Saving Mila - Time is Running Out!

At age six, our daughter Mila was diagnosed with Batten Disease-a rare fatal disease with no cure... yet.
With your help, we can fund necessary research and clinical trials to give the hundreds of children like Mila a second chance at life.
For more information, please visit STOPbatten.org.
UPDATE: Since launching this video, we learned that Azlan does not have Batten Disease. Such joy amidst the pain. Please continue helping us in #SavingMila and other children suffering from Batten- gofundme.com/savingmila.

[@khalidmohammad4140]

Pray for her 1 like = 1 prayer for Mila

[@tsommers3284]

NO.... Just praying is a prayer for Mila. Do you really think God checks KZbin "likes" to see who prayed? What is happening to the youth these days?

[@kodaslime1379]

I am praying for mila. And T Sommers god can see everything even you tube and you might not understand this but god loves you just know that and I am praying that you will learn that soon 💕😢

[@emilygracevlogss]

I wish I could pray 100 times

[@dane21dc]

Khalid Mohammad Fuck off

[@bekindtotheonesthatyoulove4894]

Don't scrounge for likes here. Actually pray for her

[@lydia5325]

May God bless Mila's soul. Amen. Every like equals one prayer. I better like my own comment.

[@gachafam8876]

Lord i ask of you to heal mila and her family as i pray for her

[@harperkate8021]

Amen

[@celenescrazyworld2012]

Sometimes he doesn’t heal them for the better. He always has a plan.❤️

[@toria7886]

I am asking my God's to pray for her

[@arielle4914]

Well we don’t know that for sure! 👌👍🙂

[@rainesrhapsody2934]

@RichMapping Not everyone follows the same religion. Not everyone is religious. Please respect that.

[@ana-bp1cu]

I feel so bad for mila😭 I can’t believe someone disliked this

[@amberbloch7676]

I don't want her to die

[@calmquiet3779]

Amber Bloch yeah me too

[@gachaverseplayermolliekitc4966]

Same

[@krystalstephenson9867]

Me eather I want to help so bad

[@kyravanandel9264]

No one want that 😏

[@islandgirl9479]

@@krystalstephenson9867 donate to organization.

[@destany9591]

She's beautiful I'm so sorry to hear of this disease. Mila is a true fighter. Bless your family.

[@robdeguzman3021]

Yeah it's so sad to hear that it's so emotional 😭😢😥

[@gymnasticfun9961]

me too, its really sad because she seems like a normal kid ,but those signs they just let you know something is wrong

[@millssootie4366]

😩😩😩it’s so sad 😞

[@lucyburton3505]

Destany Ik I am lazy but is she ok I couldn't go through the comments because I would cry my eyes out I get really emotional with stuff like this xxxx May god be with u and ur family is she still alive

[@bobbybailey3057]

Destany ya

[@zaynabridha4295]

One like =a pray to her

[@skyw8529]

This brought tears to my eyes I would hate having to be in a position where someone I love was like this but with all the love you have for her she is so lucky to have a great family this is such a touching and heartbreaking story i wish all the best for Mila ❤️😭

[@shellmj1]

May God bless and heal your precious daughter. In Jesus' name ~ Amen.

[@chegondideepika6141]

shellmj1 Amen...!

[@shanmatama390]

shellmj1 AMEN

[@Thecodexnoir]

shellmj1 amen!

[@shaylaj3616]

Amen

[@HeaviTroi]

shellmj1 Amen!

[@freyasoppelsa_xoxo6890]

I actually can’t stop crying she’s such a sweet happy girl and the cutest it’s a shame to see what her family are going through like this comment for Mila and her family xx❤️

[@furry_kitty]

Get well soon mila

[@rodelyna.andaya4151]

If your sad watch funny vids Thats what I do

[@elliemaypollard4066]

I 👍

[@tsommers3284]

Something tells me your "I actually can't stop crying" comment was a tad exaggerated.

[@SurinderKaur-qm1kd]

She is beautiful

[@fakhrashaheen6835]

Its so sad....WHY WOULD PEOPLE DISLIKE THIS!!!

