Passing Out at PT and First Iron Infusion (Day in my Life)

[@IronBlitz]

You are an amazing young woman. A true inspiration to anyone with life changing illnesses, diseases, etc. Anything is possible with determination. I wish you the best in all you do.

[@alyssawssinging4039]

IronBlitz she’s an inspiration to me I have gastroparesis and fibromyalgia and gastritis and acid reflux

[@penelopepolinsneemeyer4757]

The iron really seems to have helped. Your colour is so much better!

[@megan.palmaa9119]

OH MY GOSH I LOVE YOU AND YOUR VIDEOS SO MUCH

[@LifewithStripes]

NOT AS MUCH AS I LOVE YOU!

[@TaylorBogdanoff-e9s]

How are you feeling today

[@SamirCCat]

I suffer from severe mental illness, and your videos are helping me! The EDS and chronically ill community on KZbin is so warm, welcoming and positive, and I get sweeped in your warmth and feel a bit better. I recognize myself so much, being invisibly disabled, having spoons to portion out your energy, bad and good nurses/doctors, hospitals etc. It's interesting so different things can be so similar! Thank you for putting yourself out here, it helps for more people than you think

[@meolahresseh5031]

Samir the Cat in Jesus name any spirit causing problems go right now, and be healed fully now in Jesus name

[@SamirCCat]

+@@meolahresseh5031 I don't believe in exorcism, but I guess you're trying to help me, so thank you!

[@thin_white_duke1]

Samir C. Cat don’t wanna sound rude but what is you diagnosis (mine is bipolar with psychosis).

[@penelopepolinsneemeyer4757]

Oh Mickey! Take care and be well sweetie xxxxxxxx

[@crystaltaylor5931]

Your blanket is very beautiful and it looks like it's so so warm! Feel better soon Sweetie!!!

[@norajung4513]

So nice to see an update. I am not on instagream so this is the only way I get to see updates. Hopefully the infusions will help. Take care.

[@kenzieb8992]

I love how positive you are. You are such an inspiration to everyone. I found your channel on my recommended I don’t have any medical conditions like you but I think you are such a great role model for everyone

[@surfvolume]

"I'm never doing a Day in the Life again!" 😂

[@LifewithStripes]

Haha I say that now until I don't have anything else to film 😂

[@elygale2001]

When I get iron infusions I get that licorice taste. Kinda a bonus I think. I always feel crappy after too for a few days, usually get a migraine right after, but the benefits once my levels really pull up far outweigh the couple bad days for sure!

[@meolahresseh5031]

Ely Kloker in Jesus name be healed

[@angelgirl6966]

Thank you for sharing your bad day it made Feel better no I am I’m not the only one

[@LifewithStripes]

Never the only one ❤️ Hang in there girly!

[@Rob_021]

Crazy how fast things can change.... keep being strong!

[@milifaithb7588]

oh my gosh at the end there is so much more colour on your cheeks and in your lips! i’m so glad the iron infusions are going well despite the initial side effects! :) hope you’re doing well 😊

[@MandieZangora]

Hahaha I totally remember having this conversation with you a few weeks ago!!! We need to FaceTime again soon, without the sleep deprivation hallucinations lol!

[@janedunlap6879]

Those pajamas do look comfortable! I'm always looking for comfy jammies. Especially for the down days. I'm an adult and recently went in to the grocery store in decent jammies. You do what you have to sometimes. I've been in more than a few drug stores in PJ's after surgeries or getting out of the hospital, haha. Passing out isn't fun, but it's good that you were close to people. I've passed out alone and that is the scariest. Did you feel it coming on? Like your peripheral vision closing a bit, or noise sounding different? Sometimes I get that, but not every time. I've been having the sleep deprivation lately. But I definitely have lots of medical stuff going on. Most of my family don't understand why I can't sleep. My husband said to me when today that when he's hurting, he gets tired. So do I, but it's a whole diff pain going on now. Really sharp pain in my neck and base of my skull and nerve pain everywhere. Like lightning running through my body. It isn't necessarily so much worse than other pains I've had, I think it just keeps my senses on edge or something, but my the outside of my skin is numb, so it's really weird. Done iron transfusions. Made a few friends. They seem to help me feel better. I'm thinking it's time for another. Yes, I always felt bad the day after transfusion, and a lot better the second day. It's weird. Love your hair! I've always been a short hair girl. I've grown it out a few times, but it gets so heavy. So I end up almost shaving it off because it hurts, haha. My hairstylist won't let me shave it off, but we go super short. I'm doing a style thats all about comfort for me now, short almost shaved underneath, almost chin length and growing just on top, long enough to pull back. If I can pull it back, then I don't get the crazy spiky short hair from laying down. Much more comfortable in Florida heat and less weight on my neck. You rock girl! Keep it up! By the way, I've been watching for a few months, even back a little ways, but I've been depressed so haven't said anything. So, Hi I'm Jane. I have EDS. Most likely HEDS, but no geneticists within 12 hours of where I live that will treat adults, only kids. Same with any Rheumy's that know much about EDS and comorbidities. Also dx Endometriosis, Gastroparesis, Spinal Stenosis and something else going on that we don't know what, PPP Psoriasis, etc. Sending spoons!

