Strick carnivore/ketogenic diet reversed mine and I’m no longer on my trelegy ellipta inhaler . I still have scaring but my function has dramatically improved with no flare ups .
@karenwells10128 жыл бұрын
Thank you Jackie for your experience. My son passed away just recently from Sarcoidosis. He felt just as you do. He felt no doctors really understood his pain and what he was experiencing. He was tired of the medicines, for he felt they all really did not work. And he really did not like taking the steroids, for that caused another problem in itself. I will devoting my time to the Sarcoidosis Foundation and make sure there will be something better to help with this disease. Again Thank you so much. Take care. Karen
@andreacoleman36223 жыл бұрын
Where was his sarcoidosis
@dcollie2021 күн бұрын
I take Prednisone just now exspercing sores on my back and stomach where I have sliding hiatal hernia, esphogus has a whole in it where part of my stomach slides up in the opening on top of sarcoids,I pray Im healed in Jesus name 😢🙏🙏
@rwviall008 жыл бұрын
Thanks for speaking out, Jackie. The patient registry will be a great source of information.
@tammiejones27313 жыл бұрын
Peace and blessings to you. Thank you so much for your video. I have Pulmonary Sarcoidosis and I was diagnosed November 2020.
@falcon42832 жыл бұрын
How are you doing ? Please share and if u wanna connect please reply
@daniellesartin7632 Жыл бұрын
I was diagnosed with nerosarcoidosis in 2018. My brain was inflamed and I was literally dying. I had brain surgery and a whole bunch of medicine. I have been in remission since. Without yearly checkups it could come back with the same severity. I was sick for 2 months before I got a diagnosis. The doctors thought I had meningitis at first.
@amt6821 Жыл бұрын
What tests were done for your diagnosis? I've been having severe unexplainable neurological symptoms and been feeling like I'm dying for over a year.
@rosel.1503 жыл бұрын
Hello, it took me 20 years and a stroke and cardiac arrest to finally get diagnosed. I had suffered heart failure for over 20 years with many procedures done and no one knowing why I had it. I also had the lesions on my legs and was misdiagnosed with lung cancer. Finally I was referred to a wonderful medical facility with excellent doctors. Nothing has helped my lungs, but medication has helped my heart.
@kchilz32 Жыл бұрын
How are you now
@elizabethwallace-donnelly.23562 жыл бұрын
Thank you for the Valuable information
@Snibbo-v9v Жыл бұрын
I guess this is USA only, but what a massive lot of detail to read through, can't believe many people bother. I'm in England so my medical notes are automatically shared with National Congenital Anomaly and Rare Disease Registration Service so I dont have to do anything.
@atharvey8 жыл бұрын
Thank you for this Video. I have Sarcoidosis if the lungs (16 years) but have had problems with just about every part of my body that it will attack.
@jazz76544 жыл бұрын
Hi look into herbs and a diet change. Consistency will help heal you. Get rid of the mucus
@ebhotamary62663 жыл бұрын
It will be helpful if you contact Dr. Nathaniel, he probably has a solution to your problem
@debasreepaul11028 ай бұрын
Where are you live in Dr Nathaniel
@barbaraburrows51757 жыл бұрын
Hi I have sarcoid for 14 years it is effecting most of my body started in my lungs I have the lumps as well. My joints have now been effected as you have said it's not diagnosed quick enough I have a brilliant consultant but the steroids are now causing more problems than the illness as I am only 60 would be interested if anybody has had similar probs here in the UK it's becoming more known about but it's slow. Just wish there was somebody I could talk to now and again for support etc I have a fantastic supportive family but it would be good to talk to similar people many thanks
@sylvestermcmullen1364 Жыл бұрын
Please can someone point me in the right direction I need help
@ruthdorsey54037 ай бұрын
Me too
@joannrobinson51478 жыл бұрын
Thank you for this youtube! Great job!
@patriciahathaway40588 жыл бұрын
This is a very nice video.