[@princesszelda8914]

Bc people are stupid and heartless and cruel this world has no heart anymore 😢

[@dane21dc]

Fakhra Shaheen Maybe they need a like = a prayer. That always works apparently

[@rubdub5016]

Ikrrr

[@Raganite31]

@@princesszelda8914 they cried so hard they thought they taped the like button

[@debbieschultz9768]

They have no soul

[@brooklynnets6941]

She is so adorable and strong! Nothing can stop her!

[@avajean4050]

I feel so sorry for Mila and her family they must be so worried

[@user-xx4fv6qo2n]

Ava jean my name is ava to

[@ac190xtd]

Ava Jean I’m crying

[@staceycreekmore133]

I prayed for her

[@andrevega3826]

How is mila doing

[@andrevega3826]

Now i love her

[@Amelia-cd9lf]

Poor thing she is a beautiful, brave, important, sweet girl and i wish that she never had that horrible disease 😿😭

[@addy6543]

Pithy Cupcakes63 I feel bad for all children who have it no one should it's sad. I feel bad for everyone.

[@addy6543]

She is so brave. I'm proud of her

[@sawsankarim6466]

Hey my name is Sarah I’m 13 and I felt so sorry for mila so I told my parents, and great new they donated a 100$ ❤️💖

[@roseliapichardo4490]

I so sorry for you I be praying for you 1 like =1 more chance and 1 dolloer

[@duguduytv2571]

Syuo bnag uq

[@zyxcba0]

JUST STOP USING SOMEONES DISORDER FOR LIKES

[@dane21dc]

Roselia Pichardo Fuck off

[@southparkgirl1019]

Stop using her for likes

[@yes-sn4iv]

The People Who Disliked, Are Heartless. This Family Needs Support, Right Now They Need The Support That Somebody Would Get If A Family Member Had Just Passed. Mila Needs Help, They Need Support to Get Through Whats Happening To Mila. Everybody, Just Please Don't Hate and Be Kind And Supportive To Mila's Family.

[@ms.stealyagorl824]

Peachii.Slimes_ why do you do this you started every single word with a capital letter wtf man? 😅

[@mitskxu]

STOP SAYING THEY HEARTLESS!!! IT COULD HAVE BEEN BECAUSE IT WAS TOO SAD!!

[@ewap9516]

You never heard of an opinion..

[@erinnicholson2017]

You are so right

[@speakingthetruth3902]

oh 😔

[@darth_dingus7306]

Who ever disliked this is a disgrace get respect

[@rschiel50]

Sometimes when you click "like" it's a way of acknowledging that you saw the video as would be in this case. It's also a way of keeping track of how many times this video is viewed.

[@hayliedlr]

Maybe they pressed dislike because they dislike that this child has this illness?

[@darciesimpkins1110]

Jessica Lee's boyfriend holy fuck u r so horrible maybe if u don’t like this and wanna hate on it go watch another video like how to not be horrible

[@addy6543]

Jessica Lee's boyfriend how could you say that!? What if that happened to you!? How can you be so disrespectful!?

[@addy6543]

Jessica Lee's boyfriend just shut your mouth

[@thelilbean9643]

This made my cry!😭

[@madhukapadia6064]

The only reason there are dislikes is because everybody's eyes were to blurry with tears!

[@HighTen_Melanie]

God bless this family. Sending love and prayers to your family from me in Scotland. 💞

[@jessicatief6391]

☀️ Ｓｕｎｎｙ Ｄａｙｓ ☀️ it should of been a sunny day!!🙁😔😭

[@addy6543]

☀️ Ｓｕｎｎｙ Ｄａｙｓ ☀️ if only it was sunny

[@addy6543]

Jessica Lee's boyfriend keep it to yourself

[@benmac0772]

I’m from Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 to

[@faythegray7153]

I cried in the middle of this and I'm only 11 my friends friend developed this at the age of 1in a half I cried when the news appeared. My GMA always said I had a good heart until she died and I don't want you to go through it and I want your daughter to live until she's old so..... I am going to try to donate at least $35 to help not making promises because I'm 11 bless your BEAUTIFUL FAMILY AS TO YOU PARENTS GOD IS WATCHING OVER JUST BELIEVE AND YOU'LL BE A OK HE KNOWS😭😭😭😭😭😭😓😓😓😓😓😓😚😚😚😚😚😚😚😚😇😇😇😇😇😇😇😇😇😇😇😇😇😇👌👌👌👌

[@janyahmurrpet7923]

faythe gray I’m 10 and I don’t have Nathan diesese but I have diabetes but this can really kill you I wish I could donate but im poor and 10

[@FireKiller70]

Amen

[@sandrabrown9112]

Faythe gray you sound like a wonderful girl full of love and compassion even if you arent able to help with a donation im sure milas family would love some prayers ❤

[@addy6543]

I'm 11 too

[@addy6543]

I also want to help fight batten diesase

[@buffiecar]

RIP Mila. Fly high sweet girl.❤

[@MichaelJackson_101]

did she die ?

