Perspective: Living with ME/CFS

Shannon shares what it's like to live with ME/CFS. Learn more about the latest ME/CFS research at www.jax.org/mecfs.

[@lindakelley2676]

Migraines are not just “headaches”, they are like having an axe imbedded in your head, the fatigue is not just being “tired”, it’s an exhaustion you can’t power through, where getting dressed can feel like running a marathon, you get done in a month, what you used to get done in a day, everything is like pushing boulders up a hill. We aren’t “lazy”, it’s a debilitating condition most couldn’t imagine. What is life in constant pain, sickness with no energy? It’s a living death, really. Sadly, we are too sick to advocate, press for changes, and the medical community has abandoned us. I pray for future generations that progress and remedies will happen.

[@pinkmoonrabbit2072]

well said.

[@jewelleryaddict]

Your right they know we are just to Damm sick to do anything about getting to get care or push for help because every day just to try and live and function is exhausting. They know this and are confident we won't fight back. Shame on them.

[@lisascorp]

You explained it well. I have had this for 19 years after getting it after mono in my late 30s. I honestly think my body is giving out entirely. One of the wor s t aspects is nobody understands. It's unexplainable the exhaustion and enormous toll. I have had covid19 twice now, and have been in a total crash from it. Lost 22 pounds and am bedbound so much of the time. My function level has dropped even lower than what it was before, which was already patheticly low to begin with.

[@lindakelley2676]

@@lisascorp I’m so sorry you’re going through this. I had Covid once and it made me so much worse, I’m terrified of getting it twice, I haven’t recovered after 9 months, it’s no joke, may yoU find some joy somehow, despite the trying circumstances , it’s a shame the medical system isn’t helping so many suffering.

[@lisascorp]

@Linda Kelley Thank you for your well wishes. The very same to you. The 2nd bout w covid wasn't as severe as the 1st so I think the virus is weakening a lot. It also took me close to a yr to get back to "normal " after 1st. 2nd bout was early March. I recovered from it quickly, but I haven't got my energy back to before. Like u said what I used to accomplish in a day now takes 2 weeks to a month. I do pace , take vitamins, rest -pace etc. I usually manage it well knowing my limitations, but when I get the flu or something, it takes long to recover and I have to adjust my energy again. I do actually manage to work a very p t job (3 four hours shifts a week) but when home have to rest in bed and re build up my energy. My first Son got an active energetic Mom. I got this when my youngest Son was young, so he didn't get nearly the energetic mom But I was pretty high functioning back then w my husband's help. It got much worse after an emergency surgery 8 years ago. According to my Dr the general anesthesia and trauma of surgery just made the ME CFS worse (prior to me getting it in 1st place I always bounced back from surgery quickly and easily like c sections and other surgeries) once I got CFS I can't recover well from anything. Takes forever and zaps me further (my Dr told me I need to avoid surgery at all costs. She said in her opinion I will not recover. She said it would be worse than last time) But I do find my joy in what I can. I am blessed I have financial help and I think supplementing that w working what little I can helps me be sociable and helps me physically. I look fine to the rest of world when I am out and about but they don't realize I am expending very precious energy I will have to build up again. I am proud of my grown Sons and they love me. So I am generally happy and blessed. But this disease has robbed me and others like us of so much life. I live as a spectator watching everyone live a life as I sit back and rest. Sucks. So many people don't understand why I can't commit to a long visit or travel. I didn't mean to go on and on it's just I have been crashed since March and am functioning at such a minimum. In bed 70% of day. Losing muscle mass etc. I am going to take a 5 hour energy shot and try to get to store today and rest up. I am supposed to work in a few days (lucky I have been there 8 years. They like me and give me a lot of leeway) So I do count my blessings. Been cooped up. Nobody to share as so few people understand what this is. Thanks for responding

[@dakotawilliams6725]

