Signs & Symptoms Of Craniocervical Instability

[@jmwhitt]

Just found this after having mri, neck ultrasound, neurosurgeon, xray. No one has told me I have this but I think I do! I get nausea, palpitations, and if I crack my neck, they can go away. Chiro helps but I’m scared of artery dissection now so I am working on neck strengthening, so glad I found your channel

[@Yazma-pn2ls]

Having all the symptoms of CCI since year's without even getting diagnosed is one of the worse and sad thing ever because the symptoms are not usually visible from outside so nor the doctors or people around us understand what's going on inside, it's sooo stressful to explain everything all the time without getting treatment 😢

[@theprolopatient]

Absolutely it’s in the “invisible illness” category makes it hard for others to understand and make it extremely difficult to get diagnosed!

[@HealingWithSherise]

I agree 😢

[@mightyelf2660]

Are you gonna get prolotherapy?

[@yazma8022]

​@@mightyelf2660not yet got any doctor who does prolotherapy in the city..... There's one doctor in another city who does PRP treatment for back and knee but don't know if he does it for neck too.... Will have to travel for hours to get to that doctor which is sooo hard

[@Wil_Dsense]

Absolutely! Just over a year now for me roughly, with all of these symptoms. I just got ProloZone/ProloTherapy with Ozone, first treatment last week and the 2nd one next week. It’s still early days of treatment plan, they haven’t gone away but It’s like the dial of intensity of pain and pressure was turned down by about 2… the most relief I’ve had since where pain meds did nothing. Thank God For ProloTherapy and these treatments.

[@jackiesicilian5720]

Wow, ive had some of these symptoms for a long time, diagnosed fibromyalgia but after 12 years its just getting worse. Wake up feeling like i wasn't getting enough oxygen while asleep and terrible fatigue. Tinnitus now starting. I always knew it was probably from my neck.

[@taytertottt]

You just explained the progression of my physical symptoms exactly. Definitely keeping this video in my favourites to make notes or honestly to even show my specialist(s) this. I got an MRI of my brain and my neurologist said I had nothing wrong with me after I started having seizure episodes. I am almost positive I have CCI and/or chiari. THANK YOU!!!!!

[@gidgeteer]

You are the first person that I have found that has mentioned the change in perspiration with CCI, thank you for making this video and all of the other ones, you have been very informative and so helpful!

[@angiechesser8511]

@gidgeteer, I noticed that too. Up until 5 minutes ago, I thought it was just another(one of a Long list...) wierd thing that my body does now that it didn't do before the wreck!🧐 "hot flashes" & hyperhydrosis that Dr's tried to convince me where just "early menopause" (at age 38 & immediately following a bad wreck?!). Nice to not feel alone or crazy for the first time in 16 years....

[@KathyHarkey]

I had very similar symptoms. I found a neuro optometrist that's doing vision therapy with me. Mine came from a car accident. Traumatic brain injury. 5 years suffering. I'm going to look more into this therapy also. I still have very tight shoulders and neck pain. But I can go into grocery stores again. The most important thing to anyone still looking for answers don't give up!

[@jgardner830]

God bless you bro. Stronger everyday.

[@RochelleLopez-r2m]

Wow!!!....Finally someone who knows what I've been going through....I've given up on going to the Dr due to ping ponging around...I'm going to def look into this...thanks for sharing this!!! Glad you are feeling better!!!

[@yazma8022]

I wish I could get proper diagnosis and prolotherapy treatment as my symptoms are getting worse... and soo scary.... Tired of taking alot of pain medications, antidepressants everyday 😢 feeling sooo depressed

[@msh9867]

This (and your other videos) are SO helpful! Thank you for sharing your journey with CCI and prolotherapy!

[@joynervieira7905]

I have most of the symptoms you described. My sinus pressure and ear fullness drastically increase when i lay down for long periods of time.

[@angiechesser8511]

funny I never made the connection to my sinus issues until I saw this video 💡

[@JoeG-vu8lr]

I have all these symptoms to a high degree and the ringing in my ears is literally making me feel like I am going crazy. I am one year into recovery of a TBI where I fell forcibly backwards onto the cement. I have been getting the ping pong with my Neurologist and doctors who do not seem to have the experience to help me. I live in central Illinois and if anyone knows of a specialist in this area please let me know. I recently was put on medication for depression because this has literally destroyed me and I am in a constant state of feeling like I am being tortured. Thank you for this video as I believe God orchestrated this day. 😊

[@theprolopatient]

Reach out to me on Instagram id love to hear more about your symptoms and your story

[@MichelleP2022]

I live in Central Illinois also. Been suffering for years. Doctors around here have no clue!!

[@mightyelf2660]

Search for prolotherapy I guess?