[@Hope_721]

@@MichaelJackson_101yeah 😢

[@MichaelJackson_101]

@@Hope_721 oh no when?

[@MiaraAriellaOfficial]

@@MichaelJackson_101idk but it's so sad

[@ryliebell2029]

Im praying for mila,i hope she can recover

[@thomasplouffe1363]

Tragedy our prayers were dashed, she passed away at the age of ten

[@hvkeyes]

I’m so sorry about a year ago I donated $4503 most of my money to help a little girl

[@fjskjs]

T&A Gaming if only everyone was like you kind and genourous

[@user-xx4fv6qo2n]

Kelly pin I agree

[@lemmy874]

I agree

[@jennybell1508]

God bless you no matter what keep positive and hope .god and jesus will help you through this

[@michaelharris5667]

A men

[@celenescrazyworld2012]

Aleeza Malik yes! Spread the love and blessings!❤️

[@islandgirl9479]

She needs donations for her dease.

[@islandgirl9479]

@Aleeza Malik she needs donations for her dease.

[@taylorlauren3521]

Guys I know this will be cheesey but I am a cometitive musical theater dancer and are first comp is dance for a cure and i am going to sing and dance and act my hardest for little Mila she is such a little sweet heart and i would hate to see her go I love you Mila stay strong

[@tsommers3284]

What exactly do"cometitive" musical theater dancers do? Is it anything like what "competitive" dancers do?

[@avaknowles9126]

T Sommers she was trying to be nice so why do you have to ruin that. Obviously you know what she meant

[@GalaxyWolfy-nn8wl]

She is soo cute and sweet! Praying for her.

[@kayleighsimpson2090]

I'm so sorry I can't donate bcs I'm only 11 but I wish you the best of luck in future through the good and the bad. Never loose hope your all true fighters and an inspiration to everyone. Love and support always Kayleigh XX♥

[@Ash-cj3bs]

Ur so sweet🐰🐱

[@themacdonaldlife9727]

Kayleigh Simpson im same cos im 10

[@hm0861]

I disliked it's just to sad for me...

[@soccerhugs2966]

Same but I will try

[@80kika]

Kayleigh Simpson same

[@kaleighmcbride8702]

I cried so much watching this I'm so sorry Mila is so strong and I also have a rare disease called nephrotic syndrome otherwise called a kidney disease I was only 4 or 5 and one day I asked my mom if I was going to live and she said yes and the next day they thought I might not make it and my mom was crying and I said "Mommy what's wrong?" and she said that I might not make it and I started to cry too and the next day a miracle happend and the doctors said I was going to live and we were so happy and I still have it to this day and we hope that it will go away. I was glad to share this with you😊

[@celenescrazyworld2012]

God Bless You!❤️

[@raseharaj161]

Kaleigh Mcbride I’m so happy that your still alive.😙😙😍😍😁😁☺️☺️😊😊

[@kittyandbunny1753]

She’s adorable she’s so Brave God Bless her

[@karriepittman3001]

God bless please help this kid please make this girl fell good.i am crying

[@amberbloch7676]

If I was you be so sad that I would cry for ever😭

[@1972macaisme]

my heart goes out to you. my daughter just been diagnosed yesturday with late juvenile disease. been going blind from prep and epilepsy and took them till she is 13 to get answers. hope you get the support and care you need. as we start our journey with this evil disease.

[@juliavitarello2379]

I'm so sorry to hear about your daughter. My heart breaks for you. But don't give up hope! Talk to scientists and other families with her type of Batten. I will send all of my love and positive strength to you and your family.

