♡ POTS Awarness: Fainting On Camera!!! | Amy Lee Fisher ♡

[@SassyQ87]

7:50 your boyfriend's "ow" had me dying lmaoo so glad he was there to help you.

[@alexariva4415]

SassyQ87 agreed

[@kamalionify]

SAME AHAHAH

[@anabellefox7720]

OMG his ow had me laughing for 10 minuest straight. I love how he was reaching for her before she even fainted because he knew what was coming.

[@carlos66965]

Nobody said her fainting was funny. But the noise he made was.

[@lennonmcbird06]

"Aouh"

[@camcam794]

I love how Tom gives the thumbs up like, "this is totally normal no big deal!"

[@amyleefisher52]

Cameo Gonzales haha guess it’s his normal, love it 😂

[@staceyparker4313]

Hi my name is Stacey . With your pots does your blood pressure drops randomly

[@ignaciocarmelo293]

I dont mean to be so off topic but does anybody know of a method to log back into an Instagram account?? I stupidly forgot the password. I would love any help you can give me.

[@gavinhank4933]

@Ignacio Carmelo instablaster ;)

[@emperorsnow9482]

Being in the medical field your videos fascinate me. I am an emt so I see people with these chronic issues, but I don't see what life is like for them, I just see them on the way to the hospital. Thank you so much for making these videos and giving people a peek into your life. Also you do a great job explaining these things to healthy people because you put it into terms people can understand.

[@jeanwinders6101]

Why would ems people treat people cruelly for a real medical condition? my own daughter has pots w/seizure. The ems community has been soon rude and has also treated like a physic. Recently I told one guy I call suffer dude (Brevard County FL) one word out of him that I would kill him for the disrespect he has shown my daughter. Thank God one paramedic had done some research and convinced me that No one would ever treat her poorly again. Thank you and it's important that you spread the word

[@SashaSRenee]

@@jeanwinders6101 honestly, i think that comes from not understanding/knowing of the illness (or the severity of it) and just assuming they know better than the person with the illness. and i think that, at least some of the time, it's because that person doesn't want to deal with anything too complicated, or have to do extra research. i've seen it from many different doctors (ER, urgent care, primary care, and even specialists). it's a very rude point of view that does not belong in the medical field but is sadly seen way too often.

[@Ryutatsi]

I'd give Tom a thumbs up for handling it so well. It takes alot from the people around as well. He is obviously used to this. Somehow it really warms my heart, knowing that there is people out there like this.

[@natashaheath8402]

I can't have been the only one to have a little giggle at the "ow" when he caught her, lovely demonstration x

[@nevayyohan5731]

I did too XD

[@kaiyat]

I was recently diagnosed with POTS and when I tell people I get really dizzy when I stand they tell me I’m overreacting and I just have blood rushes. It’s really frustrating

[@izzybarr8410]

Same

[@poppy.8126]

Do you pass out at all? I’m currently being tested for my dizziness but I’ve only ever passed out once from it

[@izzybarr8410]

Poppy .81 I’ve never fainted and hope I never will

[@GodisLovetoo]

Katie Yates I can relate. I just started sending videos like this to my loved ones and children. Blessings to you on your POTS journey!

[@Kurothechurro23]

Saaaame

[@rkjs7615]

“Born ready love” -Tom the most wonderful human in the world.

[@beccachambers4007]

Tom is brilliant. He stayed so calm and was just like “yeah you’re fine don’t worry” 😂😍 I don’t have a diagnosis with POTs but my heart rate goes from like 79 lying down to 137 standing up. I don’t always pass out though I only have once or twice.all my consultants say that my resting heart rate is high but they never do anything about it

[@amyleefisher52]

Becca DoesMusic I would get a second opinion because that sounds like POTS, have you had any testing? xx

[@beccachambers4007]

Amy Lee Fisher My paediatrician checked my lying and standing blood pressure and said it was a little on the high side but she thinks it was fine. The doctors in A&E always say my blood pressure is low and my pulse is high but they never do anything about it. Xxx

[@ambertansey7903]

I got diagnosed with epilepsy but doctors are now thinking my “seizures” is POTS or postural hypotension, which both sound exactly like what I’ve got. I guess one good thing is that ill be able to get my licence still bc at the moment I can’t.

