Scleroderma the Teresa Nadeau Story Part 1.mp4

  Рет қаралды 179,158

Leslie Goldberg

Leslie Goldberg

Күн бұрын

Пікірлер: 86
@mcast29
@mcast29 12 жыл бұрын
Nov. 18, 2012 I lost a dear friend to scleroderma she was only 41 years old. She suffered silently since most of us had never heard of it, plus she never complained openly to no one. with her kidneys, lungs, stomach , & her hands turns blue/black with sores on her finger tips. Please be aware of those who have scleroderma keep them close & help them to reach out to others. My friend is now resting in God's memory & is not suffering anymore!
@vadj9342
@vadj9342 7 жыл бұрын
Thank you so much for the video. Teresa Nadeau was a brave and beautiful women, who is serving as inspiration to many others. May she rest in peace.
@dolichosd
@dolichosd 11 жыл бұрын
Thanks so much for educating everyone with these videos. My sister passed away almost a year ago after dealing with Scleroderma for 12 years. Sorry to hear about Teresa's passing.
@faithnjeru696
@faithnjeru696 2 жыл бұрын
Very sorry
@MarionSpeaks
@MarionSpeaks 10 жыл бұрын
What a brave woman. She's a hero with a wonderful spirit. Beautiful.
@lissydeon817
@lissydeon817 5 жыл бұрын
My mother died of scleroderma a year ago, I am soo broken hearted...life was soo unfair for her, she suffered most of her life..I hope somewhere in heaven she is living her life to the fullest with God.
@muektheerathorn6776
@muektheerathorn6776 3 жыл бұрын
My wife also living with scleroderma, but fortunately she decided the way to take care of herself. She has been happily living with it for almost 10 years with any problem. RIP Terasa.
@Bgirl291
@Bgirl291 9 жыл бұрын
She was so beautiful and let that serve as a reminder that this can happen to anyone. She suffered so but still had such a splendid personality,
@ARKCREATIONSBYSHIRL
@ARKCREATIONSBYSHIRL 12 жыл бұрын
Thank you so much for sharing. I watched all of your videos and am inspired. My symptoms are very mild. I am 61 and was diagnosed last year with Limited Scleroderma. I also have RA and Sjogren's Disease, along with a few other illnesses. But, as you, I put my hope and trust in God. I am inspired to get up and get back to designing jewelry and sewing things for my grandkids. Thanks again. Blessings to you
@wm9669
@wm9669 2 жыл бұрын
Thank God it is limited , this is not going to kill you. Wish you all the best from 🇬🇧
@NicoleEdwardsMusic
@NicoleEdwardsMusic 11 жыл бұрын
Thank you for sharing your story! I was diagnosed with systemic scleroderma in 2001. So wonderful that you are creating art. My story is called "Singing through an illness" found at KZbin on the channel - Nicole Edwards Music Take good care Teresa!
@haliamariex5712
@haliamariex5712 4 жыл бұрын
It’s crazy to see someone who looks like me!! Her hands, the way her face looks, it’s like me :) but I’m 17. I’ve not been able to find someone as young as me with such progressed scleroderma.
@YeshuaLove0722
@YeshuaLove0722 7 жыл бұрын
Oh my goodness I just had an acquaintance pass away from Scleroderma 😔 God Bless You for this video I had no idea how painful it was or had no idea about this ☹️🙏🏻RIP beautiful lady
@ZetsuYinYang
@ZetsuYinYang 9 жыл бұрын
Shes my Aunt she was the sweetest woman I ever knew. She passed in 2013 and I wasn't allowed to take off work to go to the funeral sadly...
@russianrings
@russianrings 8 жыл бұрын
+Natsu Meishoi sorry for your loss
@NamHoang2110
@NamHoang2110 7 жыл бұрын
Natsu Meishoi Sorry for your loss. Your work sounds like a heartless place!
@agrey2986
@agrey2986 6 жыл бұрын
did her ex husband of 3 years divorce her cause of the disease?
@tawana2inspire
@tawana2inspire 5 жыл бұрын
So sorry for your lost. I helping a young woman fight this now with a alkaline diet.
@knl112293
@knl112293 5 жыл бұрын
I was a caregiver of hers days/nights for 3 years. I miss her everyday. We, Teresa Julie and all the caregivers became a family. I learned more from her in 3 years than I’ll ever learn in my entire life. Bless you and you were lucky to have such an incredible person in your life.