[@kaylaayla21]

YOU ARE SO FLIPPING AMAZING! I LOVE YOUR VIDEOS

[@suzannek448]

You are the most amazing and courageous young Woman. I love watching your videos. You are a true inspiration to everyone. God Bless you sweetie.

[@arianaevans9567]

Oh that part at the end of your infusion looked so hard! But you look amazing at the closing! I can definitely see a huge change in you from the last live insta I saw! So glad Mickey!

[@shelleylondry1265]

I've missed you, so sorry you've been so sick...I hope the doctors can help you feel better overall, know you are in my Prayers....loving those polka dot jammies❤️

[@Itsem32]

Your short hair is my absolute favorite😊💜

[@julierigby3334]

I'm glad you feel better and I'm praying for you to get beter

[@aussiebabeem01]

You are truly inspiring. I’ve just had an echogram done and a genetic testing day scheduled for the 23rd of Jan to be formally diagnosed and which EDS it could be. In one way, I feel a sense of relief that I will have validation that this pain and discomfort and doubt can be put to rest. In another way, I feel like I’m already mourning my ‘old life’ when I could ignore what was happening to my body and mind. I don’t to be told officially I’m sick. I want to be told it’s not all in my head. I feel conflicted, but that’s ok. Thank you for updating and educating.

[@gabby_931]

my iron infusions give me horrible migraines too. I take two extra strength Tylenol before and it helps dull the pain

[@debbiemlucero4485]

You are one amazing person "life with stripes".i love listening to you.

[@terrilynnstoneburgh3787]

YES another video! Yay, your so beautiful and I hope you feel better.

[@caroldeaton619]

My third video watching you and I love you. You are an amazing young woman which I'm sure you've heard several times God bless you may he heal you unless you live a normal life that's what I am praying for and I'm sure everybody that knows you is also praying for the same thing

[@danielross6611]

I have to do the same thing with my left shoulder in the morning. My doctor thinks it might be from muscle weakness and not being able to hold the bone in it's socket. When I start PT here in a little bit for my herniated disc I'll make sure to mention it.

[@musicchick8133]

Holy moly look how good your color is after the iron ☺ 👍

[@liaconnor67]

Just realised that we’re wearing the same coloured nail polish.. it looks so good on you!!

[@arianaevans9567]

Crazy day! Thanks for sharing Mickey! You and your sisters are so cute together! 💕

[@LifewithStripes]

Thanks! Its my favorite part of the video 😊

[@nicluvsyou237]

So happy you posted. I love your vlogs

[@juliebush919]

Funnily enough teal ribbon also covers my medical issues as well , poly cystic ovarian syndrome.

[@abbykae4520]

You inspire me so much and you are so so so pretty!!!

[@h0ney.fr0g8]

I'm not sure how I found your channel, but I'm glad I did! Before your channel, I had never heard of EDS. So I don't have any physical illnesses, but I do have metal disorders! Yay.... But I love your vids! Hope you feel better! You can fight it!

[@aubreeherrmann9119]

Your such an inspiration girl.You inspire me to keep pushing throw in everything I do.You are the best❤️❤️😊😊

[@kellicullen4212]

I recently just found your channel and learned that you live in MN. I too live in MN but was curious if you have heard of a gal named Sara Geurts. She lives in MN and she has been making huge strides with EDS. (she’s a model) I went to high school with her. So I’ve been learning a lot about EDS keeping up with her on Facebook. Small world! Love your channel and positive upbeat self!

[@lynnbarnett5548]

Love ur video can u do a planner video and what in my bag video

[@lindseyelizabeth2281]

Its good to see u feeling better

[@ellaisreading]

You are so inspiring!

[@katherinebrenner7377]

Katie is so pretty! Also hope things are on the uphill for you, Mickey. Sometimes we have to jump through so many hurdles to get to the other side!