I am Canadian and I have all of the symptoms of ME CFS but my doctor has yet to give me a diagnoses. I have not been able to work since November of 2018. I am 52 years old. I have a non stop 24/7 pressure headache, my eyes are extremely sore all the time and I get dizzy whenever I move my head. I also have brain fog, I had to look up how to spell many of these words that I never had an issue with before. In 2019 I was prescribed 2 different steroids and an inhaler for my difficulty breathing. My chest is always sore. Within 5 minutes of riding in a vehicle the pressure in my head starts to build up, Advil Extra strength keeps the pressure from building up too much but does not alleviate the headache. I have seen multiple specialists who like to point out that they see noting wrong with me. People who used to be friends believe that I lack ambition all of the sudden. I bought a $1500 BBQ in 2014 that I loved using at least 4 times in a week during the summer. I loved cooking, mostly I loved eating but I was always willing to take the time to make good meals. I have used it maybe 4 times since my issues started and it has been for cooking simple things like hot dogs, sausages or hamburgers. Since 2018 I cook according to the amount of energy I have. I put a lift kit on my truck and bigger tires in 2010 because I loved driving off road. I have not done that since 2018. My truck is falling apart and I can't fix it. I might have put 4,000 km on my truck in the last 4 years. I also loved kayaking, I sold mine in 2020 because I don't want it just sitting there. There are days where I will crash 5 times in a day. I have not woke up feeling rested since my issues started. I am taking multiple vitamins, hoping they will help. My Neurologist just prescribed Nortriptyline ( an anti depressant ) hoping to fix my "head aches". I have yet to find information about Nortriptyline helping with headaches. I am 3 weeks in and the pressure feels worse, I now have random diarrhea and I am struggling more to breath. It also forces you to sleep longer after taking them. The longer I lay down, the worse my headaches, sore eyes, and chest pain gets. I still crash multiple times throughout the day but the pills are making me over tired. Some days I have enough energy to do the dishes and cook supper, just my wife and I. I do not shower every day. I am at the point where I no longer want to hear how doctors think I am faking. I did 2 sleep studies, One doctor wanted me to get a $3200 mouth guard and the other one convinced me to get a $700 CPAP machine that after 5 days of use I had to stop using it because It made everything worse and severely messed up my sleeping habits. My wife rarely hears me snoring, she has never heard me stop breathing and I never wake with a sore jaw. All of which I hear her doing when she is sleeping. My condition feels like it is taking years off of my life and these medications feel like they are speeding up the process. This is not how I pictured retirement. I always wanted another snowmobile and I miss getting up and randomly going places with my wife to eat. We also used to love going to the Drive-Inn. I cannot believe people actually believe that this is how I choose to live. I have stopped talking to plenty of people and meeting new people is out of the question. That look of disgust and disbelief, I am done with...

[@leondevries478]

It’s not in your head! Never ever give up. From the Netherlands

[@JohnBedson]

Of course it's "in her head". It's an autonomic illness. The cause must lie in her brain, not in her body. That's why it's so hard to treat (impossible). It's a brain dysfunction.

[@user-jd3pr8bm1p]

Who says that psychosomatic is only in your head?

[@annahallgren1055]

Research has shown that persons with ME/CFS has inflammation in the brain. I believe parasites are part of the problem. So, physically it’s (partly) in the head.

[@Truerealism747]

​@@user-jd3pr8bm1psycosomatic is brain body I have me fybromyalgia causation is autism ADHD heds

[@slovokia]

I wish most physicians would take ME/CFS seriously and be willing to act as health partners to people with CFS/ME. I don’t think most physicians are on my side or have my best interests at heart - at best many of them are simply indifferent. It’s sad to say but I think at this point in time the ME/CFS patient community and the medical practitioner community have an almost adversarial relationship when it comes to framing the reality of this illness. Our truth is a threat to the belief systems of many medical authority figures - it is almost as if for CFS/ME patients to have validation, medical authority figures must suffer invalidation. Since medical authority figures have more status and power than most CFS/ME patients, the conflict about what is reality will last a long time.