@anjaliSharma-ij7uy
@anjaliSharma-ij7uy 11 жыл бұрын
i am 27 and i am suffering frome progressive sustemic sclerosis(pss) since 2010 my stem cell transplant had done on 8 nov 2012 now my 9 month is running after transplant ,still only 40% improvment , i am doing yoga and yoga is helping me alot so plz do yoga and eat healthy food if u want to live life healthy,all the best fr all of u
@saisree267
@saisree267 2 жыл бұрын
I am suffering from 3 years my age 22 😭
@lesberg1
@lesberg1 5 жыл бұрын
I am so sorry for your loss. She and Teresa are with God and pain free!
@TheRedsAreRunning
@TheRedsAreRunning Жыл бұрын
I'm 65 and was diagnosed with systemic scleroderma in late 2009, i was about 52 when it all started. In early 2009, my first symptoms were swollen sausage fingers but i kept working despite the knuckles splitting during day use. Then my legs felt like lead, absolutely heavy dragging and my muscles started to scream at me. I kept working, walking very slowly and finally was able to see a rheumatologist, but even before I saw him I knew I had scleroderma. My hands were curling a little bit I massaged them throughout the day. They are fully functional but the raynauds creates ulcers. I was on so many toxic treatments, infusions, pills and injectables. I'm not on anything for it now but I do need to be. I was warned that the lung rx OFEV can cause up to 50 side effects and other organ damage. SO WHAT DO I DO? I've always had mild fibrosis from the start, but when I had covid in 2022, it jump started the fibrosis a bit harder. I'm coughing all day long and the meds for lung issues are either not fully covered or ill have to pay $3k a month for them. NOT DOABLE!! So I'm not on anything but a nebulizer, rx cough meds and inhaler. I'm so sad about how this disease just suffocates your whole being, I know several younger people who had it since their teen years and didn't live to 40 yrs old.
@mountaingirl2267
@mountaingirl2267 11 жыл бұрын
May she rest in peace! Fly high with the angels!
@amifaenza6384
@amifaenza6384 7 жыл бұрын
My daughter died of scleroderma in 2008 at the age of 19. This is a very serious illness!
@vintageworks2805
@vintageworks2805 5 жыл бұрын
My mom passed o7 in sorry it's a hard illness to see take a life
@anniegawthorne1235
@anniegawthorne1235 Жыл бұрын
I’m so sorry for your loss
@jacquelinesmith-jackson2815
@jacquelinesmith-jackson2815 6 жыл бұрын
I’m sorry Theresa. It’s a rare autoimmune condition. I have Juvenile Rheumatoid Arthritis and lots of other disabilities. My name is Jacqueline and I hope we can cure Scleroderma.
@anareanrobinson7983
@anareanrobinson7983 5 жыл бұрын
I suffer from this horrible disease
@RMccoury59
@RMccoury59 12 жыл бұрын
GOD BLESS YOU I'M SOOO SORRY i have RA and i thought my hands where bad..i feel so blessed...
@DeborahBergenbeaderreader
@DeborahBergenbeaderreader 12 жыл бұрын
Hello, yesterday my Doc. told me I have Raynauds Syndrom. It scared me. Like you I have RA. and other health issues. I also create jewelry of all kinds. And love to spend time with my grandchildren. They just went home today from a visit. Miss them already but they do wear me out. Jesus is my source it seems new health issues just keep coming at me. You inspired me. Blessings to you. I’m wondering how did your doctor find yours. Mine just took a look at my blue hands and fingers and said I have
@naylawinnie622
@naylawinnie622 9 жыл бұрын
my Mon 91 year old have escloderma blesses God
@wolfgang548
@wolfgang548 12 жыл бұрын
iam so proud of you because you are a strong person and may god bless you and keep doing your good work because god has something special for you.
@sarbro2769
@sarbro2769 12 жыл бұрын
hey teresa...i am so sorry to hear about this......i admire ur courage and strength.....i hope u join forums and groups and inspire ppl to be strong like u........you are all in my prayers....hoping to find a cure someday:)
@lesberg1
@lesberg1 12 жыл бұрын
I am sorry to hear that. There is a group on facebook called Sceroderma Angels you may want to check out. Things have changed alot since Teresa was first diagnosed. Good luck to you.
@jacquelinesmith-jackson2815
@jacquelinesmith-jackson2815 6 жыл бұрын
I don’t have Scleroderma though. I really don’t think people should have to suffer.