[@trafficjon400]

Praying to God all my life did nothing but make me read the scriptures finding Man inspired words with Contradictions about all the Generations he keeps saying he's coming but 80 of them so far and never came yet. being SDA and fallowing the diet they push leading me to Ostioporossis ? seeing now many of the Sda with it also just for being faithfull. in Faith it killed my Mother . finding later that belief Faith is just a man made indoctrination to make Slaves and cause wars and Condonig Genocide. Still being Patient waiting a honest loving reasonable Creator who helps us understand and not hyde from us and leave us with no answers except cruel force to just believe or you get the Gates of hell burning for eternity sounds more like a psychopathic Monster. I can see Empires 2000 years ago pushing this on till this day but, slavery has diminished because we have the Machinery and Tech they never had centries ago.

[@ToddDouglasFox]

@@mightyelf2660yes, find an experienced, skilled, thorough prolo doctor who is user friendly even if you have to travel. The doctor should also use PRP, no cortisone, nerve blocks, ablations, PT or surgery. Several treatments spaced a month apart are typically needed.

[@beereal5107]

Thanks man ! ....This video that you produced and shared with us, has just changed my life, and will continue improving my life into the future. What a blessing. ...again: Thank you so very, very much !

[@theprolopatient]

Thank you for your kind comment.

[@Ayorkshiremansdailygrind]

this is huge and more people than we think suffer from this all over the world i have all those symptoms im 63 and my son who is in his thirties also has it and we both are getting nowhere with doctors etc we are in the uk and no chance of getting prolotherapy here , we both think this was triggerd with corona virus vaccine and both had same astra zeneca vaccine within a week of each other and within a week of each other a few weeks later started with all these symptoms !!!

[@invisiblegypsy1328]

I have had the same problems for over twenty years. I had two bad accidents in three years...hit by a truck from behind on my bike where I had a bad consussion then three years later went over a 160 ft. cliff suffereing severe whiplash. When I went to emergency with severe symptoms they would think I was drunk or on drugs, which I cannot tolerate even in small amounts. People complained about my house being dark and dull (because light causes eye pain) I have pulsitile tinnitus in one ear that came on suddenly where I hear my heartbeat. That is what I continually pray to subside. I can't believe you overcame that! I want what you are having! No one seems to care let alone understand. Thank you for sharing this remarkable information.

[@ToddDouglasFox]

Pursue finding a physician who has successful outcomes in these cases.

[@invisiblegypsy1328]

I have had pulsatile tinnitus for 20 years. No help from anyone on that. I now have more headaches and shoulder pain and sinus pain. My Dr. thinks it is related to Giant Cell Arteritus with no thought of my past whiplash pain and neurological symptoms. That would mean going on harsh steroids for a long time. I still think my problems are in the cervical spine but xrays and mris don't show impingment only arthritis with bone spurs. I feel like asking for euthanasia, I am so discouraged. It takes more money than I have to seek out alternative treatments. I am glad you had relief from PT! That in itself is a miracle. And only you and I know how that feels. My Drs have no clue and no one in my family can even attempt to understand the trauma from that constant whooshing.

[@Wil_Dsense]

Hi, I also know about pulsatile tinnitus, whooshing , had it in right ear, I wouldn’t wish it upon anybody! as well as severe shoulder pain, eye pain migraine pressure headaches, and burning across shoulders. I had my first treatment of ProloZone last week and it actually reduced some pain and pressure. It feel like it’s really working and I would absolutely encourage you to find ProloZone Therapist who can run propper diagnostic tests to identify if it is cervical instability in the neck (most likely it is if you have all these symptoms) and if it is can work out a treatment plan with you. It’s absolutely worth it and may be the only thing that can help reverse the situation! It can’t be cured on it’s own unfortunately it needs the help of something like Ozone Which is a very concentrated form Oxygen (O3) which helps the body heal and repair the area after chronic and long term damage. I have my second treatment upcoming and I’m extremely optimistic as I noticed less severe symptoms and pressure in head just after the first session! Don’t loose hope, healing is possible with the right care! Remember these conditions often take years to set in and so the form of treatment needed may be extreme. In this case ProloTherapy and ProloZone. I Wish you the best in overcoming whatever’s ailing you.

[@angiechesser8511]

what kind of MRI? Don't listen to the doctors..... there Is a difference between supine & upright and it Does matter!

[@invisiblegypsy1328]

@@angiechesser8511 omg! Thank you Angie! I did not know.

[@angiechesser8511]

@@invisiblegypsy1328 16 years & counting since mva- 99% of doctors have no clue about CCI nor do they believe in it even with reports handed to them. I've had them tossed back in my face more times than I can count 😒

[@debwhite9432]

wow thank you. I have exactly the same symptoms. I need prolotherapy.

[@richpascarelli8436]

I am glad your feeling better!

[@theprolopatient]

Thank you!

[@Christinesobsevations]

I’ve got the extreme ear dysfunction but no issue with my hearing at all . They can find absolutely nothing wrong in my brain or ears . No pressure no fluid . No infection. Nothing .

[@SelenabatYahuah7]

I have permanent whiplash from an accident with a tractor trailer and I'm in chronic pain. I get dizzy and my vision gets blurry. Thank you for sharing 🙏🏽 following for help.

[@donnahilton471]

Breath hunger and POTS are also caused by a B1 deficiency.