[@ohyeahyeah1127]

please dont give up my sister was diagnosed with cancer she just died four weeks ago im only 11 years old im from denmark she was 2 years old

[@worstalentscout]

Charlotte and Gwen Gray (curebatten.org) - gene therapy / CELLULAR THERAPY / SMALL MOLECULE THERAPY.............CLN6 clinical trial.........they have other info on supplements that can help with the disease too facebook.com/Garrett-the-Grand-Batten-Fighter-1500339080209442/ (there's a video about gene therapy for Batten at University of Nth Carolina) see if there's any useful info at curezone.org (search the forums) L-Carnitine, R-ALA and adeno-B12 can repair nerves Batten disease can be slowed if treated with vitamins C and E and with diets low in vitamin A seizures, neurodegeneration and other issues can be helped by medicinal cannabis oil (Charlotte's Web strain - see Stanley Brothers) look up low dose naltrexone, see if it can help (lowdosenaltrexone.org) November 2006, neurosurgeon Nathan Selden, pediatrician Bob Steiner at Doernbecher Children's Hospital at Oregon Health & Science University had purified neural stem cells injected into brain of Daniel Kerner, a 6-yr-old child with Batten disease, who can't walk and talk. This patient was the first to receive injection of a stem cell product from StemCells Inc. By December, the child reported signs of speech returning. March 2014, the University of Rochester began trial of mycophenolate mofetil not sure if a ketogenic diet, R-ALA and curcumin with black pepper extract(clear plaques on the brain) can help but they're very good for a neurodegenerative condition like Alzheimer's en.wikipedia.org/wiki/Neuronal_ceroid_lipofuscinosis (this link has several treatment options) Abnormal accumulation of lipofuscin is associated with Batten disease, google ''how to reduce lipofuscin'' and certain online forums suggested DMAE, alcar, piracetam, centrophenoxine, selenium, Acetyl l carnitine (helps flush lipofuscin) Charlotte's Web (medical cannabis oil) for neural protection and B12, B6, Vitamin C, DHA and Gerson Diet with minimum meat/dairy. Infra-red light 20min daily and hyperbaric oxygen chamber. Bob Steiner - Stem Cell therapy (also Joanne Kerner) The therapy is called Brineura (cerliponase alfa) and is a treatment for a specific form of Batten disease, CLN2 or TPP1. It is the first FDA-approved treatment to slow loss of walking ability. Although not a cure, it has shown to stop or delay the progression of Batten disease by replacing missing enzymes.

[@clarafoertsch5932]

David McWaters I am so sorry

[@sherbetunicorn2120]

I was your 100th like and yes I agree

[@vickiloveshorses5915]

OMG I LOVE HER 😍 1’000’000k prayers and love to your family

[@pagmag3534]

Ive come back after years and im so sorry for your loss rest in peace mila 🕊 ❤️

[@MrsCateC]

This Mila's situation is heartbreaking, but our hope is unshaken. I'm still trying to share your appeal anywhere, dear Julia and Alek! With love.

[@juliavitarello2379]

Thank you! It means so much to us.

[@judithnewing123]

Love and thoughts are with you as you care for your precious Milla. Life is not fair.

[@ajlawson132]

Cate C i

[@addy6543]

Jessica Lee's boyfriend shut up go complain elsewhere u devil

[@hannahthekawaiipotato6185]

Aww she's so pretty and brave!

[@latonyawilliams8088]

Hannah The Kawaii Potato I agree with you

[@darylb889]

Rest in Peace Mila, you won't ever be forgotten.

[@allisonjackson4832]

I usually never cry during a movie or video but, this made me cry. She’s adorable, I believe there could be a cure

[@megahappy2bemeIntheStarz]

So sad for this family. She is such an adorable little girl. I'm so sorry for them all.

[@jeriroberts3688]

Tha

[@clara.roblox2149]

Same :)

[@eilishempire6676]

Omgomg such a sweetheart I'm so sorry

[@angelacravens8726]

So sad I’m only 12 so I can’t donate... I hope she feels better and lives a looong time 😭😭😢😊😭😢

[@elizabethmcmeechan5650]

GOD BLESS HER AND HER FAMILY

[@mainlyjayden3670]

I can barely breathe when this stuff happens it hurts my heart

[@zaydaboji5675]

I’m so sorry😢

[@flowerpowergirl343]

Fly high little angel!!❤️🦋

[@jenniferfleming5235]

I will care for you but I can’t donate because I am only 12 years old but we still love you and hope you feel better from:hannah

[@Hannah.o.2]

Same... My Name is Hannah too and I'm 13 and live in Germany

[@christinetodd3082]

The trial is no guarantee of a cure for Mila. I would ask people to make a conscious intention or prayer for this little girl's health. Focus on her when she was active and healthy and ask for more of this energy. I also send the family my prayers.