[@pax378]

Isn't it a retro virus?

[@jewelleryaddict]

@@pax378 to many questions and guesses over the years. no one follows thru to find the truth like they are afraid to admit what really happened to all of us. some have prior virus in body like ebv but many do not so no proof there either.

[@jamiewilliams1410]

I regret not having an advocate with me. After leaving some specialist's appointments I wished I had a lawyer with me. I have had 1 Pulmonologist enraged that I was in her presence even though she prescribed 2 steroids for COPD and an inhaler. Another flat out did not believe in my issues but I was so tired during that appointment the only thing I cared about that day was getting home to bed. My issues have not let up one day, some days are not extremely terrible but even on those days I feel like I just completed a 12 hour shift. My doctor refuses to give me a diagnosis, it has been over 4 years and now my government assistance program is threatening to cut me off because they do not believe I am unable to work. Just getting out of bed and showering every day is out of the question. I shower maybe twice in a week. Mixed with trying to cook a decent meal and doing the dishes is not doable every day.

[@jewelleryaddict]

@@jamiewilliams1410 true its really hard to think there. just getting dressed and riding there can be torture on a good day. then waiting in room a hour b4 seeing the doc leaves us worn out. hard to think with pain and bad fatigue. no one understands but us. next time at least take a list of stuff make b4 you go, try and force them to listen. terrible that it must be that way but it is. 30 years for me. believe me I know. try being over 60 with it. Aging alone is rough with out being sick. then they just want to say well your not young anymore?! gee I hadnt noticed!

[@Ann-kp3qu]

@jewelleryaddict you got it, I’m 56 right behind you plus I have several chronic illnesses . Gentle hugs ❤

[@Madeley-Mick]

Shannon is describing exactly how I feel and think with M.E. I have had it for over 35 years now and it has become worse of the years. Today is a bad day... headaches, very tired... family doesn't understand but some close friends do. Best wishes to fellow sufferers.

[@mikecarey1990]

I can help you.

[@ryanmoser7552]

im 21 and it started when I was 19, this has taken everything from me to the point where I dont wanna be here anymore and dont see myself living a life anywhere close to happy

[@TheUnknown-yx8zc]

So sorry ur dealing with this 21 years old and dealing with this for 6 months as well but starting to recover. I’m on keto and doing semen retention slowly recovering

[@jameskeogh3035]

Hang in there Ryan,I found anything to do with watching nature wether its the ocean or the bush gave me a natural peaceful recharge.Your young and you will find your purpose.Have had CFS for 9 years and you do go through your ups and downs.Its also OK to ask for help when your down, their caring nature is a gift for us.

[@milay543]

@@TheUnknown-yx8zc Can you tell me more about this? I'm 19 and have been bedridden for about nine months. I'm also on treatments for other conditions (Lyme, Babesia, Bart, TBRF, Long-Haul COVID, POTs) - but have dealt with severe PEM recently to the point where I'm unable to do anything.

[@TheUnknown-yx8zc]

@@milay543 I’ve been making a good recovery recently. I’m not 100 percent yet but I’ve been doing very light exercise and commute to college. I’ve been taking supplements, doing no fap, brain retraining Gupta program, and meditation. I stopped doing keto cause it wasn’t helping

[@TheUnknown-yx8zc]

@@milay543 trust me it will get better I’m not fully recovered but I’m so far ahead then when I started I’m on month 8 in A month or two I will be recovered I can feel it hang in there

[@nancychisholm9425]

