your own age out doing stuff while you're stuck in bed. I'm glad you're doing well enough to be able to do Alt Blk Era things; I love the new song and can't wait till the album is out! ❤🎉❤
@ALTBLKERA
@ALTBLKERA Ай бұрын
Thank you so much for sharing this ✨ really happy to be making music that connects with others like me xoxo
@sarkydubz
@sarkydubz Ай бұрын
Thank you for sharing & great to see you smashing it. We were hooked from your tiktok vids. Navigating hidden illness & disability is such a mine field in itself, so having a good support network & feeling empowered to ask for adjustments makes a huge difference. Let's hope more venues (& artists) start taking action to be more inclusive.
@ALTBLKERA
@ALTBLKERA Ай бұрын
Ahhh thank you so much! & absolutely! Things need to change ✨🫀
@the_dingo_show
@the_dingo_show Ай бұрын
It is so great to get a diagnosis while you're still young. Now you can plan for the future and build support networks that help you achieve as much as you are able to with the spoons (spoon theory) at your disposal. Thanks for sharing and remember to always take care of each other.
@ALTBLKERA
@ALTBLKERA Ай бұрын
Absolutely
@Dracula4d
@Dracula4d Ай бұрын
love you guys over here in the US! So i guess if you were a Pokemon you'd be a Komala!
@ALTBLKERA
@ALTBLKERA Ай бұрын
Would love to do some US shows! 🤩 keep ur eyes open over the next few years 😭🖤
@domy6827
@domy6827 Ай бұрын
so real
@ALTBLKERA
@ALTBLKERA Ай бұрын
Thank you for listening
@horizonblack
@horizonblack 10 күн бұрын
How bizarre. We have the same diagnosis. You didn't happen to get it right after Covid, did you? I did.
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