realistic day in my life w chronic illness; flare up vlog w pain, seizures, + more

Realistic day in my life with #chronicillness for a flare up day vlog dealing with seizures, pain, doing therapy and more. Hangout with me like we are on FT while we talk, life, I share health updates, and what my day to day really looks like with chronic illness and disabilities (Ehlers Danlos, Gastroparesis, POTS, epilepsy); the good, the bad, the ugly. I hope you enjoy this video! Sending all the love and spoons! #disabilityawareness #spoonie
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Disclaimer: This video is not sponsored. All opinions and actions are my own. Some links and discount codes are affiliate links. This video is for educational purposes to raise awareness for chronic illness/epilepsy/pots/gastroparesis/ehlers danlos/picc line/g-tube/service dog life. Please consult with a doctor or nurse for any medical advice.
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Music: Provided by KZbin and iMovie Library
FAQ:
How old am I: 24
Where did I go to college: Towson University Alumni 2021
What I used to film- Nikon D5500 / Vlog- Sony a5000 / iPhone 13
What I used to edit- iMovie
Voiceovers- Ice Blue Snowball Microphone

[@caseyslifewithcp3727]

Thank you, Lindsay. I'm having a bad day with pain due to the weather outside. Thank you for the distraction. I will watch anything you can throw together. Chronically fabulous.

[@ChronicallyLindsay]

The cold is so gross definitely making the flare ups flare right now! thank you so much for the support I’m glad my content is a good distraction from the chaos of our bodies for a bit!

[@caseyslifewithcp3727]

This cold weather is unbearable. Sometimes, I am really thankful for medicines and the tools I have to help, and sometimes, as you know, nothing helps. We just have to push through sometimes.

[@vampirebottom]

The real-time narration vlog style is such a throwback to old school youtubing, and I'm living for it. The hanging out/talking to a friend style is perfect for a day in the lige video, but especially for such a personable topic like the ins and outs of living with a chronic illness. 😌

[@cathytestagrossa6198]

Lindsay you're very courageous to show exactly how a day in your life goes. You're so young to have to struggle each day with all these illnesses. So many meds, how do you manage keeping everything straight? Thank you for sharing a day in your life with disabilities. ♥️🌹

[@bethanyspence4156]

Chronically fabulous. Thank you for sharing a realistic peek into your day-to-day! If anyone gives you a hard time for using a mobility aid/applying for disability/ any reason, just show them this video 🤦‍♀️😅

[@debb12345]

Chronically fabulous! I enjoy watching day in the life videos, they make me feel less alone stuck at home.

[@karly_ongrowth]

❤ chronically fabulous ❤ Seeing a few similarities in how your chronic illnesses affect you too Lindsay reminds me that i am absolutely NOT alone. Of course i wish none of us were sick but it's our reality & I'm trying to remind myself that our community makes this very tough journey worth something. Sending love & spoons to all reading this 😊❤🥄🤲🏻

[@christinaschiller9291]

Love u Lindsay. I have chronic illness too I suffer with constant subluxations of my right elbow which causes internal bleeds which I can't control. I love your videos cause I don't feel alone. Chronically fabulous 💖

[@love_gracie_joy]

Chronically Fabulous! I’m in a flare as well. And the chronic pain is awful! But we will get through all of this together. Sending love! -Gracie 😘🥰

[@TheMissKittey]

✨chronically fabulous✨ I really enjoyed this real and raw glimpse into your daily life ❤ Thanks for sharing it with us 😘 Also I love your pancake Squishmallow 🤩🥞✨

[@cattailsfun7042]

Chronically fabulous!!

[@HannahEliseMcNabb]