I feel like the past 12 yrs have been a downward spiral as though the life I knew and miss so much , was slowly and gradually taken from me ... I continue to pray and hope they find an answer and cure because some days I feel maybe I’d be happier with stage 4 cancer cuz I would either be cured with chemo or I’d die ... I feel as though ME is a prison sentence in which your body and mind are being held down “ captive “ sometimes feeling a good day after days of rest and chores piling up ... u accomplish what was always normal only to be pushed back down for hoping and trying .... it’s a very difficult unseen disease to many around me but trying to explain it never seems to carry much weight except you just need to sleep more .... lol .... ya when I can because I seem to sleep when I need to be awake and am awake when I need to sleep ... I believe it’s mitochondrial / metabolic / neurological disease ... it’s definitely an invader in the energy producing department so to speak ... first time to talk about this online ...and I used to be told I had endless energy ... where did it go from dec 27 2007 - Jan 4 2008 ? I became ill and never fully recovered , I was a nurse for over 20 years ... the impact it had on my son of 11 was awful , thankfully today he is in 2 nd yr of college and doing so well .. I thank God for that ❤️💕

[@jessedwards2912]

I totally relate to you. Mine started 12 years ago after I had my daughter, at age 24. She's never seen me healthy and has no idea who I used to be. I've been doing LDI or low dose immunotherapy with Dr Ty Vincent. I have so many things that cause a severe immune response and pray that with this treatment we'll find more antigens keeping me sick. May God give you hope, strength and answers too 💙

[@pax378]

Is it a retro virus? There's a scientist, Dr Judy Mikovits, there's an interview here on you tube, with Dr mercola and Dr juddy Mikovits... Goes for about an hour, I think you'll find your answers there!

[@dixonjazzy56]

@@jessedwards2912 has the ldn helped got mine after mono/ Epstein Barr virus 26 years with it and see no help for people like us. Little hope but not much.....

[@jessedwards2912]

@@dixonjazzy56 hi, well I've gone through all the Hormone doses (Estrogen, Progesterone, dhea, Cortisol, Thyroid, Testosterone) and those didn't help. I have even more severe symptoms during the hormone changes during "my time of the month", so that was our first guess. I'm now doing a dose that contains Lyme, yeast, and Parasites. We have yet to find a dose that helps me yet. Dr Tys view is that it's the immune systems chronic inflammatory response TO THE ANTIGEN. so finding the antigen (internal or external) that is the constant trigger or root problem. Once you figure out the unknown trigger and use LDI to train your immune system to TOLERATE IT, it should calm your hypersensitive immune system down to all of your other triggers (mold, foods etc. For me) there are definitely many things that can give us hope and I feel that LDI is a process worth trying for me. I'm so sorry for your struggle too. Please look into LDI and watch Dr Ty Vincent's videos explaining it all. Ho to globalimmunotherapy.com to download the list of antigens to try. It's much easier when people know what their triggers are. May God bless you and continue to give you hope and perseverance 💙

[@dixonjazzy56]

@@jessedwards2912 The you for that information I have not really been do enough to find answers, I heard of low dose naltrexone but it's not a cure and I would rather get to the heart of this, I will look into talk to your tie Vincent's videos like you said and go from there. Thanks again and best wishes on your journey to Healing.

[@adinashenry5474]

I am in severe ME/CFS range so cannot walk anywhere, I am in bed all the time. I am exhausted and feel like I have severe flu continuously. I have a lot of associated illness with this as well :( It has taken my life from me. So many people millions sufferers and they just sweep us under the carpet like we don't exist. Our Government, after all these years, set aside 3 million for CFS they spend more on looking for a cure for baldness

[@GodsChild145]

I feel the exact same way and I got this disease after getting vaccines at the end of 2016 and have been 95% bedridden and 100% homebound ever since. I definitely feel like the government caused this so that’s why they won’t fund research as to finding what caused it because it leads back to them.

[@cindybrown1356]

Hello to you, something told me to check this site this morning.....your story sounds exactly like my own. I’m severely sick with this hateful illness. I looked you up on Facebook, so I could private message you..and sent a friend request. I’m unable to even read on there ....but wanted to reach out to you. I hope you can get to the Facebook message. Sending understanding, and love. Let’s not give up

[@santeenl]

How are you now?

