Raising Awareness for a Rare Genetic Disorder

[@elijahdryden1564]

Is anyone else trying to educate themselves about Cri-Du-Chat because of Chrisean?

[@Bexandie143]

Shouldn’t have aborted the 2 babies before that. Shouldn’t abort any babies but could have had healthy ones.

[@nyemadcuo3409]

Me!

[@rubynicole8015]

Me

[@paulinekamau9633]

Oh wow he kind of has Chrisean’s baby’s features

[@NiaDouglas]

Yup

[@allennaik4434]

these parents are awesome, i just studied this syndrome in my genetics, and i searched for more practical example, and i was offered this video, thankyou

[@margaretharris4639]

Chrisaen and Blues baby have this. It seems.

[@casagawea]

Why I’m here because of them too. Looks and sounds very similar! I hope the best for their son.

[@GHO5tMod3]

@@casagaweasame sadly

[@sexxymixxedgurl49]

I was just about to comment the same thing I believe her child has this syndrome lil ones cry is very high pitched. 😢 The characteristics looks the same.

[@toniclanton7368]

Yea and getting him therapy now could help him....

[@merithoma1536]

I hate how in all documentaries about chromosomal disorders they always focus on how "the doctors expected a much shorter lifespan and gave the parents no hope" .like the moderator said "you didnt listen to those doctors".Just because the doctors are the unlucky ones to give the parents the bad news, it doesnt mean that they dont believe in the childs potential to actually be able to live a good life.They just give the statistical information to parents based on other similiar cases and their lifespan.Of course doctors won´t give the parents false hope if a disorder is indeed a very challenging one with statistical short lifespan.Parents need to hear the truth and not what they want to hear,because thats what prepares them with the challenging future in front of them.And its actually the doctors the ones who are constantly trying to figure new ways to diagnose,treat and different disorders,so i feel like there should be more appreciation towards them.Other than that, I feel very bad about all families who have to deal with these challenging life situations and wish them a lot of strength and love!

[@joshsmith2982]

Why do people even let these kids be born? Makes no fuckin sense!!

[@ed-gl3pr]

@@joshsmith2982 i see what you’re talking about but some kids may live a full life with this disorder!

[@Дэни-д6ю]

@@joshsmith2982 This is a random disorder and has nothing to do with heredity. To know whether a child has these chromosomal disorders it required DNA sequencing and analyzing of the child's karyotype, and this almost always happens after birth. Adding to that, DNA sequencing can be expensive as well.

[@theiranmilitary1514]

@@Дэни-д6ю cri du chat is French for Cry Of The Cat caused by that cat like crying people with this disorder often make.

[@sandraspalding8978]

@@joshsmith2982 The parents don't get to pick we just get chosen to be there parents they are gifts to us and we get challenge on a every day basis my learning about these precious darlings we get to grow as unlearnt uneducated and didn't have a clue about these beautiful Children the hardest thing to come across in life is arrogance people who are narrow minded and are conceded in there own life and make comments like this 🤔we are grateful and love having these beautiful children understandably not a lot of people can go the distance please we are trying to put out there awareness and spreading it around we are many with these blessings not curses we love and embrace theses beautiful human and we will be there until the end for them love is the key.💜

[@social.b]

These parents are heroes and doing the Lord's work by helping other families. God bless them

[@cecebestt]

Chrisean son Definitely has this!!!! HER SON LOOKS JUST LIKE HIM BUT BLACK.

[@rainbow_starz5170]

Who?

[@cecebestt]

@@rainbow_starz5170 the little boy that’s in the video?

[@thatderangedbunny]

Those facial features and really low set ears (like below the jawline ) match CR Junior’s to a T.

[@anamm620]

And you’re not a doctor so how would you know?

[@carootto7790]

0:30 she was NOT about to say 'very weird syndrome'-

[@김브-l2h]

Well i mean its not normal

[@helloimnothing7954]

i cant blame her

[@Sam-gx2ti]

@@김브-l2h Well yeah, it's a genetic disorder/syndrome lmao

[@J_Mila]

My youngest daughter has it and honestly, I’m not offended. It is “weird” because it isn’t “normal” and it’s so rare that there isn’t a lot of information on it. She didn’t mean any harm and as someone associated with it, I’m not offended, so why are you? I swear some people just look for a reason to get mad these days. 🙄

[@XoXoG]

It’s the mothers fault for smoking and drinking alcohol during pregnancy. Shame on the mother

[@Donlightyear]

Chrisean rock brought ya here ?!?

