Shining a light on living with hidradenitis suppurativa

[@MiraclesNicole]

Oh My God I Really Felt This I’m Literally In Tears Because People Really Don’t Understand The Anxiety And Low Self Esteem It Causes ❣️ We Are In This Together ❣️

[@moneymakingmar4763]

Right! I’m so thankful for seeing this. I’m always trying to spread awareness

[@jasonmars5332]

I have this as well and it is VERY overwhelming to deal with breaks my heart how handsome I was back in my teens compared to now. I’m still VERY handsome but it has damaged my skin so much

[@valdaperkins3434]

Yeeesss🙌🏼🙌🏼🙌🏼

[@AshantiQueen]

Sending love 💕 and hugs. My prayers go to you and everyone going through this.

[@deborahozegbe7861]

Yes I am going through this it's not easy to live with 😢

[@JC-pe2gd]

This story put me in tears! If anyone is struggling with HS...firstly cut out all carbs, dairy, and sugar! Believe it or not nightshade veggies affect HS (aubergine, potato, peppers tomatoes). But not everyone's symptoms are the same! I'm on a low fodmap diet. When I reintroduced nightshades back into the diet my HS tends to flare. I also struggle with IBS. Always ask your doctor for help and NEVER GIVE UP! We must advocate and get people to recognise this debilitating condition! Peace, love and light to you all 💛

[@MeiraArtCreations]

me too- ibs and and HS. Also Candida. Are all of these things connected?

[@rosegold973]

Same here! This condition on top of Crohn’s disease. It has been a long, long road 🥺

[@jennykvox]

I’ve been living with this awful condition for 10 years and it has ruined so many aspects of my life. I have chronic draining sinus tracts and I’m still trying to work as a nurse, but it’s tougher and tougher every day. I can’t have a relationship with anyone, so it’s pretty isolating. The physical and mental pain of this disease is beyond. I felt everything Jasmine said. What a beautiful woman inside and out. Thank you Jasmine, for letting us know we are so much more than this disease. Now if only they could come up with a cure. Sending love and prayers for comfort out there to all you HS warriors. ❤️🙏🏼

[@rosegold973]

Hi Jenny! I’m also an RN living with this disease and suffering. Its been so bad that I can’t work now. I can’t even raise my right arm because I have a gaping hole in my arm from the disease. It has deteriorated my skin so bad. It would be so nice to talk to you over email 😢 just to know I had a friend that understood how this is

[@ozziebaez6144]

HS is something that’s not easy to live with and it’s even harder with the insecurities that come with the scarring. I’m a black man that can literally feel your pain. I once went a year with no severe boils.

[@PAYBAKK599]

How long have you had this condition i had it about five years now it’s hell

[@mikedabeast5601]

I’m 17 and hope I don’t get it. My mom has it.

[@toriimyers5866]

This made me cry because her story is my story . I still don’t like talking about it but watching her video gave me a different type of feel . I use to think no one else understood this but now it’s coming more to light and I appreciate it . My own mother couldn’t really help me handle them but now that I’m grown I’m more aware and on top of it . I take antibiotics, I use a certain wash and cream . We all need to talk about this more because it really can happen to anyone at any given time .

[@beautybysimonetv6602]

Same. This is the worse! Sending love and healing sis ❤

[@AC-dt7sw]

What body wash do you use

[@anupamat.c5181]

Did ur mom or dad have hs?? Is it genetic

[@ashtheplug]

I’m literally in tears. this was so impactful in my eyes & I wanna thankyou for sharing & advocating because I’ve been struggling since I was 14 & it doesn’t get easier. I’m in my 20s now & I have never felt so low about something I have no control over.

[@diy2happiness80]

Me too 😢

[@shaniqueplays4119]

Thanks for sharing your story, I get to see another persons point of view from having HS. I’m currently 15, about to turn 16 next week. I was diagnosed with HS. Around a month ago, sometime in April. My confidence has drained a lot. I remember when I first got a bump in my groin area, thought it was weird & never thought anything of it. It kept recurring & it seems like i get something new every week. It affects me physically too since I’m in a marching band when my thighs rub together. I get boils deep in my skin, it feels hard & it’s really painful. My doctors aren’t doing anything to help really & I swear it’s getting worse as time goes by.