[@kristinwallace6551]

Hello I’m newish. I have seen some of your other videos though as I struggle with many of the same symptoms/conditions. I’m going to need to get iron infusions too. I also have classical Eds and trouble with my blood. Oh the joys of pots. So sorry you passed out. but I’m glad your Pt caught you! I Hope tomorrow is a better day for you and that your pain level goes down as much as possible. Sending love from a fellow zebra 🦓I

[@nancyferguson2750]

Injectofer is a life saver! Hard to find though!

[@tiffanyamber8726]

I get iron infusions twice a week and every time I go I get a horrible headache. It’s a classic symptom. The other symptoms have subsided pretty much

[@meolahresseh5031]

Tiffany Amber in jesus name be healed

[@tiffanyamber8726]

Meolah Resseh Amen, thank you ❤️

[@shelleylondry1265]

Sorry to hear you cannot do a blood transfusion...I.V Iron takes many months to work....My Hemoglobin dropped to 7.2 (June 2018) and the idiots at the hospital that I was admitted to wanted me to drop to 7.0 first in order to give me a blood transfusion!! Being such a severe anemic caused me to go into complete Respiratory Failure, I could have died😳😳😳I was super pale as you are and the iron infusions took forever to help my numbers come up! Here it is (November 2018) and my hemoglobin is 11.9! But I'm on full time oxygen from all of this until further notice! My Pulmonologist said it could be 2 years before I can wean off of the O2! KEEP FIGHTING GIRL, YOU ARE FOREVER IN MY PRAYERS! You passed out due to being such a severe anemic, and with all of your immediate medical problems I'm hoping they give you Iron to take at home too to help boost yours up faster, your fast heart rate is because you do not have enough blood to carry the necessary O2 to your lungs so your heart is working overtime! Scary stuff...😳😳😳

[@drewharris7785]

I love your jammies! Polka dots are my favorite. Also your hair looks A-mazing.

[@dakotapaige4117]

Bless you for still having a smile on your face, even with everything you have going on! ❤❤ Edit: Thank you so much Mickey for liking my comment! ❤

[@sarakrueger494]

I’m so happy I’ve been waiting for this since your live stream!❤️❤️

[@edenrichardson4777]

Sara krueger me too ❤️

[@LifewithStripes]

Haha! Thanks for joining the Live and hanging out with this hot mess 😂

[@captainbob3438]

Your Amazing sorry you have to go through health issues it sucks.

[@addylubus3263]

Your so pretty and so so so so amazing . Kepp strong and be happy 😇😊

[@pitbulllover1789]

I love how sweet and kind u r and so positive about your conditions and it doesn't seem to bother u and I love that cause then u won't be making vids about boring stuff and saying this hurts all through out the whole vid. 😂💙💙

[@terrilynnstoneburgh3787]

Your growing so much!

[@susanmargaretwills6432]

My scottish grandma (born 1904) would have called you a "bonnie lass"...I just want to say you're "fricking beautiful"

[@cassidyrose9834]

Beets, cherries and other dark red colored fruit are high in iron! I hope they can help you ❤

[@najeerolle9632]

Feel better 💗💜💜💕💕💕

[@shirleypaslay2019]

Oh for hemoglobin problem, take sublingual B12 and take 2 prenatal pills or equivalents per day

[@dragonrider7822]

Love your videos!!!!! ❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@TreeLynnT]

I have after three days of no sleep. I was with a friend that had West Nile disease in the hospital and I was afraid if I fell asleep he'd die. It's happened to me before so I freaked out. Lol

[@alittlebitofeverything1235]

When I wake up I just casually put my body back together. Love you micky❤️❤️

[@SharpLife4]

Your colour looks way better after the infusion. Keep an eye on ferritin and get it again if you need it.

[@chaneljoy-marie5106]

I have the same vera bradley bag as you I also have EDS myself!

[@breeannwalker8309]

I pass out so often too even with my iron infusions 😔 it's the worst feeling. I always throw up after too

[@sierralavender9853]

I get that way when I don't sleep . I used to see spiders all over the room . Which is scary

[@chaconag]

If you continue to have a high heart rate, especially when moving from reclining to sitting up or standing, you may look into Postural Orthostatic Tachycardia Syndrome or POTS. I am new to watching your videos and you are very inspiring. POTS and EDS usually go hand in hand along with Mast Cell. So, you may already know this. I wanted to make sure you were aware just in case. Keep being your amazing self! God bless you.

