How Nellie's Eyes Are Doing Now

[@OurLANDingCrew8]

Our easter videos (what I got my kids) will be posted on the lifestyle channel here 👉kzbin.info

[@angieharris7960]

Thank you for making your videos real one cousin

[@brandyledford4866]

I have been following your channel now for a very long time and I’ve got to tell you you are an inspiration to me. I am legally blind myself. My husband is almost totally blind. He had an allergic reaction at 10 years old to a medication which caused him to lose his eyesight and I was just born this way. We have five children between us. All of them are grown and out of the house now except for one. I tell you that to say that it doesn’t matter if you can see or if you can’t. You can lead a very very normal life provided you have all of the services and training that you need in order to help you do so. You are an exceptionally strong woman and I applaud you. You are an inspiration to me like I said and I can tell you love your kids. Keep it up mama.

[@OurLANDingCrew8]

Thank you so much Brandy ❤️❤️❤️

[@Wildernessadventuresoz]

I can imagine how scary vision issues can be. So much emotion tied into vision

[@jaynedavis4712]

You deserve the praise you get Lonnie. Between Lonnie’s vlogs & Stephanie’s sit downs, this channel is always good to watch. Noah is adorable & I think the move was a brilliant idea because all the kids are coming along in leaps & bounds

[@debbiebousquet5677]

Nelly is adorable. It dont matter what is wrong with her... She's beautiful... And i think u guys r doing what ur supposed too.. Keep being good parents...

[@sharlie-kaybarlow6933]

It’s nice to see both of you together trying to raise your family. You are always in my prayers. And sweet Noah can’t wait to see what you do. Have fun

[@carolmilligan5653]

Praying that Penelope's eyes can be improved. Stay save in that storm guys.

[@rebeccaordonez2290]

That was so sweet what you said Noah said about you knowing how autism mom and dad's feel helping them out on your channel. All your kids are precious.

[@JSBecc]

Aww, look at that sweet baby girl cuddling. I’m sorry that Penelope is struggling with her vision, bless her heart! What Noah said was precious. Yes, I am loving the vlogs very much! I’m jealous of the snow, btw. 😉

[@Gingersnap-uv9rg]

Yes my arm hurt so badly as well. Please keep us updated on how u feel after ur second shot. Mine is coming up in couple weeks. I hope yall make long vlogs about the storm. Can't wait. Yall will be all cozy in ur house :)

[@niamhnir]

I have heard from family and friends who are nurses (different country so different system) of flu like symptoms but only lasted a max 48 hours, difficult as everyone can react differently but from what I gather allow for 48 hours after

[@debbielopez6593]

Penelope is just so precious. Hope you are feeling better. Lonnie is doing a great job vlogging.

[@minhchaunguyen2853]

Nelly is adorable, I hope her vision will improve in the near future. I love “day in a life” vlogs! and Lonnie is hilarious btw. It’s nice to see you guys upload daily.

[@carriebowlen3785]

I love being a member of your LANDing Crew!! Good Job Lonnie your doing great.

[@Alisha_79]

Penelope is adorable!! The wait and see is worst. Noah is so sweet ❤❤

[@lithottamera6089]

Omg Lonnie looking at things while the nurses wasn't in the room. I was laughing. Stephanie you poor thing, you have a comedian. You are a strong woman. You are doing a great job. Lonnie is too. Great video.

[@OurLANDingCrew8]

Yes, I sure do!

[@xohope4]

@@OurLANDingCrew8 You were already a superhero to me... until Lonnie appeared on video... then that status increased even more! It would be a stupid to have you do a video or stream where you talk about how you tolerate his antics but I really want to know 😂

[@OurLANDingCrew8]

@@xohope4 I ignore him a lot. LOL

[@beetee4865]

That's great that Noah understands! It's good that they (and you guys) are so on Nellie's eye issues.

[@shanadang364]

I totally understand. I’m legally blind, we are all in this together. Hope she is well and you are all well as always. Best wishes.

[@kyleaperrott]

Omgsh when Nellie crawled up on your lap and was smiling 😭😭😭😭😭

[@alexandrar8109]

It causes so much uncertainty that there isn’t more that could be done medically. I was born with similar situation. It breaks my heart that they still haven’t figured this out. Praying for your little one to get the help she needs and for all the children. But know something for certain. She is stronger than you think and everything falls into its place. you are doing a great job as parents to get her the care that she needs. 💖

[@jessicakatz9278]

I got my second dose of the vaccine Wednesday and Wednesday night and Thursday I was sooo sick. Chills, muscle cramps, throbbing headache and tiredness. I am just like you. I don’t go to bed early but was in bed all day and by 8 at night. Still currently exhausted 2 days later. Penelope is just the sweetest and cutest little thing!