@deborawright41582 жыл бұрын
I was diagnosed with sarcoidosis in 2010 at least I was told verbally in 2010 but emergency told them in 2008 I then went to the Cleveland clinic and they started my treatment was just discontinued and I'm going down here fast don't have mercy perhaps what I read here will help me
@victorrugama44392 жыл бұрын
I am curing my Sarcoidosis.
@falcon42832 жыл бұрын
How are you doing that ?
@kchilz32 Жыл бұрын
How?
@horrorflickent Жыл бұрын
What a sick person to do this to all of us who are suffering. To show up and say you have a cure for $300 and then disappear on all of us who were in agony and misery is a real disgusting personal trait to have and I guarantee it will come back to you
@kchilz32 Жыл бұрын
Jesus is the real cure!
@alouise35575 ай бұрын
They're TROLLS making these comments. Just ignore them.
@kallen97312 жыл бұрын
I would recommend looking into Huggins dental protocol and consider removing your fillings, only with a Higgins protocol dentist. I believe this may help your issue. It’s worth a try.
@alouise35575 ай бұрын
Did you eat paint?
@wyattlavigne2 ай бұрын
Huggins was ahead of his time; Dr. Chris Shade & Dr Dietrich Klinghardt use much of his theories and methodology is their current practice where mercury is involved. I’m brand new to this disease, but suspect is related to most diseases due to either a toxic cell (& body) or deficiencies or both.
@vid2ification4 жыл бұрын
I have many keys, but none for the sarcoidosis in my meninges, eyes, lungs, lymph nodes, liver, kidneys, stomach, skin, muscles, and likely other areas yet to be diagnosed. Since I have no keys to fit, a locksmith may have the cure to my problems. However, this locksmith would also need to have the proper specialty tools required. Since I have found zero research indicating or even looking for the possibility of genome influence, CRISPR is not the tool they will utilize. Hopefully the locksmith is also active in the field of stem cell therapy or available for risk assessment and therapy management.
@Gracy-ng5ipАй бұрын
Thank you for this information! it will help patients..... on the other hand Planet Ayurveda's treatment and diet chart also helps in this condition
@justadumblonde90053 жыл бұрын
I wish I trusted the government and “scrience” (today, JUNK science) enough time participate. But I do not! P.S. Highly educated, myself.
@dogtree10004 жыл бұрын
thanks for your concern, I have Sarcoidosis, I was on Prenisone for one month, it is some very bad medicine, so I when on line and found a natural remedy that works very good it cost $300 but it save my life
@racheljackson24264 жыл бұрын
Hello, what was the natural remedy?
@kishujohnally85814 жыл бұрын
Please tell us
@nathanielmitchell91303 жыл бұрын
You really left these people hanging but why? What was the use of you sharing info?
@deniseyoung44942 жыл бұрын
what is the remedy. Please be kind and help others by telling us.
@mariecook7910 Жыл бұрын
I'm sorry but I have a hard time believing that you found something considering you never said what it was in your post nor did you reply with any answer to people asking. So wheres the proof in your claim???
@horrorflickent Жыл бұрын
What a sick person to do this to all of us who are suffering. To show up and say you have a cure for $300 and then disappear on all of us who were in agony and misery is a real disgusting personal trait to have and I guarantee it will come back to you
@alouise35575 ай бұрын
Stop falling for trolls. They're here to aggravate people.
@horrorflickent5 ай бұрын
@@alouise3557 I totally feel you bro, I'm just saying it's a serious thing and for someone to make a mockery of something so serious is disgusting, but you're right you're right it's all nonsense, have a good one dude
@savi.the.mermaid Жыл бұрын
*
@alouise35575 ай бұрын
**
@dwannbrown31392 жыл бұрын
I HAVE TWO BROTHERS WHO HAVE SARCOIDOSIS.
@dwannbrown31392 жыл бұрын
IS IT HEREDITARY?
@Balaban78 Жыл бұрын
@@dwannbrown3139 from what I have read, yes it is.
@alouise35575 ай бұрын
No, it is not known as always hereditary. It CAN be but people are even getting it directly after covid.