[@courtneyperez6961]

I agree, a second opinion would not be a bad idea. I also have POTS and my HR was out of whack from the beginning but my blood pressure did not start acting up until almost 6 months in. and tilt table test would for sure tell you if its POTS

[@MysticalAmberMC]

that happens to me too i go from about 90bpm to 140 bpm. i passed out one day after sitting down for about 2 hrs. i thought about asking about POTS but everyone just tells me its anxiety

[@FullTimePatient37]

I miss you terribly 😢😢😢 i think i have it along with many multiple conditions.. Who's still here for Amy? I hope Tom and your sister abd family are fine 🙏🏼

[@service_poodles]

yes never left I miss her as well

[@nikitrammell]

I know I'm 3 years late but i just found you and am starting from the beginning. The way Tom knew while you were still stating you weren't dizzy. He knew what was going to happen and didn't take his eyes off you. Then his thumbs up, perfect. So intrigued what has happened in the last 3 years! Great video!

[@Mbeepyd]

Girl i would love to know about relationships through chronic illness if you haven't talked about that already, I can't imagine anyone ever being sweet enough to put up with the 'special requirements' around me. Then again maybe I'm just too embarrassed to let them

[@mashudel-yakubu2159]

Mbeepy it's not easy because most don't understand what you're going through in your body. My ex was impatient and would pressure me to get better already. And she left me at the end of it all. So it's hard. It's not that they don't exist they aren't many out there

[@Mbeepyd]

Oh I'm so sorry to hear that, it must have been frustrating that she didn't understand. It does seem like you have to keep a special look-out for someone very special which makes dating even harder than it already is

[@lashawnablanton4649]

Yeah I know .I have yet to be blessed with someone who is patient and caring enough to be able to be with me and deal with my health issues.

[@GiannaScar]

I have pots and Lyme disease and let me tell you that having a relationship is going to be hard. I broke up with him recently due to him making fun of it and not believing me

[@lashawnablanton4649]

Guava Juice That's exactly why I'm single now & have been for awhile. Bcuz of not being believed ,understood or treated with respect. My ex's were so cruel about my illnesses. I would rather be single & struggling with illnesses than to go thru all that I'm already going thru & be treated badly by the one who is" supposed"to love & care for me. I'm not saying that there aren't people out there who would be great for us but I agree that will be hard to find. Sad but true! Just remember that being single doesn't make us less of a person & we are NEVER alone for God is ALWAYS with us. God bless you all!

[@darkbluematter1753]

So sorry you fainted doing the video! Thank you for your efforts in educating people.

[@mandybarnett3647]

Still helping me from Heaven! Thanks for keeping these going!

[@viridianaylopezm]

I keep learning and learning I rewatch her videos miss her so much

[@silverkiss37]

I am so thankful that you made such educational and informative videos for those of us needing to know but having nowhere else to look. You are so much better than all the doctors i've seen put together. I'm sorry you aren't with us anymore and I am praying for those whom you've left behind, who must miss you so much more than we ever could.

[@bellajurica2692]

Dude he was so smooth and loving when he caught her

[@bridgetterenee3515]

Pots has robbed me of my life. Thank you for doing this video

[@Max-xl3ni]

I have POTS and when I stand up my eyes get instantly black and I feel dizzy and when I walk into a dark room from being in a light one or the opposite my eyes get black and I almost faint.. or do faint.. it honestly sucks sooo much because it makes school so much harder because I have to get up constantly

[@HistoryShell1786]

I have POTS. It feels like I have a heart condition when I really don’t

[@silverlining1973]

I didn’t know the light change thing was part of POTS. Explains a lot lol

[@harrybo_1]

Just been diagnosed with POTS. I’m so glad I have finally been told I do actually have a medical condition rather than just being told I have anxiety, it’s so irritating. Like yeah, when I’m standing up cooking my porridge and my heart rate starts randomly climbing up to 130 and I nearly pass out it’s because I’m having an anxiety attack because porridge really makes me panic, you know?🙄

[@gh0stFace13x]

OMG, I’m done.. I have never related to a comment so much in my life 😂 I hate the “it’s just anxiety” it’s infuriating 🤯

[@coffeesweatersbooks9340]

😂😂😂 porridge makes me panic too 😏😂🤚🤚! I have undiagnosed debilitating chronic pain.. and that’s all my doctors seem to be telling me now a days! It doesn’t make it better that I’m a teenage girl! 🙄... being a teenage girl going to the doctor you can literally be dying in front of them and they’ll tell u it’s anxiety 😂😂😭😭🤚

[@danielleparker2525]

Me too 😞. The anxiety crap makes me so angry

[@joshalynkirkham]

Omg I've struggled with POTS for almost ten years and I've never seen anyone bringing awareness to it. ❤️ the doctors in my area didn't know what i had for years. Getting through high school without being able to get out of bed is rough man! 😂 my mom and I both have this. Support and love from Oregon ❤️ BTW drinking Pedialyte is the most amazing thing I have found to deal with symptoms

[@morningwithgracie7870]

How are u today? Do you have some medications? Dd u drink pedialyte daily?

