Рет қаралды 263
I'm just about a month post Occipital-Cranial Fusion and Chiari Decompression surgery and unfortunately I have a CSF Leak. You can find my symptoms and treatment plan here!
0:44 CSF Leak and Blood Patch Update
7:51 Other Post Surgery Updates
#eds #craniocervicalinstability #health #csfleak #spinalfluidleak #pots #cci #tachycardia #ehlersdanlossyndrome #ehlersdanlos #disability #chronicillness #invisibleillness #spinalfusion #dysautonomia #decompressionsurgery #chiarimalformation #chiariwarrior #aspenvista #neckbrace #disabilityawareness #spoonie #spoonielife #zebra #hEDS #mobilityaid #accommodation #inclusion #potsie #hypermobility