Rescue Meds in Severe Developmental and Epileptic Encephalopathies (DEEs) Part 2: A Clinician's POV

www.DEEPConnections.net
This is a recording of Part 2 of a series of 4-developed in conjunction with the LGS Foundation-on Rescue Medications in Severe Developmental and Epileptic Encephalopathies (DEEs): A Clinician's Perspective & Advice, which was held on July 8th, 2020.
In this session, Dr. Michael Chez-a pediatric Neurologist at Sutter Health in California-gave detail on the different kinds of rescue meds, how they work and what they are typically used for. He shared how he thinks about when and how to most effectively use rescue medications. He shared case studies on scenarios to help families understand decisions that may need to be made about rescue meds, shared 10 step guidance developing and utilizing your individualized Seizure Action Plan and four key questions to ask your neurologist to determine if and how you can work with them on an I-SAP.
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DEE-P (Developmental Epileptic Encephalopathy-Project) Connections is a community for families who have children with Developmental and Epileptic Encephalopathies (DEEs). It was started to break the isolation so many of us feel and to facilitate connections. The project also shares critical resources with families facing similar challenges that are associated with the co-morbidities that impact our children and families.

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