Lenira Samedo: The impact of Pernicious Anaemia on health related quality of life

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Pernicious Anaemia Society

Күн бұрын

Пікірлер: 30

@gina101creativeartofficial Жыл бұрын

I would love my GP to watch this and understand.

@brookespears2266 4 жыл бұрын

Thank you for your work. I have this condition and I was at deaths door when I got the Cleveland heart study and learned of this. Thank you!

@florencedonald6419 4 жыл бұрын

4 years ago I was diagnosed with PERNICIOUS ANEMIA and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including PERNICIOUS ANEMIA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for PERNICIOUS ANEMIA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now PERNICIOUS ANEMIA free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

@MrEd9574 3 жыл бұрын

I was diagnosed 30 yrs before being treated w injections. they did help but as a senior my cognitive health is in sharp decline, it's scary thinking I might be decending into senility so young....it's messing with my marriage of 41 yrs. no one believes that this can happen!!!

@ianross04 3 жыл бұрын

Only just come across this site as I didn't know it existed. I am a PA sufferer with continued symptoms and was diagnosed very quickly by a GP in 2014 when I was 52years old. Only last months, my son after researching our family tree via ancestry, discovered that my great grandfather had his cause of death (aged 54) marked on his death certificate as Pernicious Anaemia!! Just Subscribed and clicked on all posts.

@harrycurrie9664 3 жыл бұрын

I felt something was killing me slowly but my Doctor only gave me pills for the pains, it was I that researched and found it was a lack of B12 ( I didn't know it was called Pernicious Anemia ) and after a couple of months of taking B12 supplements and feeling a slight change for the better I told my Doctor, he ordered blood tests and it was confirmed as PA.

@marystaufenberg Жыл бұрын

Your story is exactly what I mean. I too have to diagnose myself. I told the insurance company that they owe me the money instead of paying him. The sad thing about all of this is that all the doctors where I live are all the same. They do not even examine you anymore. I asked the insurance company what goes with this behavior and the woman told me that many patients have complained about the same thing. It appears they were taught that taking only blood pressure which the nursing assistant does and temperature are enough to tell if a person is ill. Then when you tell the doctor what symptoms you have, and if it is more than a couple, he will appear frustrated and say, "that is a lot". I have gone to more than one doctor where I live, and they all act the same.

@marystaufenberg Жыл бұрын

I have a GP that I had to explain just what PA is. He is under the impression that just taking a multivitamin daily is enough. Where are these doctors in their 20s to 40s educated or do they get their degrees online now like RNs do? They are going to kill us all if we do not put a stop to this insane medical system.

@loveconquersall143 4 жыл бұрын

Extremely important research. Thank you SO much for this! I am going to talk to my integrative doctor about this as I have Crohn's Disease and have been having all the symptoms associated with it - including palpitations and visible tremors now too. It morphs and it gets worse. I thought I had Parkinson's or MS, I have been feeling so unwell for such a long time! :(

@florencedonald6419 4 жыл бұрын

@harrycurrie9664 3 жыл бұрын

Are you having B12 injections now or taking a B12 supplement ?

@virtualfitnesstv 4 жыл бұрын

Mind awakening. Very inspiring regarding healthy way of living. Wonderful video. Awesome job.

@florencedonald6419 4 жыл бұрын

@SN-sz7kw 3 жыл бұрын

Spot on. Would love to see the results.

@epic5945 4 жыл бұрын

If B12 injections are stopped a patient with pernicious anemia will not survive and the decline will be painful.

@florencedonald6419 4 жыл бұрын

@harrycurrie9664 3 жыл бұрын

I think that would depend on the severity of the patients condition, I was on injections but now only tablets.

@leannaprather2258 3 жыл бұрын

I feel quite lost and not sure why B12 injections have not helped as they did once. I don’t want to lose hope

@DORTHYSHOEMAKER-io9ey 7 ай бұрын

How to get on disability?

@bobbysgirl8365 Жыл бұрын

Despite injections i get only once per month I can barely walk. I used to play badminton and go climbing regularly. Now I suffer with agonizing leg pains. My GP doesn't care.

@KMx108 8 ай бұрын

I've had to inject daily for the past year. I haven't been able to go to maintenance doses yet. My GP wasn't supportive so I bought extra injections from pernicious anemia dotty orgggg.

@KMx108 8 ай бұрын

If I try to post a website reference, it seems KZbin rejects my comment. I hope the gist of my meaning comes across. There's an online organization dedicated to providing *pernicious anemia* b12 injections to people without prescription. Do a Google search for pernicious anemia but remove the space and add a period followed by the abbreviation for organization.