[@poopbutt6380]

i know this is an old video, but recently i’ve been passing out after standing up almost every time. it’s been scaring me and my boyfriend, i told my coworkers about it and they asked if i was pregnant. well i most definitely am not!😂 many google searches got me nowhere, i randomly found this video & you explained my situation perfectly. i plan on going to the doctor and bringing this up! ty for making these videos!

[@ginayoung130]

Thank you so much for this video. I have diabetes and gastroparesis and people have been telling me to research POTS and to ask to be tested for it. I didn't initially understand how to do this "home test" but now I do and will be trying it in a bit. It's pretty awesome you went through all the trouble of making this video to help people understand, and to show what POTS really is. ❤

[@amyleefisher52]

Gina Young thank you! Wanted to do my part for Dysautonomia awareness month and what is one fainting episode and a few hours of filming if it helps people understand 🙏🏼

[@aprilgriffin9218]

That is an amazing and accurate description of passing out. I have a different health issue that makes me pass out but it scares my husband so much, especially if it takes me a few minutes to regulate and come around. I played that part of the video for him and he feels so much better now that you have explained it so well. He said he will not be as afraid when I pass out from now on. Great job Amy!!

[@mustaphabakhti]

Can we take a moment to appreciate how beautiful her manicure is ❤️

[@kenzierose9198]

"Tell me how do you get your heart rate that low?" 😂😂

[@amyleefisher52]

Kenzie Rose Ahaha I need that heart rate! Maybe I’ll become an athlete 😂🏃🏽‍♀️

[@seroquel.sweetheart]

I get mine that low with Propranolol(160mg) 😂🤙🏻

[@sapitron]

I have hyperadrenergic POTS. without propranonol resting HR is 107 (standing) and very excitable. with 40mg twice a day is 57 (standing). that drug is pure magic.

[@gabrieledonadel]

sorry for you fainted on the camera I know it's so hard for you, but thank you for showing us I'm feeling relieved I fainted getting out of bed and it's the first time I see the third person is so bad I'm so sorry. seeing Tom like this make my heart warm 'cause he takes care of you so nice.

[@marissaclifford4882]

Wow! Thanks for raising awareness, you explained it very well, so sorry you go through this! I never would have guessed a high heart rate and low blood pressure but after you explained it it makes since! I love you so much!

[@XXthelivingdead]

i'm sorry you ended up passing out :o its a crappy feeling but quite informative for others who don't have the condition

[@shabnomnom]

i know this video is quite old, but somehow youtube's mysterious algorithm dropped me into your channel and i've been watching some of your videos tonight. you're incredible! my mom has had crohn's and colitis (and a lot of other things that stemmed from them) for most of her life, so i've always been close to severe chronic illness, but she would hide the reality of it from me as much as she could - and still does somewhat. folks like you who put themselves out there and share the day-to-day of living with chronic illnesses help me understand my mom more

[@LoveBambina]

This was so helpful. I’m dealing with this now and it’s very insightful to see someone else experience these same symptoms.

[@lynsirobertson3527]

I have NO idea how I found you, but I am so happy I found you! I have gone down your rabbit hole now ;) and I love your drive! You are an amazing woman, who just pushes and pushes through the hardest times. You're awesome. I've worked in the medical field for 13 years now, and I have 3 kiddos, one who has special needs including bradycardia, sleep apnea, food allergies, and other health concerns, which is nothing compared to your health issues, but I've had my fair share of dealings with it all.... I struggle daily with stomach issues that continue to go undiagnosed. I get sick after eating, and I'm literally always nauseated. I have episodes that look alot like Chrons disease, and or severe IBS, depending on the day... these episodes last for hours or days, and it's like having food poisoning, or eating something with a load of MSG in it and having a MSG allergy and I soak my clothes with sweat. Not glittering sweat, but like I'm walking into the shower fully clothed and right out of the water, drenched. Pain in my tummy like I've never felt, except during these episodes. I cant imagine living like you do. I just want you to really see that man.. YOU ROCK.