[@clarissacharles4460]

Yes actually yes 😅

[@sillylilmonkey]

Life long care certainly doesn't imply "thriving." I understand that parents want to be optimistic or try to find the upside to their child's condition, but you have to be honest with yourself too. Yes, the child can walk, but can he care for himself? no. This would also stand to reason that he has a limited capability of learning and will eventually have to be put into a group home or a nursing home once his parents are unable to care for him. I can hear in the mother's voice that she wants to cry and that's incredibly heartbreaking. It's very unfortunate, but also it IS important to bring this condition to light so that expectant mothers can understand the importance of genetic testing should they have the potential or concern of having these types of conditions.

[@Luna14Smith]

Exactly. A comment like yours it's VERY NECESSARY to hear since many parents (like her) think these kids will have a normal life as she said that they'll have a normal regular life expectancy (which is not true).

[@tierrawashington8513]

Although you are entitled to your opinion your speaking from the aspect of NOT having a special needs child. To be told by professionals who are "supposed to know " that your kids isn't gone walk or talk and he is now doing that IS INDEED THRIVING. Meanwhile you downplay it and want to focus on what he can't do. Normal implies "what everyone else can do"...What do u think walking is? Talking? Unlike the person who agreed with you. This comment was not needed because clearly she knows her child will one day need cared for. I'm sure she educated herself through and through. What she has is called HOPE! Something you dont because you dont have to right...I'm sure she knows it isn't just gonna go away, but if he can do what they say, he wouldn't. Why not believe he can keep thriving.

[@envymytruth]

A parent’s Love is everything!

[@valerievazquez1248]

He's beautiful. God blesses us with children, and he chose these two to be this little angel's parents.

[@raytshia1843]

Thank for doing this awesome work to protect the children & creat awareness 💕

[@sues1607]

My Granddaughter has CDC. Ella is nine, as far as we know there are around 20 or so CDC kids in Australia. My Daughter has made miracles with Ella, compared to what she was told by the genetic doctor when Ella was diagnosed. It was all doom and gloom. Melanie has a blog called the honest pirate, all about Ella and her 3 yo son Reece, who also signs as he picked it up when Mel signs to Ella.

[@crustygoat1617]

So is this gonna be crisseans baby?

[@abbieprice3430]

I had a distant cousin named Shelby who had this rare syndrome! I never met her but she was only a year older than me! She passed away just one day before her 17th birthday!

[@helloimnothing7954]

That's saddening.

[@AdverbsAndNouns]

Aww.. man that was a downer for me

[@gawdspeed]

God bless this wonderful family and Jacob!

[@jesseerousel6172]

0:29 anybody else notice she was about to say "weird"?

[@dreamqueen317]

If Chriseans baby has this, I pray he gets the help he needs.

[@aliceanaya7800]

Thanks for bringing awareness ❤️my best to Jacob and his family

[@pattersonk6437]

"Its a very weir- rare syndrome 😅"

[@ParisBradshaw]

U peeped that too😐

[@allieshepard7791]

She totally corrected herself after saying weird.

[@ByDesign333]

He got great mom & dad 💯% Jacob👍

[@aranyachakrabortyx-a-1khs686]

Yes ..my friend

[@vocaloidteto]

As a person with this disorder, im glad people like you chooses to spread awareness/make videos about it. Edit: I just came back to this comment one year later and im just laufhing my ass off with how you people think I fake my disorder 💀💀💀

[@dfern1280]

Lying

[@sillylilmonkey]

lol

[@vocaloidteto]

@equizzgezzy2598 wdym?

[@vocaloidteto]

@@dfern1280 no I'm not

[@vocaloidteto]

@equizzgezzy2598 not all people with 5p- can't function normally lol

[@tasha.peyesopen505]

Chrisean Jr has this only a fool doesn't see it😔

[@jeetchoouhan5290]

Caused by missing of short arm of 5th chromosome ..causes baby to cry in high pitch sound with cat voice

[@tanishkanagar5756]

Partial deletion of short arm of 5th chromosome.

[@Negs42]

@@tanishkanagar5756 neet?

