Richard's Stem Cell Transplant Journey

[@BarryBuckland]

Really pleased that you are still up and running. My Karen had her Bone Marrow transplant mid June and she passed away exactly 100 days later and went through an absolutely torrid time. She gave up the fight after multiple infections during that time and spent 6 weeks in ICU in that time. Near the end she said she wished she had never undergone the treatment. Prognosis was 2 to 4 years and 5 and up if she continued. Ended up with 10 months most of which was spent in hospital. For people about to undergo this procedure I wish them the very best of luck. Karen was in remission but it was all the different infections that got her in the end.

[@RichardTylerBTFI]

@@BarryBuckland heartbreaking. I’m so sorry Barry for your incomprehensible loss. We go through making what we believe to be the best choice we can. I imagine you and Karen did the same. I send you all our love xx

[@BarryBuckland]

Really pleased for your successful stem cell transplant. You indeed were blessed with such a smooth if sometimes turbulent ride. My wife is still recovering in hospital and is now on day 47 with no likelihood of leaving hospital for two to three weeks at least. She has had the most horrendous time with all sorts of problems along the way, even to the point of having a weekend in ICU. At one point, for a couple of days, I feared the worst for her. It has been a most horrible experience for her to go through and for me to watch. There are high risks with the treatment but also, hopefully, high rewards. Like you she has had an incredible team looking after her and I am so grateful to them. Wish you, all the very best for the future.

[@RichardTylerBTFI]

@@BarryBuckland I’m so sorry to hear you are both having such a torrid time. It’s traumatic. That is no understatement. Recovery and healing takes time. Go slowly. Find patience like you’ve never found. Hold faith. Can we help at all? If a call would help, that’s easily arranged. There is light, the morning always comes. Much love to you both Richard x

[@CS5663-z5q]

@@BarryBuckland 💕🙏🙏🙏💕🙏🙏🙏💕

[@CS5663-z5q]

Thank you ❤

[@jessieglenn616]

May God Bless You.I have my transplant on November 7

[@RichardTylerBTFI]

Sending you all love, Jessie x

[@jessieglenn616]

Thank You so much 😊

[@sayyywhaaat3153]

Keep fighting! My dad is in there getting one as well! Even on the tough days just keep pushing!

[@RichardTylerBTFI]

@@sayyywhaaat3153 sending so much love to your dad, to you and to your family ❤️

[@sayyywhaaat3153]

@RichardTylerBTFI thank you Richard! You will be in my thoughts and prayers as well for continued success! Your videos inspire me and make me confident my dad will keep going strong! He's doing well up to this point!

[@FMJonno]

I'm so glad I came across your video. In September I was diagnosed with Acute Myeloid Leukaemia (AML) and I've since had my treatment, it was 8 days of intense chemotherapy, platelets, and many other bags, blood transfusion etc. I was discharged a week and a half ago but supposed to be back next week for round 2 of intense chemo (a late result came back and it was on the bad side) Well, my good news is, after having a consultation yesterday with the doctor, he was so impressed with the results. My haemoglobin levels was up to 126 (it was 33 when I was rushed into hospital) I no longer have to go for more chemo, nor do I have to go back into hospital (so happy about that) I was in for 33 days and it was tough. I'm now waiting for a date for stem cell transplant and really don't know what to expect. Your video has kind of taken away the fear of this, although I'm still scared, but positive. I apologise for waffling on, I just wanted to thank you. I do hope that you're now enjoying life again. I'm sure like myself, when you first get diagnosed, that fear that life is over kicks in, but then you realise that that's not always the case. I'm waffling again haha Sending you lots of live from Hull x

[@RichardTylerBTFI]

Jonno, greetings from Surbiton! Woah, jeez. You’ve had one hell of a few months. I’m so sorry for all you’ve had to endure. It’s a fricking tough path to walk. And it sounds like you’ve done a bloody tremendous job! 🙏🏻 I’m so happy to hear your news. I can only imagine your joy. Each step matters. Yes, you have more steps to take but it sounds like you are strong. Your levels sound better than mine! Waffling is important. Keep on doing it. Too many people choose to bottle it up. This is corrosive and ultimately affects recovery. Look, SCT’s are tough. But you are going to face it with so much strength, courage and vulnerability - the quality that encourages you to admit how hard it all is. If you want to grab a call about the SCT, you’d be very welcome. I’ll give you my number and you’re welcome to use it. My cancer is incurable. I can stay in remission for many years to come, which I’m planning on. I still have treatment and the side effects from the chemo feel relentless and heavy. Some days are easier than others. You’ve got this Jonno. Sending you much love and good energy. Be in touch anytime you like xx

[@FMJonno]

Thank you so much, Richard ❤️ your words of encouragement are very much appreciated. I will fight this all the way with a positive attitude, which as you probably know, is not always easy. Thankfully, I have great support from family and friends that keeps me going. I'm really sorry to hear that your cancer is incurable, but it definitely sounds like you're keeping the fight going. You have an amazing attitude, and that cones across in this video. Thank you for the offer of your number, I do have an amazing counsellor who I can turn to, she has experience in this and is there for me 24/7, but I am very grateful for your gesture. Long lives to both of us. And thank you for your beautiful wishes and words x Jonno x

[@RichardTylerBTFI]

@@FMJonno brilliant! I couldn’t be without my therapist. She has been a vital part of my recovery. I’m happy to hear that you have someone who can help hold you firm during the tough times. You know where I am. Keep me posted. I’d love to hear how you are getting on. We have a Facebook group if you fancy it. Much love Rich x

[@FMJonno]

If you could link me the Facebook group I'd love to join 👍

[@RichardTylerBTFI]

@@FMJonno here’s the link to our website. The FB link is on there: thewillowtreefoundation.com

[@bettyhagen6586]

I am getting ready to start treatment. I hope mine goes as well as yours did! Blessings to you!

[@RichardTylerBTFI]

Sending you all the love Betty! I hope it is as smooth as can be. Please ask if I can do anything to support you. Rich x

[@giadaar2004]

How are u feeling now? I’ll have to do mine in January. I’m scared.

[@RichardTylerBTFI]

@@giadaar2004 I feel pretty good. Some days are easier than others. I get tired easily. You have every right to be scared. Are you in the UK? Can I do anything to help you? X

[@giadaar2004]

@@RichardTylerBTFI No, I’m from Italy. Long story short: they diagnosed me with LLA PH+ in October and I’m currently doing an experimental treatment and it’s working. But they are saying that no matter what, I’ll have to do a stem cell transplant. I’m 19 years old and I can’t believe this is happening. I just wanted to know how hard it is and if theres happiness and a slight feeling of normality afterwards… (hoping everything will go as it should)

[@RichardTylerBTFI]

@@giadaar2004 ah ok. You’re having to deal with a lot right now. If I can help you at all with getting ready for an SCT, please ask. I’m happy to grab a call with you x

[@rugbyasu]

Stay strong Man!

[@dr.maheshchintamani8242]

Very nice. Wish you all the best

[@kevanhubbard9673]

I have one coming up next year as a few years ago I developed Mycosis Fungoides which sounds like it might be a fungal infection but unfortunately not it's a rare T Cell Lymphoma.They have tried tons of things to slow it's infiltration of the body down but nothing has worked except radiation on the tumours.

[@RichardTylerBTFI]

Kevan, what a lot you have to contend with. Radiation is brutal on your body. I hope that Christmas affords you some room to rest before 2024 begins. Let us know if we can help in any way. Much love, Rich x

[@DavidBing-t5k]

Well done Richard ❤❤