[@ElviraCrypt]

Thank you for raising awareness. I have P.O.T.S as well so I understand the frustrations. My P.O.T.S condition also messes with my memory so I have lost most of my memories. Thank you again for raising awareness, not even many doctors know about it.

[@jasminerobinson1347]

I am so sorry. I hope you remember that I'm here for U ☺️

[@justlikerunningabicycle3783]

Sometimes when I get up, I have to sit down again. Or sometimes my vision get black spots and I can't see for a couple seconds and I feel myself sway a little. And tom kinda reminds me of my brother. The ow and how he's calm all the time. But then again, he's gotta be used to weird things, he's in the army. He's my favorite brother.

[@aelinluna3434]

Thank you SO much for doing this video. You even showed the blood pressure and pulse, and people can't really say we're faking it when you show it on the machine as proof. This was so informative! I'm going to show this to some people.

[@beckyjo8745]

This was a very INFORMATIVE video. Thank you for posting this. I have never heard of this until I started following you.

[@justn9124]

I'm so sorry girl I know how you feel, this is informative and I can actually show it to people to make them understand POTS, thanks a lot.. God bless u both Xx

[@itsrileylyn]

This was SO informational. I'm vaguely familiar with EDS (my dad is an author and wrote a short story about it) plus yours and Annie Elainey's videos has taught me a bunch. However, I was confused with POTS. Thanks for posting!

[@ashleylynn353]

I recently found your channel and appreciate you bringing awareness to dys. I'm diagnosed with NCS and got a bit of a chuckle over Tom's natural response to handle you passing out. I've only passed out a handful of times in front of my fiance. I had warned him early in our relationship about how to handle it and to not call the ambulance (personal preference as I live in the US). First time I passed out, he panicked and called an ambulance. I love the man but he listens worth crap.

[@reina8942]

Ahaha, my mum almost did that when she saw me pass out for the first time. My heart rate was over 200, I wouldn't have even known myself to call an ambulance or not, so I don't blame her.

[@thetastychapter]

I have POTS too and I think you explained it so, so well. This is a great video and a lot of people will learn from it. Well done. I'm sorry you had to faint to convey your message! 😌x

[@jenniemcclure9114]

Wow... thanks for explaining this!! Was told I had POTS but was never given an explanation as to what it actually was. A couple of weeks ago it got really bad and I was hospitalized and subsequently got blood clots in both arms from IVs... Sadly, here in America the patient isn't always top priority, money is more important to a lot of specialists so I haven't really been given a lot of answers and no one seems to want to take on my case to see what's causing POTS and that truly sucks! You're awesome, I just stumbled upon your channel so you've got a new sub!!

[@helenclarke2870]

Thank-you for making this video im starting to understand it alot better!

[@Alyse_bell]

So glad I found another fellow POTSie on KZbin. Good on you for raising awareness

[@milliec-s7094]

I have had bad POTS since I was 8, which is quite young, I still struggle today. Thank you for helping to raise awareness.

[@christiandeluxer2926]

How are younow?

[@mariajj17]

This happens to me quite alot and it truly feels so sick to my stomach. Your a strong woman, God bless you!

[@sierrarenee9701]

Seeing this makes me so happy! I have POTS and was diagnosed about a year and a half ago. I just got a wheelchair the other day since I’m blacking our multiple times a day despite being on medicine. I’m hoping I can get saline infusions here soon but now I’m just trying to find a doctor who actually specializes in POTS. I’ve never seen a KZbin with this same condition, keep doing you I love it! You’re so beautiful. 💗

[@MrsDogLover]

Thank you for explaining the orthostatic hypotension as well as postural orthostatic tachycardia syndrome, I'm a nursing student and it's so much better to have someone who experiences a condition explain and demonstrate it rather than a textbook.

[@frankifontana5072]

I've just been diagnosed with PoTS just waiting on formal diagnosis, but have been watching your videos to get a better understanding of what's going on. you are honestly such an inspiration and have given me hope that it won't be so hard of an adjustment. Even my mum is obsessed with your videos of 😂😍

[@chloecrownover5850]

I know this is and older video, but I loved how informational it was. The comparison between the two of you was helpful and quite interesting!! Thanks so much for this more personal look😘

[@Minxy81]

I'm so glad u posted this! I was diagnosed with POTS several years ago and it's so misunderstood. The medicine I'm on is fantastic but if I miss it by one minute I'm on the floor. Thanks for spreading the word!!!

