A rare diagnosis | Chelsey's NMOSD story

Chelsey spent ten years incorrectly diagnosed with multiple sclerosis before she was eventually diagnosed with a rare disease, Neuromyelitis Optica Spectrum Disorder (NMOSD). Despite facing the multiple challenges associated with living with NMOSD, Chelsey enjoys spending time with her children, and remains positive for the future. She shares her story here.
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[@julisachavez9559]

It feels good to know I am not alone and to hear someone understands

[@briancatt3648]

My wife was thought to have Graves’ disease. 12 years later she couldn’t walk and was diagnosed with NMO. 9 months later. RIP Pamela. God Bless you Chelsey

[@Johanna040713]

Just by looking at her chatting one could never tell that she can't see. Her being a painter is so cool.

[@suziegau2245]

Thank you for sharing! You are amazing!

[@lindajakub624]

God bless you. You are so brave

[@dkfamilyreptiles5366]

Please can anyone help with how to get a diagnosis in England I have all symptoms but know one seems to understand what is wrong

[@tanya_thivier9]

I have the same problem.

[@melissarobin7904]

have they done a spinal Tap?? blood work for AQP4?? MRI??

[@monstrevanilla5846]

Is she still alive?? What are her symptoms now?

[@panditbhudev21]

I want to know.Is she ok

[@shailjabisht6437]

What problems you are facing currently,,,m.also diagnosed with nmo

[@parthjoshi5342]

My brother is also being diagnosed with nmosd

[@JollyxToasters]

I was just diagnosed with NMO. I am currently relearning to walk with a walker, working on my control over my hands and getting lots of MRIs

[@UpSettingP32]

@@JollyxToasters how do you get diagnosed ?

[@carmen465]

Thank you....for sharing

[@juliej5917]

Beautiful woman with a lovely soul and spirit. 🎉

[@melchieempiales5749]

did someone experienced being numbed in the left side of the face?

[@melchieempiales5749]

did someone experienced being numbed on the left side of the face? i am also a patient of NMOSD and now i’m still being treated this is my 5th day, i’m from the philippines

[@danielbustillo949]

My mom experienced it, she recently got diagnosed with NMOSD. I’m from Honduras

[@Suraj-vg1of]

​@@danielbustillo949my mom is also suffering from this disease, someone help me understand, as how to get treated and overcome with this

[@melchieempiales5749]

What's her medications? I'm taking up steroid everyday at 5 mg

[@martinsahagunsiles3513]

I am so Scared 😫

[@khemkhatri4028]

I'm

[@panditbhudev21]

Hey Would you like to share your experience with me as my wife diagnosed today.Please contact me

[@ellazeaustin1404]

9645 Nikolaus Streets