[@lyndsey4655]

Noah is such a sweetheart. You have a beautiful family 😊

[@dayshasquad7153]

I hope her eyes get better and soon she will be able to see really good i will be keeping your beautiful family and my prayers lots of love 💘 ❤ 💜 💕

[@hollymcknight8581]

Thank you for explaining the difference between legal blindness and total blindness and how rare total wine was actually is. I spend more time doing that, because I do identify as a blind person, but I do have some vision. Sometimes it’s just easier to call a spade a spade. Glad you have talked to people and will be able to get her a functional vision assessment soon.

[@donna9227]

Lonnie is doing such a great job I enjoy watching him as well as you steph y’all make a great team ❤️

[@12345tlynne]

Toddler eyes can be so frustrating! We tried patching for youngest, and he couldn't tolerate it. His eyes are often "stuck" looking outward due to CP (officially called bilateral exotropia) and he prefers to use peripheral vision for everything. He wore glasses every waking hour from infancy to age 5. PreK and the beginning of Kindergarten he had vision accommodations because he couldn't see what was on the iPad (it had to be projected to a TV for him to see). We did a round of VT (vision therapy) at 4 yo, which was ok, and didn't help a lot except that it helped us understand more what he was experiencing. Then at 5 and a half, we started an online VT that IS working and has made such a difference. Hoping he continues on this route. Hang in there and keep being an awesome mom and looking for those possibilities...! I feel for you with the vaccine too. I had a 102 fever after the first one!

[@miriamkling3346]

Thank you for sharing!

[@lindawalters4098]

I am in the U.K. My son had three surgeries,first at two years then three & four to correct his eyes,they would rather “under cut”the muscles hence three surgeries.He also wears glasses & patches.Love your family

[@amyk5685]

I love watching your vlogs. Lots of prayers for Nellie’s vision. I can’t imagine xoxo 😘

[@DTJ0297]

Nellie is just the cutest littlest thing

[@Angelica3723]

Find your truth ❤️ you have a lot going on you deserve it . You have done a lot for the world and for us

[@LaurStar25]

Nelly is so precious 💗

[@NancyB35]

Girl I have a Diet Pepsi addiction too lol. The patching the eye works so well! My friend has 2 kids correct they’re eyes that way! It took a few years tho. I’m praying her vision gets better 🙏🙏

[@emmmyy61]

Penelope has the most gorgeous big blue eyes and chubby cheeks 😍 precious girl

[@natalieevans996]

Over the past few blogs. Lonnie is meant for dad life. Fyi had the same issue with the dryer The lent trap all the way to the pipe is clogged. Took us two years also to fix.

[@Ashley.Alvarez]

Lmao at Lonnie when the nurse left time to explore ! Ummm guilty!! I do the same lol

[@DifferentReader]

I’m hoping to get a functional vision exam for myself sometime in the next few months. I have a lot more difficulty seeing than the average person and my difficulty is not explained in a regular eye exam. I suspect visual processing disorder Edit: have you ever heard of Molly Burke? She’s a blind KZbinr and has a fantastic channel

[@janicemichaloski3319]

A day in the life of Noah will be great 😊

[@chrisdawson3492]

Great family stay strong

[@robylove9190]

I got my second shot Thursday. I was tired yesterday and slept off and on most of the day. I feel fine today.

[@svimmelhet]

Aww Noah is so sweet

[@doristomlin9469]

Do not apologize for having a diet coke or diet pepsi!Enjoy!you deserve it.💕😀

[@jenniferkearnes9906]

My heart goes out to you all, you all are so blessed and strong 💪🙏❤

[@helengarrett6378]

I took care of a totally blind lady. She sees nothing. But she had something training that she functioned very well. She cooked, she also had a series of dogs that really helped her. When I came into her life she was getting pretty old so she had to gave help with house cleaning and with c,other shopping. We put her outfits together in the closet so she was always well dressed and coordinated. She listened to the television, to audible books and read brain and could type brain. I did her basic bank reconciliation and helped her fill out forms. But on a day to day basis she did well on her own. She could make the bed, she could pour milk into a glass if the carton was not too heavy. She bought quarts, not half gallons. She maintained her apartment pretty well her a elf and only needed h er lp with touching things up or chasing dog h as irvfrom her seeing eye dog. She had been a teacher of other blind people and had v earned her living. She took flute v lessons. All in a ll, she was very functional, loved concerts and going out to eat. She had a full and complete life and was happy. Her biggest problem was finding seat protectors and where the toilet paper was when in a bathroom that wasn't her own. My job was to help her walk the dog so she did not have to bend over to smell for what was left behind to clean up after her pooch. I wish all dog owners were as concerned. I he,per put away her clothes so she knew what to wear together. I helped her shop for food because I could gage quality of produce and price compare. I drove her where she needed to go. Sometimes we went to concerts and plays together. I would not worry too much about Nelly because she will probably be eligible for an assistant given her problems and she we ill get along xwell as my lady did with some help. She had c a good life, as I said before.