[@shan10120]

Sorry you had go through all this bro, may allah give you all the happiness

[@Yazma-pn2ls]

I had a head injury in 2020 from a metal gate, since then I've been having all these symptoms starting with terrible dizziness, confusion, brain fog, constant panic attack's, internal tremors, neck pain, headache's, Insomnia, balance problems, heart palpitations, increased anxiety and depression symptom's, vision problems, muscle weakness due to which I cannot do any work standing, cannot climb stairs and extreme sound sensitivity which has gotten so worse that I cannot tolerate any loud sound. Been to many doctors like ENT, Neurologist, even a spine Surgeon but they don't give the right treatment Now it's been 5 months I've been having constant GRINDING neck pain, terrible tension HEADACHE'S with every movement, having alot of pressure and facial pain, eye pain with sinuses, jaw pain, alot of pain and ringing in the ears and internal tremors have become sooo worse. Did CT SCAN, it showed intervertebral disc space of C4/C5 slightly narrowed, Reduced cervical Lordosis suggestive of muscle spasms and Mild cervical spondylosis. But I've been feeling that I have CCI but doctors don't take it seriously and referring to a phycologist

[@ToddDouglasFox]

Yes, all of your symptoms can be related to instability. Find a qualified prolotherapist who does PRP in your area and get musculoskeletal ultrasound and an overall assessment. It will be out of pocket but health is worth it.

[@zuzanamichalikova6930]

Try to find a good Atlas Orthogonal chiropractor. Your C1 vertebrae can be misaligned.

[@laurachickadee6969]

I know I am going to wake up one day paralyzed,that's how bad mine is.

[@Christinesobsevations]

Same here . Drs have no idea what’s up . I bet functional medicine someone like dr hauser would figure it right out . Unfortunately these tests are ridiculously expensive. Yes I’m isolated too most of the time . Life hurts .

[@laurie6332]

There are not many medical doctors that have a clue about CCI. The medical system in the USA is totally broken. Ping ponging patients to other Drs is so ridiculous. It's all about insurance and Drs making money, not truly caring if they help a patient or not. There are only a few Drs who understand CCI, Dr Hauser in FL being of of them. I hope you have found complete relief. Insurance won't cover Prolotherapy, and it is very very expensive.

[@paco3447]

I’ve been suffering those symptoms for years. But in my case it turned to be a CSF spinal leak, in which the loss of cerebrospinal fluid sink my brain down when I’m in sitting or standing position. As long as I lye down all back to normal. I think Spinal CSF leak, atlanto axial instability and Chiari malformation share mostly all the same symptoms.

[@cristy6513]

How did they find your leak and treat it

[@paco3447]

@@cristy6513 With an extremely invasive workup which involves intrathecal injection of dye agents (inside the spinal dura with a lumbar puncture) and then a CT myelography, followed by a digital subtraction dynamic myelography (in various positions... lateral decubitus, prone, etc.) and finally a full spinal and brain MRI with intrathecal gadolinium (this later method is off label, though). Requires very skilled interventionist neurorads and neurologists with expertise in this condition. The treatment is neurosurgery, but in my case I’m in stand by because my case is complex and just a few neurosurgeons are able to perform this kind of operation.

[@nicholasburch7549]

How was CSF leak diagnosed mri?

[@paco3447]

@@nicholasburch7549 with both MRI and dynamic CT scan digital subtraction myelography, repeated in different body positions. That’s performed in an invasive fashion, with an intrathecal contrast dye injected right into my spine (via a spinal tap). It’s the only effective work up as long as is quite difficult to catch either a leak or a CSF spinal venous fistula. Some people don’t need the full work up if they’re lucky enough to catch the leak early.

[@vikenthefirst]

God bless you dear and many thank`s

[@yazma8022]

Anyone else getting constant very Sharp needle like pains in the neck which radiates to the arms and legs along with terrible shoulder and spine back pain and tremors

[@Balls99000]

Yes

[@supesisfodder7427]

Yes

[@Wil_Dsense]

Yes, had severe burning across both shoulders it was intense! Look into getting ProloZone Therpay (Similar to ProloTherapy) But with a highly concentrated form of oxygen. It is very effective for reducing pain and symptoms and healing the area that is causing the issues! Beefing up and repairing the ligaments in the neck is key! And sometimes these kind of treatments is needed is needed to help the body reverse a chronic situation. It’s possible to I am after my first session and I encourage everyone with these type symptoms to give it a go, because if like me, the symptoms were so bad that you would be willing to try just about anything if there would be a slight chance it could help.

[@staceypollack808]

What do you mean by beefing up ? Doing what ?

[@Christinesobsevations]

I suffer all of these … no answers at all yet . The only way I’ll get them is if I keep pushing which is exhausting. Yes I’m on heart meds because of severe tachycardia. I’ve heard prolo helps some ppl .

[@ToddDouglasFox]

Start with a really good osteopathic physician who either does prolotherapy or has an appreciation for what it does.

[@ddoummar]

Thank you for sharing it 🙌🏻 Cci for 2+ years already...

