Procedure day at the Childern’s Hospital

[@annedugan7618]

About your observations on privacy, Marci, and the pressure from curious people and how you resist the bullying remarks from trolls, your children are learning from you an extremely important lesson about never knuckling under to aggressive people and about standing up to negative, destructive verbal attacks. Good for you!!

[@roseannfiebig2651]

You are fine Marcy...I totally stand with you on this stance!! No one 's business but your family!! You are very appreciated for sharing what you do!!

[@Rosa-kf6yy]

That's nice that you turn the the hospital visits into special time with your other children. They will remember that fondly.

[@Freyasluckyarm]

I hope so. Trying to turn to not so positive things into positives

[@Sunnysideup484]

Much respect to you Marcy for making it clear to all the nay sayers and people with bad intentions of your stand with all your kids! Enjoy hearing of all your families adventures . All cute and such well behaved kids! Freya’s a true beauty!! Love her

[@madelinehenry6913]

I'm so glad you have Liam there to keep you company! He's such a great son and big brother❤

[@Freyasluckyarm]

Me too. He was a big help.

[@patriciabaldwin4680]

Praying all goes well! 🙏🏻♥🙏🏻 I have never really read other comments but I was taken aback when I watched this video and discovered someone would call you (Marci) names! I love your response and your boundaries with your precious family! You are a wonderful mommy and you just keep being you!

[@Catlady1966]

Freya is such a cutie, what people think they need to know is not any business of theirs.

[@lesliematteis8010]

I think you’re a great mom to all your children. I enjoy your videos so much. Thank you for sharing your beautiful family with us. In my experience, people that are critical and judgmental are jealous and insecure. Honestly, because of Freda, I’ve been watching videos of other children with CLDS. Freda is definitely the cutest, and happiest!

[@hollyclarke8734]

I think thats such a personal and private conversation that you have within your family or people you trust. That is overstepping and its so great that you voiced your boundaries and that you decide what you are wanting/willing to share. Just because you share part of your life and family doesnt entitle people to know everything about your life. ❤❤

[@tracyriordan7011]

Absolutely! ( :

[@tracyriordan7011]

You are so right, Marci, it is your choice what you decide to share, ever. Not a follower's who thinks you should share something. ) : No one has the right to know everything about you, Freya, your family, and your life! I agree with you wholeheartedly! You are so smart and handle your boundaries perfectly for your family and you! ❤️❤️❤️ OMGGGG! I love Freya's outfit and hair sooo much! ( : She looks so adorable! ( :

[@patriciabaldwin4680]

Freya looks ADORABLE!♥♥♥

[@Freyasluckyarm]

Thank you I thought she looked so cute

[@Angela-zp2gy]

Shes so darn adorable with her little hospital gown!! Glad everything went well. Yay Freya!!!❤❤❤❤

[@sharonhl2575]

I'm so glad Freya's procedure went well. It's unfortunate that people can't be more kind & respectful. But know many of us appreciate you allowing us to spend time with your sweet family. Take care.❤

[@CassandraPorter-ys1lq]

They don't because it's not there children that's going through this ❤❤

[@catherinebent5101]

Can’t believe someone would have the audacity to ask that kind of question. That’s the thing about making a plan -you can get on with your life knowing there’s a plan and not having to worry about it again. Good for you!❤

[@Freyasluckyarm]

Yes. So true

[@heathernichols5390]

God bless you and your family. You don’t owe anybody anything, and people should be grateful that you are trying to educate us about this syndrome.

[@theresamaleady7721]

Hope everything goes well for you and for little darling Freya. Oh gosh, she's beautiful just like her mum

[@elizabethbauernschub7438]

She is so cute watching her with here reaction to new toys. Hang in there MOM.♥

[@margarettorres9156]

I saw that comment very personal ........loved your answer ........

[@Freyasluckyarm]

Thank you

[@alisonrenfrew-thomson6422]

❤ Freya is adorable and your very blessed with your family. GOD bless

[@tammibrand2554]

Yes, indeed, boundaries! You and Chris make those decisions, no one else needs to know. 💜

[@amandamaynard3514]

I love Freya's hair like that. It's so cute! Liam is such a great big brother! I'm so happy everything went well. Especially the anesthia. Hopefully you can enjoy the rest of the week! I love watching your vlogs🧡

[@sherry8894]

Hello Marcy. Glad Freya's procedure is over now. She's always a little sweetheart 💗 As far as those asking personal questions, that's going way too far! Absolutely none of their business. Some obviously don't think before they speak. That was super nice of the anesthesiologist to let you hold Freya till she went to sleep. That's pretty rare, but so cool. Can hardly wait until your next video 😊

[@suegibson1960]

I’m glad you all got thru the entire hospital experience without a scratch on you. Freya is such a good girl, it’s as if she knows to keep it together. You don’t let on to her one iota that you too are scared. Wonderful! Freya is one of the secure and well adjusted kids - CDLS and all! Bravo Marci

[@Freyasluckyarm]

Thank you. Us moms have to put on a brave face for the kids.

