This honestly would have made me feel better before going into surgery. I was diagnosed with Crohn's Disease at the age of 5, and I took pills to manage, it worked for about 4 years until I kept having excruciating pain in my lower belly area whenever I ate. It hurt to the point where I'd starve myself just so I wouldn't hurt anymore. Whenever I did eat, I'd cry in pain. (Along with explosive Diareahh, but hey) I don't remember why, but for some reason, we never went into the ER, maybe because the doctors told us to wait until we got an appointment? But we did end up going and they switched me onto Remicade ( I hated it because I have a phobia of needled, which sucks because before I was 5, I ALWAYS sense I was born had these issues and the doctors said "I was too young to have anything wrong with me" But would run blood tests anyways. But I'm getting better with needles) 2 years later, Remicade stopped working, and I felt the same pain as I was when I was 9. So they changed me to another infusion drug ( I forgot the name it was long and complicated) and then again, 1 year later, that drug stopped working. This time they didn't change it but increased the dose. I was taking the dose of an overweight man. That didn't work but they didn't do anything because there was a slim amount of treatments that I could take. They admitted me into the hospital because I was 12 and I weighed 42 lbs. They gave me a G-Tube and tried that, but it didn't gain me many pounds. Then they turned my parents into social services because they didn't want me to have another scoop, because the last one almost tore through my stomach. Then they recommended a colectomy, which at first we didn't want, because any 12 year old wouldn't want surgery. We asked if we could change the drug first, and they agreed. I got my first dose of Stelara, (Which the first dose of Stelara is an infusion, and took me 7 tries to get a needle in.) They finally got the needle in and I had my first dose. It didn't do much. They still suggested the surgery. We finally agreed to it. I was in the recovery room for almost 3 hours because I was in pain. When I woke up the doctors told me that we had the surgery just in time, my colon was so infected. At first, the bag would ALWAYS leak at night, because it was placed right by my side, and I was so skinny that the base would come undone. And John, lovely John was my night nurse who came into my room when my bag would leak at night, unhook me from my several IV cords on both arms/hands. (He got married, yay!). I'm 13 now, no more leaking. I weight 87 lbs, and I'm getting back into dancing! I get my Stalara shot every 4 weeks. Sorry, this is so long, I really just needed to vent.
@patmebg37944 жыл бұрын
I'm sorry. That must have been horrible for you.
@lostinthecosmos60954 жыл бұрын
You’re so strong!!❤️ I’m glad you’re doing okay now!
@sethud04 жыл бұрын
I'm goin through this same situation..pain in belly after eating and diarrhea
@abdulghaniawnallah15323 жыл бұрын
Stay strong 💪
@ethelvarona78083 жыл бұрын
I'm happy that you did the right thing right on time...
@jerf776 жыл бұрын
Great points. I'm only 11 weeks in and it feels like there's no end to recovery in sight. Insights from people like yourself who are many years into living with an ostomy really helps. Thank you.
@kubotajordan95025 жыл бұрын
i am going to have surgery in jan or feb because of cancer. I am having a hard time dealing with what is coming. I wish you a speedy recovery. At 57 Iam probaly going to have a rough time Icant stand being stuck inside I wish you well jeff
@JustIzzan3 жыл бұрын
how is it now?
@karen21903 жыл бұрын
@@kubotajordan9502 I hope you don't mind me asking but I wonder how you are now. I have stage 4 cancer requiring a colostomy. I am told quality of the rest of my life will be better.
@ShyAnn2912 жыл бұрын
I hope you’re doing well, I’ve had my ileostomy for over 20 years now.
@ericsesame63212 жыл бұрын
I'm scared. I am 38 years old, was diagnosed in 1995, and I have the surgery in two weeks. You said after 11 weeks, it seemed like the end of recovery was nowhere near in sight. Your comment was 3 years ago. What is life like now for you? Worse it worth it or not? Everyone's answer will be different. I'm asking because I still have time to say Yay or Nay.
@tellyourfriendsitsmejordi2 жыл бұрын
I didn’t even have the choice. I woke up with an ostomy during an emergency abscess surgery. I feel so much better honestly.
@rongrant35002 жыл бұрын
My partner just had ostomy surgery a week ago, and it really is a brave new world in one way, but it's still the same world in most ways. It's an adjustment, but she no longer worries about timing everything for washroom breaks, or not going places because of fears of incontinence. And no more 'adult diapers'. The world has opened up for her again, with a twist! I think the thought of having a colostomy bag it is much worst than the reality.
