Our Sons Diagnosis... Diagnosed with Spina Bifida at 18 Weeks | Levi's Journey

[@briannahefner5028]

I was born with a tethered spinal cord( sister to spina bifida and cebral palsy) had surgery at 3 months old to correct it and have been great ever since don't let anything discourage y'all..

[@annar9131]

I have spina bifida too and the dr told my parents that I would never walk either. They started me in physical therapy very young and now I walk with leg braces and live a very normal life with a few modifications that fit my situation. It has never stopped me from doing anything I set my mind too I have no doubts your baby boy will be the same way! Keep your head up mama you got this! Let yourself feel all the feels that you need and like you said take it one day at a time! Y’all are already such great parents and he’s a lucky boy! ❤️

[@MamaKay7]

Girl God is good, he does the impossible. He does miracles just to show people he is who he says he is!! Praying hard for y’all, you got this mama.

[@leahnicole2789]

We love you, God wouldn’t put you through something he didn’t believe you couldn’t handle. Sending my prayers mama❤️

[@christianmanning16]

Amen girl, well said! 💕

[@jeneciarichard1541]

I have a family member who’s baby was born with spina bifida. They did the surgery while he was in the womb, and although he’s had some complications since birth he is doing GREAT, and living a happy little baby life. You guys will get through this, I will continue to pray for you guys. Already the best mama. ❤️

[@morganpringer9866]

You said later on, “I guess you could call me a mom.” & regardless of how far a long you are/make it, you’ve been a mom. I hope you know that. You have and always will be a mom, since you got that positive pregnancy test. Praying for you.

[@chelsearice8695]

My 3 year old daughter has Chiari Malformation and tethered spinal cord. She’s had 2 brain surgeries and 2 spine surgeries. I know how overwhelming and scary things can be. We were constantly told all the things she wouldn’t be able to accomplish but she has beat so many odds and has proved many doctors wrong. Keep the faith! Stay positive and strong for yourself and baby Levi! Sending so many prayers your way❤️

[@kyleee8]

*I know several people who live VERY FULL lives with SB. Don’t ever let anyone make you feel like Levi is a “lost cause” or going to live a terrible life. Do what’s best for you. Everything is going to be okay; you got this mama.* 💕

[@chanelgerena6146]

Orlando Health Arnold Palmer Hospital for Children offers an amazing procedure where they treat Spina Bifida while the baby is still in the womb. Celeste (A Children’s Miracle Network, Miracle Child) had this procedure and is now the most active and adorable little girl. 🥰 Know that there is light at the end of the tunnel and you have so much love and support from the community around you. 💕

[@theatesfamily]

You will give that baby the best life any child could ever ask for. Just by you loving that baby and being the best mom and showing him and teaching him you will be doing the best for him. You and Noah will be the best parents ever!!! I’m balling just watching this. I couldn’t even imagine having my first baby and then the doctors saying there seeing early signs of spinal bifida I’d lose it because I’m also not knowledgeable about spinal bifida either, honestly I’m pretty sure no one is when there having there first child let alone a second child. Keep your head up for your little man! You can do it😘😘😘😘

[@Audreynpena]

There is another KZbinr who has shown the journey through all of this! Praying for you and the family. ❤️

[@Macnastyyyy]

Praying for you and your family 💛🙏🏼💛🙏🏼💛🙏🏼💛love you guys. God planned this all before you were even born. There is purpose and glory in this season and the next. He goes before you and comes back and stands beside you in all the steps. Hold on to faith ✝️

[@breerush9087]

Before I finish the video I just had to comment. Mind you I LOVE your videos and have been with you since the very beginning! I just wanted to say that I know times are super hard right now, to hear of such news that you never imagined hearing in your life. Those hard times are going to pass. After the rain fall, there’s always a rainbow on the other side. You are an amazing person from what I see on your channel, an amazing fiancé, and you will be an EVEN more amazing mother. Motherhood is apart of your life and will be the savior to your life. Baby Levi is strong just like his parents and I’m POSITIVE there will be a rainbow on Levi’s side.🌈🤍 I can’t wait to see more content!

[@kenziemariiee]

I have spina bifida occulta and let me tell you, that some doctors are so wrong, because I’m alive and healthy and can walk, but I know every child/person is different but your little boy will get through it because he’s so strong, go Levi go! You got this little dude! 💪

[@brifoust4736]

You got this babe! Baby boy is strong and he will get through this. Stay positive, pray, and have faith which is easier said than done. We love y’all and will support y’all no matter what!