[@freedomsmc971]

I'm the same age as you. I was diagnosed 9 months ago. It's hell honestly. I'm a very active individual and also a prominent sports person at my school. This has affected my mental health and my performance greatly. I hope that I recover someday

[@jennykvox]

I’m so sorry sweetie. All I can do is pray and tell you that I understand and hope that this gets better for all of us at some point. ❤🙏🏼

[@wixlie]

Hey I have HS too. Have you heard about the study that showed dairy, yeast and refined sugar trigger hs. Its the only thing that has helped me. Modern medical industrial complex doesn't recognize the study so your doctor won't tell you about it.

[@MissBunnieBell]

There has to be reasons why this study isnt recognized. Cutting out those things may help some but might not help all. Giving dietary advice without knowing a persons medical history is also not a great thing to do. Everyones body is diffrent. Its like Crohn's Disease. What triggers one person doesnt trigger everyone.

[@mels.3750]

@@wixlie as a sufferer for 42 years, this is the only thing that makes sense to me and it answers why 1 in 100 people have it now. Our diets have become so bad and our food is so full of crap, that a lot of us are walking around with high levels of inflammation. I know for sure that my HS got worse after I gained a lot of weight from eating too many high sugar, high fat foods.

[@TheGoalisSublime]

I'm so grateful Novartis provided a platform for this beautiful young woman to share her story

[@uknowm4210]

This video hit me harder than anything in my life. I am a man and I am struggling from years. To know that there is hope is a miracle. Due to chronic breakouts and pain, I have not been able to live life let alone enjoy it. I have considered some very very dark options but I have some fight left in me. I’m going to watch all these videos on HS and give 2023 my all in hopes of getting better. If I can’t, I refuse to live like this for 40-60 more years.

[@lisamarando7992]

I have had this for 45 years and was just diagnosed! You are stronger than you know. Find a doctor that will give you options! You got this! I have been on a low dose antibiotic and cream...its manageable. Don't give up!

[@MiaC.]

It started around puberty under my arm pits & I’ve been dealing with it every since. Didn’t get an official diagnosis until 3 years ago as an adult. There is a sense of shame that I feel with this condition and it doesn’t help that there doesn’t seem to be any good medical guidance on how to treat it. I find that it does affect my relationships quite a bit. Thank you for sharing this with the world.

[@sennie6296]

Do people seem disgusted some times? Seeing scars and open wounds? Even my mom looks away, she loves me a lot may be it also hurts her to see me in pain and that's why. But honestly it hurts more mentally because I have to treat my own wounds and its really hard but i don't want to get help because i feel like I'm disgusting even tho I'm the most clean person in family. ( because of HS I always try to be super clean)

[@rosegold973]

Sex or the beauty of motherhood isn’t even an option in my life. I’ve honestly given up on ever finding a boyfriend or husband. Just me and my two dogs until the end.

[@orla6098]

I have severe h.s I have had 57 incisions and drainage surgerys always on antibiotics always in pain have constant big painful boils thank you for bringing light to this ❤️❤️ xx every day is a struggle I can't lift my arms with the shame or feel comfortable with a partner because of my boils and all my surgery scars really hope this gives a better understanding xx ❤️

[@NormallyAvailable]

I m 21 from India and I am diagnosed with it too! It's very painful and every time I try to divert myself from it, the pain catches us and reminds me. I love playing sports, but my hand's mobility is so restricted that I can't enjoy what I love. I have taken every medicine prescribed to me! Isn't surgery a solution to it?

[@greenthumb1523]

Thank you so much. My arm pit is hurting bad right now as I watch this. I'm glad that I found you and this community to finally have an answer as to what been occuring!!! I was at a loss! I'm so happy to understand it's genetic. And to experiment and find remedies. Thanks so much for sharing your journey. It's grown you.

[@ZorcNecrofear]

I’m 29 been dealing with this for about 15 yrs now being ashamed suffering in silence not even knowing what I’m dealing with till this year ppl will never understand I’m glad comments are filled with ppl that do

[@billie459]

I have the same condition it started in my 30s. 😢but I’ve learned to love and embrace myself God helps me too.

