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Meet Paul. A young man who is battling and overcoming great odds living with two rare diseases - Ehlers-Danlos Syndrome and Periodic Paralysis. Both conditions have their own set of challenges, but watch as Paul and his mom share the struggles of daily life trying to figure out which condition affects him in various and extreme ways and their journey of discovering a diagnosis. This is Part 1 or 2 of Paul's story, you can watch Part 2 here [URL to come].
#PeriodicParalysis #EDS #RareDisease
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicpa...
We'd love to hear from you. Comment below on your experience with PP or with questions about the condition.
For more information on Strongbridge Biopharma®, please visit: www.strongbrid....
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Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used.
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#PPA #paralyzed #Ehlers-Danlos #Diagnosis #GeneticTesting #ARareAdventure