Robin Reflects on 12 Years with Stage IV Metastatic Breast Cancer

Robin Miller was an extraordinary woman, and her story must be shared. Living for 12 years with metastatic breast cancer, through most of her 20s and until she was 34, Robin dedicated her life to helping others. A majority of her work was in Lymphedema. She ultimately revolutionized the Lymphedema industry through her "disruptive" work in co-founding LympheDIVAs, her ongoing work at the National Lymphedema Network, and more. Robin was a fighter and she'd be proud to be known as an all-around "bad ass". Her struggle was gargantuan, yet she powered through it sharp-tongued and unapologetic, fighting for the rights of patients and towards a cure. She is grateful to her family and friends, who she loved so dearly, and to the medical staff whom she turned into partners over time. You can experience Robin here in this video, just months before her hard fight came to an end. May we all carry with us the fearless nature of this woman. And as Robin would say, "Fuck Cancer."
Learn more about Robin's story at: robinmiller4ev...
Contributions in her memory may be sent to The Hope Rugo Breast Cancer Research Fund at UCSF, crowdfund.ucsf....

[@ttlola5515]

Cancer is ugly for everyone in every way. My heart goes out to the ones fighting this disease. Hope they find a cure soon.

[@KindCountsDeb3773]

new cancer treatments are helping fight this disease even more. I have a friend who has had stage 4 metastatic breast cancer that spread. With an experimental treatment drug, she is alive for about 10 year since diagnosis. I believe she had exceptional results, and that drug is used more widely now. Cancer can be beat, and sometimes it isn't. My thoughts to those dealing with it and those who did not make it. I am a cancer survivor , 10 yrs out, and I admire a fighter like Robin. She took action to help others while fighting. What a special person. RIP dear girl.

[@cardoclarke2494]

@@KindCountsDeb3773 what drug did your friend use?

[@jesussaves1827]

@@cardoclarke2494 Turn to Jesus He loves you very much, He is the God of miracles, i was ill for a long time, but the doctors couldn't really help me, i don't blame them there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, God has done amazing things in my life and in the life's of people i know and love, He can do the same for you and yours, When you need Him call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, He is the God of comfort and will be there for you when you call on Him, God saved someone i love from an illness leading to death, There is nothing impossible to God, Its as simple as accepting Jesus, and Trusting Him for your Salvation, He is the healer of the body and Saviour of our souls, And if you truly seek Him Jesus will answer you, i know this because He answered me when i called out to Him,

[@jesussaves1827]

@@KindCountsDeb3773 Turn to Jesus He loves you very much, He is the God of miracles, i was ill for a long time, but the doctors couldn't really help me, i don't blame them there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, God has done amazing things in my life and in the life's of people i know and love, He can do the same for you and yours, When you need Him call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, He is the God of comfort and will be there for you when you call on Him, God saved someone i love from an illness leading to death, There is nothing impossible to God, Its as simple as accepting Jesus, and Trusting Him for your Salvation, He is the healer of the body and Saviour of our souls, And if you truly seek Him Jesus will answer you, i know this because He answered me when i called out to Him,

[@KindCountsDeb3773]

@@cardoclarke2494 sorry I don't know, but I think it's being used, as it was a clinical trial for some. She just got the best results, floored the doctors !!

[@RajiTripathi]

Devaststing for all who face such heartbreaking diagnosis and live with a grim prognosis. Not an easy challenge! As sad as it is, Robin has inspired and given hope to so many to valiantly fight this battle. It impacts not just one person but the entire family. Recently, a cousin of mine has been diagnosed with BC. COVID delayed her timely testing and treatment. She is alone, unemployed and has no insurance. We are helping her financially but cannot afford prohibitively expensive medication, such as, Ribociclib. But she seems to be responding favorably to Femara. We are there for her for emotional support as well, but it is still her battle. She is remarkably positive and handling it with stoic courage. I am filled with renewed respect for her. She, and others like her, don't deserve this. We may never understand why it happens to so many good people. All we can do it is to be supportive, be patient and understanding. Until a cure is found, or we know the prevention, no one should be left to feel alone, hopeless and helpless.

[@traceymanzano4015]

Wishing the best for your cousin and family

[@donnapenny72]

I am at the end as well. Every word you say resonated in me. I just don't want to leave my 12yr and family. But I'm living on borrowed time. My liver is failing and so is my will after 10 yrs. Love to u xx

[@sname5920]

This is how I feel. My baby's not even 2 yet. Why is this happening

[@khananme]

I'm sorry

[@KindCountsDeb3773]

Metastatic BC is not always going to kill you. There are some newer drugs/treatments that some people get true remission from. I know someone like that. This fine young lady helped others with this video, in her work with lymphedema, etc. . What a warrior she was. So special

[@sname5920]

$$$$$

[@ticklethypickle6368]

R.I.P beautiful human. Life gave you a tough hand but through it you were graceful, kind and brought happiness to many.