[@andybreedlove]

How are you doing now? What’s helped? Same..

[@loriengland1422]

Every time I watch this video, it just breaks my heart. Like Shannon, I have ME/CFS, trigggered by a severe viral infection almost six years ago. Although I have a greater degree of functioning than Shannon, (only due to a treatment protocol I developed), my quality of life is very low and, at times, the suffering is unbearable. Fortunately, I have a wonderful, loving and supportive family and some wonderful friends who understand my limitations as best as anyone can who doesn't have this awful disease. My uncle has been involved with The Jackson Laboratory for years. I truly hope and pray their research leads to an effective treatment so Shannon and I and everyone else with ME/CFS can begin to live their lives once again.

[@justbe1451]

Thank you for this share. I'm 3 years in on this ME game, I'm in the severe end and celebrate whatever joy I can muster. This game is all about planning, participating & recovering, without expectations. Once I accepted being a watcher is better than not participating at all, life does have rewards. My heart goes out to all of us ME dancers. ❣

[@andybreedlove]

How are you doing now? What’s helped? Same..

[@justbe1451]

@@andybreedlove thank you for asking. I think I'm doing much better, the mental aspect of not being sick and just in a different body state has been the key. I'm not pressured to be sick or well, I'm just here to move when I can and do what I can. I have more success with little things like taking 3 days to vacuum the house, pack a bag to spend the morning in the garden, it's okay to lay down to recharge, dogs love it. Life is definitely different and caring less about who I was, hurts less. I've realized my ego cried more than my body. Thankfully my environment allows me to be me now. Be well 💚

[@MagnoliaPantherWoman]

"If you care about people suffering you would care about trying to help." So well said.

[@umusuariodoyoutube5528]

"I would say if you care about people suffering you would care about trying to help" I think the same.

[@jewelleryaddict]

yep 30 years of this that were supposedly supposed to be the best years of my life gone, I feel robbed. started at about 1988 at about 38 will never get those wonderful years back, it just makes a person so mad something can come in silently and steal your life while you are alive, its truely devastating. words just fail to describe the loss.

[@ShadowMan66]

I've had it 29 years here started at age 27. Lost the best years of my life and I know exactly how you feel...exactly!

[@sannelarsen4759]

Hello sweety, Im also suffer from ME/CFS. I have never been so sick in my entire life. You deskribe this horribel, horrible sickness so good. I fell the same, as you... If you missing a friend even from Denmark, Im here. You can get my e-mail, if you want to. Take care. And always remember that you are a STRONG WOMAN. WE BOTH ARE. AND EVERY SINGEL PERSON WITH THIS SICKNESS IS STRONG.❣️

[@mbp194]

Hi Sanne, I would love someone to talk to. Email: [e-mail]

[@tedmom3029]

Thank you for sharing your story; I can relate to it, all of it. It has been my life for the past 30+ years.

[@mypuritanicalopinion3332]

Figuring out what to eat is awful since nothing seems to nourish and every food causes symptoms.

[@GodsChild145]

Yes I am always vomiting yet lose no weight

[@k.cthedogofficialtheog]

nah i ion even have it and i already can feel the pain and despair like so hopeless and sad. I hope yall with this condition out there get better.

[@CrystalMouse1]

Yup. It's either my fibromyalgia or my ME/CFS. I actually prefer the fibro Flare-up days to my ME crash days because at least I can move around in pain. I can't move around when my body is completely under a bus 🚍 I'm triggered by allergens, infections, mold, stress, my autism or weather

[@pax378]

There's an interview here on you tube with, Dr Judy Mikovits and Dr Mercola, goes for about an hour, check it out, I think you'll find your answers there,..good luck

[@lindaedvardsson4218]

Yeah.. just the relief of a change can be wonderful❣️...🥺💚💙♥️

[@_mytube_]

...We Need Science ...

[@hartonokharisma5192]

Haha..."science" has been already everywhere....

