Rare and Share EP12 | (In)visible people | Davor Duboka, Boris`s Dad

Guest in our 12. episode is Davor Duboka, a father who started his journey for the diagnosis and then therapy for his son - Boris. He is one of those who didn`t stop just at fulfilling the needs of their child and family.
We have talked about:
How did it start?
A view at their story with a time distance of ten years period. Also, difference between professional and personal engagement to the topic of rare diseases.
Which were the challenges when there is a lack of system.
Things which were moved, even upgraded from then.
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DISCLAIMER: The content of the podcast is for informational purposes only and does not constitute medical advice. For medical advice, diagnosis or therapy, consult a doctor.
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