[@morningwithgracie7870]

What medicine dd u take?

[@StacyOnWheels]

Hi! I’m so glad I found your channel (sorry for commenting on an older vlog) I have EDS, PoTS, Gastroparesis etc! You know the long lists! I admire you so much for sharing everything, I have been hiding a lot from my KZbin channel, and I’ve decided to be more honest, and now share my illnesses with my subscribers and hopefully help someone. I’ve been binge watching your vlogs, and they’re amazing, so a big huge thank you!! 💕

[@itsbernadette8233]

Fitting that this would pop up in my recommended videos... my husband was diagnosed with POTS last week. Everyone thought he was just dealing with depression or anxiety, buuuut the tilt table test reveals all, lol. My husband's BP was at 38/19 when they called the test (right at 5 minutes). My husband's is secondary to Ehlers-Danlos too. We're still pretty new into it, so it's nice to hear someone else share their experiences. Best wishes to you!

[@hibikimills9566]

I understand the passing out. I have a panic disorder that can cause it so I give Tom a thumbs up for staying calm and catching you as you fell.

[@Painofaninnocent]

This is such an informative video!! I've heard of POTS but I guess I never fully grasped what it was, and your little experiment does an amazing job to illustrate the difference between someone with POTS and someone without it!!

[@moyasuu]

My mother has POTS. Its very interesting seeing somebody else with it and hearing you talk about it. Thanks for putting out awareness :)

[@Estabonsydiazverizonnet]

Could you do a video about all the symptoms before you were diagnosed with pots and how you were diagnosed

[@d-beyond3709]

your videos popped up in my recommendation and I must say: biggest props to you for educating us on your condition with your videos! they're really informative and I'm glad I clicked on them. stay awesome!

[@courtney6126]

Really interesting to watch! I understand why my HR starts going up when I stand and keeps going up and stays there for quite a while. I didn’t realize it would (in healthy person) correct itself that quickly. Time to talk w my cardiologist👍🏻.

[@JulieAnnaKohler]

Amy you are a rockstar and a warrior! Thank you for all the awareness you spread! I recently got a GJ TUBE FOR diabetes related gastroparesis. I have had type 1 diabetes since I was 15. I have a lot of other health issues and I love to watch all your videos to feel less alone in my struggles. Thank you for that! I know this video is older but you look beautiful in this (well you do all the time but especially here!)! I'm sending lots of love from Phoenix, Arizona! Keep up the amazing work! 🤓❤ Julie Kohler

[@jackiehoch228]

Hi Amy Fisher. I am a fan of yours I been wanting your video and you inspired me . Your story's inspired me . And I am praying for you. ❤️😊 I wish they could find a cure for the disease that people have . You are a strong person fighting for your life. Keep on fighting girl. My heart and prayers are with you and your family

[@alexandreafetty7392]

I was Diagnosed with POTS about six years ago when I kept randomly passing out. Absolutely loved your video and find it very accurate and would be very informative to someone who doesn’t understand what POTS is and what it does. I did not know there was medication and or saline drips that you can do. I live in Colorado and when I was diagnosed my doctor suggested 4-6 quarts of water a day with high sodium intake. The theory behind this is that the sodium will help keep my blood pressure high enough, and the water will retain the sodium. Water also helps with blood pressure. Also didn’t know about lifting your legs!!! When I pass out whoever I am with will give me a sternum rub to wake me up. When I get dizzy I usually go to the floor and try to put my head between my knees as this reduces dizziness quickly before passing out.

[@melissalynn5585]

Very informative! I felt so bad for you when you fainted. How lucky you are to have someone in your life like Tom who knows what to do in that situation!! 💝

[@glittabones]

Your videos are so informative. So glad I found your channel. Will be binge-watching all night!

[@cidsparanormal2790]

I thought that was similar to standing up to fast as I went to st John's training and we learnt that 🙏🌹 and hope your having a good day today

[@moorcok]

She's gone in april 2021..

[@cidsparanormal2790]

@@moorcok how do you mean gone ? You don't mean what I think you mean! If so then that's so sad she was young and had a brilliant future ahead of her

[@ctuckerhayes]

Wonderful explanation! I have this issue for at least a week after every surgery I have.

[@adagio387]

Something that I didn't know was that when people have POTS, their heart rate keeps increasing for a while. So thank you for explaining that!!