[@yazma8022]

I'm having really bad tremors and severe hypertension headache's especially when stressed 😢

[@theprolopatient]

It gets better

[@ssgg23]

Wow I’m sorry you had to go through all that, and that’s awesome that prolotherapy has helped you so much. I have some kind of neck injury and do get the tinnitus, teeth sensitivity and sinus clogging but no crazy total body numbness or sound or light sensitivity like that. I was hesitant to try prolo since it’s not covered by insurance and has limited research behind it but seems some people swear by it and there are so few options for those of us who aren’t the absolute most severe cases (many of the few neurosurgeon specialists for cci out there will basically only take bed bound patients, patients who already have access to advanced imaging, or patients who can’t work full time).

[@tonyawhitten5199]

Until the Insurance companies start paying for things that actually work and stop kissing up to big pharma, people will not be able to afford things like this! It has to change.

[@phatachan2578]

Thank you for your sharing . I have a similar problem, Can you tell me which clinic you go? I m from BC

[@theprolopatient]

Caring medical / Hauser neck center in Florida

[@mountaindweller9118]

Wow! You literally just described me! Your symptoms are virtually identical to mine. Additionally, I have a "bobblehead" After 15 months of seeing countless specialists, I finally got a DMX revealing lax transverse ligament at C2. The Dr. I am seeing wants to do PRP. Curious if you tried PRP injections? How much has Prolo helped? Thanks

[@theprolopatient]

Great question, I am currently receiving PRP injections. They seem to help a great deal.

[@mountaindweller9118]

@@theprolopatient That's good to know that PRP has been helpful. Thanks

[@angiechesser8511]

@@theprolopatient how much do the injections cost? I've been dealing with this since a bad wreck on 2/28/08. Had to figure out for myself what was wrong with my body. Doctors suck- If not for God complexes I would've had my life back 16 years ago.

[@bs637]

​@angiechesser8511 I did the same research my doctors couldn't do. Here in Southern California a consult alone to see if you're a good candidate is $500.. prolotherapy with dextrose is $550 for one area and $200 for any additional area. Prp which is a platelet rich plasma is $995 and $350 for additional area. Just waiting back for my brain mri to to have this done. I pray you find healing.

[@Wisdomforthehour]

This is concerning because I'm having most all these symptoms. It's been going on for years.

[@staceypollack808]

Where did you go for your prolo ? Hauser?

[@got2go4word]

I finally understand my symptoms now, please tell me what your chiropractor did to help, this is so debilitating, thank you!

[@Tmifeds]

( i don't have Instagram so sorry for the long message) I cried watching this video I just turned 20 and i didn't know what was going on with me. I went to the er many times because of dizziness I have a disc bulge on my neck and have the same symptoms you're describing. Has the treatment made your brain fog go away even if it's a little and do you think prolotherapy will completely heal you up 100% and make you back to your old self or it would just make you manage the symptoms. I feel so blessed to find your channel i really thought i was going crazy due to doctors telling me I'm fine. Thank you

[@theprolopatient]

I’m so glad you found the channel. I know how hard and emotional it can be dealing with all the symptoms of not knowing what’s going on. Treatment definitely has made my brain fog much much better. However, I still experience brain fog on a daily basis like I said, not as bad. I do pray prolotherapy completely heals me back to my old self. It has brought other people back to hundred percent. And in my own experience, it’s brought me from being bedridden and not able to walk or feed myself, too I am much better quality of life able to walk around for a few hours at a time.

[@Tmifeds]

@@theprolopatient thank you sir i hope you make a blessed recovery and get 100% back.

[@shonna79]

RIGHT FROM THE START it is EXACTLY what I'm going through!! We don't have a "digital xrays" here 😢 This is so scary

[@yazma8022]

Same with me, I am in Kenya and and also here there's no digital motion x-rays

[@ToddDouglasFox]

@@yazma8022in the old days, a prolotherapist would diagnose instability without imaging. These days musculoskeletal ultrasound is an additional benefit. I do not think there are any prolo doctors in Kenya. it’s the doctor you require, imaging is secondary.

[@yazma8022]

I have all the symptoms since four year's after getting a head injury, everyday I've been taking pain relievers and antidepressants for sleep... no doctor tells you about cervical instability 😢

[@theprolopatient]

Sadly, it’s not a very well known thing, but it’s my belief that it is the root cause of a lot of peoples problems and suffering and they nor there doctors know anything about it. That’s why I created this KZbin channel to get the word out and spread awareness.

[@invisiblegypsy1328]

How exactly did the pulsitile tinnitus subside? Gradually, suddenly? Is there any residual effects of it?

[@bradpryer]

Thanks heaps!

[@Jordy40Growing]

I had it for 4 years and finally feeling like myself again. I felt the tight muscles in the shoulders and first couple of weeks I felt like my brain was getting enough blood. Posture and sleeping position is key. The vision, the brain fog, depression, anxiety, couldn't focus on moving objects. It sucked worst thing ever.

[@ahmdnaube3745]

What treatment are you taking? Please help.