[@ajimenez1719ify]

My mother died from peritoneal cancer a little over a month ago. We didn't even know she had it until the day before she died. She had been losing weight rapidly for about six months and she always said her stomach hurt but she was sure it was no big deal. Her stomach started swelling and she went to the hospital, where they said it was malignant acsites. Of course, I was shocked bc I know that malignant means cancer but she didn't have cancer as far as I knew at that time. She died the next morning after going into respiratory failure. Her tests came back a few days after her death and they showed she had peritoneal cancer that had spread to her lungs, kidneys, colon, and liver. They estimated she had been sick for over a decade and just didn't know it. It was so shocking and might as well have been a freak accident bc that's what it felt like. Cancer rips families apart and takes loved ones away for no reason at all. I hate it.

[@annetacchino6461]

I'm sorry to hear about your mother

[@ajimenez1719ify]

Anne Tacchino Thank you for the kind reply. I miss her like crazy, every single day. Some days it feels just as raw as it did the morning she died. Some days it's hard for me to even get out of bed bc I'm depressed just thinking about it but, I know I have to bc I have a 9 years old daughter, who is autistic, that depends on me everyday, so, I have to just push thru the grief. I just wish I knew when to expect it to get easier bc right now, it dosent feel like it will ever get any easier.

[@annetacchino6461]

Andrea Jimenez It’s been 6 months since we lost Robin. I’m still waiting for it to feel easier. I don’t think it necessarily does, but it does start to become an added layer in your life experience. My advice would be to get a journal just for thoughts about her, and to get someone to talk to on a regular basis. Stay strong!

[@ajimenez1719ify]

Anne Tacchino I have alot of ppl that are worried about me bc I am a recovering heroin addict, and when something bad happens to some that are in my shoes, they tend to relapse. I've been clean 16 years now, so I don't think about it much anymore but since my mom died, I have had a few weak moments where I have thought " you could just do a little and it would help the pain go away for awhile", but, I snap out of it when I see my daughter. I'm just trying to get to where I don't blame myself for not seeing the signs and making her go get treatment. That's what I'm having the most trouble with now.

[@ajimenez1719ify]

Brooke M. I'm really sorry to hear about your mom. I really don't think that anyone is ever prepared to lose their mom, no matter what the circumstance. It is sort of strange that your mom passed away in November of 2017 bc my mother did as well. (November 18th, 2017, at 4:03am to be exact.) My grandfather, which was my mom's dad, and my grandmother, my mom's mom, both died on November 18th as well, years apart from one another. My grandmother died in 1995 of peritoneal cancer, the same as my mom, and my grandfather died in 2005 of bladder cancer. My great grandmother and great great grandmother, both, died of peritoneal cancer along with 2 aunts and 3 great aunts. It runs in my family, and hasn't skipped a generation yet. Each generation gets younger and younger. It scares me bc I know that I, will more than likely, end up in the same boat. I just hope that with my doctors help, I can get early testing done to try and catch it early. My anxiety is so out of control because of this, that whenever someone in my family gets a stomach ache, I'm already thinking to myself," omg, it's cancer!", and it really makes it hard to function bc of the anxiety. Do you ever get worried about getting breast cancer or your loved ones having it, bc of your mother's battle with It? If so, how do you stop yourself from getting upset or anxious about it?

[@harlem-bx]

"I love you robin...we love you robin..Such a sweet soul wherever you are we love YOU...just from a human being 😍😘❤❤❤

[@comoyoko]

My mother was diagnosed with metastatic cancer recently … any information shared is very much appreciated. ❤️

[@sree9302]

How is now

[@comoyoko]

@@sree9302 She passed away on the 25th of February 2022.

[@luciusjohnson384]

My mom has Mbc but guess what she is going to kick it’s ass technology is getting better and better each month so anyone going through this don’t give up and live your life I just want my mom to see me graduate nursing school and become an oncology nurse

[@Winterwitch4477]

I love you. I dont know you but I love you nonetheless. I hope your soul is soaring.

[@khananme]

That's beautiful!!

[@khananme]

That's beautiful!

[@dineliaferrer4801]

This life is temporary. Eternal life awaits us with a loving God.

[@anamariacusguen7081]

Dinelia Ferrer Amen

[@BreezeWithAfrica]

To one who repents! God is loving to them who obey him. God shows wrath to those that don’t obey him.

[@cherimerrill1627]

ThankYou for true honesty for others with this diagnosis. I wish I could hug you but will do so when I look for you in heaven.😇

[@clairebeever3038]

Beautiful girl very brave no words for what cancer does to your life ❤❤ people forget how hard the drugs are all that rubbish kinda gets me annoyed saying thriving with breast cancer just cause your alive doesn’t mean you feel great well I certainly don’t I feel very poorly on all the different drugs …. This girl is so honest all my love goes out to her and her family ❤

[@hollyhocks7360]

Thank you for sharing your thoughts and fears and joys with us.

