Seizure-like Episode, Non-epileptic Seizure

[@jamienarozniak9503]

I have ats hypo pp. In the ICU now with non stop myoclonus that these nurses are convinced are conversion disorder... I have a KNOWN DIAGNOSED MUTATION and just want the shaking to stop!!!

[@1000_Dominoes]

Oh, I feel for you!!! If there are two words I HATE, it's "conversion disorder!" I wish they could understand how many lives they have ruined by labeling people with CD.

[@binkybunnysway943]

Poor love. However you now?

[@1000_Dominoes]

I am doing much better, thank you. I was diagnosed with two conditions in the last year - Chiari malformation and Periodic Paralysis. They are both permanent conditions, but I am doing much better with controlling the triggers. I also recently moved to a warmer climate, which is helping a lot, since cold is one of my big triggers. Even when I do have an episode, the jerking is very mild, compared to what it used to be. Thank you so much.