[@user-jd3pr8bm1p]

No, we need insight from the patient.

[@maxzytaruk8558]

God bless you Shannon, hope youre feeling a whole lot better these days

[@azalea1404]

Thank you so much for describing accurately how this / these disease(s) feel(s). I have exactly the same as you: ME/CFS, fibromyalgia, and a chronic headache do to the chronic neuroinflammation. Mine has been going on for 14 years.

[@boppkun]

I have arthitis and fibromyalgia but I fel like there is something else too. Your story is so similar to mine. I have chronic headaches that often turn into migraines. It's horrible.

[@RestorationWatch]

Fibromyalgia is often the 'kicking off' point for CFS. That's how it started for me. Try to get Voltaren Rapid for the headaches. I haven't had one since I found it. Stops them in their tracks. I feel one coming on and I take one tablet and it's gone. I used to get debilitating migraines before I found it. My brother recommended it. He used to get migraines too. p.s. it must be the 'Rapid' version, the other one doesn't work. Diclofenac potassium is the drugs proper name.

[@emmajones3131]

Please someone change the name from CFS to something that represents what we have !

[@JohnBedson]

What is your suggestion for a new name? Different people have different symptoms. No one knows the cause of this illness. That makes it hard to name.

[@debramartin9396]

I think cfs is pretty accurate name.

[@danide8287]

It's lack of cerebral blood flow causing the headaches ( there's a Dutch study on it by Van Campen/Visser) and the fybro ( ischemic pains because of restricted blood flow).

[@iammaxhammer]

*I am pretty sure I have this from a strong MONONUCLEOSIS infection. You probably would not tell from my videos but I feel like I have the flu all the time, tension throughout my entire body and everything is 10x harder to do than it should be. Definitely not as bad as this lady but something definitely isn't right. Hope they figure this out soon.*

[@Mfield111]

Bingo I'm exactly the same way exactly! I'm so sorry cause I know just what you are going through!!! What a hard way we have to live well No the way we have to try to survive....We Need Help not fantasy healings some people put on the internet. I hear you fellow sufferer I pray medical field hears and research goes on for us each and every one who suffers this crazy illness ...I have found out lately after having this for 27yrs!!! That it does have something to do with nerves in our neck or back that has had an injury or a virus that has interrupted our signals to our brain usually by some sort of inflammation and causes hypersensitivity in fight or flight! It is physiological not in our bodies not emotional...praying they can get to an answer 💙🙏

[@iKat705]

I'm undiagnosed for years, fighting for any type of diagnosis. I have migraine almost every single day, my mind feels extremely foggy and my body and mind is just fatigued all the time.. I believe I might have this disease, but instead they think I gott ADD. Dunno what to do

[@kathygreen6043]

Yep. Up one day or one hour. Crash. Horrible and cruel. Had this for one entire year. Third bout. All three happened after medical events; thyroid storm, surgery, virus. Boom. Body is turned down from 80-90% to 10% or less. To top it off thyroid storm left me with Ménière’s deafness and vertigo for past 33 years. Friends and family are tired of this. As if I am not…..sigh and cry. I am so battered by my body. Hoping and praying.

[@thenatster4383]

What is also not spoken about is the anxiety and depression that is brought on by this disease as well.

[@starfly7]

Find a good functional medicine doctor who is committed to finding out causes of symptoms and try to reduce your symptom load one at a time. ME/CFS is real and devastating just as you describe (I know, personally). That said, you can get better --> perhaps even all the way better.

[@emmajones3131]

Yes trying to chart it and find patterns is like shifting sand

[@Onz70]

I'm 52 and got ME/CFS after having Glandular Fever at 19. I've tried to push through but after years of doing that I'm housebound and spend the majority of my time lying down as sitting upright makes you feel too dizzy. Just recently I had Thyroid Cancer and had to have it removed and go through Radiation treatment which has now left me with head and hand tremors and the feeling of bugs crawling under my skin. I have also just discovered after having a colonoscopy I have Crohn's Disease as well. When does this all stop, I eat healthy and have tried almost everything but I feel I'm just getting worse.