[@Jordy40Growing]

@@ahmdnaube3745 ​​⁠I took no treatment . Just time to heal. And understanding what’s makes it worse and or better. Not knowing your situation I would say start with the basics. Posture is the big one. Roll the shoulders back , chest out , neck back. Sleeping position try to lay on your back with no pillow or a thin one. Don’t sleep on your stomach. Message for the upper back, traps, top of shoulder blades. Get the knots out best as possible but only do what is tolerable. Hope this helps some.

[@dcomilkduddcom3809]

Yo you dealing with this too I figured out good waking and sleeping posture thing too I really need prolotherapy though.

[@dcomilkduddcom3809]

@@Jordy40Growing Thats how I started too but I got in a further accident if your cci is too bad even that won't work. What I do is relax and make sure not to use my neck while I'm trying to activate separate musculature and focus on the surface area of my feet at 3 points your feet are like a right triangle with the pinky toe and back outer part of your heel as the right angle. Also to walk you simply pull foot back while keeping rest of body relaxed to let natural reflex from hitting the ground do its work. Foot should feel comfortable with good shoe support since if it feels like a massage, you got max surface area. I go on daily walks on a long flat concrete boardwalk walking rhythmically and softly listening to my body, which helps, but i still get reinjured doing minor things and am in a pretty viscous cycle. Some symptoms like deafness, heedfulness, weakness, numbness are at bay most days because of this. Don't overeat sugar and carbs, drink water, eat vegies, protein, healthy fat and sleep on time every night (dont eat before bed). When you sleep you need to support your body and feel the ground evenly and slowly getting heavier to fall asleep. You need a firm larger pillow for side sleeping and a thin soft one for back sleeping Then rotate from three sides calmly without adjusting a bunch of crap when you move you gotta be efficient so you can lay still. It's all about efficiency if you think about it. Also noticed if you do smethin to set it off you wont feel hurt until later in the day or next day, but previously exercising too hard or car rides will set irt off. Tv and lights now flare it up whereas was fine before. I'm basically just doing my best until prolotherapuy i need it bad im getting so weak. Feeling faint easier, less tolerance to exercise, hot and cold the more times i go through this reinjury/healing cycle since daily life get rough y know.

[@Jordy40Growing]

@@dcomilkduddcom3809I notice that big heat waves like I’m having where I live causes symptoms not full on but noticeable. If you’re ever able to use dip exercise bars just doing one and holding for a few seconds then over time increasing the length of time held up. I found that after doing that every day for a month my symptoms slowly went away. I wasn’t doing it for my neck but for my sore shoulder and trying to increase strength for stability. So I think it also helped strengthen the trap muscles. Prolotheary helps stabilize so I think why can’t muscle strengthing help stabilize.

[@tinalyon4606]

Many of us had these symptoms after covid and COVID VAX

[@ivansmiljkovic9097]

spot on.

[@ΝέναΑ]

Ι have them since then...

[@AD-kh8yw]

مثلي تماما نفس هذه الاعراض بعد اصابتي بكوفيد من سنتين ومازلت اعاني

[@dangerboy1111]

trauma

[@dcomilkduddcom3809]

What I do is relax and make sure not to use my neck while I'm trying to activate separate musculature and focus on the surface area of my feet at 3 points your feet are like a right triangle with the pinky toe and back outer part of your heel as the right angle. Also to walk you simply pull foot back while keeping rest of body relaxed to let natural reflex from hitting the ground do its work. Foot should feel comfortable with good shoe support since if it feels like a massage, you got max surface area. I go on daily walks on a long flat concrete boardwalk walking rhythmically and softly listening to my body, which helps, but i still get reinjured doing minor things and am in a pretty viscous cycle. Some symptoms like deafness, heedfulness, weakness, numbness are at bay most days because of this. Don't overeat sugar and carbs, drink water, eat vegies, protein, healthy fat and sleep on time every night (dont eat before bed). When you sleep you need to support your body and feel the ground evenly and slowly getting heavier to fall asleep. You need a firm larger pillow for side sleeping and a thin soft one for back sleeping Then rotate from three sides calmly without adjusting a bunch of crap when you move you gotta be efficient so you can lay still. It's all about efficiency if you think about it. Also noticed if you do smethin to set it off you wont feel hurt until later in the day or next day, but previously exercising too hard or car rides will set irt off. Tv and lights now flare it up whereas was fine before. I'm basically just doing my best until prolotherapuy i need it bad im getting so weak. Feeling faint easier, less tolerance to exercise, hot and cold the more times i go through this reinjury/healing cycle since daily life get rough y know.

[@crystalcarter1199]

Caring medical. Ross Hauser . Hes on youtube many educational videos most doctors dont have a clue about. I get prolotherapy there! Caring medical Forte Myers Florida.

[@StarHarvestOfficial]

How did it go for you?

[@Naturevsnurture86]

Fimally.sadly someome else who gets it and i am.proud ofnyounfor shharing your story. I have a question do you have a chair malformation at all with cci?

[@angiechesser8511]

I don't know about @theprolopatient but I do.

