Diversity in the Deaf Community: Insights into DeafBlind & Ushers

The Deaf and hard of hearing community is diverse. There are variations such as how a person becomes Deaf and their level of hearing, but also conditions that combine sight and hearing loss such as Deafblindness and Usher syndrome. Steve Ripley and Edan Chapman share their personal experiences of being DeafBlind and Ushers, and discuss the need for greater acceptance and understanding in the Deaf community and wider society.
In this episode of Our Deaf Ways, Steve Ripley and Edan Chapman share their personal experiences of being DeafBlind and Ushers.
Usher Syndrome causes someone’s visual field to slowly degenerate and close in over time.
For Edan, getting a diagnosis of Ushers was confronting.
“When I was like 13, 14, that was when I first learned that I would lose my vision but there was no other information. It was just 'you will go blind’. But, when? I had no idea! I was fully scarred from that. I thought that it could potentially be tomorrow that I would suddenly lose my eyes".
Our Deaf Ways is a series by SBS and Deaf Australia about everyday life as a Deaf person. Over this six-part visual podcast series, Deaf people from all walks of life share stories and perspectives on Deaf Ways. Episodes are released fortnightly.
Produced in partnership with Deaf Australia and hosted by Deaf advocate Shirley Liu. Produced and directed by Paula Thornton. Edited by June Stathis.
Deaf Australia and SBS acknowledge the Traditional Custodians of country throughout Australia and pay our respects to their Elders past and present. We extend that respect to Aboriginal and Torres Strait Islander peoples who are watching with us.
Deaf Australia and SBS celebrate Auslan and recognise all Deaf leaders in Australia who have advocated for Deaf, Deafblind and hard of hearing communities. Deaf Australia is proud of everyone’s contribution, whether big or small, in preserving our language, community and culture.
Watch Diversity in the Deaf Community on SBS On Demand: www.sbs.com.au/ondemand/watch/2024184387930
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[@RomeroRomeral]

Very cool! thank you for uploading this.