[@preciousjackson2590]

I literally just watched a commercial and they showed pictures. And I recognized it as me. My best friend thought I had cancer. My mom died from the big c so I never went to get it checked. Now I’m going to see a dermatologist specifically for this. Thank you so so so much. I felt seen and what the heck… I’m not the only one. I’ve had this for years coupled with pcos. I wish I could record my real response. Just thank you from my corner of the world.

[@Novartis]

That's great to hear! Thanks for sharing.

[@GamingNiro7]

@@Novartis hey I am a boy I am 12 I had his since 11 but I want one question will I also get a golf sized ball like her pls tell me I am scared

[@lolabelvilla]

Oh my god, @Jasmine, you are BEAUTIFUL! I have suffered from HS from age 12 (I'm now 33). I feel you, sister. Oh my god, you are not lost and alone. We are here for you, you are such a valuable person, and being an advocate for this is CRUCIAL.

[@angelbyrd09]

I'm 33 and was just diagnosed yesterday. Thanks for being so vulnerable for us🖤

[@AurmazlZudeh]

I'm 34 this week and got my diagnosis at the hospital this week after getting sepsis from it

[@Knoewontheog]

Im 17- i was just diagnosed this morning. Ive had it since i was 5... its so hard

[@Mykie222]

Thank you for sharing your story. Been dealing with HS for years.

[@astronomer1344]

Oh blessed be. Blessed Be. I am in tears, I needed to hear this. Thank you, thank you for affirming me. 🙏🏾 You will always be in my prayers.

[@rickywg1993]

I was told today I have Hidradenitis Suppurativa after suffering for 5 long years. I was devastated. But watching this is helping that news I received xxx

[@Cheri022491]

I'm in tears over this. I been suffering from this for 20yrs, 15 of those were me being silent about my HS, hiding it, trying to ignore it... But I've become more open about it the last few years & I hope one day I will have the courage to go this public with my story... Bc of ppl like you standing up & speaking the painful truth, helps me go another step into being fully open to the world about it... I do want to become an advocate for it, I just don't know how I can while I'm still so ashamed of my body & skin... Thank you for sharing your experience, it truly helps me feel lil more accepted everytime I see this stuff, ppl standing up & speaking their stories...

[@sharay5888]

Sending you love & light. Your comment touched me so much. I’ve been hiding and ignoring for 15 years also. Hang in there. We will overcome

[@CosmoQueen91]

Wow I understand this so much :( I have HS in my groin and I’m so self conscious. Even going to the doctor I’m uncomfortable and self conscious /: thank you SOO much for sharing this. It’s nice to know I’m not alone🙏🏻🙏🏻

[@s.s.0]

I do too and you’re not alone. ❤ you are beautiful and remember that.

[@alixrodriguez4426]

When I was 11 years old I noticed that something was bad, that boils weren't normal but I didn't say anything to my mum. When I was 16-17 years old I finally got diagnosed with HS. Sometimes the pain I feel is unbelievable but I have to act like everything's okey, I have to move my arm's, my legs... I'm alone, I don't think that my family understand what I've been passing through all this year's. HS it's not a joke it affects your life in many ways.

[@rosegold973]

I think most HS sufferers have mastered the act of “faking it” you know? We literally have to act like nothings wrong because we either don’t want ppl to know that our groin hurt or that we have the condition all together because ppl don’t understand even after explaining.. sometimes even after showing a person how awful the lesions are too

[@neseyrobinson2325]

❤ i have it also and just recently had the worst flare up I’ve had in years. My inner thighs looks so bad. The smells, the fatigue, anxiety, triggers, the scars, the appearing in new areas. Just all bad. I’m waiting to go to get my diagnoses from a derm, my dr speculates as well. But ive know the name of this for years and knew i had it because it was no other way do describe the symptoms than this. The tunnels and multiples at once ugh. Can go on and on….❤️ healing and love to all who suffer💯🙏🏾✨

[@mruplifted8662]

Hello Jasmine, I’m so proud of you Queen!! I was featured in the same article as you were and stumbled across this video of you. Your story is heartfelt, and you are beautiful no matter what. Keep being an amazing advocate for yourself and for all of us. We support you. I’ll continue to advocate as well, thanks for being a push to keep that up. Much love to all of the HS community and those we protect and love us! Paul

