POTS (a remarkable condition) - Talk by Dr Sanjay Gupta

Dr Sanjay Gupta, heart specialist and consultant cardiologist in York Teaching Hospital, is giving a presentation on POTS and answering questions from the audience.
POTS is a syndrome that many people living with ME/CFS and fibromyalgia suffer from.
This talk was hosted by the Sheffield ME and Fibromyalgia Group.
www.sheffieldmegroup.co.uk/

[@HodaMcClymont]

I had a little cry hearing this angel of a Dr speak. He understood! He understood! How lucky are those POTS patients who get him as the Dr.

[@alisontrenter8293]

Me too!!!

[@adiadouglas7615]

I too had a cry and I believe it was because of this doctor's sweet manner and genuine concern for people struggling with this.

[@LexaWinter-vj5ef]

I love how he admits he went from a doctor with knowledge on how to treat people to a doctor with knowledge on how to care for people, that’s the shift we need to see from many in healthcare professionals.

[@liltunafish1471]

“Patients come first, definition comes after that”. Mad respect Dr. Gupta. I wish more doctors think like you do. We need to be reminded that definition criteria, tests/ investigations all have the potential of false negative and missing the outliers. Thanks for this amazing session

[@humaalimd6004]

Wow just wow 🤩 dr. Gupta I’m a personalized precision medicine doctor who treats such patients This is the most comprehensive resource I’ve found I’m so grateful for all your efforts

[@jom6320]

Understanding and listening is comfort for patients, so many are misdiagnosed and dismissed. Thank you

[@asmrbrat471]

Omgggg how beautiful he grew so much as a doctor !! 🥺 I love this so much. ❤️ I just got diagnosed after 4 years of educating myself and begged for doctors to listen and I knew it was pots the whole time. Ugh there’s nothing like haven’t your life taken and a doctor loving you like there family to help fight with you.

[@jackya]

I diagnosed myself...after 15 years. If you haven't read about leaky gut syndrome please add it to your list. I'm certain it is related to POTS. The diet saved my life. Thank you for being a doctor who takes the time and sorry you had to learn the hard way

[@brainwithani5693]

I love this man's spirit. I wish he was my doctor

[@bazia7927]

What a beautiful & kind heart you have! May you be contagious to Drs everywhere! Thank you from the bottom of my heart. 21 years heath journey with #Myalgicencephalomyelitis #POTS #MCAS

[@mollasima3251]

This was tremendously helpful. I cried during certain parts bc i have been struggling with this for years with doctors dismissing me. It started a few years ago with either COVID or i had a surgery that removed my ovaries and then was put on estrogen/progesterone hormone replacement - i don't know if was covid or the hormones bc they were at the same time. I had all these symptoms to a lesser degree all my life (i thought everyone struggled with them! 🙄). But when those events happened in my life - this condition became literally debilitating. I thought i might be dying. As i listened to this, i cried with relief and validation. Thank you🙏💜

[@gloriaanngomez3238]

You have such a good heart dr Gupta!!! 😊Apparently many drs don’t want to bother learning about this malady let alone treating it! I have experienced POTS off and on for several years now and have ME/CFS. Now my granddaughter has POTS really bad and was blacking out multiple times a day and no one would believe her and help her until she started having seizures. They all thought it was psychological because she’s a teenager. I was absolutely incredulous that no one except the school nurse was taking this seriously!

[@ClaireGraceMarshall-jr5mm]

I have three children with special needs including my son who is severely disabled and in a wheelchair. I would be hopping mad that nobody but the school nurse was taken by it seriously. She should've been receiving better care than that from those dr's, as a parent that's appalling not to mention disgraceful.

[@lilaworley8935]

Is it possible to Love a doctor, you've never met, that is half way across the globe because he understands your problems more than any professional you've ever sat with? Why yes.... Yes it is. So you ever visit the USA? I would travel to meet you to just say thank you.

[@AlbaLynxQueen]

Wow. What a doctor. I wish I met such a doctor just once.

[@amybass560]

May God bless you. There sure aren't many doctors left like you!