@livinabox925
@livinabox925 10 жыл бұрын
Bless her
@CelinesCrafts
@CelinesCrafts 12 жыл бұрын
I have scleroderma...... And im not kidding my legs turn purple or blue when im cold and i have ulsers and all.. I wish u the best
@lizleadbetter2853
@lizleadbetter2853 11 жыл бұрын
I have Scleroderma, with me it is progressing slowly, I do all I can to raise awareness and funds for Scleroderma Uk, I have found many friend world wide with the help of face book, I now am in a few groups with great support, so sorry you have this disease at such young ages, I am now 48 and been diagnosed for 0ver 6 yrs
@infowars9381
@infowars9381 8 жыл бұрын
Liz Leadbetter can scleroderma cause difficulty swallowing? since its a connective tissue disease
@rachelryan78
@rachelryan78 4 жыл бұрын
R u scared to look like that?
@DeborahBergenbeaderreader
@DeborahBergenbeaderreader 12 жыл бұрын
sorry…and said I have it and started me on medication which he feels will help because my blood pressure won’t go down even with meds. I have Sleep Apnea and have not been using a c-pap which he blames for this scleroderma. I’m so confused. I have not watched the vid. yet..waiting for it to load. Sounds like I will feel like a whiney after watching. I just needed to get this out. My husband can’t handle me being sick and in pain all the time. TY FOR LISTENING.
@elsakristina2689
@elsakristina2689 8 жыл бұрын
R.i.p. Teresa
@candicerussell3685
@candicerussell3685 6 жыл бұрын
My niece just passed away from this 4 days ago💔💔💔💔😞😞😞😞
@jacquelinesmith-jackson2815
@jacquelinesmith-jackson2815 6 жыл бұрын
It sounds very painful and uncomfortable.
@lesberg1
@lesberg1 6 жыл бұрын
Hi Jacqueline. It's Leslie. The producer. My dear friend Teresa passed away a few years ago. She was the strongest woman I knew. I hope this video was an inspiration to you.
@jeaniecolleen1739
@jeaniecolleen1739 Жыл бұрын
I wonder if it is like muscular dystrophy? I was a person care provider for a lady my age before I got married and had children. She died of a brain hemorrhage because of her lack of mobility.
@MegaMark67
@MegaMark67 9 жыл бұрын
My mom died with the same illness. Wonder what actually causes it?
@sheyade484
@sheyade484 9 жыл бұрын
+Mark Page its autoimmune...the body basically just begins to attack itself in that manner :( sorry for your loss
@MegaMark67
@MegaMark67 9 жыл бұрын
+Shey Ade yes it's very sad and pitiful
@ZetsuYinYang
@ZetsuYinYang 8 жыл бұрын
+Mark Page Its a genetic mutation that just happens kinda like cancer but extremely rare
@danielabaci9164
@danielabaci9164 6 жыл бұрын
I truly believe that stress causes this. The more u stress especially over so many years, the more ur body gets weaker and obviously ur immune system packs up. My best friend died from this jyst this past July.. she had it for 11 years. She was like a mum to me. It affected greatly when she died
@vintageworks2805
@vintageworks2805 5 жыл бұрын
I'm so SORRY MY MOM PASSED IN 07 AS WELL SHE WENT THROUGH SO MUCH ASKING WHAT DID SHE DO TO DESERVE THIS I WAS 27 AT THE TIME WE WENT TO HOSPITALS ALL OVER THAT WOULD NOT NO WHAT IT WAS TILL TO LATE 4 MONTHS LATER SHE PASSED
@m.milano5906
@m.milano5906 6 жыл бұрын
You should see this other girl that I seen on here with the same condition and found an outlet for herself and is on here and calls herself Tragic Doll you should check her out.
@lesberg1
@lesberg1 5 жыл бұрын
Teresa passed away several years ago.
@lillyrocks2011
@lillyrocks2011 3 жыл бұрын
Please scientifics find a cure or a direct treatment. Please 🙏❤️
@maryannyost978
@maryannyost978 7 жыл бұрын
Can Sceroderma go into remission? I'm suffering greatly!!!!!!
@ivygonzales4579
@ivygonzales4579 6 жыл бұрын
Mary Ann Yost
@zacacusvoga1916
@zacacusvoga1916 5 жыл бұрын
Did you try with diet? Every autoimmune disease reacts good to a positive changes in diet.
@sonyafox3271
@sonyafox3271 3 жыл бұрын
It’s Scleroderma not Sceroderma. Mostly Scleroderma doesn’t go in remission, usually once your diagnosed with a chronic disease that effects the autoimmune system, it usually does nothing but, progress the longer you have it, even those with some that have mild diagnosis. And, then, on top of it, one is more likely to get a whole hosts of other illnesses on top of it the longer one has it.
@CB-hz7gl
@CB-hz7gl 6 ай бұрын
When she died?