[@marygabrelcik2385]

You guys are doing great on the videos! Steph plz keep us updated on how you're feeling after 2nd shot.

[@s.goodrich3605]

Penelope is SO DARN CUTE!

[@jenniferkearnes9906]

I really love those glasses 👓😍she is very cute 😍💕❤

[@Stormy-14-]

I love the vlogs with both of you together 👍👍👍👍👍❤️❤️❤️❤️❤️

[@bconsilio3764]

It’s called ORIENTATION AND MOBILITY. Not cane training. But I’m glad you are in contact with professionals who work with people who are visually impaired. I retired from being an Orientation and Mobility Specialist after 34+ years. She so cute! Just FYI I’ve never had a student who lost such significant vision from strabismus to need to use a cane or O&M for that matter.

[@OurLANDingCrew8]

Many in the blind community refer to it as cane training, I knew there was probably a technical term but I am definitely new to ALL of this. I actually know someone who is legally blind that her vision issues started out as strabismus and now at 19 has a cane and is in the process of getting a guide dog, of course with Nellie she has more going on than just strabismus. The only reason we want to get in touch with the blind institute is so that we can monitor her vision progress or decline and have all the correct accommodations. I definitely don't think that is something she needs right now and hopefully doesn't need in the future but IMO, it's always better to be prepared than be caught off guard!

[@bconsilio3764]

@@OurLANDingCrew8 sure! And I commented that it was a good idea! The community that you are connecting with is probably NFB based. There are 2 schools of thought/ways people ‘lean’ in the world of visual impairments. I want to remain politically correct, so I will not weigh in there. The only thing I will say is that there are strong feelings on both sides!! I wish you and your daughter all the best! Information Is Power on all sides of the debate!

[@jlcollins7673]

Omg....first couple seconds.. Same, Steph....same. Every night I say, tomorrow I am getting up earlier, taking a shower, putting on makeup and fixing my hair (for work)....and....what I mean is....Imma take a shower. Lol!!

[@bluebird7470]

Lonnie you ROCK! Nice to see you more in front of the camera.

[@kyliewatson1150]

I’m loving Lonnie vlogging 💕 fan from Australia 🇦🇺🤩

[@karenkane3220]

I am like that with Diet Coke too! Sometimes I am desperate for one in a cup, with ice and straw. And $1 at McDonalds!

[@heatherscarfo5920]

My boyfriend said do a function test my boyfriend he did one and it was super helpful and gave him many services ever at 32 he gets help cuz they did those tests when he was young

[@CasaLandego]

I recommend Movement Lesson!

[@jo-allenallen2325]

@ourlandingcrew’ you are so lucky. Where I am (Ottawa, Canada) only one person can accompany a child for appointments. Adults cannot have anyone. I am having the same surgery (adult version) in early April

[@BESTUEVERSEEN]

It's like that in some states as well! CA is still 1 parent at appointments.

[@OurLANDingCrew8]

For a long time it was only 1 parent. It changed a couple months back when our cases started going down. They're still being super strict not to bring any siblings though which makes things trickier for us!

[@alookinsideablindlife5143]

Prayers I just got Priam glasses because my eyes are crossing now too! We still don’t know why I can’t see .. I’m going to see a neurologist and a Retina specialist! Best of luck if you needed anything feel free to PM me !

[@teresafisher6732]

If u go to Lowe’s they have a box you hook dryer to with the pipe and you keep water in it and the air can just come into the room

[@Aggnshh]

The second covid vaccine was horrible.. Had 105 f fever, shivers and my body ached so bad 😢 Hope u are doing ok ❤️

[@wantstobeasuperhero6837]

I had surgery to correct my cross eyed. I was 7 years old at the time. If I didn't have the surgery my vision would have been greatly affected. The surgery was a success and no further surgeries were needed.

[@OurLANDingCrew8]

That’s what we were hoping with Nellie :/

[@lynnaandj1]

Which Vaccine did you get Stephanie?

[@Blake1720]

My son got surgery at 1 year and 6 months for strabismus.