[@SparkVisionHub]

Was diagnosed today, great info. Been walking around clueless since 2019

[@RobdeKlerk-qg6lc]

What we're your symptoms...

[@sueregan2782]

I am 79 years old, have had ME/CFS for 50+ years, but acquired POTS (including all those other dysfunctions on the list) a couple years ago when my PCP put me on a diuretic for B/P. He then wanted me on a reconditioning exercise program. I refused, and had a blood test done through another doctor: my electrolytes were severely depleted. Discontinuing the B/P meds and concentrating on intense restoration of electrolytes and other depleted nutrients has helped reduce the POTS heart rate, eliminate IBS, improve sleep.

[@jojogurl83021]

That would be me! 2 years of ER visits and constant research! Today I realize this is what I'm experiencing for the past 2 years.

[@alyssagwynne421]

Me too! I feel this so much! Really hits home!

[@autumnrose_noseinabook]

I'm currently seeking a diagnosis but since some friends have brought POTS to my attention I feel like there is finally hope!!! I have had a mountain of symptoms for 11 years, starting when I was 16. I have been to so many doctors and taken so many trips to the ER but always get turned away without answers. I have been diagnosed with anxiety disorder, but I've always felt there was something more to it. I had covid in September and had horrible brain fog and fatigue that never went away. My other symptoms have worsened as well. In November I had a really bad spell of high heart rate (reached 180 at one point) and extreme lightheadedness and dizziness on top of the worse brain fog and fatigue I've ever experienced. I thought I was dying. I think covid brought out my underlying condition which I'm 100% positive is POTS. That possibility connects ALL of the dots for me, especially all of the things I thought were unrelated such as foot pain & extreme photo sensitivity. My PCP thankfully knew about POTS and was very supportive of me wanting to investigate POTS further and gave me a referral to the cardiologist, so now I'm waiting to see seen by them.

[@lizinawe]

DR ROB WILSON AT CLEVELAND CLINIC HAS BASICALLY SAVED MY SANITY AND MY LIFE.

[@user-iw2vn2vn3y]

He is the best doctor ever! God bless Dr Gupta!!!

[@barnbrac2452]

What an amazing example of patient centred care and a clinician that actually wants to help those suffering. POTS is a common symptom in long term (greater than 3 weeks) benzodiazepine use (tolerance, withdrawal, post acute withdrawal syndrome, benzodiazepine induced neurological dysfunction)

[@AlbaLynxQueen]

Oh. God. I started having POTS after a 10 days benzo use. All doctors dismiss and gaslight me. But I had no tachycardia at all prior to benzoes. Now it's been more than a year since then, my HR standing up is 130. When I lie down it's always 60-70. 4 months before benzoes I went off ssri rapidly. It might have contributed to me developing POTS

[@charmainethane5301]

I love his honesty 🙏 & integrity

[@kayladekraker8917]

Thank you so much! I developed severe pots after the covid vaccine, but I have had raynauds, ibs, anxiety, and hyper mobility my whole life.

[@mohammedaamir2855]

Same with me

[@Truerealism747]

Any pain

[@marinaspiliopoulos492]

There is a link with hyper mobility.

[@allisong2159]

I have been suffering with this my entire life! It’s so refreshing to hear a doctor who actually listens instead of dismissing patients who have difficult medical issues! I was told I had fibromyalgia when I was in my 20’s and have carried that diagnosis around since then. It seemed to fit some things but not all my symptoms. My daughter was just diagnosed with EDS and is being sent to a geneticist. It answers all of our symptoms finally! And Dysautonomia is a comorbidity of EDS! Thank you for this information! Maybe now I can take some of this info to my dr and see where we go from here…..wow

[@TheBushRanger.]

Look up dr Sarno TMS for your fibromyalgia

[@NuLiForm]

Same

[@joanneclark8256]

What tests what company ? Do you remember price? Did you ge tested and daughter? What helps you ? Do you at all experience internal vibrations? Would love some help

[@susanclowser1207]

Wow! I have suffered my entire life too! Drs just give me the look.. it is miserable

[@Truerealism747]

​@@TheBushRanger.Yes with asperger's were sarnos.ultra perfectionist s

[@lilibethporal4322]

You made me cry Dr Gupta, you are sooo compassionate. God Blessed you!!!