[@charlie2105]

In the end which doctor finally pointed you in the right direction?

[@theprolopatient]

Dr. Ross Hauser at caring medical

[@TK.000]

I have all of these symptoms. I've had two whiplash's and a fractured c2. I bet this is my problem and what I need to fix it.

[@ToddDouglasFox]

Good bet. Find a good prolo doctor.

[@UltimateGamingNow]

Hi Josh. Do you also have neck pain in the c0-c2 area? If yes, did prolo help? Are you still improving with each round of prolo?

[@briannadeir4711]

I have most of these symptoms and have for several years. They are just gettinf worse as time goes on. Where and how did you get diagnosed with craniocervical instability?

[@theprolopatient]

Caring medical / Dr. Ross Hauser

[@melhikaresven2615]

Am 51 year old male. Been having symptoms for at least 6 years now specially the palpitations ( had 3 ECGs and nothing wrong was shown) was diagnosed with depression 5 years ago, went on Zoloft, stopped, had a horrible 2023 with anxiety and depression, back on small Zoloft dosage and for the last 6 months I started getting this word sensation in my neck, feels like the need to move it all the time, shake my head rapidly and one ear tinnitus, mainly my left ear and it actually feels like discomfort in the left lower part of my head, pain that radiates to my right arm, tingling all the way down to my right hand, back pain. Is this it ? Please help😢

[@kkfg7445]

I am feeling same symptoms is it this

[@marygleeson352]

Have you had any scans? For CCI you need a digital motion x-ray so they can see how your vertebrae move. A brain MRI could be helpful too, you could have intracranial hyper or hypotension or a perilymph fistula since you mention your ear. Just a few ideas.

[@deepzepp4176]

I’m in a weird situation atm, and have experienced many of the symptoms you mentioned. I’m just stuck as to whether it’s a PRi programme I need to follow, or I have cervical instability, and need to follow those recommendations.

[@Jinnyjammywhammy]

I am suffering with heart issues due to this! Where do you get treated for this?! I need help!

[@EmpathHands]

im strugling to find prolotherapy in my country

[@MissHaotic]

Where are you from?

[@basicbarks]

I went to Caring Medical, two years ago, got prolo. Symptoms went away for 2years....now they're back almost worst then b4!! In the last two months probably went to the ER about 8 times

[@theprolopatient]

I would love to talk to you more in-depth about your situation please reach out to me on Instagram

[@laurachickadee6969]

@basicbarks If you don't mind answering roughly how much was the cost?

[@ToddDouglasFox]

How many treatments did you get and at what intervals? Did anything occur during the 2 years, like a slip or fall, hitting your head, etc.? Have you checked back with Caring Medical?

[@Jinnyjammywhammy]

Where did you get diagnosed and treated for CCI?

[@theprolopatient]

Caring medical! Video about that process coming soon

[@chellyw63]

I have suffered severe nausea and vomiting for 3 years, always when ai have this, I have severe pain in the back of my neck, base of neck, also have had many tests by gastrologists, but I really believe this is coming from my neck, my temperature also totally fluctuates, like my body can’t control it, could this be caused by cervical instability

[@theprolopatient]

Absolutely!

[@YeshuaKingMessiah]

So prolotherapy simply regrows the connective tissue? Using sugar water Or did the tissue get stem cells -and platelets I think it was?

[@ToddDouglasFox]

Yeshua, it’s the technique of prolotherapy that is essential. What is in the syringe is secondary.

[@YeshuaKingMessiah]

@@ToddDouglasFox so jabbing it is exciting the tissue somehow, to do something? I think what’s inside is being put in specific places to cause a change.

[@ToddDouglasFox]

@@YeshuaKingMessiah nope, what is in the syringe is not the reason injection treatments properly done are effective. When you get injured, you release endorphins AND more importantly growth factors. Platelets are the 911 responders. They come to the site of injury and begin repairs, clearing debris, and regenerating tissue. When there is macro injury, the body often cannot regenerate comprehensively. Ligaments and tendons are the only tissue in the body with such poor blood supply that NONE of us no matter how fit or healthy or young will avoid degeneration once there is damage to these tissues that the body cannot repair. As time goes by, the condition worsens exponentially. There is no special way to get this to reverse without micro injury, aka prolo. Eventually the degeneration exceeds any ability for the body to maintain enough viable tissue and the beginning of pain and weakness becomes the overriding issue from the patient’s persepctive. When there is severe acute injury to the ligaments and tendons rather than chronic degeneration, the solution is the same, prolotherapy, also called regenerative injections. Without this technique, no matter what is put into the “area”, no regeneration occurs to the tissues that hold ALL joints together. There is relief only. It doesn’t matter if it’s platelets, stem cells, o3, other growth factors, various nutrients or anything else. Because platelets are what come to the site of injury first to stop the bleeding AND more importantly they direct the regenerative process, they are the ideal substance to add to prolotherapy technique. Hope this helps you.

[@petesenn1367]

Have you done or considered the PICL procedure done by Dr Centeno?