[@amyleefisher52]

stace yeah for sure! If I stayed conscious it would just keep rising untill I sat down mine personally stops increasing around 190-200 beats, but everyone has different maximums x

[@sophiar2246]

Yeah, mine goes up to like 130 generally and stays there, my resting is generally in the 70s but when I get tested I get a bit anxious I guess so it generally is in the 80s or 90s. It's quite interesting.

[@alliem8700]

Mine doesn't, although I don't remember if it did before beta blockers. For me, is goes up 50bpm when I stand, then down about 20bpm within the first 30 seconds, then stays there. I do get more dizzy and out of breath the longer I stand though.

[@copingwithbehcets]

I agree that it was awesome that Tom gave the thumbs up! I don't have POTS, but I have some sort of autonomic neuropathy that causes POTS like symptoms, and I've just learned that I might have to lay down on the floor in odd places to prevent myself from hitting the floor in odd places. I also have seizures. Some friends have adjusted and have the same attitude about it, while others go into a panic. My general instructions for friends tends to be the same as those you gave, and reactions like Tom, but seizures have resulted in a few friends calling 911. Thankfully we have meds for those now, but it's always funny when you're used to something like fainting or seizing, and have to get the folks around you used to reacting to the incidents.

[@ilikelollypops1]

In nursing school we are taught that a normal pluse rate to be 60-100 :) also for people who dont know the medical terminology meaning: -Tachycardia/tachycardic means a high heart rate -Postural Orthostatic (the blood pressure drop with moving from sitting to standing) Hence her demonstrating, the drop in blood pressure, rise in heart rate= POTs

[@TrueDignity]

Rachael Williams-Tallon Nursing student as well and 60-100BPM is the accepted normal rate. :)

[@Tiffanyrobin03]

My POTS symptoms started in September 2021. I'm on medication now. I went to my first cardiologist appointment and it looked like he didn't believe me until he checked my BP. When I stood my BP dropped to 70 systolic, he was surprised I was still standing 🤣. I'm currently sick and I can hardly move at the moment. I lost 4 liters of blood when I had my 3rd baby, the thought is that partly the reason for this happening. I'm a nurse and sometimes I'm trying not to faint, I haven't fainted yet thankfully

[@heidibaltom8138]

You have done a brilliant job explaining people who want to learn about POTS should watch this

[@madelynjoswiak5930]

this is such an amazing video!! you’re a blessing darling, stay strong ❤️

[@annarosedesigns]

You have such a great attitude with what you are going through. I have been having these symptoms minus fainting but I sit straight down. I think my bp is ok. A weird thing I have been craving is french frys. I don't salt my food but I do like those French frys with salt. I have been sick since Thanksgiving. I'm 55 but a young 55. I was on the go no exersizing but Shagging which is a kind of dance now I'm stuck in bed. I'm going to ask my doctor about this. Thank you and my prayers are with you. HUGGS Terrie

[@jayemadison9072]

Love that you’re spreading awareness about this. I don’t have POTS but I’ve been diagnosed with NMS so I don’t have tachycardia I’m on the other end of the spectrum so I deal with bradycardia. ❤️❤️❤️

[@MellenNorway]

Thank you for visualizing it so clearly for us all, even tho I hate that you had to faint to make your point ;) Whenever I faint, I'm usually sooo nauseus when regaining consciousness, that I'd NEVER volunteer to faint for ANYONE, lol XD I love your videos, thank you for educating us, and thank you for letting us into your life! I love your sense of humour and your way of explaining things, and it doesn't exactly hurt that you're so nice to look at either :) Lots of love from across the North Sea!

[@maryharte2551]

Thanks Amy for showing us a practical view of what happens to you when you stand up with pots ❤️

[@mamajacquelinebts9776]

Very interesting sweetie. You really know about your conditions and how to explain them. Props to you! Thanks for sharing. And BTW you are so pretty 😊

[@lululovesyou7618]

Great video explaining/ showing the effects of POTS! Awesome job.

[@melissalockhart3836]

I think this is incredible that you give such accurate numbers. Especially since this was updated by the American Heart Association last year.