[@lucymale6349]

Where are you Robin? Are you still alive? I’m just thinking about you. I have Stage IV Metastatic Breast Cancer. 1 Tumor in my chest. I hope you are ok. I wish I could give you a hug.

[@sname5920]

I have the same. I'm so scared. So scared. How can we stop this? Crying

[@nawalzena9205]

Adrien's mommy, Sarah me too I have the same 😢😢

[@khananme]

I hope your next life is better. You were such a beautiful person

[@hannakinn]

I hope there is reincarnation or something even better and that Robin is somewhere having an awesome painfree, cancerfree time. She lived her life fighting cancer for 12 years. She was indeed a badass! And, on Robins behalf I will also say fuck cancer. I hate cancer.

[@lucymale6349]

Where is she? Did she pass away? What a sweet soul.

[@Sunshowers902]

Love you Robin, I pray God heals totally 🙏

[@Laney2272]

Just lost my mum after 5 1/2 years metastatic breast cancer, she was 78 😥

[@sprinklefriend]

Four months & 1 day since my dad died from a chemo-related infection. This disease needs to be destroyed for good.

[@sname5920]

My family doesn't want me to give up but the chemo kills too. I'm so scared. I don't want to leave them. I want to fix this for everyone in the world. It's not okay :(

[@sally4900]

My beautiful daughter was diagnosed with MBC she is just 37 . I

[@sally4900]

Mary Austin is Hi! can you please give me this doctor email.

[@sally4900]

Mary Austin is [e-mail]

[@jeaniecoudriet1887]

Oh you make me cry! And I get angry too! Not at you but the cancer! WHY? YOU HAVE SO MANY YEARS YET! MY Twin has got stage III Cancer in lymph nodes! I am not ready to lose her! We r 49 many years left! Children is the worst! Cancer is just an ugly ugly word! My prayers are for you ! Totally unfair!

[@djk7777]

How are you now?

[@sockknitter4884]

I believe she passed away.

[@frankiekohl5446]

I is she still with us?

[@joannoriol6444]

So sweet.

[@lockefinely2841]

wow keep the faith

[@jmlr5190]

God bless you.

[@sharlaconaway6754]

Know that Jesus loves you and he is the only way. Put your trust and faith in him. Eternal life is with God. :) I'm so sorry you had to deal with this.

[@joyinHim]

Jesus loves you so much! Put all your trust and hope in Him, receive His love and forgiveness and you will be with Him forever in heaven. He will wipe away all your tears and heal you completely. You will have no more pain and no more sorrow for all eternity. I hope you will receive this message with all the love that I can give it with. Love you so much, Robin Miller.

[@6668528]

Don't be ridiculous.

[@sprinklefriend]

No more ridiculous than the alternative, which is to believe that something came from nothing. That the world came about in an organized fashion not just randomly, but from literally nothing. Something is eternal & had no beginning: matter or a higher being. I choose to believe that the world didn't appear out of nowhere without being created, which implies a Creator. If you don't believe, maybe don't rain on the parade of those who do just for fun. If you think that's necessary, maybe look at your heart & ask why you want to drag people down when they've done nothing to deserve it.

[@alexandersmith364]

And if you don't put your trust in him, BURN IN HELL FOR ETERNITY!

[@spimentel562]

@@alexandersmith364 says someone who is still alive and wishing someone bad. That's terrible god you have there.

[@bettytekekekle5152]

Are you ok now

[@maggiec4598]

Beautiful

[@so_cal_mom]

❤️

[@bigpoppa800]

keep ya head up!!!! there is a cure

[@ladyinred9656]

That cure is Jesus. It is not chemo. Chemo and traditional medicine kills the body. Doctors and big pharma know this. Its all about the money that make from chemo and cancer patients...sick fucks

[@jesussaves1827]

Turn to Jesus He loves you very much, He is the God of miracles, i was ill for a long time, but the doctors couldn't really help me, i don't blame them there was only so much that they could of done for me, Then Jesus gave me a miracle and healed me, God has done amazing things in my life and in the life's of people i know and love, He can do the same for you and yours, When you need Him call on Him, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, He is the God of comfort and will be there for you when you call on Him, God saved someone i love from an illness leading to death, There is nothing impossible to God, Its as simple as accepting Jesus, and Trusting Him for your Salvation, He is the healer of the body and Saviour of our souls, And if you truly seek Him Jesus will answer you, i know this because He answered me when i called out to Him,

[@lins7650]

❤️❤️❤️❤️❤️

[@Jkstolz]

💔💔❤❤🙏😢

[@giovannamoro8564]

❤

[@tristanmason7405]

Good looking couple

[@antprice8826]

💕💕💕💕💕💕💕💕💕

[@christinehopton7707]

😚❤

[@chadwick283]

❤️❤️❤️🙏🙏🙏

[@lil_rotini]

[@MegglesEST1983]

They have a cure👎👎 give us the cure for great ppl like her