Six Stories: A Celebration of Men with Advanced Prostate Cancer

The ‘advanced prostate cancer’ experience is quite different from stories told at ‘regular’ prostate cancer support meetings - in terms of treatment approach, side effects, intensity, and emotional impact.
The Advanced Prostate Cancer Forum is a celebration of the unique journeys of men diagnosed with advanced prostate cancer and their partners/caregivers - their triumph over relatively daunting challenges. This forum also provides opportunity for ‘regular’ prostate cancer survivors to learn more about their ‘advanced’ colleagues.
Five men diagnosed with advanced prostate cancer, and a partner will (in turn) share their prostate cancer experiences; followed by a Q&A session involving spontaneous exchanges with attendees.
This forum promises to be an uplifting experience for all.
Visit advancedprostatecancer.ca to get connected with fellow advanced patients.

[@terriblepainter7675]

Thank you to these gentlemen for sharing their experiences. It was uplifting and inspiring.

[@Twistsize]

This is So Encouraging!! Thanks to video participants with stories of transparency & hope. Cheers to ALL producers etc. 🎉

[@michaelromano2092]

Each one of these stories touched my heart in a very special way. My biopsy showed a Gleason 3+4 and my body is telling me stage 4; bone pain in my pelvis, upper femur, hips, lower spine, ribs. We haven't done scans yet and I'm insisting on a PSMA PET Scan so I know what I'm dealing with. May Yahuwah bless each and every one of you!

[@Delani11]

How r you doing so far

[@michaelirwin1887]

The best prostate cancer group meeting I have seen. Thank you very much and good luck to each of you.

[@kenjacobson1561]

That was very informative for me going through the same journey.Thank you.

[@cliffordebai1217]

Very inspiring stories. I am stage 4 p c .patient. France I wish I could join you group in Canada. My biggest challenge is I don't have a support group.

[@derekness7900]

This video is exactly what I need -thanks

[@yatlungzee4753]

Is there anyway, I can contact Ron Johnson to exchange ideas on combating prostate cancer with exercise?

[@Marc_de_Car]

Thanks

[@Rockinrn]

I feel that Enzalutamide is a miracle drug.

[@gregwallace5043]

12 years now and much the same story.Choices can get more limlted, now off hormone therapy,.call it a break, but as testerosterin rises so does PSA. Unfortunately new drugs avalable in Canada, are not in New Zealand, that could hopefully change.

[@gulshani8331]

Sir what's your Gleason score??

[@cliffordebai1217]

Please can I join your group from france please. I am very desperate for mental support thanks clifford

[@ProstateCanada]

Hi Clifford, we would love to have you join our support group. We meet online every month, so you're welcome to join from France. Please sign up at advancedprostatecancer.ca or email us at [e-mail] and we'll get you signed up.

[@teresa9760]

God Bless each of you. Did any of you try a RIFE MACHINE in Canada. Resonant Light Technologies, Inc. Pearl M RIFE machine. Also seek used or rental at they cost $1,200 - $7,000 Also research Dr. Thomas Seyfried at Boston College.

[@Midnitexowboy]

Are all these individuals still alive

[@ProstateCanada]

Hi Mac, yes, they are.

[@thomaslehmann5981]

I skipped around some on this so not sure did any of these men have Radical Prostectomy or RT? Or were they so far advanced that systemic treatment was the only option?

[@bell1095]

I did have RAP Ectomy 38 month ago /Gleason 9. 2,5 month previous the Op I received a Trenatone-shot, which stopped Testosterone until 14 month after RAP. After those 14 month live became fine, althought of being 100% impotent.

[@thomaslehmann5981]

​@@bell1095thank you for your reply. Glad you are doing well. Sex is overrated anyway. Causes a lotta problems

[@mikestotts6365]

@@bell1095 8:59

[@pauljackson4923]

Megastrol got rid of my hot flashes about 99%

[@Michelle2731x]

I think Rons success at beating prostate cancer may be due to his running and less to the drugs. I have found the medical "experts" only focus on treatments and not cures. There is no money in curing cancer. Just my opinion. Often just discussing making changes to diet brings ridicule/how dare you question doctors and the discussion is SHUT DOWN on cancer forums.

[@AnthonyCrosby-b4r]

I refused all treatment. sorry ready to meet my maker.

[@okaymate1079]

I’m contemplating a similar path as the treatments are shite

[@Midnitexowboy]

What was your PSA did you have mpmri?????. Diagnosis??

[@wendellrider1212]

Correction: Six men.

[@Midnitexowboy]

The woman is irritating seems to be all about her what she went through and what she had to sacrifice

[@terriblepainter7675]

It is meant to be from a caregiver perspective. She does seem to experience high caregiver stress. Every caregiver is different, but I believe that as a spouse you have “co-cancer”.