[@tamiz147]

Thank you. Your demo explained it better than the books I have read. I'm a newly diagnosed EDS 3. I've been told my whole life I have postural hypotension. Not 100% sure the difference, except in my case it will be severity. I have just learned to rise slower. I have certainly had a few experiences of passing out in my life. I know dehydration definitely affects this in me. And like your other video, showers are hard, for a variety of reasons

[@MsToolay]

I finally don't feel like the only one! I have suffered with POTS for almost 5 years and it took a year for anyone to figure out what was wrong with me until I went to see a neurologist, who I love and thank every appointment. For MONTHS I was constantly misdiagnosed with other things. I was on 3 medications, but I am now only on one which is Fludrocortisone. The first year was absolute hell for me. It was so bad that I had to be homeschooled for the rest of the year. I don't have ESD but my doctors till this day are not sure what has caused my POTS. Thanks for the video ❤ and sorry if I'm all over the place 😅

[@TheSmiley2149]

Great video! this was an awesome way to raise awareness to something that a lot of people dont know much about :)

[@marleymann1463]

My really great freind has pots and has a really hard time explaining it this was very helpful thank you

[@katiebug5273]

I have POTS as well. We’re still trying to exactly figure out a treatment that will work for me. My blood pressure goes to CRAZY levels they are usually 70/84 and my heart rate is usually 180+. I was highly suggested to quit my job as a housekeeper because of my POTS. I can not stand for longer than 20 minutes without almost passing out or actually passing out. My POTS has been highly difficult to treat as my medications made my BP go far to high at about 138/98 with my heart rate being about 100. I’m hopeful to get some better answers. This video help me so much mentally. It’s darn I say....reassuring.... to know other people have found treatment that really helps them. I’ve found it very hard to keep up hope as all my illnesses seem to be a dead end road with the doctors puzzled. I hope you are doing well Amy! Best wishes❤️

[@ems_h.eartnotes]

You're a warrior! Thank you so much for sharing this xxx

[@GodisLovetoo]

Thank you so much for the demonstration. Hate that you put yourselves through that tho. I was recently diagnosed after a tilt table test last month. I’d try filming it too, but I don’t think my fainting spell would be as pretty.... Peace and blessings to you both on your journey!

[@karinmountford2524]

Thanks so much for doing this video. I have pots and am going to show this to my carers to help them understand.

[@madisonharressey3981]

I’m also diagnosed with POTS and I’m soooo happy that I found someone els who has the same condition because I don’t know anyone with it. It all started with a weird feeling in my heart every once in a while. It felt like my hear was skipping like 2 beats. Then one time I hoped right out of bed and went into the bathroom and brushed my teeth. I felt this weird dizziness and exhaustion and weakness come upon me (kinda like I was going to pass out) so I checked my heart rate and it was like 180. A normal resting heart rate for someone my age is like 70-90. I went to the hospital and they did the laying sitting standing test where they take my heart rate laying sitting and standing. My heart rate went from 90 to 110 to 190 when I stood.We went to the cardiologist and they put me on a holter monitor ( a monitor for your heart) and found out it was actually an extra beat. The extra beat was that weird skipping feeling. And that’s when I got diagnosed with POTS. The doctor said rn the severity isn’t sever but it could get worse. Rn I’m not on any meds but if it gets worse then I will get the medication.

[@DisneyAndSpiritLover]

My heart rate is always between 90 and 100 but one night when I was sleeping, it went to 140/90 and they were so worried because when you sleep it's supposed to relax. You're really brave.

[@Mrssarandy]

Miss Amy's videos so much. RIP Amy and thinking of you, Tom

[@sarahbennett5617]

I am glad you have someone there yo help you if you do faint.

[@natmartinez8321]

When she said 60-80 was the normal range it reminded me of this thing that happened to me once....I was taking a biomed class with my summer camp and it involves a lot of demos. For one demo the teacher asked for a volunteer. He was crazy so no one raised their hand, so I decided "why not?". So he has me sit in front of the class and breath really slow and he hands me these two little EKG nunchuck things. My resting heart rate was 93 (which isn't THAT bad... except that I found out that my heart usually rests around 98) He then proceeded to blindfold me, take me across the hall in an empty classroom, leave me there, and then (I found out after the demo was done) fill the class in on what they were to do. He then comes and fetches me. He leads me back in, still blindfolded and the class is silent. He stood me in front of a chair and tells me to be real careful and take a step up onto it and then helped me stand on top of a table...at this point I expected snickering, but it was dead silent in the room. It was like the class had vanished. He then lead me to the edge of the table with my back facing the edge and handed me the nunchuck again. He then says what should've been terrifying "I want you to fall off the table." I'mm a huge adrenaline junkie even though I have two anxiety disorders so I didn't even hesitate (which people mentioned to me later...if I just logically didn't think it would be dangerous). As I'm plummeting to my death I am caught by 11 classmates. It was meant to demonstrate a heartrate spike, but it only rose about 3 BPM. So he took off the blindfold and asked me to do it again. This time I was afraid they would drop me and started having anxiety and my heartrate went to 110....there was no real point to this, it was just a cool memory