[@MissHaotic]

Hey, did you do PICL with dr. Centeno?

[@theprolopatient]

No I haven’t. I don’t think I’ll need it. Thankfully, because it’s extremely expensive

[@yazma8022]

Did you experience frequent migraines and tension headache's along with sharp earache and jaw/teeth pain

[@deepzepp4176]

Do you suffer with TMJ/TMD?

[@quiettime1195]

That's related yes. Sympathetic nerves in the jaw and cheek area.

[@laurenarayanan7729]

I dont think we have prolotherapy in my country..where r u from?

[@bretthurney]

prolo isn't approved by most insurance---docs do it as cash pay in the US, its done in other countries as well

[@StarrAndrewsStrongHGactivist]

Do they Inject this into your neck and spine ? Do you have more treatments well injections to keep it from coming back worse ?

[@theprolopatient]

Prolo is a series’s of injections once you build the stability back in the joint it stays stable unless you injure yourself again.

[@El_Superhombre_Blanco]

How are you doing now? Where did you get the prolotherapy?

[@theprolopatient]

I’m doing much better still not back to my old self but getting close. I had prolotherapy at integrative rehab medicine and caring medical.

[@El_Superhombre_Blanco]

@@theprolopatient glad you're getting better.. which place do you think is better? How many sessions have you had?

[@hummingbird7713]

I have a lot of these systems. Have now resting bpm too

[@thomascraig6814]

I’ve had similar symptoms since 2019 but even with an upright MRI they can’t find anything wrong. Could you help me?

[@theprolopatient]

Absolutely please reach out on Instagram

[@ToddDouglasFox]

Thomas, musculoskeletal ultrasound images soft tissue damage that an MRI does not.

[@Salma-dy7qt]

Did your symptoms persist 24/7 or did they happen on and off/ you had days where you felt nothing?

[@theprolopatient]

Yes, my symptoms persisted 24/7

[@crystalcarter1199]

Where did you get your prolotherapy at?

[@yazma8022]

I have a question, did you experience alot of pain in leg's and knee's while walking

[@theprolopatient]

I did have some nerve pains in my legs

[@marionharris5952]

Are you doing better now?

[@theprolopatient]

I am doing much better now I would say I’m about 80% recovered thanks to Prolo

[@chrisrosskennedy6814]

Some of you all might benefit from Curalistic’s channel and also a Theracane pressure point cane!

[@lkim381]

I did

[@Salma-dy7qt]

Is ultrasound alone enough to accurately diagnose cci? because unfortunately I dont think dmx is easily accessible where I live

[@theprolopatient]

I would definitely suggest getting a DMX if possible for the most accurate diagnosis.

[@YeshuaKingMessiah]

I can’t imagine paying for a dmx! Or any of these treatments. I can’t work.

[@ToddDouglasFox]

@@YeshuaKingMessiahdo a crowd fund, many have had to do this.

[@Sx-lf6ou]

Hi did the ent doctors listen to your cartoid artery in your neck re the pulsating tinnitus?

[@Christinesobsevations]

Lol my ent sent me to neurologist 😂😂😂 yep I’m getting g ping pong too . Wish I could afford regenerative therapy .

[@XX-166]

If you’re fused C3-C6 and still experiencing these headaches, neck pain at the base.. pain radiating from the top back of the head down to the base… how would this therapy benefit me?

[@theprolopatient]

There’s a girl named rachel elizabeth on KZbin her is fused and had wonderful benefits from prolotherapy. She went from being bed ridden too climbing mountains and hiking. Check out some of her videos

[@stoner2055]

She also started the carnivore diet , and some brain retraining ! I’m gonna say most of her benefits came from carnivore diet 🤷‍♂️

[@YeshuaKingMessiah]

@@stoner2055I’m gonna say brain retraining I was carni when my symptoms developed I’ve been carni since I’m getting worse and worse

[@ToddDouglasFox]

⁠@@stoner2055a carnivore diet would help with energy and muscles but it will do ZERO for ligament and tendon damage and weakness. We are hopeful that with channels like this one, more people realize the simple facts of instability and why it CANNOT be remedied with diet, supplements, movement, exercise or PT (or any other modality). The way forward for those with instability is prolo and PRP evaluation by a very experienced, knowledgeable and skilled prolotherapist, who uses the correct protocols for thoroughness, sufficiency of treatment, and intervals for treatment per science and medicine as well as assessment.

[@angiechesser8511]

@@ToddDouglasFox what if you have (in addition to CCI) Cerebellar Tonsillar Ectopia? Anything prolo can do for that or is surgery the only fix?

[@deandre22]

I want to do prolotherapy but doctors are charging $1400 per session.😅

[@edzanjero353]

😢

[@K84r7]

how did u eventually get your diagnosis?

[@K84r7]

i have had chronic upper left trap pain for years, along with eustation tube dysfunction. headache daily, head pressure. i've have to sneeze and cough differently because of how much pressure is in my head. i can't focus my vision, its always moving around. super sensitive hearing in left ear, i feel the contraction in my ear to even the lightest sounds. i need to take 45 minute naps multiple times a day to relieve my pressure. I sweat like crazy when upright. etc man the list goes on

[@theprolopatient]

I’ll be releasing a video about how I got diagnosed soon.