[@SilverGate007]

@@Negs42 not in syllabus though

[@Negs42]

@@SilverGate007 it is definitely in syllabus lol It appeared in one of the jipmer entrance exams

[@Arpit.singh.]

@@Negs42 UPSC 😅

[@mjremy2605]

Some parents are given a handicapped child at birth, and they work so hard to fully develop their child and integrate them into society. Such heroes! And then there are those parents who have perfectly healthy children, who abuse, torture, starve and kill their kids.

[@jamestanner8179]

My son has that and his name is Jacob as well

[@reemshaaban4606]

May god bless him for you ♥️

[@joshsmith2982]

You deserve a cookie !

[@amazingjasononemillion6999]

God bless your son! My uncles moms friend cousin brother grandfather gardener wife daughter has a friend who's uncle has a son who has it too

[@siddyray3361]

BRO the Host Almost Said WEIRD syndrome in the beginning. All she had to do was read the teleprompter. WTF

[@nenenicole8291]

She’s human,

[@mrsjacksonstewart9266]

Her baby is about the age he was when he was diagnosed. She needs to get that boy to a specialist

[@mekawest347]

This is what blue Face and rock baby has

[@dalaibrahim]

got an exam in this tomorrow

[@artigone_6107]

same

[@centralintelligence3874]

same but on Monday 😭

[@alnaantony7430]

Samee 😭

[@butterflygirl3359]

When you look at this family, you see the best of humanity. How many “fathers” do not emotionally and financially support the neurotypical children they choose to have and abandon them to the government.

[@AN-jz3px]

The government should never have programs in place for that and force them to take care. It’s simply too easy to guarantee a vote.

[@cloutmastermemes2007]

@@AN-jz3px bruh you don’t understand how hard it is to raise a child with chromosomal deletion. Some parents kill themselves from stress.

[@mariahsmith5926]

Im 29 weeks pregnant and my baby is going to have cri du chat syndrome. She's due may 6th. And she's going to need surgery on her heart and intestines. This is hard for her being my first born

[@makedaanderson]

I’m sorry that you’re experiencing this stress and I hope that she doesn’t suffer too much and the surgeries are complication free and brings her much needed support. Good luck xx

[@stormdancer25]

How old are you?

[@ajigeorge7715]

How is your baby

[@ariana6139]

I hope everything is going okay!! You were able to find out your child has CDC before birth too? God bless!

[@joshsmith2982]

Not sure why you would want your child to live like this ? Causing stress for you and every one around you!!

[@ShesMajickal_]

This gon be Chrisean baby

[@misaamanee]

You weird

[@nicchris960]

Yeah she needs to go get a genetic test . Sad cus she’s not equipped to take care of a normal baby let alone a special needs baby

[@MsRobin-rt4jm]

Yes what’s crazy is the boy look just like him

[@elijahdryden1564]

It’s literally him right now

[@ilovekippp]

...this definitely age very well

[@NiaDouglas]

Somebody send this to Chrisean 😍

[@Brzeczyszczykiewicz_Greg]

0:29 Very weird indeed. :D

[@earthaph5977]

Cri du chat syndrome :deletion of chromosome 5 p

[@dudedude315]

I know a kid in my school with this

[@lovepyrosadity]

“It’s a very wei- rare” OMGGGGGG

[@Youneverknow222]

Sweet family❤

[@gawdspeed]

that brunette lady fumbled twice during this show cmon lady get it together

[@chindichorr]

This is due to the partial deletion of short arm of 5th chromosome.

[@billymeeks845]

I’m not crying

[@monikamichaelis-iw3to]

Something must have triggered it.

[@gauravmaurya7496]

Freudian slip at 0:30 !

[@lowstaar]

damn

[@FsgFTO]

It’s crazy how y’all on here basically wishing upon it being chrisean rock baby y’all sick

[@toniclanton7368]

Who TF wishing anything on that baby ! WTF are you talking about ! She has a fucking responsibility to care for her son and give him the best chance to thrive ! And denial is not gonna help him ! Get you head out of your ass ! Your weird !

[@cadukaweb6620]

Cri du chat xtreme

[@lilli1259]

It’s Rare? What is it cause by?

[@bebespeaks7827]

A deletion of multiple genes on the 5th chromosome. They said it in the beginning.

[@Chief123-p3r]

Is a very weird

[@gargamel7669]

cute