@shikhasoni5518 Жыл бұрын
She will be living all of her life??? And changing the bag is painful??
@geoadventure9964 жыл бұрын
Beautiful testimony, beautiful mind. God bless you for sharing
@ivannovak48133 жыл бұрын
You just made me a brave/braver old man. I'm having my surgery in 3 days. Wish you a long happy life. Thank you for the video.
@shanukhan99333 жыл бұрын
Hi, i em, SHAYAN Khan.. i em, colostomy patient by birth..this time my age is 45+i em educated,self made& some other working person. I em belongs to poor family.. I haved no mony&resorsess to improve myself n, furthor treatment of my case,well job,own house n, wedding.. so I will reqvest you and all please support me.
@CatDogHamsterDance777 Жыл бұрын
How are you right now?
@aaronwilliams69893 жыл бұрын
I'm very happy for you. I hope you live a long and healthy life.
@Heinsworth1233 жыл бұрын
Thank you so much, I was very depressed till I watched this clip.
@ScottyKirk15 жыл бұрын
Laura you are my hero! Kind of funny, not too long after I got my ileostomy I see you on Tosh.0! Your positive outlook and humor helped me greatly! My colitis was so bad I had to have emergency surgery bcuz my colon was literally disintegrating due to the extreme inflammation. My body rejected the Humira and Remicade. Made me way sicker than the colitis did. I feel 1000% better after the surgery. I really live a pretty normal life and no longer have to worry about finding or running to the restroom. It was a lifesaver! Mentally and physically.
@Shieldhealthcare5 жыл бұрын
So glad to hear!
@lukeescobedo7234 жыл бұрын
Robo Q-Man I had an ileostomy about 7 months ago. Humira made it worse for me, way more bleeding. Remicade didnt work. Entyvio worked till my specialist didnt wanna take my insurance anymore. Got another emergency gastro, or what i thought was one, they told me he was, he was a liver doc. He poked a hole in my intestine through a colonoscopy. Had to have emergency surgery. Doc said they never seen a more disintegrated colon.
@mrc2165 Жыл бұрын
While I Appreciate her insights the fact that this is sponsored by a health group makes it suspicious at best propaganda at worst. Just for everybody watching be aware this is sponsored by a health group and I haven't seen one video yet that has talked about any negative effects from surgery that this health group has sponsored
@dianelyvelazquez42875 жыл бұрын
One important distinction should be considered when you’re diagnosed with cancer in your bladder. The usual procedure is to remove that and connect the two urinary connectors coming from each kidney to a piece of thin intestine to conform the stoma that will protrude out of your stomach skin to the bottom right side of it. You must insist, being a man, (1) to Do Not remove the full prostate, if it isn’t affected by cancer. (2) reinforce the tommy skin to prevent a hernia appearing some years later. (3) design the stoma in such a way to prevent movement that will cause internal urine leaking onto the skin. Urine is a highly irritant fluid that causes intense skin rash.
@Shieldhealthcare5 жыл бұрын
Good points, Jorge!
@leomagbalot29532 жыл бұрын
Am having a total fear having ostomy.. my doctor told me that if worst comes worst , colostomy is the last option.. but upon hearing ur testimony, you gave me a new ball to hold on.. my condition really restricted me from doing all the things that I want because of pain . But thank u.. Thank u for making myself decision today.. I'll go ahead and talk to my soecialist about my readiness and all to have colostomy.
@shikhasoni5518 Жыл бұрын
How are you???
@thriversurvivor4 жыл бұрын
Thank you for sharing, Laura. I'm 2 weeks post op and feel like I woke up in the upside down. Accepting the new, weird reality is hard and your videos help with that:) I was inspired to start my own video journal of this crazy journey.
@montanamornings85263 жыл бұрын
I’ve had my urostomy for 3 years. I still hate everything about it. Everything. It sucks. Sorry
@SlayzChannel3 жыл бұрын
@@montanamornings8526 what exactly you hate ? Like I’m being in medium pain 24/7 and I have a choice to do urostomy or not to stop this , can u explain what’s biggest downsides of this and would you rather to feel slight pain 24/7 over problems with urostomy ? P.s sorry for my English, I’m not native speaker
@montanamornings85263 жыл бұрын
@@SlayzChannel I often have leaks with my urostomy. I have to change it out every couple of days. I have had leaks during the night while sleeping. You have a night bag hooked to your bed. I’m not sure how to abpnswer you because I don’t really realize your pain level. Once you go urostomy you can’t go back. There are other options.