[@_Julie_Bee]

Wow. This apology made me tear up. Thank you.

[@judee.baland6526]

If not forDr Gupta I would have never had a clue what was wrong! Eternally grateful! ❤

[@Teddys_Adventures]

This is amazing. Thank you so much. I was diagnosed two weeks ago by a cardiologist. Wafted a few years of being told by everyone (family and GP!) that I had anxiety.

[@Lyf-3276]

This is the most detailed thorough explanation of living with pots I’ve ever heard.

[@michellee6812]

Thank you Dr Gupta 😘

[@irenenavarrette1918]

Thank you so much Dr. Gupta! For this video.

[@MelismaTheEnigma]

I love this man!! What a hero!!

[@angelar.2088]

Wow ! Finally a diagnosis that fits me to the point . All this time I’ve been suffering ( 18 months with no diagnosis or treatment plan. Meds after meds that had nothing to do with the my symptoms , agony . My B12 and Immune system is very high w/inflammation where I am sensitive to too much heat and cold . On top of everything I have neuropathy and a swollen esophagus that feels like I am carrying 50 pounds around my neck . I need peace 😢

[@alisaharris1381]

Thank you for taking time to help us. It’s hard to deal with , honest human being willing to help .

[@courtneyr6645]

Look up MCAS

[@jrose4209]

Outstanding video. The most helpful thing I’ve heard applauding you Dr.Sanjay

[@angelikasusanne2830]

Thank you so much!

[@marianacadore9245]

Fantastic interview, thanks 🙏

[@heatherr1141]

Awesome presentation. Very clear and well understood. Thank you for caring for the person and take time to make videos an helpful advocation. We need more Drs like you. I wish I could come to you as my Dr. Where are you located?

[@donaldblevins1762]

Thank you!!!

[@peggymicsky8607]

This was an excellent presentation, Dr. Gupta! Long overdue and much needed. Thank you for being the Doctor who was willing and dedicated enough to take it on. A curious, hard working and caring Cardiologist!

[@peggymicsky8607]

Amazing minds and Leaders are rarely satisfied with the Status Quo, especially when there are so many questions and much unknown. And more to be done. Dr. Gupta is one of those people. He's always searching for more. Mediocracy is not his thing. Thank God for people like him in the Medical Field. He sacrificed and worked hard to become the doctor he is. He will never stop growing. 🙏

[@peggymicsky8607]

A Remarkable Doctor!

[@KK-ex3ej]

This is incredible thankyou so much for sharing your expertise

[@larablackburn9649]

he's soooo nice. i want to cry

[@peggymicsky8607]

Please put another video on KZbin!! This one is for Pots patients and there are many more of us with other problems who enjoy your presentations.

[@marcialawing761]

Wonderful doctor wish they were more

[@kyleszczepanik6392]

Thank you

[@anneedmunds3440]

Dr Sanjay Gupta, Thank you so much for taking the time to help educate/inform us♡. This was an excellent presentation. #drsanjaygupta

[@maletero9888]

It was only after LAD stenting did my heart beat strong enough to feel the pulse in my head did I realize what was happening. As I stand, my heartrate skyrockets and my blood pressure plummets

[@AlbAy537]

My favorite Doctor

[@mrs.v4565]

WOW FINALLY SOME ONE WHO TRULY UNDERSTANDS POTS

[@deborahakey9308]

Thanks so much my prayer is : MORE Dr.s like u!!!!!! 🫶🏿

[@alyssagwynne421]

I really want to add also that with my experience in reading a lot of people's symptoms, that I've noticed most patients with pots or dysautonomia have low heart rate variability. (HRV) not heart rate, but the variability. Low heart rate variability is crucial in this illness. It causes the exhaustion, the irritability the lack of get up! It directly relates to the autonomic nervous system. I got an apollo watch, that seemed to help with it. But I still have HRV in the low 20s most days! There are so many facets to this illness and I'm so glad it is getting the recognition it deserves! There are so many of us suffering that have been diagnosed with anxiety for way too long. It's a debilitating feeling and I am praying that soon I will be able to find a Dr who will help me. Who will listen and not just tell me to drink more water which I already do 😓

[@joanneclark8256]

How do we find put our heart rate variable? Low? Does it worsen at night?