[@mmmmlllljohn]

I’m glad it all worked out for you. Liam is a great kid - just goes with the flow like his mom. You don’t show your stress so kudos, Marci! I hope you get a good night’s sleep because you probably need it. Interested to hear how the testing went later. ❤️🇨🇦🙏

[@maggietaylor9475]

Well done, Marci! People like that are not curious, imho, they’re being blooming nosy! I think your blogs are brilliant - they’re informative and show the downsides and also the upsides of being a ‘medical mom’. Please keep on showing us your beautiful Freya and your fab family. Love and hugs from Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 x

[@Freyasluckyarm]

Thank you so much!

[@theresamaleady7721]

Love ya Marcy​@@Freyasluckyarm

[@user-Andybarney]

Marcy, much love to you and your family! ❤️

[@KathyRopa-uk9ws]

Love her braids. So cute.

[@bonniemeyer1301]

So glad Freya came out of the anesthesia so well.

[@Freyasluckyarm]

Me too. I was very stressed

[@NANAOF252]

Your family is in my prayers thank you for sharing Freya and your family with us. God bless you all

[@cynthiawilliamson5905]

I watch another channel every now and then of a little boy who has the same disease at Freya has and she is like 99% better as far as being able to sit up play with toys I mean it’s like two totally different kids. His is a lot more more serious than hers because, he also has a brain disease, but he’s such a beautiful young child. He has a great mom just like you.😮❤🎉

[@Freyasluckyarm]

We absolutely love Sebastian.

[@donnathomson4048]

God bless you all ❤ you all are such wonderful folks.

[@ossier2796]

Love your family and thank you for sharing.

[@boething]

I wish I could meet you in person someday. You inspire me so much! I appreciate your strength, your positive outlook, and your decision to set firm boundaries. Thank you for sharing your journey with us. I look forward to your videos so much!!

[@Freyasluckyarm]

Wow, thank you!

[@christineramirez5921]

Your little girl is positively a ray of sunshine You have a beautiful family and your videos gives us a look into your life with a special needs child Great videos

[@user-loismj]

Thank you for taking time to share your very stressful moments with us. You’re a beautiful caring person. God does knows who can handle the special needs children. That’s why you’ve been given a blessing such as Freya. I hope all is well with Freya.♥️ 0:39 0:39

[@charlieoglesby3468]

Glad all went well. Liam is a good buddy to have along with you. So proud of him. See you Friday. #fanforlife❤

[@cynthiawilliamson5905]

She is so cute ! you look great for your age you are a beautiful woman! These days, I don’t think I’d wanna leave my child anywhere by themselves. We can’t trust anyone anymore.😢

[@jessicacoley8745]

i totally agree with you on protecting her privacy, just brown nosers. keep up the great work being a great mom. you look great for your age, hope all went well with her procedures. Awesome job using her lucky arm on that toy. love how you did her hair, to cute. OMG that was beautiful scenery. Much love from Oklahoma

[@Freyasluckyarm]

Thank you. I love the braids in her hair

[@biddiemutter3481]

15:20 at various nurseries, I've seen those ring's but never seen the stand😢 it's actually more fun than I thought, with all the parts... I will now keep my eyes peeled for the missing bit.

[@lindasprettypressons]

I love crime junkies too! I’m so glad you had a great experience with the procedure! 💜

[@colleenford5398]

I am in complete agreement with you regarding your privacy, etc. I could never ask someone something like that. Unless it was my friend that I've known for 40+ years! So glad to hear that all went well and anxiously await what was learned. Love to you all!!! ❤❤❤❤❤❤

[@DebbieDowd]

Good for you Marcy for sticking up for yourself and your family and Freya and all of that I wish her the best in this and lots of love to all of yous and prayers❤

[@ChooseHope]

She just goes with the flow!

[@bettysutton3376]

Good luck Fraya God bless you 🙏❤️🙏❤️

[@beckyrhodes8280]

Thanks for sharing your video 😊❤ I love Freya's hair and her cute outfit she's Adorable 🥰❤ 🥰❤ !!!! And thanks for sharing your family with us 😊❤ HAVE A BLESS DAY TO EVERY ONE ❤🙏🥰♥️🙏🥰🙏♥️!!!!!