[@twangel46]

In. case its lyme desease which I have ans has the same symptoms. I also had years ofM

[@celesteap174]

Consider Quiropractic care it has definitivamente do some good to me with headages and pain in general

[@dennis2782]

I understand I'm so sick of Doctors telling me I need anti-depression medication,,,,, B-12, D-3 Exersice more Etc..Etc . Etc Anyone on here know of a place to go for Help???

[@eyeslikefire9167]

My sister has this it's no joke

[@Pauline_Benjes]

I can totally relate. :-(

[@tessgirl383]

I have burning legs & twiches. I’m post viral fatigue do I have Me

[@RoaringJaguar]

❤️❤️❤️

[@belart7057]

Sounds like chronic Lyme

[@saraheikius9615]

❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@erdemir5641]

This girl is so good looking

[@frkk6933]

Crazy

[@thorwaldjohanson2526]

While I don't think I quite have this disorder, I have experienced this to a certain extend during strong phases of depression. Where I had perhaps 1 hour in a day where I had enough energy where I could have been productive, but to anxious to do anything. The rest of the day I just spent in bed, too exhausted to get up or do anything. Anything taking a pysical but also more importantly a emotional or mental effort was impossible due to this utter feeling of exhaustion. It is horrible. You feel useless and not like yourself. What makes it manageable for me now is taking anti depressant (citalopram) and an fairly strong dose of ADD medication (Ritalin) . I do have add, but the bigger impact is, that I have a normal level of energy again. I can function more or less. I have no idea whether my problems are related, but so much said felt very familiar. Idk, perhaps what worked for me might help someone. I know that there is a huge psychosomatic element to my problems, not just physical.

[@Captain_MonsterFart]

Oh I went through that when I was younger. At it's worst I would sleep in bed until 6 pm. I remember lying there thinking that the idea of getting up to brush my teeth was an insurmountable effort. I used Zoloft to help me start to dig out of the muddy hole I was stuck in. That gave me just enough to take some actions to change my lifestyle and environment for the better. Two years later I discovered bike riding, outdoor hard work labour jobs then shortly afterwards I left my dreary suburb of robot people and no stimulation and went to the mountains where I became a very very happy ski bum who ate non processed food and had lots of meaningful friendships. No one ever saw that coming, not even me! I still slide into depressive episodes in winter but it's nothing like before. Vitamin D, holy shit it IS the cure. I take five times what they recommend. This winter I had no troubles! I hope you can keep improving your situation because depression takes too much life away from people.

[@GodsChild145]

Neither of you had MECFS I can guarantee you that, you should both feel really lucky. Imagine everything both of you are feeling then add on constant vomiting, dizziness, pain, headaches, swelling in legs and feet, when waking up everyday eyes almost swollen shut it basically looks like you’ve been punched, being extremely achy to the point you cannot be touched at all and even a blanket hurts, like having the flu 24/7, randomly becoming allergic to foods you’ve had your entire life and having hives, itching, severe allergic reactions that send you to the hospital, I randomly because allergic to milk which is in everything but then after a year it went away thankfully but no matter what I would wake up with hives EVERY SINGLE DAY from head to toe literally and then taking prescription pills it would still take at least 3 hours to get rid of the hives and they would come back the next day! Then for some reason our disease causes our eyes to get bad so every nine months I have to go get a new prescription glasses just to be able to see in front of me. Then the brain fog is extremely bad and I have lost so much cognitive function I feel like a mentally retarded half the time to The point I could stand up out of bed and literally forget what I stood up for, can’t think of the words of common things you say all the time which gets frustrating to the point where you start crying, sleep for up to 90 hours straight and tired all the time yet then you’re stuck awake with insomnia sometimes and stay awake for two days straight which makes you delusional! All this happened because I got a couple of vaccines at the end of 2016 and got extremely sick and never got better! I am 95% bedridden and 100% homebound, live with my mother who has to bathe me because repetitive motion like shampooing my hair causes a flareup, just walking 10 steps to the toilet my heart rate gets to 160 very dizzy and sometimes pass out, only have the energy to brush my teeth once every two weeks, yet even though my mom bathed me I can only handle being bathed once a month because it makes me extremely extremely sick and in a flareup for at least a week. Can’t handle talking on the phone for more than five minutes because that causes a flareup, obviously can’t drive anymore which doesn’t matter since I’m too sick to go anywhere, always have to be in a laying down position because even being upright like sitting in a chair causes my legs and feet to swell and my neck/head feels too heavy to hold up so it needs supported! Constantly going back and forth between diarrhea and constipation, vomit at least 15 times a month yet lose no weight at all which makes no sense. I could continue to go on but I am extremely exhausted with zero energy, thank goodness for phones text stuff for you when you talk or I wouldn’t have gotten this far. Ahhhhh tooooooo weak and tired 💤

