Pneumothorax (collapsed lung) and Vascular Ehlers-Danlos Syndrome (VEDS), Marfan, and Loeys-Dietz

Pneumothorax (collapsed lung) can be a sign of Vascular Ehlers-Danlos Syndrome (VEDS), Marfan, and Loeys-Dietz.
Reference (VEDS): pubmed.ncbi.nlm.nih.gov/28306...
LoeysDietz.org
Marfan.org
More Information and Resources: TheVEDSMovement.org, Marfan.org, LoeysDietz.org
Additional Testing Resources: FightVEDS.org
The views, information or opinions in the blog, podcast, and vlogs are solely those of the individuals involved. The information does not constitute medical or other professional advice or services.

[@TechnicallyJustin]

I've had 4 this year, before getting Pleurodesis. Been lucky so far. All from vEDS

[@shannongreenwell1278]

Sending gentle hugs, from a fellow EDS zebra 🦓, I have cEDS, but due to a car accident I had this happen to me.

[@shannongreenwell1278]

My middle nephew has been tested for vEDS and the genetics doctor told his mom that he ticks all the boxes for it because his veins blow out for no apparent reason. His skin is translucent and you can see his blood vessels in his chest and his arms.

[@TranslucentOne]

Hi Shannon! Did he test positive or are you still waiting for the results? Best wishes to your nephew ❤️❤️❤️

[@shannongreenwell1278]

@@TranslucentOne I think they’re going to be doing a MRI or some type of scan on his legs to see what is going on, I think the genetics doctor is doing it and he is the one that Dx him with vEDS. I am certain they have already the Dx. Now they are trying to figure out how to treat it.