PA Sanfilippo dad Mike Dobbyn meeting Brooklyn (NY) Sanfilippo mom Jill Wood, in June 2019.

  Рет қаралды 99

Sanfilippo Project

Sanfilippo Project

4 ай бұрын

PA-based Sanfilippo dad (to son Connor, 10 1/2 years old at the time) drove to Brooklyn one random Monday morning because he just had to meet Jill Wood - a Sanfilippo mom (to Jonah, also 10 1/2 years old at the time). What's amazing about Jill is that she started up a biotech (Phoenix Nest) to hopefully one day launch a clinical trial that might save lives, for Sanfilippo Syndrome type C. That's the type our two kids share. The odds? 1 in 1 million children are born with this specific genetic disorder each year. Sanfilippo Syndrome is likened to a childhood form of Alzheimer's. There is no cure, there are no effective treatments. But there are many incredible parents doing amazing things so far outside of their comfort zones to make something happen one day. Jill Wood is one of those human beings.

Пікірлер
Parents' first watch of a video they hope will save dying son
3:48
Cure Sanfilippo Foundation
Рет қаралды 6 М.
龟兔赛跑:好可爱的小乌龟#short #angel #clown
01:00
Super Beauty team
Рет қаралды 20 МЛН
Ozoda - Lada ( Official Music Video 2024 )
06:07
Ozoda
Рет қаралды 31 МЛН
Who’s the Real Dad Doll Squid? Can You Guess in 60 Seconds? | Roblox 3D
00:34
03 - Stories from Sobriety: Erich Donati
37:06
Racing for Recovery
Рет қаралды 815
"What do children with Sanfilippo Syndrome actually die from?"
3:07
Sanfilippo Project
Рет қаралды 136