[@ginmen6095]

❤️hang in there love

[@greeneyes12346]

Sleep deprivation is weird and I know the lighting strike thing. When I close my eye it does it so bad.

[@LifewithStripes]

Yesssss!!!!!!

[@tobycarey8048]

honey don’t worry i’m a hot mess too i broke my ankle two weeks ago and yesterday i passed out and woke up and i ambulance and i broke my neck so yeah i get you :)

[@ryannclarke5271]

When I'm sleep deprived I just get really sick with like a fever and throwing up it's not fun but I think hallucinating is even worse😫😫

[@kmars0609]

For me when I’m sleep deprived is I get SUPER giggly. The one time I’ve hallucinated was when a doctor took me off all medications cold turkey. They hallucination has stuck with me ever since!

[@maddypardo]

The beginning is literally me every morning lol. I have to fix my body to Mickey!!

[@meolahresseh5031]

Madeline Victoria be healed now in Jesus name, every problem in the body leave right now

[@melissahuff7026]

Your amazing

[@natashaw401]

Cute and comfy always important fun feels good

[@maddiefern1267]

That's literally the exact same way I put my hips back in every morning! #EDSsquad

[@thin_white_duke1]

I saw your comment on Ann Lee Fisher video

[@pandadncr4825]

You remind me so much of lily fron how i met your mother 😍

[@lavonnabakke3899]

I do weekly iron infusion my hemoglobin was 3.7 when I went to the er last time. The iron has helped.

[@siyabeanland9777]

Oh dear that's low 😑 hope you are feeling better

[@carlethamoore8813]

Hi there my name is carletha. I have problem with my iron I had infusion before it is horrible and I hated it alot but it made me feel much better and I do

[@missluvmoney]

Doctor told me mines at a 3....going go get an iron infusion soon. I am scared tho

[@shirleypaslay2019]

I bring my rate down by watching the number and almost like, hold my breathe, but breathe slowly out and it will start to come down. But I starts sweating horribly too and get super hot, so I drink ice water for that. It's so crazy... I just found out I have EDS and yet I have had to have both my knees operated on multiple times and now my back too. I even fell at work years ago and was taken to the hospital and the said nothing was wrong, so my Dr said eat salt. My blood pressure drops real bad too, but will skyrocket too. I have so many weird things. But EDS explains a lot of it

[@inca5467]

I was wondering if you were in a wheelchair all the time or just sometimes, im new to your channel so just wondering

[@Rtytanicj]

After not sleeping for three or four days is when I start going crazy. My anxiety goes bonkers. My pain and stuff goes crazy too. I hear people’s voices and other noises. Idk it’s fricken nuts. I’m at 60 something hours of no sleep right now. Feel better chica

[@GabrielleLeGrange]

New fan 💖 blessings to you

[@katieklundt9910]

Well I was told by a neurologist that headache/migraines can be treated with some caffeine

[@artistrybyvr]

You are very inspiring I hope you get well beautiful

[@LifewithErin777]

Much love, ❤️

[@cassielee3874]

Omg I get the lightning strikes also😂

[@alorapeplowski9119]

I to had to get my first iron infusions I had 3 emergency ones couple days ago .

[@missluvmoney]

Alora Peplowski emergency like what?

[@minaLeannecullinane]

Omg yay new video ❤️❤️

[@drewbressel242]

Video was still private. I am early. :)

[@parisIsabelle]

Drew Bressel no you’re not

[@parisIsabelle]

Drew Bressel I hate you you’re so annoying

[@thin_white_duke1]

Claudia Villatoro what’s the problem??

[@giabarrone7422]

I don't have classical EDS, but my EDS does cause POTS, and the HR pattern you described is my normal day-to-day. Do you not have POTS, or is it just not that severe? I am lucky to have never lost consciousness, but I am also relegated to only exercising in a heated salt water pool, and I keep my legs elevated any time I am stationary. Standing in place just doesn't happen unless I am strapped to a tilt table at an autonomic clinic. I also wanted to ask about sleep. Three days is also my pattern for deterioration....I agree it is sad that EDS people know this. I take quite a bit of medication at night just for sleep, but I am older than you. Will the pediatric doctors you see not prescribe it? I know the side effects can be terrible and some permanent, but I don't know how I'd live without it. I have had serval different "blood product" infusions, but my team of doctors is pretty clueless. Why is a blood transfusion too risky? I had one at my open heart surgery, and various blood products afterwards. I also used to get IVIG infusions back when insurance would cover it. If you have immune disfunction and neuropathy, I highly recommend you check it out with your doctors. I felt so much better on it. The problem is it costs $20k -30k an infusion. They haven't been able to identify my specific gene mutation which leaves me guessing day-to-day what to expect next. I was told only 5% of EDS patients get aortic aneurysm.....I had open heart surgery this year after my FIRST echo showed a large one. I was told only 5% of EDS patients get chiari malformations.....I got mine a couple of years ago. Do you have doctors that seem confident in your treatment and what your future holds? I am sitting here wondering if they are just waiting for me to drop dead from an aortic dissection before 40 so they can analyze my genome and add my mutation to the vEDS diagnostic criteria. Right now they still stand by the hEDS diagnosis and still refuse to treat patients, so I had to assemble my own team of doctors and act as the head. It sounds like you are in good hands though!