[@debraschillinbags]

So heart breaking.. What a precious soul she is. My Prayers are extended to your entire family

[@taravuthlehigh3549]

Just for fun 7

[@clay9408]

My best friend’s name is Mila. Showed this to her, she cried and hugged me so much.

[@kodaslime1379]

She will live just pray to god he will help you get through anything ❤️❤️❤️❤️❤️❤️❤️

[@islandgirl9479]

She needs donations for her dease not just prayers.

[@smartmd4278]

Lord Bless her with a miracle.

[@janhavishahi2219]

I’m crying I hope she gets through it

[@korque7926]

God bless Mila and her family😢😢

[@s0ftskulls545]

Why dislikes??? Pray for Mila!!! That’s what Mila deserves!!!! Poor girl!! I feel so bad for that girl!!! Mila is so talented!!!! I feel so bad for Mila, I want to donate!! But I can’t :( all because I am only 10

[@deliabrook9052]

Thanks to the right now.

[@hallie7909]

Why are there dislikes?!?!?!?!?!?!?!?!

[@rain-wk5qy]

Hallie Vlogs Because some people are disgusting.

[@imamouseduh1547]

ikr

[@olivialeyden4508]

Because the don't have a heart

[@goldxn_foxxproductions2963]

Hallie Vlogs ikr

[@imamouseduh1547]

mabey because there and about what happend?idk

[@evan9550]

Much love to the family. This is so sad and no kid should have to go through this, they should be able to watch TV and play with toys. Hopefully she gets well very soon. Good luck to the family and friends. God Bless. #SaveMila 🙏🏼

[@sillysophie0446]

I love her she is such a great girl and now that she has that disease it’s just heart breaking I like 1 pray

[@tiffanyrivera4014]

I will prey every day for Mila she does deserve this.

[@marynas347]

God bless her❤️🙏she’s a strong girl💕

[@theskitsdump7728]

Bless her family. She’s a strong, resilient trooper. I have faith in her and her family.

[@nataliehernandez7266]

Im so sorry about mila we will never libe her we will have her in aré heart

[@ninasavich1706]

i remember watching this video years ago and crying for days because of it and i somehow got to it today AND i still tear up when watching it, i hope she is doing well :)

[@sumi9108]

Sadly she passed away in 2021

[@Ajay-qh4hh]

I almost cried!

[@dawidpolasik8551]

You thought about jesus?

[@cupcake3256]

same

[@addy6543]

Me too

[@ihateliving870]

Dawid Polasik ♥♥

[@daveholt3600]

Smriti Krish me to

[@cloudsgirl9224]

I believe in you mila keep fighting!

[@marybelinsky6572]

CloudsGirl922

[@amberbloch7676]

Ya fight

[@tiffanyfairchild1585]

Praying for your baby girl I hope she gets better my heart is with all of you💓

[@francescagl4132]

No one should be able to go through such pain bless your family and her future

[@pamelagreen2704]

Im so sorry that Mila is going through this. My Prayers are with you.

[@that_artist_famdo5508]

#savemila....WE LOVE YOU......IM CRYING!

[@arielle4914]

This is so sad!! I will definitely be praying for her!! Stay positive!! God has a plan!! 💖🙂

[@sophievlog539]

My heart broke watching this I was 😭 😢 crying

[@maebings]

I honestly wish I could donate but I can't my family is going through a tough time but God bless this girl she has the spirit of an angel

[@addy6543]

I'm so sorry. God bless you and your family. I hope she gets better 😟😟😟

[@ameiliapretzel3625]

This made me cry for 2 hours

[@kaila6976]

Mila your going to live god bless you and fight the deasise have a nice life everyone

[@kawaiikenzie5514]

I cried my sis died cause of batten diesaea at 4

[@yg._cadrianhere426]

Squeesh Yum Yum my her soul rest in peace~amen

[@miminieto4165]