[@jessedwards2912]

@@GodsChild145 please look into Dr Ty Vincent and his LDI treatment. I'm doing it and very hopeful to help all of my many triggers. I'm also bedridden/ homebound from cfs for 12 years now. Mold exposure was my huge hidden trigger that I was able to eliminate. Now just have to fix all of the rest. Hugs n prayers to you as well💙

[@Mario-kp8mj]

... du bist sehr tapfere Frau !!! Kämpfe weiter 👍✊! Ich wünsche dir alles,alles gute 👍.

[@dirkkatz172]

The cause for me was the microwave oven. This may sound unbelievable: the internet states that the use is harmless or that the danger is cancer or a reduction in vitamins. The first consequences were: pain in the neck, fatigue, sore throat, depression, ..... After 3 months without a microwave oven these symptoms disappeared. Consequences are greater the closer the microwave oven is to you: if the oven is right next to your dining table, for example. If you bring this to your members' attention, those who wish can give it a try and let you know about their experiences. Everyone can now participate in the study! People will not think much of CFS. Organs are not damaged. It looks more like an internal strangulation. I don't know if that can be found. The muscles tense under the influence of microwaves (microwave), Hence the pain and the intestines are too tense, which makes digestion poor and too few vitamins are absorbed. In the throat one has pain due to the tensioning of the muscles there. Be careful not to cure other diseases with fatigue for CFS.

[@jessedwards2912]

I'm also severely reactive to certain EMFs! ( Bluetooth speaker, Nintendo Wii remotes etc) I am completely paralyzed within minutes of exposure! Alot of people are, so you're not crazy at all. My LDI Dr Ty Vincent uses his chemical ldi dose to fix EMF sensitivity. Please look into it for anybody with this problem. Prayers to you!💙

[@JohnBedson]

@@jessedwards2912 SPAM!!!!!!!

[@jessedwards2912]

@@JohnBedson what?😯

[@JohnBedson]

SPAM! Reported to KZbin.

[@jessedwards2912]

@@JohnBedson what did I say that is inappropriate or spam? Everything I said is completely true. I've had cfs for over 10 years and am very sensitive to certain EMFS with severe reactions to them. Is it now against the rules to encourage someone who has similar strange symptoms also caused by EMFS or tell them about a possible treatment that may help them, that I'm currently doing? I guess I thought commenting in these videos and discussing our shared health issues which have left us mostly disabled is spam to you?! Please enlighten me. You're welcome to set up a consult with my LDI doctor or another one to discuss your issues with them😲

[@phongnguyen-hn2sl]

I recommend Nildemrill, Nildemrill really help in treating ME/CFS.

[@s.b.d.manager1272]

Doesn't come up on any Google searches. This is the name of what please.

[@Jane-pg8jv]

Finally people heal ❤️🫶