[@ilovehorses1152]

My cousin was born with spina bifida, he is currently 26 and lives a great life. With some modifications he is able to live independently with support from friends/family. Prayers to you and your family as you seek guidance from others and learn more on this new journey. Keep the faith, you’re going to be wonderful parents!

[@kilalassiter8231]

Jaiden, don’t listen to any of them. Keep your prayer. Do what your heart tells you, I know you’ll do great. You and you’re family are in my heart. ❤️

[@sammygentry9301]

Praying for you and Levi, leave it up to God, he has you in the palm of his hands. 🖤

[@allisonhyder3454]

Y’all are so strong! Praying for your family! One day at a time! ❤️

[@makenzie1182]

I’m a first time mom as well. Currently 17 weeks. I know this has to be such a nerve wracking time for you and your fiancé. Like you said, first time parents have enough to worry about. Praying for your family and you as well. 💗

[@toriduke5119]

I have a cousin who was born with spina bifida and she’s the most precious thing and living her best life! Keep your head up mamas, I’m praying for your & your family ❤️

[@jordanmack3186]

highly recommend following Lexie Thiery. she has a son with Spina Bifida and she’s extremely uplifting and knowledgeable as a momma. She had that surgery you spoke about. ❤️ praying for you and baby ✨❤️

[@marissaderamo1656]

I was just going to say that! Her baby is walking now with spina bifidia!

[@Shantellg2012]

Definitely follow her channel and watch her videos on her pregnancy and her son. She had the same exact surgery you did and her son is completely walking and hitting all milestones so don’t believe what these doctors tell you.

[@lillyhenson9378]

we love you jaiden!! stay strong for him, youre going to be a great mama 💗

[@theangeldanielle]

Hi Jaiden, I am new here but just wanted to say you are so strong and I know Levi is too. I’ve been watching your IG stories and praying you and Levi through this! Thank you for sharing your story!

[@lexihoward5888]

I was born with chairi malformation and had brain surgery and doing pretty good. Anytime you have surgery you’re never 100% however you are better than what you were before. Having surgery that deals with Neuro or cardio is always overwhelming however diagnosis can be beaten. Embrace these moments and the experience of being pregnant. It’s tough right now but you’re doing a great job and always remind yourself it’s nothing that you did. Just keep your faith and head held high and everything will be all right. love you guys.

[@alyssamancuso6635]

Praying for a safe surgery with Levi and delivery when you have him as well ! Praying for you family extra in your time of need

[@delaniealyse3662]

I’m so sorry the tech at your anatomy scan over stepped her boundaries. When I found out I was going to have my second miscarriage, I was looking at the screen and just knew. But the tech was just so excited to tell me and said “yup looks like another miscarriage”. I feel like in this field they so numb to somethings and just don’t think before opening their mouths sadly 🤦‍♀️ my heart is with you , your whole family and most of all, Levi. Regardless of what he has, he will be LOVED and that’s all that matters! Also, I’m 36 weeks and also have an anterior placenta 🙁

[@alyssareadd]

Praying for you guys ! Baby boy is going to beat everything they are saying !! I love how the ultrasound tech was so reassuring to you

[@kayleemuncy]

Oh mama I am so sorry. You’re so strong I am praying everyday for you and your family! Baby Levi has the best mama and dada head up and know God knows and he knows you can handle this! ❤️ Don’t listen to the people telling you to terminate him he is your baby and he will be one strong baby boy! You’re amazing sending so so much love and prayers ❤️❤️❤️

[@brookc.5610]

Prayers you and baby Levi get approved for this surgery🙏 I will continue to pray for you all❤️

[@ashleyrenee8570]

Praying for you all god bless you and your little family

[@Iluvharrystylesful]

Praying for you and your family!! ❤️❤️

[@patillokhadijah5653]

Praying for your sweet baby boy and your family! 💙

[@guiltypleasure5176]

I'm so proud of you for taking it day by day. Truly, the future is unknown, as much as you could be worried that it might go badly, remind yourself that it could just as well go really well. I'm keeping you and baby Levi in my prayers. You'll get through this babe ❤❤🌞

[@jennamichelle2075]

Praying for you and your family💖

[@NiyaLeshea]

Continue to be strong and call on God for peace and healing! He is the beginner and finisher of all things and has the final say for you and your family. Sending you prayers and love 🤍🤍

[@lexiloochkartt288]

You and Noah are so strong! Thank you for sharing this with us; you will be receiving so many prayers. Taking it day by day is the best advice because that is what I live by. We are here for you. And you’re right everything happens for a reason. I love you & will continue to pray for you and your family. 💕 stay strong, God’s got you…

[@mayraguerrero909]

We love you. We’re right behind you girl. Through this whole journey we’re here for you and Levi 💙

[@karawatersss]

Prayers for you, Levi, Noah and your family!🤍 🤍🤍

[@callieprueher]

Praying for little Levi💙💙💙 and you guys!!!!!