Squeesh Yum Yum I

[@dalilahreyes5552]

im so sorry for your loss. I wish you the best

[@payton4342]

Squeesh Yum Yum I’m sorry😔😓

[@gymnasticfun9961]

me too

[@graceandlexsblogsandslimev3458]

This has just made me cry 😭 and to see a beautiful cute girl having that I feel heartbroken

[@clairegomes9006]

I feel sad I will always pray for your Family and you

[@samieubanks1670]

I love this little girl she is so cute and so smart and she’s THE BEST

[@unicornpowerqueen9981]

She’s so cute it’s unbelievable how much she’s changed God bless you don’t listen to the ones that hate being who you are and always love😢🙏🏼

[@jackiepena1316]

I will be praying for you mila your so beautiful keep smiling

[@ugly7200]

We need a cure. This beautiful and lovley family, they cannot lose there daughter, pray to our beloved god and your will be sure to have your beautiful, cheerful Mila back once again.

[@relax_alldahtime1576]

OMG I am so sorry that is happens to a little girl like her!i hope she survives!!

[@L.C123]

I am so sorry for your family😢 this reminded me of my uncle who didn't want to live anymore and he took an injection to make him get cancer and about 2 years later he died😢😢😭😭 he basically committed suicide 😭😭 his name was Johnny

[@lillghost2912]

Oh im so sorry for your loss

[@emilybutz9937]

I am so sorry.

[@nataliepa8406]

God bless Mila and your beautiful family ❤️🙏 Also happy holidays ❤️💕

[@chiwawadudesquad671]

Pray for mila. God bless her. Mila is a good person

[@leahlewis5228]

😭😭😭😭 bless her we love you Mila you are in our prayers❤️❤️😭😭😭

[@mspdog911]

😰😰 i will pray for her!Every night :( She seems so sweet i wish i could help her. Shes so cute i feel so bad for her .She seems so out going.Stay strong and never give up

[@susheeltm]

I am so sorry to hear about this. I hope this one isn't fatal..I am hoping for a real miracle..

[@glenn2909]

I'm crying right now, I also have 2 kids. Hoping one day she'll be fine🙏

[@dwoods3033]

I pray for this special sweet little girl for God's hand of love, healing and grace over her and her family. 💞

[@scvrrz]

Dont worry! My sister she is disabled... and she has this riend called Annie and she has a differnt disease but it exacly the same so she cant Talk,Walk,move,eat so she has to get her food mixed up like a smoothie and drink down a pipe... she has 3 carers It started when she was 9 and she has chance of dieing soon in maybe about next year ggod bless your daughter! i wish they were friends (she is 19)

[@maerohani5061]

My sister already passed away 😭😭

[@stargrassx]

@@maerohani5061 oh no.. how are you holding up love?

[@janyahmurrpet7923]

Aleeza Malik the fuck I have high level autism sorry but autism isn’t that’ autism is not a desease

[@aquabluepawsd8810]

Galaxy Duck god bless her! My brother had a sezuire and right now he can’t really talk but a doctor said to me that he’ll be able to talk later on my brother is 20 and I kinda wish my brother, your sister and mila would be friends

[@aquabluepawsd8810]

Aleeza Malik my sister has autism

[@oliviagraceduncan8486]

I am so sorry for what is happening to beautiful Mila. Nobody deserves to live this way. I really hope all of this can be cured and hope that she will eventually be able to see talk read and walk. (The sooner that she can read see talk and walk the better. ❤️❤️❤️❤️❤️❤️😘😘😘😘😘😘

[@oliviagraceduncan8486]

This is so sad I almost cried

[@shummigujral2413]

By the grace of Almighty God little Mila will be healthy again. God bless you sweetheart your in my prayers.

[@blairariavanderkamp3405]

I'm so sorry for poor, beautiful Mila!!!!

[@user99qfhy1]

She will live she is a beautiful may God bless her

[@gelinaespinoza7133]

God bless your family. I'm so sorry to hear that Mila has this disease. Stay strong. They will find a cure for this no good disease. Do everything you can to make yourself and your family happy❤

[@BrownSugarNumba1]

My heart goes out to u n brave Mila!!!! Keeping u in my thoughts n prayers. God bless n Godspeed!

[@siennarose3272]

God bless your daughter. 💕💕