[@paigefaith4924]

I’m so sorry you’ve had to deal with this condition your whole life. What you’re doing now, spreading awareness and being an advocate, is amazing. Bravo 👏🏼

[@samanthapeeler23]

I just got diagnosed today and it honestly just feels so good to feel seen and understood.. I’m in tears, thank you

[@krom820]

Jasmine, you are so brave to share your story. I think all of us who have HS feel the shame. I don't know how much other folks have considered the impact of their diet on their HS along with other auto immune diseases. For me, I minimize processed food, dairy, sugar and refined carbs. I eat a lot of fruits and vegetables and my HS is in remissions along with Crohns disease. I hope that everyone will google dietary changes (and food elimination diets) to see if it will improve your conditions too. I'm convinced that changing how I eat is what changed the progression of my disease. My heart and love go out to you all.

[@adamkuentzel9933]

God, you are so beautiful, your soul poured out and into my heart with this video! Thank you for sharing your journey and to remind those of us that suffer from HS that there is hope and we are not alone!

[@azaleahilerio7683]

I am so sorry, I also have HS in those areas and it really affects my mental health, my self esteem, the way I dress and my intimate relationships 🥺 I struggle every day trying to be ok with my condition but it is so hard because I feel like I just can’t live my life to the fullest.

[@jaybaddie5181]

Same

[@cynthiabrown1692]

Jasmine I wanna say, thank you for sharing your story. I commend you for being so strong and open with it. You are a true warrior to HS. It's not an easy thing to live with and those who have it will only understand. Thank you again. I felt this deep to the bone. It hits every nail on the head in what people feel and go through.

[@thexenmom]

Jasmine, thank you so much for sharing your story. I am 28 years old and have been living with HS since I was 12, so I can definitely feel you. The courage you expressed in telling your story makes me even more compelled to do the same. Thank you!!!

[@jessicasanders8909]

You are not alone,thank you for sharing. It's like you explained my whole life.

[@canadasweetie]

Thank you for sharing your story. You are just so beautiful ( your face is gorgeous) and you speak so fluently, so intelligently and have a way of speaking that people can understand.

[@oronnicastubbs4673]

Thank you sharing Jasmine. I have been suffering. I have it on my thigh , butt and armpit area and it makes me soo depress ! Exspecially my face where everyone is looking at me and judge me and my diet but not understanding my condition. It hurts

[@samiraj.192]

Loved this! Thank you so much Jasmine & Novartis ❤❤❤. I can relate to Jasmine and it feels so reassuring to see this beautiful woman shining her light and lifting others up to affirm that we are all more than HS or whatever struggles we might be dealing with.

[@rikka45637]

Thank you for sharing your story❤❣I can really feel you because I have HS too and have been going through a lot ever since I found out about it 4 years ago..I will stay strong and fight back because that's the only way to stay sane through this...I hope you're doing okay...Take care❤❤

[@Nylon-xj9ml]

I used to hate it so much but I noticed the symptoms disappear whenever I'm not stressed. The only time it got to the worst of the worst was during finals. I did my last finals a month ago.

[@5ky801]

Old comment but congrats on graduating! Hope your condition is still on the up and up

[@queen_allysutanxe1950]

Omg i needed this 😭😭it’s really hard having HS

[@kanditeelucksingh5096]

Thank you for sharing. Have struggled with this disease almost to death. God is my Saviour.

[@angelwilliams9550]

Thank you for sharing! I can feel your pain because I have experienced all that. I started when i was 25 or 26 and I am 30. It is not easy to be living with HS.

[@CameliaTunea]

I feel every word that Jasmine said. I received the HS diagnostic couple of months ago and I'm still trying to figure out how to live with it. What else can I do? I'm 37 years and I feel a huge impact on whatever I do, interactions and lifestyle. I'm sorry to hear that so many people have it but somehow, I see strength in Jasmine and I'm trying to capture it. Thank you for that! I do hope that with time, answers to why & how to be available. HS might seem light or least important comparing to others but people who have it suffer a lot. Fingers crossed and... you are not alone!