I love love love that you posted this. I am sorry you have to suffer everyday like this also, but it's nice to know I'm not alone. I feel like I constantly see the better parts of everybody's lives, like the chronic illness vloggers that I watch and it always makes me think wow why do I feel so much worse than others or it makes me think why can't I handle doing that and cope with the symptoms it may bring, but that person can, like I feel like what am I just weak or something, ya know? But this really showed me that 99.99% of the time, social media only shows you the best parts of a person's life. I have hEDS (I'm one of those with LOADS of chronic pain, like you), I mean I relate extremely heavily to that groan at 2:47 LOL. Like I swear I groan 200+ times daily, my dad has hEDS and I can tell you that I bet he does it that many times as well. I still live with my parents, and they help me with finances, medical bills, etc so thankful to them that I don't have to struggle financially at least. I have applied for disability (SSI) 3 times and been denied and have gotten a lawyer now to see if that helps me get it but I've been trying for 3 years to get it, it's ridiculous, I hope you get it more easily. I'm 23 and I haven't had any jobs longer than a month because really I always had subtle EDS symptoms and symptoms of the co-occurring things, and just didn't know it was abnormal, so I wouldn't be able to last long because everyday after even a 3 hour shift, I'd be in so much pain, and exhausted, My feet and legs would hurt so bad I almost couldn't walk and I was literally 18 last time that happened and my back would hurt really badly as well. Now, I wouldn't make it even 5 minutes lol. This video just makes me feel so validated, seen, and it makes me feel like I'm strong and not weak, and that you are too, because dealing with what we deal with on the daily is just another level of strength, being in agonizing pain all the time. No meds I've tried to help my pain have helped substantially especially after a while because I also get tolerant to meds at the drop of a hat, any med, it's ridiculous. But again thank you for making me feel validated & seen and showing me I'm stronger than I think I am. I hope every person who is chronically ill and struggling sees this. You're such a kind person for sharing this because it'll make whoever is in the same position as us feel more seen.

[@CaseyJackson447]

Same here I am in the same situation as you ❤

[@HannahEliseMcNabb]

@@CaseyJackson447 Sorry for not replying, I've been sleeping for pretty much this entire last week and have barely been able to eat, even when awake for the last 2-3 weeks, My health is still detoriating and I have no clue what to do

[@DiariesofaDisabledmom]

Love day in the life vids when I have time to watch. I never catch my absence ones on video or any of my seizures really but I’m usually the one holding the cam or just turn it on when I’m gonna talk lol pretty pets. I hate meditating lol the cold makes my pain worse too

[@jenniferw1595]

Chronically fabulous 🌼

[@AshlynnJonesandDixie]

Hey I just wanted to let you know I really proud of you for posing a s seizure on KZbin I’m I had to skip it just because I’m really in a trigger day but I just wanted to let you know it probably helped a lot of people

[@user-co8pt6ih2c]

Hey Lindsey I'm glad you are feeling a lot better it's not easy being sick and chronically ill like that

[@ToadTalksWithLou]

Thank you for sharing your life and spreading awareness. Though we're going through different things, we're similar ages. It helps me feel less alone in my own chronic illness journey 💜

[@jazstackhouse985]

Chronically fabulous ❤

[@dominikbenz8349]

Amazing Video I enjoy Rock this get well Soon ❤

[@sabrinacoleman8399]

Chronically Fabulous ❤

[@katc4786]

I love this ❤

[@ChronicallyLindsay]

So glad you enjoyed it!! 🫶

[@evaantoniia]

Happy New Year, Lindsay!! I really enjoyed the talking through this vlog :) And I always find it interesting to learn more about chronic pain and seizures. Even when I have been following you for a long time already, just not with this account :)

[@cyn2480]

I just subscribed because this is a very informative vlog. Thank you. I have chronic pain and now I don't feel weird or alone.

[@cassthelass907]

Chronically fabulous! This type of vlog style is my fav but i love anything by u. I'm glad it didn't turn into full blown ER trip. I hate when ur body gives u curveballs like bro wtf😳 Wishing u good luck for a good next GI appt🙏 I'm right here with u taking 1 day at a time and trying to have hope for 2024. All the love and spoons to you💖💖🥄🥄🐶🐶

[@jodieanderson3305]

Yes cold weather I hurt worse. I just want to sleep a.d be on bed. I make myself get up and move.

[@tammydavis770]

Chronically Fabulous

[@ChronicallyLindsay]

YESS 💝🫶

[@highmater]

Chronically fabulous!!! Was meaning to ask what brand are your heating pads? Im looking for a good one.

