I am 23 and I was diagnosed a month ago by a CT of the chest due to a 1 week cough crisis. Heaps of cysts and cavities. I feel no cough or dyspnea. I do exercises everyday and surf once a week. Been a smoker since my 16, three months clean now. I'll start chemotherapy next month. I wish I can revert this. God help me
@Histiocytosis3 жыл бұрын
Wishing you the best as you start treatment. Quitting smoking is a major step but we know it's not easy. If you'd like to connect with us, please don't hesitate to reach out to info@histio.org or call/txt +1 856-589-6606.
@oldmategio3 жыл бұрын
@@Histiocytosis i already have quitted, 3 months now
@oldmategio3 жыл бұрын
@@Histiocytosis and I'll sure will contact you guys. Thank you very much !!
@twinkeez20033 жыл бұрын
I am praying for you Giovani.
@twinkeez20038 жыл бұрын
Its really weird that my biopsies were sent to the Mayo Clinic and they could not determine what I had... It took a major surgery to diagnose me... No one in my state knows how to treat me and I need help.. Prednisone was some what helpful but not enough... Do you know of a doctor here in Oregon? I need a specialist because my oncologist is inexperienced with Adult Pulmonary LHC.
@jeffreytoughill81488 жыл бұрын
+twinkeez2003 Hello: Try contacting the clinic below. Jeff Toughill Oregon Health and Science UniversityClinic Director(s) - Matthew Drake, MD / Alan Barker, MD To schedule an appointment contact: Katherine Simons (503) 494-1620
@twinkeez20038 жыл бұрын
Thank you so MUCH!!!
@marymcleod21815 жыл бұрын
Mine was diagnosed by doing a lung scrapping
@oldmategio3 жыл бұрын
Hey...im 23 and i was diagnosed a month ago. How are you doing out there ?
@twinkeez20033 жыл бұрын
@@oldmategio Hi there. I am in remission since 2016. They used prednisone for me and it actually worked. I had over 75 nodules and they are all gone now. I hope that this helps.
@Codysmom297 жыл бұрын
I was diagnosed 37 years ago. Over the years, each time I go sick, it was blamed on many things. Now that I'm doing all work up for a lung transplant, I'm tulle that it's not emphysema but the same as when I was 18. There is a good chance it's in my brain now. I'm getting outstanding doctors at UCLA here in Los Angeles area. Good luck! P.s. My doctor said it rare, only 2500 know cases in the U.S.
@balkhulal23946 жыл бұрын
I have this too I'm only 26 years old I fell very bad
@kimcastiglione22513 жыл бұрын
I was diagnosed last year with this disease from I guess Smoking for 30 yrs ?! Why some get this while others don’t & some people smoke More then just cigarettes is unknown . I also have chrones disease which is autoimmune disorder that effects my small intestines so I wonder if this has a hand In getting this disease? None of my doctors have any answers to That . All I’ve heard after a biopsy and diagnosis is stop smoking 🚬 That’s it. Will this get worse or better ? I’m not currently on any medication for this at this time and Praying 🙏 I never have to . I hope it works & don’t spread to my brain or Bones . I don’t know Much about this God knows I have enough to deal with having chrones period & was now diagnosed with cancer of a lymph node and facing radiation ☢️.