[@christinecreasey2342]

I've had 2 iron transfusions at the same time I was so enimic

[@dianayusupova9598]

I want to be as pretty as you. your so kind. my family is PRAYING for you to get better. we love you! LOVE YOUR VID.....have a great life

[@stabulouskoda834]

The first time I remember making myself go to sleep because I started hallucinating from sleep deprivation was after 3 days of house sitting for my aunt.. I let her dogs outside and watched them for a bit then the ground turned into the ocean.. I cocked my head to the side and went "hmm the ground is an ocean now.. Yeah maybe I should sleep" then watched KZbin for a while and fell asleep for like 4 hours 😅

[@emontanez02]

can you do a video on like body care? because you said that your mom washed your hair for you so i’m curious how you wash your body and such

[@caitlinoconnor7507]

I have a question and if you have already talked about this then I'm sorry for the waste... if it is not to personal does EDS effect your menstrual cycle I've been watching your videos for a little bit now and when you explain more I've been more curious about how it would affect it if it's too personal I understand I just didn't know if your condition affected it or not

[@REPDC4LIFE]

Girl it takes 3 days for you to hallucinate while sleep deprived? It takes me a few hours after I'm initially tired.

[@LifewithStripes]

😂

[@jacquelynelynch2016]

Sarulia lol it takes me about 4 to 5 days to start hallucinating

[@EllieAlkaline]

Sarulia my body demands a lot of sleep from me and I have psychosis that is made worse by being tired (among other things) so I start hallucinating if I only slept for like 7 hours lol

[@laneyriley636]

I’m not sick and I don’t have a feeding tube. I learning about different illnesses and how other people live. I was wondering when your port is accessed how do you take a shower and keep it protected? Also, do you have to do anything special with your feeding tube so you can take a shower? I’m not trying to be rude, I’m just genuinely curious.

[@candi5217]

You seem so happy and positive. Do you get anxiety or depression at times from everything you have to deal with ?

[@kestrelslater4029]

I also start to hallucinate after three days no sleep though I can usually push it to four days before I just can’t function anymore

[@meolahresseh5031]

Kestrel Slater sleep well in Jesus name

[@faith_and_Jesus]

Living for the short hair

[@Ren_is_true]

Yep with you on that one 😐😑😔😴😴😴😴😴😴😴😐

[@SharpLife4]

Just curious with feeding tube. I though bandages now go over and taped down to help with skin integrity verses under

[@millisagable9332]

Dude your hips 😯😯😯😯

[@Emily-qu2yc]

I know! And especially that sound near the beginning! It made me cringe

[@annsasmrchenoweth3953]

Where did you get your necklace? Sending you lots of love from lawton Oklahoma

[@annsasmrchenoweth3953]

And yes I have from lack of sleep I seen purple elephants in our living room my husband was like babe there's nothing over there but I swore I seen one in the corner. It the most weirdest people and people that never have think your crazy. I suffer from several things as well that keep me up for days at a time and it sucks. I'll get to where I can't put a sentence together as well does anyone else do that? Even though your not feeling well in this video you still look beautiful sweetheart!! I asked where you got your necklace from because I suffer from tacardia. And also I found my momma my best friend in the world dead in her bed in her apartment and she died from cardiac arrest and I also just lost both of my older sister's to cardiac arrest it's been a rough few years. And I've been dealing with a lot of health issues my whole life but after I had my 2nd son 13 years ago 3 months early and I died 2 times he came out dead but they revived him and me as well duh or I wouldn't be writing this but they said it triggered my systems and they are worse than they have EVER been. I have many health issue's it sucks but it's the life God gave me. Again sending you lots of love from lawton Oklahoma xoxo 💗💗💗💗