[@lizinawe]

EVEN WHEN I DO CARDIO, IN THE EARLIER DAYS, I COULD NOT GET MY HEART RATE UP TO 120. I THINK YOU HAVE A VALID POINT HERE!!!

[@corrinneloudon525]

Thank you for a most informative talk! In the 15+ years that I’ve had POTS, I’ve never heard any of this, or had any help from my GPs. Self help and Dr Google have been my only remedy. Some of the advice given is in direct opposition to that given for managing my heart failure and damaged mitral valve, e.g. use of diuretics/gliflozins. I think I’ll just have to carry on putting up with the POTS 🙃

[@inframinced6698]

It seems like Dr. Sanjay Gupta has mostly come to his senses around recommending IV Saline and that's great to see. I was concerned when he thought it was a good solution.

[@carolwilliams383]

I didn’t get POTS Til I was 52 had to diagnose myself til I went to Cleveland Clinic and was finally diagnosed by a Cardiologist there, three Cardiologist in California said it was panic attacks 🤷‍♀️

[@georgiarelman]

It’s important to know that preemies experience dysautonomia because their automatic reflexes do not coordinate well, this often does does ‘catch-up’ especially if you were born less than 32 weeks GA. Under stress or stimulation of any kind they experience orthostatic hypotension (bradycardia), while late preterm (34-37 weeks) experience tachycardia. Abnormal Baroreflex sensitivity, Whereby the baroreflex does not coordinate with the parasympathetic or sympathetic reflexes, resulting in episodes of hypertension (tachycardia) and/or hypotension (bradycardia). This helps explain avoidant behavior-must stop, rest, recover.

[@colleencooper535]

I wish he could be my doctor. Developed POTS due to Covid and none of the doctors I see can help me.

[@shilohvanderkooi7784]

I wish I lived in England. I ironically live in Calgary Albert where Dr Raj is located but not only does he not have any time for his patients but he doesnt seem to give a single shit AT ALL about us. I wish I could see Dr Gupta. 😢 I dont even want to be alive anymore because this illness has stolen everything from me and no one has been willing to help me for 3 years now. I'm in a prison that is literally my own bed.

[@Truerealism747]

Been there and living it still 26 years HDS Asperger's add how are you now have you got much pain check out Dr lenz Dr schubiner where us Dr Raj based England is not good for these conditions

[@katierobertsfnp6403]

Good Doctor, You are making this world a much better place. I wanted to report that I sustained triple negative breast cancer in 2013, 2013 while leukoplenic caught a respiratory infection. This post-viral illness segued into ME (myalgic encephalomyelitis). 2014 advanced basal cell whilst immunocompromised on my left scalp>split thickness skin graft to approximate the head wound slightly larger than the size of an adults palm. 2016 triple negative breast cancer chest-wall recurrence. Bedridden for 8 years. Severe chronic pain. Hence CIPN chemotherapy induced peripheral neuropathy, Dysautonomia, right-sided low atrial pressure, negative full cardiac work up but continued with incessant, sharp, chest pain. Now, finally to the point!! My ME/CFS MD in Boston, Ma, David Murray Systrom and his PA have RX’d Pyridostigmine (Mestinon) now for over three years. Chest pain 100% treated. My current dose is 30mg three times a day. I feel much better, can be somewhat active-ish, and drive again. You and Dr. Systrom are of the same cloth>practicing patient-centered medicine. Respectfully, Katie

[@OvercomingPOTS-zd5ql]

Your comment broke my heart. I also saw Dr. Raj but he didn’t have any advice for me other than the basics. I had to become carnivore. Only beef and salt. It’s changed my life. It is awful, but I can stand for many hours now. It took 3 months to adapt and it was really hard. I also treated a double MTHFR mutation, went to NUCCA to realign C1 and C2. Don’t give up! We are all laying in our beds crying with you. You aren’t alone! We all will keep fighting to get better and fighting for more solutions!

