Radioligand Therapy (PRRT) - The Patients' Experience

Neuroendocrine Cancer patients, Ashley, Kath and Sally have a conversation about their experiences with Radioligand Therapy.

[@debbieillston7393]

That was so helpful, am due to start PRRT also soon. I feel less fearful listening to you guys. Thanks so much. Debbie

[@tfuller46]

How are you all doing now we have just started 2024

[@katewindsor4678]

I haven’t had PRRT yet. No chemo. No surgery. No other treatment only a clinical trial for a pill version of Lanreotide /Octreotide. The hair thinning, extreme fatigue, short term memory lapses, near sightness was bad also.

[@neuroendocrinecanceruk]

I'm sorry to hear that you're experiencing these challenging symptoms. It sounds like you're going through a lot. It's important to communicate openly with your healthcare team about these side effects, as they can provide valuable insights and may be able to adjust your treatment plan to better manage these issues. Additionally, seeking support from patient advocacy groups like ourselves, or connecting with others who have experienced similar treatments may provide you with additional resources and a sense of community. If you have any specific questions or if there's a way I can assist you, please visit our website for information, or to get in touch. www.neuroendocrinecancer.org.uk

[@katewindsor4678]

Today pets are not effected my interventional radiologist said. I start my first treatment in Jan 4th 2024.