Predictors of ME/CFS following EBV and Implications for PCS

ME/CFS Conference 2023 in Berlin. Leonard Jason presents prospective research and implications for Long COVID

[@annalisette5897]

Recent research seems to show that EBV infection is likely causative for multiple sclerosis. EBV is at least mentioned in relation to ME/CFS. I wonder if ME/CFS (and Long C*VID) represent a biological process that can continue on the MS in some people. (Doctors have wondered for 20 years if I have MS but it has never progressed.) In my western U.S. geographical area we have had several terrible outbreaks of what our small town doctors called "unknown" "really tough" viral illnesses. When testing was done, results were negative for influenza. A basic pattern was that the illness began with mild upper respiratory signs. In about 48 hours the GI tract was attacked, especially intestines. Once the GI symptoms set in, neurological symptoms began. Those who got neurological symptoms were sick a long time or never fully recovered. I had one of these monster diseases in 1994-95 and never fully recovered. (Interestingly, when my friends and I got C*VID early in 2020, we were not severely ill. C*VID was nowhere near as bad as were the mystery viruses.) This video mentions gastrointestinal dysfunction preceding ME/CFS. For what it's worth, my earliest memories of being alive, maybe age 3, were that my ears made a lot of noise (tinnitus) and I felt like I would vomit. I have not had one moment in my life when I was not nauseous. I was shocked when my husband told me most people do not feel their stomachs unless they are hungry, full or ill. I cannot imagine not feeling my stomach! I have lived a long time and medical science needed to advance for me to even have a chance of diagnosis. For decades, doctors ridiculed me as mental and told me I would have to learn to live with a sick stomach. I have done my best. A diagnosis when I was a teen was that I had overactive intestines. (At that time I had normal and regular bowel movements, etc. but had chronic nausea.) Another diagnosis as a young adult was, overactive stomach and that doctor told me I was causing my own problems and needed to think differently! In 2006, lymphacytic colitis was diagnosed via colonoscopy. There is no treatment for that and I do not have severe symptoms though chronic nausea persists.

[@PCAGA2298]

Thank you for the presentation

[@normazuckerman251]

Excellent presentation! Thanks to Dr Jason and Dr Katz for their persistence. Thanks to this group for posting the presentation.

[@jamesgordon8867]

In the 6th grade, I had infectious Mononucleosis in the 1960's. I am 69. Finally, a real doc to begin to explain what I have lived.😊

[@KittenCasserole]

Great presentation, thanks for uploading 👍

[@dirkkatz172]

culprit: microwaves. it can last 2 years before musclepain goes away

[@genuina8422]

Intoxicação por ondas eletromagneticas EMF cause

[@kathb1683]

Another great pioneer in the field!