Vlogmas #7 - Third pre-op appointment for her hips

An outline of what we spoke about at Elin's pre-op appointment.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

[@sarahpreston1478]

Keeping everything crossed the op goes ahead soon. Loving your singing x

[@ParentXP]

Thanks Sarah

[@laurawhite1679]

I hope she is alright I love seeing her smiling and happy

[@ParentXP]

🙂

[@pamelagreenfield1899]

Mama knows best follow your instincts

[@ParentXP]

Damn right!

[@Shaz73]

I'm loving your hair! ❤️

[@ParentXP]

Thank you!!

[@nikimitchell1403]

Hi Tova, thanks for sharing your journey. Hope Elins surgery goes well when the surgery finally happens.

[@ParentXP]

Thanks Niki

[@cerealfibre6938]

Jag älkar julintrot, Tova.🎄🎄🎅🎅🎁🎁

[@ParentXP]

Aw, thanks. I love the Swedish comments 😃

[@cerealfibre6938]

@@ParentXP Varsågod, Tova.😊😊Google is being my Swedish Interpreter. I believe I said that on another one of your vlogs.😊😊😊😊

[@tetef4891]

Your voice is soulful

[@ParentXP]

Thanks Tete.

[@bencaldecott6583]

Good morning. Love you all

[@ParentXP]

Hiyah Ben, how are things going?

[@bencaldecott6583]

@@ParentXP going great. Snowing here in Canada

[@ParentXP]

Bleurgh, you can keep the snow.

[@rhondaphillips7471]

A third pre. op appointment hope everything goes well

[@ParentXP]

Thanks, it was a difficult op but she has healed well.

[@ericaaubie860]

I love your blonde hair.

[@ParentXP]

Thanks Erica

[@rhondaphillips7471]

😅

[@caseyslifewithcp3727]

why does she need a lateral flow test

[@ParentXP]

There had been a positive case in her bubble at school. instead of closing the whole bubble they asked us to do tests for 10 days. So far so negative 😉

[@melissadarty]

Will she have to go to rehab?

[@ParentXP]

Erm, no, but she'll have a new physio program to help her recovery.

[@melissadarty]

@@ParentXP ok thank you

[@maddielangdell6496]

A third pre op appointment hope everything goes well

[@ParentXP]

Cheers!