Peripheral and Autonomic Neuropathy in ATTR Amyloidosis

Chafic Karam, MD, Professor of Neurology at Oregon Health & Science University presents on the neurological impact of transthyretin amyloidosis (ATTR).

[@MyTechniqueWorks]

This is very dangerous disease which took my father's life in May 1992. What I noticed is the following ways to combat this disease is as follows: Some herbs, meditation / prayer, or some way to make your brain feel relaxed, some sort of immune tea detoxes, but there is no cure only maintenance

[@izitmoi3036]

My mum had this frightening diagnosis Amyloidosis in 1988 just in her skin/ hands for which she has had decades of easily permanently bruised fingers/ hands. She has lived till now 2022 but had health declines over the years. But I'm grateful she survived the original scary diagnosis. But is very poorly nowadays and I do wonder if Amyloidosis has had anything to do with her chronic health declines especially thyroid and severe osteoporosis and AF in the past decade.

[@florabraswell-nm1re]

Lori l finally found my problem, after researching and researching all the other problems, this is what l have ! I am 99 .9 percent convinced that this is it , this always sounded like MS to me but it was a Peripheral Autonomic Amyloidosis! I need to have the HATTR or AApoA1 gene checked l am asking the lab people to check me for this or whatever l see Dr Micolucci to have this discussion

[@52Duvan]

thanks for a very good and informative video. I myself have amyloidosis with a painful polyneuropathy. Especially in the hands. I have been on Onpattro for 20 months with no pain relief in my hands. Now I have a KZbin channel to provide information about my journey with familiar Amyloidosis. 😢

[@thomasfraser9072]

How were you diagnosed? I seem to have the same issues. I have been diagnosed with MGUS and think I might request a bone biopsy for Congo Red/ Apple green to r/ o Amyloidosis. Thanks

[@maryvoneiff3479]

I wonder how does this differ from MS? Could MS patients be misdiagnosed and instead have Amy??