[@mbart91891]

You are so multi talented with creativity! I can't toe a bow lol

[@Freyasluckyarm]

Thank you so much 🤗

[@Alwaysherethere]

I think you're doing a beautiful job raising your kids!❤😊

[@Freyasluckyarm]

Thank you so much!

[@cynthiawilliamson5905]

She’s so cute!! she looks adorable with her little hairdo and her outfit!

[@Freyasluckyarm]

Thank you. She did look so cute

[@cristinmccloud1980]

Being at the hospital for multiple hours is so exhausting. It really takes a couple days to recover! Glad it’s done with!

[@patriciaharkin1571]

Time to take a deep breath Marci.😊 I understand the stress of the leadup to procedures and then the stress of the anesthetic. Freya had no infection - thanks to your vigilance - and her procedure went well thank God. Time to get back to the summer bucket list. God bless.

[@Freyasluckyarm]

Thank you I agree timw to relax

[@lizdelorey6721]

Freya is adorable. Love the French braids.

[@Freyasluckyarm]

Tha k you I love them too

[@ruthjosephson3102]

I’m looking forward to hearing the results. Liam is such a great young man and so kind to keep you and Freya company during such a grueling three days. He looks like a clone of Chris to me. Can you just delete the unkind and/or overly nosy messages you receive and perhaps even block those people? My mother used to say, “It takes all kinds to make a world.” Frankly, I am amazed but grateful that you share as much information about your family, Freya and CDLS as you do. It is super kind of you to let us into your home and family life.

[@Freyasluckyarm]

I can delete the comments and I do delete some. But I also think it’s important to leave some so people can see them.

[@astridkrog]

@@Freyasluckyarm I agree, it shames them, not you, to leave the nasties visible. Good work

[@cristinweekley2547]

You are definitely a strong woman sweetie! God bless 🥰

[@Ashley-s8y]

My prayers are with you and your family. I hope everything goes good.

[@margarettorres9156]

Hi Marci ,Freya and Liam I hope everything goes well praying for you !!!!!!

[@sabrina19ization]

Prayers ❤I get it and respect 🙏🏾

[@pattidaly3567]

You do a great job on her hair. Adorable.❤❤❤❤❤

[@Freyasluckyarm]

Thank you 🤗 I’ve had a lot of practice with my 3 girls

[@betsybabf748]

Just reading some comments people make and questions they ask on KZbin and social media makes you wonder how some people were raised, and also makes one concerned that many of those ignorant "adults" are role models teaching their own children how to behave that way sadly. I've had 3 of my children have surgeries, and they always let me hold them as they laid on the bed when they put them under. It traumatizes me, but helps them. Glad it went well and it's over now for you and Freya.

[@juliawurtz8010]

Freya is such a cutie.😊❤

[@christinegallagher2536]

That is nice that you have Liam to help you, he is a good son and so attentive, he will make a great man.

[@Freyasluckyarm]

He was such a big help

[@klarasarosi8159]

Marcy I dnt comment for people to like what I say every time,I comment because it's for you and you beautiful family &I just think Freya is the cutest little girl ,strong ,smart ,learns new things all the time and has so much love from you guys .it's heartwarming .your amazing parents and your Fiona ,Jesse and Liam are the best kids ❤ take care you guys til next time Freya goes threw so much she's a tough little girl .

[@bevboutin1964]

Look at those dimpl, so darn cute.

[@Freyasluckyarm]

I love her dimples

[@trish7080]

Your make up always looks good . Thanks so much for sharing that information. Freya looks so cute 🥰

[@elsiekolar4904]

Freya is very, very cute. You and all your family are very nice . I admire you and your husband the way you raised your kids. So happy that Freya is good. Sorry for my english , I am from Peru 🇵🇪. Good luck and don’t listen to negative people.

[@Freyasluckyarm]

Thank you so much! Your English is great.