@4internetneutrality
@4internetneutrality 12 жыл бұрын
Poor dear. Did this poor woman's husband leave her all alone?
@sheereen1984
@sheereen1984 Жыл бұрын
so sad..if only the medical industry realized that all these horrible diseases are actually manifestations of skin cancer, head and neck cancer and metastasis to the hair follicles, scalp and regions of the brain that control regeneration. The hands being affected is probably because these women were teachers or nurses, using their hands all the time?? I'm surprised no one has talked about feet issues or burning scalp( Cap). Teresa's melanin probably got destroyed or altered in the sun with all her outdoor trips..why is it that most scleroderma patients are or have been teachers and nurses?? A public servant suffering even more in their later years is their reward??? Also, most/a majority of them have dark hair...the severe ones atleast..maybe it all starts in the scalp and hair follicles/roots??SCleroderma..SCalp..skin cells , hair cells...that in turn wreak havoc on the brain and other cellular responses..maybe the majority of our immune response is located in the scalp, head and neck region?? Metastasis begins from here to other parts? I wonder how her life would have been if she wasn't in the sun as much. Nutrition could also play a role as well as vocal chords( i don't see any records of non social people getting scleroderma..mostly very social people who probably had to talk ALOT or be outside everyday socializing...maybe our secondary immune system is located in our vocal chords..) ..science has yet to discover the mechanisms behind rare diseases..which only affect a small percentage of people in theory ..but maybe the rare diseases are also affecting the majority and are grouped under a different name due to symptoms and physical manifestations. she would probably have MILDER diseases( still scary and painful), but not as disfiguring as scleroderma if she stayed out of the sun, had a remote job at home and only went out for medical treatments, shopping and indoor recreation.. I also wonder about the differences in the immune responses of a patient who dies of skin cancer versus scleroderma( which is considered autoimmune?)..would everyone be cured if they were all treated for skin cancer at the first sign of any abnormal symptom? How would science track their progress or even avoid auto immunity? If science regarded every abnormal symptom as a beginning manifestation of skin cancer, progression would never occur . To think that billions of dollars have been wasted on experimental treatments that yielded no results or lightbulb moments, billions of rats in science labs .. I'm not implying that skin cancer will treat every organ cancer..it won't...every organ cancer needs TARGETED treatments in ADDITION to skin cancer treatments..because they are composed of DIFFERENT CELLS and micro environments..but ADDING the skin cancer treatment would probably make the prognosis more favorable for the targeted treatments to be effective( which is LACKING NOW).
@totokingkong1
@totokingkong1 Жыл бұрын
Teresa was a beautiful attractive woman. I get the problem with her skin but what happened to her teeth?
@tawana2inspire
@tawana2inspire 5 жыл бұрын
If you have this please atleast try going natural ( fruits and veggies) doing a detox and using mushroom powder. Look into dr. Sebi or dr.robert morse. Its worth a try.
@lesberg1
@lesberg1 5 жыл бұрын
Teresa passed away several years ago.
@marilyncatalano2575
@marilyncatalano2575 6 жыл бұрын
Like I've said before when I watched a scleroderma in which a black woman said one of the first things she noticed was that her cheekbones got higher!! Look at Teresa nadeau. She resembled my friend. I don't believe cheekbones can get higher. I strongly believe that what was happening was that their skin was getting very, very taut, making it obvious of the cheekbones looking HIGHER. Please, someone tell me what is true!!!
@totokingkong1
@totokingkong1 Жыл бұрын
RIP
@JakeToolson
@JakeToolson 11 жыл бұрын
was this filmed with a potato?
@buddoyr
@buddoyr 11 жыл бұрын
this also works for Psoriasis
@katiecurrie9709
@katiecurrie9709 2 жыл бұрын
I am going to die if people don’t smarten up and look it up on KZbin a diognosis called Asperger’s syndrome it’s. a few of autism which is a very high level intelligence I would suggest to people to learn about this and teach their children how to act .
@olegkim5170
@olegkim5170 7 жыл бұрын
I m also have scleroderma diffusia form.
@nickallah
@nickallah 12 жыл бұрын
i have romberg syndrome... dunno whats worse
@agrey2986
@agrey2986 6 жыл бұрын
Noah Cyrus look kind of like her before the disease in my opinion.
@toridanca03
@toridanca03 11 жыл бұрын
im 13 i have sclaroderma
@firelilly08
@firelilly08 12 жыл бұрын
:( Im so sorry
@bernadette517
@bernadette517 5 жыл бұрын
RIP
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