[@charlotteboon7372]

I was wondering why you are on G tube feeds and not J tube feeds, since most people with Gastroparesis tolerate those better. I have a G tube for venting and a J tube for as needed feeds and meds when my gastroparesis is flaring (I’ve also been on TPN for about 6 months, right now I get about half of my Kcal via J tube feeds and the other half is orally.) Also thanks for being so open and honest social media! We need more people like you❤️

[@ChronicallyLindsay]

Okay yess!! This morning I had bloat above my tube not even in my stomach, we’re reaching out to my GI to see if we can switch to a g-j bc I need to be able to drain and get feeds which is super helpful to know!! Thank you so much for watching and showing love! This was super helpful to hear and I will definitely be bringing it up with my gi thank you!! ❤️

[@wincharles1195]

❤❤❤

[@candaceberman1448]

Chronically fabulously

[@ChronicallyLindsay]

YESSS 🫶🥄🩵

[@Horselovet87]

Hi Lindsay how you feeling I know you're going through a really bad flare and I'm sending you spoons for that. I'm still dating Austin Ellis but there's people trying to break us up and I've been having a lot of stress with that. I've been crying . Your channel is always been a safe place I love seeing your service dog and cat they always make me smile. I love u Lindsay setting spoons for another chronic illness warrior 🪖 to u 🥄🥄🥄🥄🥄🥄🥄💚💚💚💚💚💚💚💚

[@krystelburgess5593]

U have a amazing caring partner there I think U are amazing ❤

[@VintageRayne]

Chronically fabulous! “Happily de lu lu” is a great goal to have. I’m making that my goal now, too. Much love to you, Autumn, Simon, & Luna. 🙏🏻🤍🥄🧂🦓

[@LydiannaBella]

May I ask what pain meds you are on ? I take duloxetine, amitripyline, tramadol, ativan and supeudol. Some days, it doesn’t touch my pain at all. I have hypermobility and a neurological disorder that causes tingling, numbing and burning type pain.

[@ChronicallyLindsay]

Sure! I am on a buprenorphine pain patch I change 1x a week, and I take Ativan as needed to stop my seizures/cyclic vomiting episodes. It’s definitely been helpful to control some of the day to day pain while being able to stay consistent even on days I can’t take oral meds bc of the gastroparesis (tummy probs etc) 🫶 my pain management dr regulates all of those meds for me and has helped me find what works best for me, I hope that helps!

[@annacooper1299]

I get more pain and more mcas episodes when it’s cold. Has any of your doctors bring up getting a jtube that way you can bipass your stomach and feed into your intestines and maybe do meds through that leading to better absorption

[@ChronicallyLindsay]

I am scheduled for a g-j placement this month :)

[@annacooper1299]

@@ChronicallyLindsay that’s awesome I am sure you will find Jtube feeds easier to tolerate

[@tiffanypollock6582]

Just found your channel! I just got diagnosed with POTS… were you diagnosed with pots before the other disorders??

[@ChronicallyLindsay]

Cyclic vomiting was technically my first diagnosis (started in childhood) but POTS was my first diagnosis in 2017/2018ish as my health started to decline. Wishing you luck with your POTS journey! I have lots of pots videos on my channel and I’m sure more to come 🫶

[@tiffanypollock6582]

@@ChronicallyLindsay thank you for the well wishes! Good luck to you!

[@lauraw3338]

Have you seen a vascular surgeon? Abdominal bypass changed my life. I hate to see you suffer and constantly be connected to machines. The surgery sounds worse than it really is. I will never regret getting the bypass surgery. Everything works as it should and I no longer suffer from abdominal pain.

[@-ANERD-]

It’s not even snowing where I live but am experiencing a pretty bad flare up regardless, that being said I hope things are manageable for you particularly as the weather gets colder!! Be kind to yourselves and I wish everyone all the best with this weather 🥄❤️‍🩹❤️‍🩹

[@user-rn6fi2tf3k]

I had an Appointment today with endocrinology, I am 13 in 8th grade and I was 4’10 when they measured me today. This woman told me that I would have never qualified for growth hormone therapy because you have to be under 4’11. Last time I checked ma’am 4’10 is under 4’11… do you need to go back to kindergarten??? Anyways she also told me that even though my blood sugar was extremely high From my labs a few weeks ago they did a finger prick to see if it had been in range for a week, she came in and very suspiciously said “Soooo, you’ve been in range the whole time….” It was so suspicious though. She was sketchy I didn’t like her. sorry for the vent, I just needed to get it out because I woke up at 5:45 am and left at 6:45 am to get there because the roads were so bad. I was mad though because my school delayed for 2 hours so if I didn’t have an appointment I could’ve slept in. I was there for 6. HOURS. And she basically told me there was nothing wrong with me. Sorry again about venting, sending spoons! 🥄 ❤️‍🩹