Panhypopituitarism short video series would. 5 (finale- hobbies)

In this video, I explain how I engage in my hobbies and advocacy work depending on my energy levels each day!
This is the last video in this short series! If you have any suggestions for more content I can create for PHP awareness in the future, I would love to hear your ideas!
I’ll be having a live Q&A session right here on KZbin this Sunday at 3pm EST! :) Hope to see you there!

[@MadamGlitch]

I really enjoyed watching the series. It was very entertaining and informational :D Thank you for making them ^_^

[@dawnegan9347]

I always have low energy and fatigue. I have to push myself to get up and do something or risk getting depressed. I tell my endocrinologist but he looks at me as if I'm exaggerating.

[@MadamGlitch]

@@dawnegan9347 oh dear, that sounds horrible. You might want to get a new doctor if the current one isn't believing you.

[@dawnegan9347]

@@MadamGlitch unfortunately there is only one endocrinologist allocated to my county 😔 in order to go to another doctor further away I'd have to pay private or be referred by my current doctor. I really don't think there is much more they can do though as in on the right doses of medications according to my blood test results so.. 🤷🏻‍♀️

[@InsomniaDoodles]

Thank you so much for the feedback!

[@joshwhitney7463]

Check out hypopatutaryism stem sell treatment at the Sloan Kettering institute in New York city. They have successfully treated pituitary disease in mice with human ips cells. They are doing it in Japan as well at Riken brain institute.

[@InsomniaDoodles]

Thanks for sharing this information! My condition is due to a congenital birth defect so I'm not sure if that would help in my case, but I am definitely interested in learning more about it!

[@taylahbonney7887]

I’m 15 and also have panhypopituratarism I don’t have bad energy fluctuations like you but I can relate with other things anyway I enjoyed you video series

[@InsomniaDoodles]

The bad energy days didn't really start hitting me until around my senior year of high school (I was about 19 years old then), but I hope you never have to experience it! Every patient is different, after all! :)