Patients Driving Progress on Rare Diseases: Rare As One Network's Impact

300+ million people globally suffer from a rare disease and 50% of them are children.
The Rare As One Network supports patients and their families in their fight against rare diseases. These patient-led organizations are partnering with scientists and healthcare professionals to drive groundbreaking research, and ultimately find treatments and cures for their diseases. Watch the inspiring story of two organizations - KIF1A.ORG and TESS Research Foundation - as they work to understand their diseases and find treatments for their loved ones.
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About The Chan Zuckerberg Initiative:
The Chan Zuckerberg Initiative is a new kind of philanthropy that’s leveraging technology, community-driven solutions, and collaboration to help solve some of the world’s toughest challenges - from eradicating disease, to improving education, to addressing the needs of our communities.
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