[@peachi3sweeti3]

Dang 60-80 is the normal range?? My heart rate is always around 100+ huh

[@amyleefisher52]

Molly モリー that could just be your normal but if you worried or experiencing any odd symptoms I would get checked over xx

[@sameast3130]

I also have pots my resting heart rate is like 50-60 but when I stand it can be 100+ First time i've seen ur channel I'm subbing and thankyou it's always good to watch people with the same condition :) GL! quick question though I noticed you said the top blood pressure is the main 1 mine is normally 120ish but my problem is the lower 1 is never above 60 is that a problem?

[@jroostah]

Molly モリー my normal heart rate is 100+ too. Glad I'm not alone!

[@ughkook]

Yeah, I would def get that checked. I'm a 21 year old female and was diagnosed with tachycardia and got tests done on my heart, EKG/ECHO, ECT. Basically my heart looks fine and everything is good but it doesn't explain my heart rate which is 107 resting. The norm is 60-90 (100 is borderline okay too but nothing above that)I was put on a beta blocker called Atenolol which slows down my heart rate and blood pressure.

[@de-vine2168]

Molly モリー Thats not good

[@kathyf.2002]

That thumbs up was hilarious!

[@NingaHayle]

I have POTS too and i don’t think people get how hard it can be but your so strong!! i wish the best for you and hopefully one day tell find a cure for POTS for both of us ❤️

[@sally-annekusters3276]

Best description of pots iv ever herd! 😁😁

[@lizzieelizabethrose]

I had to go to the neurologist to see why I felt like I was gonna pass out every time I stood up. Thank goodness it wasn't POTS, i was just super dehydrated! 💦

[@ukuleleguitar7475]

I have been feeling like this. Has your heart also been beating fast after you stand? Can that be dehydrated or anemia?

[@lizzieelizabethrose]

@@ukuleleguitar7475 yes they watched my heart rate from laying down, to sitting, to standing up, and my heart rate jumped i think 20-40 beats higher when i stood up. That is when they told me i was dehydrated but I'm also a little anemic so that is also a factor!

[@ukuleleguitar7475]

@@lizzieelizabethrose oh thank God, I thought I had POTS, I was so scared. But I’ll still definitely get it checked out just in case cuz I don’t want to self diagnose myself

[@ukuleleguitar7475]

@@lizzieelizabethrose have your symptoms gone away after you started drinking more water?

[@lizzieelizabethrose]

@@ukuleleguitar7475 not really but my doctors have been ignoring things so i don't know hahaha

[@paula3280]

Very interesting, I have learned so much from watching your videos. Thank you for being so open and honest about your medical condition. I am so sorry you have to go through all this and thank god for your partner what a wonderful man!

[@tajionnarogers4532]

Thank u so much for this video. U explained everything better than the doctors.

[@plannerfunandinspirationwithme]

I am so sorry you are going through this at your young age. I’m 52 and I’ve been living with Chronic illness for a few years now. Afib, fibromyalgia, degenerative disc disease, arthritis all over, chronic fatigue, IBS and diverticulitis....so much fun. But attitude is everything when dealing with any kind of disease and yours is fantastic. That’s what truly defines quality of life. You are blessed to have so many loving people around you helping you thrive. You are beautiful and I love watching you. I’m a new KZbinr. Most of my videos are planner based. Since you live in Australia, you should check out Kikki K planners. I love them so much . I live in the US and I can only get them online. They are gorgeous. ❤️❤️

[@daisy-sj8ny]

I don't have POTS or anything similar but when I stand up from sitting or lying down too quickly I get really dizzy and have to squat down on the floor in a crouch position for a couple seconds before I stand back up.....it's horrible but I'm grateful I don't have to go through this and you are so brave!!

[@cassandrakagan4610]

I am not a medical professional but I am a person with pots and it’s could be vertigo! Look into it idk

[@justcallmejess7294]

Hahahhaha. The thumbs up was perfect! It something that only those closest to someone with POTS xould understand. It has taken SO SO long to make those around me realized they do not need to call 911 as soon as I faint!

[@stephanieguilbert6694]

I understand the POTS symptoms because I have VERY low iron so standing is hard 😂