[@AQ-nj1yf]

I get an unsweet tea from mcd almost daily. Husband says we should buy stock. Love those sunglasses 😎

[@allisonbaker6919]

I would definitely recommend you look into Molly Burke she’s a blind KZbin and she’s has a guide dog in the process of getting her 3rd guide dog. She may give you advice! Good luck!

[@OurLANDingCrew8]

Oh I've been following her since we first noticed Nellie's eye issues!

[@texadianstitcher]

I don’t think it’s always you need a soft drink, it’s more like you want fast food (preferably Del Taco). Idea: to help with the fast food runs while on the road, try buying (or put together your own...haha time needed for that) some sort of snack packs to grab as you hit the road. So those cheese, lunch meat & cheese packs. Perhaps keep crystal light packs in the van to flavor your water? Obviously if it’s a reward for a child doing well on their doctor visit that’s different.

[@OurLANDingCrew8]

I love this idea!!!

[@hayleymarse2853]

My family always does that too! We usually all pick certain snack foods we like such as ritz bitz, mixed nuts, red vines, etc and each person gets a bag to last the trip and then we have some fruit in the car for everyone. We usually buy a package of water at Costco and sometimes get fun stuff like Sunny D. When my siblings were younger, my mom would pack things like no mess coloring books and other small toys and books. Now that they are older, it’s usually just a sketch book, deck of cards, and mad libs (Most members of my family have food issues/allergies so we eat pretty healthy at home so road trips are fun food)

[@melissalouk765]

I have pigmintosa it's a eye disease

[@christinab.2864]

How do you know that a dryer pipe air goes up instead down because I live out in the county if that pipe clogs up that could cause a fire? Does anyone else know?

[@OurLANDingCrew8]

My husband climbed on the roof.

[@Claires2003]

I wear glasses I also have strabismus my right eye still drift. I have cerebral palsy

[@laibahhussain1694]

She did well

[@1Life2Live007]

I bet it’s also not AS hot during spring and summer as it is down here in Texas? Or is it?

[@OurLANDingCrew8]

It’s not. Where we live, it only hit 90-92 3 days in the summer and apparently everyone said it was a really hot summer

[@MissLady-pq4hc]

Love your crew.🙂🙂🙂💕💕💕💙👀👀

[@elzbietas3262]

oh no. my 2 yo is going with the same issue as you for the op in may :/ long days

[@jimmydean3031]

Can’t wait to see Noah’s video!

[@cristinemont]

A diet coke is so much better from a fountain machine at mc Donald's, I feel you girl 😂❤

[@justjamie17-15]

Did you get the Moderna vaccine? I got my first dose today and I’m super sleepy

[@OurLANDingCrew8]

Pfizer. I feel like crud today but not so bad I can't push through!!!

[@karenselogic7742]

If they can’t get out there right away to help with dryer. Get a snake that they use for drains and run it up through it. It will unclog the vent.

[@OurLANDingCrew8]

It’s far up. He would have to get on the roof. He already did that before

[@lyndsaywildman9377]

What is a functional vision test?

[@jessicaadams6190]

My arm absolutely killed for 4 days after

[@alexthesaintbernardlover5938]

Nelly is so cute

[@ciaralanham2896]

This is just me be paranoid, but have they done a CT scan of her brain? When my daughter was three she had started developing her eyes drifting and they referred us to an optometrist. We ended up taking her to the ER and discovered she had brain/spinal tumors. I know you're a great mom to all your kiddos and I'm not trying to tell you what to do by any means. I just heard "drifting eyes" and freaked out. I'm sure they have done one on her sometime but I just couldn't continue my day without asking lol. Love your videos and your content so much!

[@OurLANDingCrew8]

She is going to be seeing a neurologist for her tensing/shaking issue but she started to have apparent eye issues as an infant, she has low tone in her face so it makes sense but I am sure the neurologist will want to have testing done.

[@ciaralanham2896]

@@OurLANDingCrew8 I am sure her scans will come back fine, because the worst case scenario usually doesn't happen. Prayers for you and your babies daily! 💞

[@kristinmedica7229]

Hair is out there.

[@jennrussell6704]

McDonald’s has the best Diet Coke I don’t know what it is but I need one almost everyday large Diet Coke from McDonald’s

[@Dani_SB]

💜💜💜💜💜💜

[@Dragonlove3]

Hi

[@davinashaffer5822]

Lonnie, a great guy, but does he ever sit down n rest or ever get sick, seems he's always busy n go go go. Lol

[@OurLANDingCrew8]

He never gets sick 🤣

[@kyleaperrott]

Did you get the Moderna or the Pfizer?

[@barbarabriffett8727]

Am addicted to Pepsi

[@hopper98528]

McDonald’s had the best diet coke