[@taylorwilkerson9864]

I'm so sorry you guys are going through this. I'm praying for all of you. 🙏🏻❤️

[@sketchyarttimeswithskye3320]

I have faith that everything will be new mama. Just keep your head up and loving your man and that precious little pumpkin of yours ❤️. I'll keep praying for you and can't wait for the day you bring that baby into the world. I am so excited for you guys

[@clarissawalker8061]

Praying so hard ♥️

[@meganlewis2101]

thank you for sharing your story with us ❤️

[@kaelamartinez2317]

Praying for your family ❤️

[@celoriscemone5771]

Nothing but prayers for your family and extra for baby Levi💙💙💙

[@ashleybreval]

Jaiden you are such a strong mother, baby Levi is blessed! I’m in a course about adapted sports and we covered spina bifida and how sports really helps individuals with this condition. Keep your head up love, your child is going to grow beautiful and strong enjoy your motherhood and don’t let these people push termination on you

[@jasminemarie8216]

Keep your head up mama and daddy💕 you are both so strong and baby boy is too! One day at a time love! You’ve got this!

[@emarierain7331]

Can’t imagine what you all are going through, prayers for baby Levi 💛

[@maribethgifford]

My cousin was born with spina bifida! He is currently 25 and walks just with a walker! I don’t believe they did any surgeries at birth/womb since they didn’t really do that back then💛

[@llayceecrandall9763]

Prayers going up for baby Levi and you all 🙏🏻♥️

[@heatherroberts1756]

You got this girl❤️ sending so much prayers your way

[@cclary11]

Praying so hard for you guys! You guys are so strong and Levi is so blessed to have you both as parents! Keep fighting for your baby boy ♥️

[@cheyannee.s]

praying for you, noah and family. your such a good mama, you got this all the way 💞.

[@tykearaburden5248]

My 21st bday is may 11, I hope that day brings you relief and joy !!

[@shanyahamaamin973]

I will be praying for you, trust god always and say your prayers. You are amazing, and super strong! Hopefully everything goes well, and baby and you will be healthy, happy and strong. God bless you guys!! ❤️❤️

[@eli223_]

my brother had spina bifida and they said he’d never walk or have the ability to care for himself. he’s 26 years old and has had a completely normal life

[@madisontrice8067]

We love you and baby Levi!! Sending my prayers 🤍

[@ChalaPerry0616]

Praying for you and your little family 💕

[@kayleighvalko6222]

I gave birth to my son at Winnie Palmer and they are absolutely amazing. Sending prayers to you and your family ♥️♥️

[@S.E.V.E.N.2005]

jaiden i’ll make sure to keep him in my prayers love y’all ❤️

[@courtneycierra7351]

Praying for you and your family girl 🤍

[@hannahrose5692]

Constant prayers for you guys!! Little Levi is strong like his momma!!💗 i aplaude you for sharing your journey I’m sure it’s not easy but you have so many people behind you praying for you guys! Love you Jai!❤️❤️

[@stephanieprada6336]

Praying for you and your baby boy 💛

[@ashlynnalbrecht635]

I can’t imagine what your going through but god only puts you through things that he knows you can handle your the best little mommy already don’t let other people get to you it’s your baby your experience your choice for everything you got this mommy

[@Tara-xq9ty]

Sending love and prayers towards the two of you always!

[@adriannagage6103]

Please look up Lexie Thiery here on youtube. her son has spina bifida also and they did the surgery before he was born. he’s now a thriving 2 year old boy and can walk! don’t give up hope 🥰

[@kaylah3547]

I haven’t seen your videos in so long! Lucky for me I get to binge and catch up! I just love your outlook on life and your channel. God bless you and baby and everyone connected to your journey! Xo

[@JessicaHeartsMakeup]

I’m not trying to say your doctor is wrong, but your baby still isn’t born yet. You’ll for sure know if your baby is healthy once it’s born. Have faith everything will be okay💜

[@ceilybassham2865]

That’s the thing doctors don’t know anything. My son was born with bilateral clubfoot and they said he most likely has an underlining issue like Down syndrome, spina bifida and other things that could be causing it but those were the 2 that stuck out to me mind you I was alone when I found all this out because of Covid. And when you say the worst day of your life I literally felt that. My son was born completely normal just with his clubfoot and everyone was surprised. They just knew something else was causing it. I know how you are feeling 100% and yea I was told about termination and things but no I loved my son so much then I couldn’t have imagined my life without him.