[@azizaj24]

I really related to this I’ve been dealing with HS for almost 13 years and it’s given me Anxiety and somewhat self conscious. I really Thank you for sharing your story🙏🏾❤️

[@sonyaj.6736]

Thank you! Your a warrior and awesome to share your story and support other through this very challenging diagnosis. Many Blessings for you❤

[@canal50tonsdepalidez]

I feel your pain. Struggling with HS my entire life 😥

[@marcellalyons3612]

I have the same thing I hate it. Thanks for sharing. I hurt 🤕 all the time.. You helped me to day. And for the record. I am not lazy. I am just hurt and wounded. Peace to you and all others.Bless You....

[@blank41612]

Thanks for your bravery

[@evelyn.8967]

Yes, I know exactly how this feels as a young girl. It’s so devastating not knowing what was wrong with me for many years and not knowing if it would ever be better.

[@moonmarie281]

Wow. You are unbelievably strong and a very beautiful woman. Thank you for sharing❤

[@radiantbeautyandglam]

It hurts so bad

[@XxRecklessx]

Ive been misdiagnosed for 14 years and only recently discovered it was HS... Thank u for helping spread awareness

[@dhsu04]

Thank you for sharing, so that's what those big boils (ping-pong ball size) under my armpits are. They do appear periodically in sweaty areas. You're strong and beautiful, again thank you for sharing ❤️. I just ignore them, let them drain, sometimes put a bandaid on, and just go about my business. This is part of my life and I embrace it 😃 😊

[@blank41612]

Sis. Hang in there. My daughter has Mons pubis reconstruction since she was diagnosed at age 10

[@hannahcrazyhawk]

Thank you so much for this. I have HS in my groin. I've had so many surgeries. It's hell. I'm so tired of being alive. It hurts. ❤️

[@rockgirls923]

Thank you Jasmine🙏🏾

[@zzz8606]

I'm here after the girl I'm speaking to told me she has HS and I'm just trying to learn how I can be there for her.

[@jennykvox]

That’s really amazing. She’s lucky to have you.

[@daphuckuwant]

Are yall still together?👀

[@joeldemayo9132]

I have just been diagnosed with HS, I hate this. I have had it for 2 years now, and it’s all over my stomach, and it is so painful…. What do we do?!? We need more study’s done, more funding!!!

[@oliviacasey4643]

Thank you for sharing your story

[@damarali8999]

Just learning of this condition Keep fighting QUEEN

[@abrahamgoesmoo]

I also have HS since my late teens. I have a suspicion that it could also be triggered by diet, particularly complex carbs, as it greatly improved when I was on a ketogenic diet

[@HeronPoint2021]

I think it's unique to every one. I've tried eliminating various items from my diet. A lady I know would not mix dairy with protein. I tried that. Nothing affected it one way or another, but I had to see if it did.

[@t.1103]

@@HeronPoint2021 if you don’t mind me asking, what diet did you try, how long did you try it for and how are you now?

[@AshleyMarie01]

SPEAK OUR TRUTH

[@erininthedell]

Thank you so much for sharing!

[@tapiwashendelane518]

I spent years experiencing HS and I only got a correct diagnosis recently, I don't know how I feel, I'm trying to digest all the information I get about the condition

[@SheriPearls]

I love you and I hope you keep doing your best ❤️ I am proud of you. I have a friend with this she has been through similar things. ❣️

[@really_gitzyboo9931]

We are not alone the journey keeps going an the juice keeps flowing lost in life not sure what to do keep head up keep up with your treatment even if it won't be cured it can be less severe as it was if get treatment it's hard sometimes feel like giving up be cause how ugly it looks but remember you are beautifull the ones who suffer forget they are most gifted people out there I'm currently getting mine done now at hospital now this time I have to commit to treatment giving

[@missybrown2971]

My gosh I feel for her

[@DoreenC1981]

Thanks for sharing. I have HS.

[@PAYBAKK599]

Thank you for posting this im dealing with this condition and it’s hell nothing helps it’s so hard staying strong i have no one to let me know i will be ok its very scary came out of nowhere and keep getting worse anyone with information please message me

[@Novartis]

Thank you for your comment. We are sorry to hear this. Unfortunately, regulations prevent us from offering personalized medical advice, diagnoses, or treatments. We recommend you consult a physician who is best positioned to advise you on treatment options.