[@jestinadawkins6517]

Watching from the US . Enjoyed the education. You are not only a great Doctor but an incredible human being. God richly bless you as you take care of his children. What happens if you have high blood pressure and on a sodium restricted diet regarding sodium intake? Thanks so much.

[@denisetaylor-crommett4781]

I was fine, about to hike 4000ft mountains. Athletic all my life. At 56 last year got Covid twice and Lyme disease, Bells Palsy. in between that. Never been the same. So long Covid? But my symptoms fit into POTS and MCAS. I take walks but have to walk slow or my heart tachs right up. Forget going up hills. Fatigue, chest pain, guts are a mess and sleep sucks. I am hoping things improve in time but underneath I am don’t believe I will ever be the same. I am trying to learn to live my new normal. I did have to take 6 months off from work because the fatigue and symptoms were too much. I am back to work but can only tolerate a 25hr week. It’s really hard as I am a type A busy kind of person.

[@traceyhilder6640]

What a wonderful doctor the world would be a better place with more Dr Gupta I’ve had rapid heart rates I’ve got CFS and fibromyalgia My son is experiencing the same he’s been checked and heart is ok but they don’t know why he’s generally not well daily

[@Truerealism747]

Do your muscles hurt everyday sure fybromyalgia is a symptom of cfs

[@kellyofthehead]

I wish I could get an appointment with you, I'm so frustrated with my GP. It took me 6 years to finally get an M.E diagnosis, and the last few years (worse now) I've been having dysautonomia symptoms, POTS especially. Pounding heart just from standing, often losing my balance and feeling really sick. My heart rate raises from 80 bpm to 130 just standing. I also get the pounding heart after eating, and night time anxiety. 6 years of feeling ill and not being believed . 😞

[@donnaslack6203]

I wish my daughter could find a doctor like you in San Diego. They all want you to fit in their box for their specialty. It has taken a year to even get an appointment. Most doctors just don't care or won't take the time it takes. The patients aren't able to fit into a 15 minute appointment.

[@Savannah-ed4rv]

I'm not sure what award Dr. Gupta should get, but he should get something for being such a warm and caring and dedicated physician! I greatly admire his attitude and his work and it's wonderful that he's helped so many people with this condition. I believe I had pots or dysautonomia at a young age maybe around 8 years old because I started to have near fainting episodes when I would stand up too quickly it went on until I was about 50 or 55 years old just maybe 10 years ago. I think because my blood pressure naturally went up as I aged it took care of that near fainting. I never had tachycardia, but I do have intermittent atrial fibrillation and I have a histamine intolerance now. It's all kind of coming together and I've also suffered neurologic pain syndrome. If I had had a doctor like Dr Gupta my life probably would have been a lot different.

[@melissafarrugia9531]

Rewards in heaven for Him

[@ruthiea2789]

I had terrible tachycardia that landed me in the hospital after taking nortriptyline for neuropathy. Never understood what happened there and the doctor didn’t either but watching this made me realize I think I might have POTS. dizzy fatigue tachycardia random episodes but also postural. Tachycardia wakes me up in the middle of the night sometimes. It all makes sense now. I’m a nurse always suspected I had an issue with vascular laxity, don’t seem to adjust physiologically to a change in posture though my BP is fine my heart rate shoots up. And seem to be sensitive to anything that increases my adrenaline meds caffeine stress. I’m also quite hyper mobile. Too many symptoms more to list here but this has been eye opening. Interestingly I started ballet 8 years ago and always feel better with the symptoms on days I do class or am physically active. If I’m sick and lying around for a couple days the palpitations get so much worse.