[@alexisramos7972]

Stay strong for baby Levi momma❤️

[@queenwayyz]

Might not be the same issue but I feel like you need to know and see this. I got pregnant at the age of 16 with my son. During one they found something and I instantly felt like I was in a black room. My son has septio optic dysplasia. Kids with that it’s a low rate of survival. He was born with half a brain and the other part that was missing was nothing but fluid in that missing spot. I got told to plan a funeral. Doctors after doctors not one had a positive thought that he’d be here. I picked out literally everything. Flowers, casket etc. He was only supposed to be here for 2 hours & would be deaf and blind. 2 hours… his birth was the scariest part ever. I gave it to God. I told God that without him I couldn’t make life. I couldn’t be without my son. My son is now 5 just turned 5. Don’t believe everything a doctor tells you. God is bigger than them and god has this. God has your whole family. Yes it’s scary, but with god on your side I believe everything will be alright. Love you and praying for your family boo 🤍💙

[@savannamichelle7207]

Sending you and your family all the prayers mama. 🤍

[@sammyg2808]

Love the pink work outfit on you! 💗

[@santinastaydohar1062]

Sending love & prayers to you & your family 💖🙏🏼

[@brittanygrady4404]

another mama on here named Lexie Theiry has a SWEET BABY BOY who has the same diagnosis .. HE HAS PROVED ABSOLUTELY EVERY DOCTOR WRONG!!!

[@ofoskuhl]

praying for your family & baby boy💙

[@AverageMomBruh]

Sending love and prayers 💕

[@macielynd2196]

Praying for you guys love❤️

[@meganvann3169]

stay strong momma ❤️

[@jordynclaassen8288]

Girl !!! I had a 94% chance of spina bifida and i was born 100%🥺🙏🏼 keep praying !!

[@kaciechamberlain4876]

Your get through this everything will be okay, thinking of you n Noah n Levi xx

[@laurahertweck9859]

I another KZbin/influenceee Lexi Thiery went through this, might want to see if you can reach out! Prays for you! ❤️

[@hannahwilliams8773]

Prayers!

[@caddyberrier7512]

Prayers for you all🙏💖

[@AS-go5cx]

Sending love to you & your family. 🤎

[@jordanrooks1214]

Speaking from family in Orland the best dr for spina bifida is at Tampa General hospital

[@daniellekramer93]

I have Spina Bifida and was told I’d never walk or talk and am walking with no braces. I’m 30 so the surgery in womb wasn’t around yet

[@amandalines530]

Wow "termination" killing your baby because he has an birth defect. I bet that felt awful to hear. I'm so glad you didn't choose that option. You said it "im a human being carrying a human being!"

[@yulianamorron6535]

Psalm 77:14 🙏🏼❤️

[@kayleenichelle5122]

Check out Lexie Theiry & their story. So many prayers for you & your family. 💙

[@jordanrooks1214]

I have family that has it❤❤ it will be okay.. there is different severities of having spina bifida.. my cousin has had alot of surgeries due to spina bifida..

[@marydey231]

🙏🏻💕😊

[@melodievandyke2930]

🙏

[@tylerallyn2404]

Jaibae, I have Spina Bifida🙏

[@noahdetrick2798]

Where was your lesion at if you know? His is starting at L2 and opening at L3

[@tylerallyn2404]

@@noahdetrick2798 L5 S1 , so I am able to walk on my own, I'm not in a wheelchair

[@victoria33333]

Look up Leigha in XOMG pop!!! (Joke si was band) she’s a full on dancer and popstar who has spina bifida!

[@jennifercochran4608]

❤️

[@marydey231]

I have that

[@jordanrooks1214]

They sometimes can walk and sometimes they can't.. but that's with any baby.. same with feeding tubes.. and breathing tubes..

[@mjhill72]

God bless you!! In these times when people are harrassing outside the homes of supreme court justices for overturning Roe vs Wade (which will not end abortion, it will just turn it over to the states to make their own laws) you are sacrificing yourself for the life of your child. MOM OF THE YEAR TO YOU! Btw, love your cats, especially the white & orange who reminds me of my poor old sweet wise Patches. Prayers to you and baby.