[@eliatone5842]

Big Hugs Mama, Frayer Liam Dad and the Girls , were marvelous. And yes your so right it takes days to come down from the stress , from before , during and after you must be shattered. Keeping 🤞 that everything turned out well For Frayer. Oh and hope that Jessie is feeling better too, since know you have been having that too to deal with as a family. As far as individuals asking personal questions about the future, your right the way you handle that and then, found things like that with individuals myself where certain individuals just do not respect boundaries like that and boy do you have to learn to be firm with them and sometimes have to cut things off with them, so funny since many individuals who do that wouldn't like anyone doing it with them , oh well enough on that. Sending lots of healing prayers to Frayer , Jessie and You all🎉 ❤😊 Keeping fingers🤞

[@Clairebearthegoodfinder]

My great niece had that surgery and they removed them at one point and she hears fine now. She went to Jack Nicholas childrens hospital. They were amazing. I so glad Freya popped up in my feed again I love seeing her and the family. Marci don’t waste your time on negativity bc you are an amazing human and your family is lovely. Take good care 🤗😘🫶🏼

[@Freyasluckyarm]

Thank you so much

[@tammibrand2554]

Oh my goodness! As you are doing your skin care, I see Fiona. She looks so much like you.💚💛

[@mikestasinopoulos5447]

Good Luck I'll be praying for you guys

[@joycest.martin3013]

Love all of you!!!💖

[@yesseniasalazar297]

You are a super mom 👍🏻💯👌🏻❤

[@eileenwalukas173]

It's your plan and it's nobody's business but your own. Sending prayers❤

[@kellyburnett1833]

I am in agreement with other comments I have read. It is so generous of you to share your wonderful family, I look forward to your videos. ❤

[@Freyasluckyarm]

Thank you so much!

[@LynneTrover]

your daughter is a beauty!!!!!

[@fayesteeves9555]

Praying for you and your dear family ❤️

[@Freyasluckyarm]

Thank you so much!

[@patdrake8859]

Iam having trouble with my eyes so will not be able to write much, but am very interested what happens. I will pray for all of you.

[@wylliestraveladventures9730]

How could anyone call you Marcy. You and your family are amazing x

[@richenh.6009]

Be strong don't listen to the strangers who cannot relate to you.❤

[@donnataylor980]

I can't believe somebody would ask such a question that's very personal😢 I will be praying for Freya❤😊❤ you are a great Mama Marcy and you have such a wonderful family❤ now I'm going to finish the video❤😊❤

[@tracethomasvickers2224]

Thanks for bringing us along🤗💜

[@Freyasluckyarm]

You are so welcome

[@janeymoore-vp4ww]

You are such a great mom! Great is ADORABLE! I don’t know what is wrong with people!

[@NANAOF252]

I stand with you, you have to draw a line on what you share or don't share and to think some one would ask such personal questions that is wrong

[@klarasarosi8159]

End of the day Marci & Chris Freya ,Liam Fiona Jesse,all the rest of your family and friends are the most important people in your life ,your all smart ,lovely ,honest,funny , decent people you have chosen to share what only you guys want to share ,the rest of your life is private unless u decide you want people to know anything ..some things are not for public knowledge .modest people only share what they want to esp when that disabled child is your child .❤ Your family comes first and foremost with privacy .people should respect that .well done to Freya on her procedure and all of you .

[@klarasarosi8159]

You have lovely skin looks great and you have freckles. Wonder if Freya will have freckles .how even more cute would she look .but she's gorgeous anyway .❤

[@Freyasluckyarm]

I hope so! Fiona and Liam have freckles. Jesse and Freya have a couple but I hope they get more.

[@Brandy-dx1on]

Hi sweetie I hope everything goes well with the surgery frays having no matter what kind of surgery she's having best of luck and your in my thoughts and prayers ❤❤❤

[@emmaholley1811]

You’re amazing mommy to Fraya and I can tell she knows it to!!! Don’t listen to the haters because you don’t have to share everything she deserves privacy!!!

[@yvonnemascoll356]

Trust all will be well with Freya and that all procedures will be successful..

[@LizBarker-bz4ww]

Hello, Marci. I understand that as a mother, there's things that you can say but there's things that can't say (privacy only) you have your point of view and I respect that? You are looking after your children health and are really important to you. I have been following your videos and your family, but most of all, Freya is such a qute and beautiful little girl. I love to give her a big hug, I feel sad about her health issues it really touches my heart. My 🙏 to little princess Freya and to all of you ❤.

[@LeighAnnSorge]

I appreciate you sharing about your child, but totally agree that you don’t share everything. As a teacher of students with profound and complex needs, it helps seeing what services she receives . I find your vlogs helpful. Freya is such a cute 🥰

[@LeighAnnSorge]

You are a rockstar handling all the pressure from naysayers and bullying.