@karenrich9092 Жыл бұрын
I didn't get a choice. I went in the hospital on May 14th, was diagnosed with stage 4 colon cancer, and didn't get home until July 30th. Then I spent a month confined to my bed except to attempt to get to the bathroom before the bag exploded. No one knew what to tell me to keep explosions from happening. I had to reschedule my cancer treatment 3 times due to explosions in the car en route. This meant I couldn't use the car service due to accidents. It was 6 weeks after getting home before I could think about going to church. And I still haven't gone anywhere more than an hour from home. To make it worse, my support group talks about all their traveling, how they are planning their surgery (unlike me!) and they forget they even have an ostomy. When I mentioned that I was planning to have a reversal surgery, people told me I would spend ALL my time in the bathroom. Well, how is that different than my life NOW? I got no choice on anything.
@shikhasoni5518 Жыл бұрын
How are you??
@edwright74544 жыл бұрын
Need more about leakage.
@RidingHawkify4 жыл бұрын
Thank you so much for sharing, helped me to know it's ok to be scared and I'm not alone as I head to surgery in a few days. Be well.
@JustIzzan3 жыл бұрын
how is it going now?
@amansarawani44664 жыл бұрын
Thanks very much for your you are a very brave girl I pray for you
@dna2405 Жыл бұрын
Love the positivity!! But it is hard. Swimming is something I learned how to do, after a failure. I get down, but I get back up.
@JazzfromOz3 жыл бұрын
I wish someone had told me that you don’t get to ‘time’ toilet breaks, bag changes take up 2 hours of my day
@Lina-sn5lm3 жыл бұрын
Perhaps do the cleaning in the shower then put the appliance on. I would have a ostomy nurse or home health to help until you are comfortable because it should take much less than an hour. You are going to get through this and it will get easier. Many product suppliers have hotlines to call for advice as well!
@edenkelley69274 жыл бұрын
Thank you so much for sharing!!!
@MrDp2u4 жыл бұрын
I'm sorry you are having to go through this life changing event. You look young and active to where you get to choose your life style instead of the situation choosing your life style for you as previous a comment leads to believe. Keep moving forward to a better life and there won't be a reason for you to look back. God bless.
@tubieornottubie3 жыл бұрын
Beautiful message--Thank you!
@Michelle-qd9gm3 жыл бұрын
I had emergency surgery so they wasn’t any time to really go into it I woke up in intensive care omg with 90 stitches and a bag 2 weeks in hospital it’s been very traumatic for me the operation was so painful with tubes everywhere anyway 2nd day at home and am really sore looking forward to the day I can go out with my husband
@fisherofmen71973 жыл бұрын
How are you doing now?
@Michelle-qd9gm3 жыл бұрын
@@fisherofmen7197 taking every day slowly am disabled as well so I can’t do a lot of things anyway but thankyou for these channels who talk about colitis they have given me so much info I didn’t know the bag I had my first leak after 8 weeks not nice I was in bed ☹️ xx
@kirksmith34402 жыл бұрын
22 years Ive had an ostomy. I wish they would have told me that I would never have love again. I would have chose death from Chrones. 22 years of debt slavery.
@IdkIdk-gw3qo Жыл бұрын
what do you mean?? Do people not date you bcuz you have a ostomy?
@shikhasoni5518 Жыл бұрын
Does it pain?? Can't you do everything with that??? How are you!!
@ninjawivamullet Жыл бұрын
thank you for the honesty, had my bag fitted two months ago, so im learning and new to this and your advice is very useful, ill add i cant imagine, playing football (soccer), running or cycling. but you making me think maybe i can/ will do over time so thank you :)
@wendybradley82736 жыл бұрын
I’m glad all has worked out well for you and will many others too. 3 and half years later with an ileostomy and a struggle and fight I have to give in to the fact my body has just rejected and doesn’t like it, causing terrible diversion colitis and that’s with an end ileostomy😒. Wish everyone well on their journey xx
@mariafahey7505 жыл бұрын
Sorry to hear your struggles😢
@freakx1982 жыл бұрын
Being a patient of colon cancer , i know it makes you feel weak , or disabled but it also opens up life in a new way you never knew or experienced.