[@miamariarose4400]

I am sure it will get cured

[@CameshaCamz]

So sorry you guys have to go through this. More love, strength, better days to you in the Mighty name of Jesus Chirst of Nazareth.

[@kimsharp1900]

Thank you for telling your story it's my story love and blessings always Kim Milwaukee

[@nodatastored684]

🙏🏾 In my prayers, Ms lady

[@AurmazlZudeh]

Had this since 11, only got diagnosis last week. I'm 34 now

[@MeMyselfnTE]

I hate HS so much omg! sometimes I think why can't I be normal

[@sforbes2230]

HS is a terrible disease. Thank you for sharing your story. Everything you mentioned I'm feeling. I've been dealing with this since I was 13.

[@jasminedominique3577]

I’m having the worst skin problems I’ve been on all kinds of meds… still no answers just misdiagnoses… it’s slowly spreading all over but it began under my arms. I just learned about HS and thinking maybe this is what I’m going through.. I’m not use to skin problems… my summer is ruined all I do is work and stay home. Aloe helps. I just want to be healthy.

[@Khaypop]

Thank you for sharing queen 💗. I have been dealing with HS since I was 12 years old . I get it mostly in my groin area and under my boobs ..

[@nicoleedwards1576]

Thank you

[@thatscool1550]

i cannot stop crying. i havent even told my doctor.

[@branchtashia836]

😢I can’t take it anymore I’m 36 and tired of struggling with this

[@anupamat.c5181]

Didur mom or dad had this?

[@linzi6778]

Had this for 20 yrs x

[@barbradhoye1706]

Thank you 💞

[@nailedby_shawna5401]

Just got diagnosed today at 23 .

[@momo43momo66]

she's so Beautiful!

[@treyterry1234]

I have hs now it’s moving to my neck but ima stand strong

[@belindaat36]

Thank you so much!

[@ReynaBanx]

Wow I'm also a journalist filmmaker and have HS... I can't believe I'm seeing this video

[@ozziebaez6144]

School age and communal showers are our worst nightmares. As a kid, I always wanted too moon someone and tell them to kiss my ass, but I couldn’t, because of the scars lol

[@msp774]

I hate the scars it leaves i look in the mirror and i see the scars and it makes me so sad

[@sharifahthomas1279]

I believe I have this and I need to get to a dr asap! I would love if you could talk to me and help me through this because I also have lupus and this is not fun at all! It does hurt and I just had a really bad one started in august and went away in October 2022, now I have another one in my groan area and it is huge again! I mean like 2 golf balls in size together and a crator opening and stuff. Please the puss thing that was ready to come out I removed it but it kept pulling and pulling and it looked like dead tissue that has an awful odor! Please I first had my first one under my left armpit and it was like a tennis ball size and I thought it was breast cancer and thankfully it wasn’t and was just left to be an abscess! Please I need help I’m struggling and I’m an emotional wreck on top of just losing my mother my best friend my other half on November 10th , 2022

[@lotsofglo]

Have it in my groin area since I was 16.. 26 now :/

[@ddjambi]

My daughter just been diagnosed today, she's 12 years old 🥺

[@anupamat.c5181]

U or ur husband has this ???

[@PAYBAKK599]

Does anyone else bleed with this condition? Really bad like excessive bleeding? Please let me know.

[@Jamie-wf2fs]

Had it since 14 about to get on a heating pad I’m 36 now ❤

[@moneymakingmar4763]

Thank youuuuuuu!!!!

[@KILLERZX5]

Your not alone 💯

[@ANDREAGRAVES1984]

Just got mine drained. 😩

[@breenorwood9692]

I been having Hs for 12 years but I haven't had any symptoms for 7 years I heal myself with the help with GOD

[@IHeartBangtan_7]

I had it for 8 years now. I just got diagnosed today. It's in my underarm and the doctor told me not to get a surgery. 😭

[@diedrawilliams9037]

OMGG that was so depressing!

[@johnanddenisemarsh7708]

You are absolutely one of tge most beautiful women I've ever seen.

[@tracymullins7618]

😢😢😢

[@calebodhiambo5477]

May God come through for all suffering from HS in Jesus Name.