[@TCU1]

Liam is my guy! He’s an awesome big brother and son! So wonderful with all of his sisters! Marci, my sister is medically complex and disabled, and my momma has been enduring terse and inappropriate questions like this for many years. She will not allow a trespass as to what will happen after the passes away as she is my sister’s primary caregiver and a retired nurse. There is a plan and it’s no one’s business except the immediate family. She doesn’t like to think about dying and leaving her children. One other thing I wanted to share is that as a mom, I too, draw boundaries as to what I will share. A relative was badgering me at a family party one day about my daughter (who is now 15) and her potty training etc. I turned to my little one and asked her if it was OK for me to share a story with auntie about a recent event, told her which one, and she said yes it’s OK. My aunt turned to me and said why are you asking her for permission? You’re her mother you can say whatever and I disagreed. I said NO it is NOT my right to share my daughter’s private moments to someone that might cause her embarrassment while she was there. Same as why I didn’t have her ears pierced as a baby. That is her body and her decision and when she was 6 she asked for earrings and understood she had to care for them. My aunt is slightly out of touch and tone deaf, but her continually needling me was just not acceptable. I drew my line in the sand and asked her to please just be respectful, and I’d be happy to share at another time. I don’t ever mind sharing so I can learn a new perspective, but not to be berated. I stand with you 100% much love! I’m thrilled the procedures went well for your little darling!

[@Freyasluckyarm]

Thank you so much. Some people just think they have the right to know everything.

[@alyssapaolicelli6613]

11:01 so adorable 🥰

[@kat1368]

So glad the anesthesiologist was so good and she woke smoothly and happy. She did such a great job and so happy still after waking up so early. The sky walk view was beautiful . Were you able to see your Sister for a minute while you waited? Do they do another hearing test after tubes are put in? Do tubes change hearing? I know very little about tubes other than they are good for those who need them and they have to be changed out .

[@Freyasluckyarm]

I will address all this in the next vlog so many good questions. No she was busy working.

[@candacelaws2554]

I agree people who you don't know should respect your privacy. They don't need to know private stuff like that.

[@allisonsadler719]

You are awesome

[@jillipepper5353]

If I ever see anyone being mean in the comments I report them, if they get several such reports they will put their channel on hold and investigate, if they find they have been abusive they will shut down their channel…..at least until they start another one using vpn to block their IP address. Still, if it keeps happening it will frustrate them. Glad to hear it all went well through surgery, thank you for sharing with us .🥰🙋🏼‍♀️

[@yesseniasalazar297]

I love your hair ❤and Freya's hair ❤❤❤❤👌🏻😻

[@klarasarosi8159]

And Freya's hair is gorgeous .👍

[@Freyasluckyarm]

Tha k you. I get a lot of practice with 3 girls

[@klarasarosi8159]

Well yeah can imagine ,must be fun having 3 fun loving ,daughters who has mama to do their hair . Your their own personal hair stylist lol 👍

[@klarasarosi8159]

Wanted to ask a question about Freya which is probably not easy to respond to as she's so young right now ,but do you know if there's a good chance Freya will be able to make friends when she's bit older like from I dnt know say 8yrs old onwards .As I know no where near enough about CDLS .Im just wondering hopefully yes .Dnt see why not .?😏

[@Freyasluckyarm]

@@klarasarosi8159 it all depends on how those friends view disability. She has the capability to make friends now. It’s just depends on if people see her value.

[@klarasarosi8159]

Hey Marcy well thanks for replying ,I ask the Same with Steph about Sebastian because Sebastian melts my heart my Freya he's so amazing strong ,tough etc funny smart his cute smile etc .but Steph never replied which is fine .I just think with you as Freya's mum your transparent ,friendly ,a lovely wife ,mum etc people who come you guys in real life will see past Freya disability wether they have kids without CDLS or with and just want to be friends with her .all your subscribers love her and why wouldn't they .❤️ I'm just saying how I see Freya . You guys are doing an amazing job with her .

[@major_thomasina]

Good for you, so many parents are willing to basically tell everything for money.

[@donnataylor980]

I'm glad she did good with the surgery❤ I'm glad you're handsome son was helping you that day he is a great big brother ❤😊❤ see y'all😢 in the next video

[@Freyasluckyarm]

Me too! It was so nice having him there.

[@phyllismontoroula6454]

I hope things went well for Freya you a great family

[@Freyasluckyarm]

Thanks so much

[@lisabeaver2919]

I can't believe what someone thinks they have the right to ask. The nerve. A good skin care routine is so important, you look great!

[@Freyasluckyarm]

Thank you so much!

[@terezepeda2904]

Hola Marcy. En el mundo hay mucho odio, enojo, envidia, mala intención, etc., etc. Please just ignore unkind and rude people. Me gustan tus videos y amo a Freya, because I had two cousins with Cornelia de Lange syndrom. Greetings from Yucatan, Mexico.

[@Freyasluckyarm]

Wow 2 cousins. That’s amazing