@kimchibbq52423 жыл бұрын
You bring light to life🙏
@JosephWall-r5v2 ай бұрын
Nice pix of Vasquez Rocks!
@robertguzman32823 жыл бұрын
Thank you very much for your video lot of information I was wondering about god bless you
@Michelle-qd9gm2 жыл бұрын
How do you lose weight with a stoma ?
@debfrancis48863 жыл бұрын
you are beautiful..thank u for this
@Zander1984 Жыл бұрын
STar Trek location is so cool 😎
@Zander1984 Жыл бұрын
Long and short, " Sugarbacker procedure " with HIPEC. Just incase someone thought I'm just talking without context 🙂. Survivors rock!!!
@johnrafferty77813 жыл бұрын
I always remember some thing wast right just a shame you were so young,Glad you feel better now an getting back into what you love bro;) Steroids for almost my life from i was 23 till 38.
@ytrew97172 жыл бұрын
anyone tried fecal transplant? I'm surprised no one talks about it as it currently seems the best/only treatment that works (even if we don't know what specifically solve it)
@delorh2 жыл бұрын
I feel better and can eat now. But after one year and a half, my bags won’t stick. Comes off at the wrong times
@davidtracey90945 жыл бұрын
Nice
@SGKOWWEAR Жыл бұрын
I am very agree with you! you are so brave and beautiful ,blessing you.
@brendan.varnas Жыл бұрын
I definitely feel the same way...Had my colon removed last month!
@bettyewilks11873 жыл бұрын
Can you have surgery to have your ostmy bag removed
@Michelle-qd9gm2 жыл бұрын
How do you hide your bag through clothes pls ?
@shineymcshine5026 Жыл бұрын
Even though i may not live the lives of people like you & others with this, I would like to say the confidence & encouragement you bring is IMMACULATE! Seeing you speak positivity onto yourself & others is very inspirational. My heart & love goes out to you & others & so much respect🥰 The sky is the limit. Life is too short to stress🥳
@terrytownsend5583 Жыл бұрын
Feel free to go away
@jaredblumenshine3 жыл бұрын
My question is the doctors have told me it Crohn's, lack of care for celiacs, and now one Dr is telling me it cancer. I'm in so much pain all the time. It's the worst pain I've ever had. So to my question. Does this help with these issues? Are you sure I will have better times. I don't expect it to be a cure all but I need to get some sort of relief and better way of life
@bunnylacy2097 Жыл бұрын
Also, have they done a colonoscopy and biopsied your colon and intestines to look for Crohn’s disease activity? That test should also be able to test for colon cancer as well.
@michelebreen1705 Жыл бұрын
Thank you ❤
@michelebreen1705 Жыл бұрын
Thank you
@karengray26502 жыл бұрын
Thank you
@breej30553 жыл бұрын
Did you film at Vasquez Rocks in CA?
@XJonAye3 жыл бұрын
As I read your comment she said they filmed at Vasquez rocks
@dianesmith333511 ай бұрын
🙏🏼🙏🏼🙏🏼
@NoAnonima2 жыл бұрын
👀👀
@kumarsatyam6081 Жыл бұрын
Great points but why do you have to speak like that. It's so irritating
@IdkIdk-gw3qo Жыл бұрын
hi bhai do you also have a ostomy?? I am getting one soon and i am very scared
@shashwatgupta17457 ай бұрын
@@IdkIdk-gw3qobro how are you doing?
@IdkIdk-gw3qo7 ай бұрын
@@shashwatgupta1745 hi bro i am doing okay what about you do u also have a ostomy?
@Johndonvan8614 жыл бұрын
Did you have it reversed ?
@grateful38825 жыл бұрын
Do you Take any medication now??
@ScottyKirk15 жыл бұрын
You shouldn't have to take medication related to Chrons or colitis. Luckily mine was only in the colon, so when it was removed, the condition was gone. Some people aren't so lucky unfortunately. Recovery was about 2 weeks for the surgical incisions to fully heal. Really the first week was rough. Everything hurts when you move bcuz they have to cut you open to remove your colon. Huge step, but I feel so much better now. 👌🏼