[@MaryinOmshanti]

Thank you ~ it's not a disease, it's a condition. I can't take those meds because I have low bp and ischaemic heart disease. I have Dysautonomia (worse than ever) following a Covid infection. There are SO many of us.

[@aaltimore522]

I feel I also have this, started after COVID in November 2020. A year ago after much researching multiple symptoms, my PCP basically laughed at me and said no way. Mine start when I wake up and walk to bathroom, by the time I get to the toilet I am tingling from head, down my arms, across my chest feeling as if I am on fire, start pouring sweat and have actually passed out several times, losing control of my body and functions. I am constantly tired, do not sleep well or normal at all. Have a flutter in my sternum often and heart rate goes up and down regardless of what I'm doing. It's scary and debilitating. Actually my chiropractor and his naturopathic brother have told me they're sure this is what I have.

[@aaltimore522]

Anyone else have these or similar symptoms?

[@Catlily5]

​@@aaltimore522Yes, I have very similar symptoms and I am diagnosed with POTS

[@aaltimore522]

I was able to maintain mine with clean eating and exercise, haven't had an episode since June of 2022....when I'm not eating well I can feel it creeping in and it gets me back on track in a flash. I never ever want to feel like that ever again.

[@AjcgMe]

Can you please send the slides from the talk? I can’t see it on your website thanks 🙏🏽

[@yvonnejohnson1004]

I spent over 14 years saying that I thought I’d got Pots. No one listened to me and no one believed me they thought that the Cardiologists knew best. I was like a broken record but I never gave gave up. Then two doctors individually in A&E told me that that’s what I’d got. One said that I had symptoms that I didn’t know about and the other one gave me a print out. What did my doctor do? She sent me to a cardiologist for two years and when I told him what the two doctors had said he said “What do they know?” and he kept prescribing medications which made me so ill. I made an appointment with my doctor. She asked me how I’d got on and said that he can be a bit strange. I said that I still thought that I’d got Pots and she said “So do I.” But she didn’t know where to send me. I told her that I wanted to be referred to Cardiology at the LGI. I saw a doctor with a special interest in Pots and he diagnosed me. He also wrote a letter that I could take to A&E asking if they’d give me IV fluids. No one had heard of Pots. I’m relieved that some Pots sufferers don’t have to fight as long as I did these days.

[@Kb-mx8lv]

I have suffered since a teenager. No doctor could tell me what wrong. Started doing my own research and came across POTs. I was relieved. I was already taking propranolol for fast heart rate and told it would help my anxiety.

[@MaxPayne-fi1mz]

Has it helped??

[@Kb-mx8lv]

@@MaxPayne-fi1mz yes it does

[@MaxPayne-fi1mz]

@@Kb-mx8lv Do you think you will have to be on beta blocker for life?

[@DeeDee-44]

POTS isn't a heart condition. It's a problem with the Vagus nerve.

[@LifeOnHoth]

How interesting that it was first described - that it was soldiers (men).

[@mrsanjayjethwa]

Consider having your iron levels checked, anaemia can cause similar symptoms.

[@skyechambers1968]

This man is Dr God .........x

[@carolwilliams383]

He is not a god at all

[@peggymicsky8607]

Thats not for you to say. He's a wonderful Doctor and a God to some!

[@carolwilliams383]

@@peggymicsky8607 it is for me to say there’s only one God creator of heaven and earth. I would never call a man a God.🙄

[@peggymicsky8607]

You're a Doctor, Sanjay! If POTS didn't peak your interest, you fail as a Doctor. Most good doctors want to "fix" (cure) everything! Routine is boring and how good doctors get burnt out. A good doctor can be a pioneer and discover/invent great things. A good doctor can cure these discoveries! Keep searching, Sanjay!

[@pamelawilson2301]

My Granddaughter has Dysautonomia/ POTS you obviously did not listen to the complete video!!!!!!!

[@peggymicsky8607]

If talking to me, please explain? I don't have POTS but I think I understand what Dr. Gupta is saying.

[@vynedvyne59]

Exercise that helps me Classical stretch floor exercise

[@jennybarrionuevo6428]

How can I get an appointment with Dr. Gupta, we are in Los Angeles California. Please provide us with the date And time for an appointment as soon as possible. God bless you.

[@imvincentblair8911]

I have every symptom listed. Raced professional motocross for 15 years and get winded carrying my 8 month old to the car now. What got me was when you stated patients complain of palpitations when standing still but go away when walking. Testing today my heart rate was 60 bpm sitting with my feet up. I stood up and walked around and it went to 115-120. As soon as I stopped walking I felt pressure in my body and my heart went to 140. It took a couple minutes for the racing to stop and as soon as I stated walking again it would go back to 90. It's so frustrating. I wonder if it goes down when walking because muscles contract and vessels pump the blood back to the brain and heart easier. Also could the delay in vasoconstriction cause too much adrenaline to be released giving anxiety attacks?

[@susanclowser1207]

I’ve been to many Doctors and have all of the symptoms and no diagnosis. I truly believe I suffer from this I also get flushing and no one can explain that either

[@CandycaneBeyond]

31:25 I'm listening to this during Christmas 🎄 season. I look over at my phone and see the Grinch 😂😂

[@maletero9888]

I am diabetic, they blamed diabetes. It may be related but I quit drinking after years when it first happened because I always feel drunk. It may be related to malnutrition due to a defective gut biome. My doctors have barred me for questioning their resolve

[@lamestreammedia0]

I'm seeing Optic Nerve Atrophy at age 51 after decades of random visual dimming. Any connection to lack of blood to brain and a die off of Optic Nerve? Referral to Neuro-Opthamology, but 4 month wait list.

[@lizinawe]

in addition, i think i am having a normal day, go out, and suddenly my energy drops and i am done for the day or two. often need help returning home. i do not have diabetes nor pre=

[@terminallyballisticM855A1]

I need to find a doctor in Central wisconsin that can test me for this, it seems obvious , the cold, n back neck and headaches , stomach aches , it makes sense

[@elizabethdesmet89]

Where does Dr Gupta practice?

[@SuzanSemore-ce8nc]

Im a 73 year old woman. I got covid for the 3rd time in march. Sence than i have been suffering fron all the systomes you talked about. It has taken all my energy to type this. What is going on. I was VERY active 3 months ago i could out work any man. Now im weak as a kitten.

[@barbaragdisis4606]

Is there a c1q deficiency connection? My daughter also has mass cell disease and ehlers danlos, now lupus

[@aspiringalchemist8398]

Yes!!! Glandular fever… A.k.a. mononucleosis! I had it at 17 and instead of getting better I just went right into chronic fatigue. And now at 55 I still have never fully recovered.

[@jenniferwatson9323]

Have you looked into EDS and mast cell activation syndrome? I was diagnosed with with those and POTS

[@Truerealism747]

I have hdd not sure if eds lot of confusion between drs and maybe the same I've had CFS pots now fybromyalgia all started v1997 after a fall now found out I have Asperger's add like my son been diagnosed my mum obviously has it undiagnosed and has severe ms.

[@thedoopa3169]

I had a loop recorder inserted, I have to get a tooth removed because i fell on my face and broke it, I cant stand for longer that 30 minutes, my digestive track isnt working, my gag reflex are acting for no reason, im sweating tons, my eyes are dry. Life is hell, its been 5 months of cardiology and neurologist and I still dont have a diagnosis. Theyre saying disautotomnia but not officially, i had to quit my job as a sues chef, been demoted to dishwasher and i still cant keep up.

[@judee.baland6526]

I had all the symptoms for many years. I would go shopping and sweat so profusely that it was embarrassing. Waking at night with a racing heart going to ER and being told nothing was wrong. Having inflammatory bowel disease most of my life. I do wonder if I had this as a child? I was always tired always with diarrhea as a child. Blood pressure will go up very high then back down, If I lie down and put ice on my face and neck. Does anyone else have the sweating?

[@myrtleesther8855]

yes I do so profusely from my head especially on standing up, any exertion and if temps are even a little higher than normal. I look like I went for a swim!

[@denisel.2790]

Yes, I hate it!

[@user-yl9ck9ob5t]

I have this since I got covid

[@marlenehofmayr430]

Same it's hell

[@Truerealism747]

@@marlenehofmayr430 any pain?

[@brendabrenner2891]

​@@Truerealism747whole body pain norm after covid, USA, 3 covids, 10drs don't know what I'm talking about in RI, pain moves around, it's vasculitis.. google all top Drs, covid centers , keep diary🙏❤️

[@kellyfogg7398]

I think I have got pots because I have got most of these symptoms and I would like some help please

[@CandycaneBeyond]

1:07:23 aren't rigid veins associated with heart disease?

[@barbaratrepka5896]

I have pots and my blood pressure drops when I stand and my heart speeds up I take metoprolol and feel so much better

[@aaliak4499]

Could I have POTS? Ive been suffering terribly since my mid teens after a hepatitis infection from working in a restaurant. * extream fatigue * dignosed ADHD * IBS-D * chronic bladder issues * extream palpitations & PVCs with standing * often feel like blacking out when i stand * low endurance * shortness of breath * frequent insomnia * feel very faint standing still or walking slowly. * heat intolerance * after a day of normal activity i have to spend a day or more in bed with a headache that becomes much worse with standing. I bought a pulse oximeter a few days ago and have been doing the standing test. Half of the time my BPM do increase by more then 30, but other times only by 20-27. Every time though my heart beats very erratically with standing with excessive PVCs. In one test I decided to count them and had 40 PVCs in 5 mins, some were 2-3 in a row. My heart always went back to normal very quickly after laying down again. Could this be POTs, or something else since my BPM didnt always go up 30 or more? I know I cant be diagnosed online Im just looking for possibilities while waiting to see if my doctor will get me tested.

[@debsarno2532]

This sounds like my symptoms of Parkinson’s!!! Dizzy, fatigue, gut motility brain fog etc

[@Truerealism747]

Makes me wonder how many turns into it later in.life

[@karishmadhaver881]

Gosh I have been I hospital for 10 days already n all I hear is I need a heart transplant coz I have a sick heart . I have been trying to figure out why did I get difib the first time I had a 3min hot shower and 5mins down the line I felt my heart rate go up and I got difib . Then a week later I had to do a revision on my difib lead and went under general anaesthetic then a week later I remembered going to the loo often that night and was very hungry all night when I got up at 6am and stood up I felt my kidneys vibrate along with my heart rate going up and got difib around 20times on my way to hospital Advance Life Support was on scene but couldn't do anything much to help me . When my electro cardiologist got to me he said to put a magnet on so it would stop shocking me . I think I have Pots . Im afraid of going home as my difib might do it again . I'm all the way in South Africa n don't know of any doctor that can help me .

[@barbaraferron7994]

Q:Tilt bed 🛏️ which way, head up or head down?

[@sarahturnbull7610]

Head up.

[@tracystandish3420]

Is there a easy way to figure out if it's pots or anxiety? The symptoms are almost exactly the same?

[@sheffieldmefibromyalgiagroup]

Hello, PoTS UK has some useful advice about how the condition is diagnosed: www.potsuk.org/about-pots/diagnosis/, which would identify if it is PoTS or something else.

[@botsareeverywhere]

I NEED TO FIND A DOCTOR WHO UNDERSTANDS THIS CONDITION 😡 😢

[@jkmjemmadesigns5553]

The GPs here only deal with diagnoses they punch up in a computer specific to their iuhealth group think AND NO MORE..sad and frustrating. They don'tclike patients who give up on the 15 min 'appointment' with the intern aged doctor goes to ask the professor, essentially, about correct diagnoses for a patient he hasn't even seen...older people just suffer because they have been taught to believe the doctor without question and to accept ' you are just getting old so...' as a result, when I do my research and call them for additional appts armed with data...it is exhausting...and of all things after a couple of years my back pain may have tirned out to be a ureter infection somehow unseen.