[@k.s.v.yoganand9361]

How many sessions of prolotherapy u underwent ?

[@BeauT2118]

Who do I see for help. Please help me!!!

[@lkim381]

Holistic doctor

[@lkim381]

What state are you in

[@BeauT2118]

@@lkim381 I’m seeing a holistic dr right now. I’m getting treated for long covid.

[@lkim381]

@@BeauT2118 did you ask if they have prolotherapy?

[@BeauT2118]

@@lkim381 no I just figured out this is a thing. I’m betting ozone therapy right now. I have all the same syntoms plus more. And I’ve also been ping pong around to many drs. I am paying out of pocket right now.

[@MabalGT]

Did you feel fine when inside a moving car. But bad when the car is still.

[@DogHonest]

Who did your prolotherapy?

[@theprolopatient]

Dr. Hauser and dr. Sebastian

[@shanthanaidoo6605]

Exactly what the doctors do., my homeopathic doctor and chiropractor sorts my injections, amazing results 🙏

[@yazma8022]

@shanthanaidoo6605 hello, did you get Prolotherapy or PPI injections from the homeopathic doctor and chiropractor?

[@dangerboy1111]

are u talking about gelsemiun 30??

[@jackiesicilian5720]

Seems sinuses are effected by less fluid in the brain?

[@stephaniedoria2196]

Did you get muscle atrophy at all?

[@joanneurbanowicz4994]

Boy wish I could see Hauser but not possible have strange head symptoms.no one understands

[@krishnar246]

What are your symptoms

[@reezendrarizal2896]

Is it costly ?

[@theprolopatient]

Sadly it is fairly pricey

[@YeshuaKingMessiah]

@@theprolopatienthow much is each session

[@saraalsai]

Do your symptoms get better when you lay down?

[@theprolopatient]

Yes, laying down, always relieves my symptoms

[@shonna79]

HAS ANYONE LOST THERE HAIR????

[@theprolopatient]

That’s not a symptom that I experienced

[@shonna79]

@theprolopatient I'm beginning to wonder if its a nerve issue from my neck

[@evrwonderwhy]

I have a lot of these symptoms not as badly as this guy, but yes, I have most all his symptoms to some degree, and yes, I have lost about 40% of my hair 🙁

[@shonna79]

@@evrwonderwhy I'm telling u I wonder if there is a connection

[@ToddDouglasFox]

@@shonna79reduced blood supply can affect hair follicles and thus growth.

[@bigjob6355]

Can you faint with cci

[@theprolopatient]

Yes

[@rachelthomson1980]

What doctor treats this?

[@theprolopatient]

Prolotherapy is the treatment that has helped me most. So any doctor that does prolotherapy can help. I personally have been to Dr. Sebastian and Dr. Hauser would highly recommend either of them. However, Dr. Hauser specializes in the neck and CCI so he will be able to help you the most.

[@pverno]

Talk to multiple doctors, check out dr centeno and square them up. Talk to other patients too

[@dangerboy1111]

ok whatever its only few docter accept this now tell me how to cure it?

[@Wil_Dsense]

Correct diagnosis. Digital Motion Xray. Then if it’s Cervical Instabilty, getting treatments such as ProloTherpay/ProloZone might be the only solution to reversing the condition.

[@Nervouskeletonz]

Nucca chiropractor?

[@crystalcarter1199]

And Ent doctors no nothing. But tell you its hearing loss. No its things symptoms thsts causing my issues. I can hear its the symptoms interfering with it all. That rining in ears all noises out ears aint no joke. Make you feel like you insane! Very depressing!

[@freakattack69]

Did you too much head banging? 🤟 Sounds pretty psychosomatic to me.

[@DynamicUnreal]

It’s real dude. It’s a nightmare. It doesn’t even sound far fetched. Weakened ligaments at the base of your skull, allowing for extra movement that your skull is not supposed to have. This excess movement causes pressure on the brainstem and other nerves from different angles. Your entire nervous system is impacted causing a wide range of symptoms that all started at close to the same time. Why isn’t this a more known disease? Precisely because many doctors don’t care and will chuck real symptoms up to mental illness instead of doing investigative work and getting down to the root cause.

[@freakattack69]

@@DynamicUnreal because it is psychosomatic😉

[@DynamicUnreal]

@@freakattack69 I don’t think so. I don’t think you can “mental” your way into having palinopsia or Meibomian gland dysfunction where your eyes stop producing oil. Or the people who developed POTS, or those that developed tremors, or central sleep apnea - things that occur even when the person is sleeping. Then you have the people who have managed to have surgery for said things, who reported having lots of improvement in their condition. There are so many things left to discover about the state of the human body and diseases that affect it. Science and medicine hasn’t solved everything yet, not even close. To say it’s some made up thing by the brain on diseases where you don’t have a clue is extremely callous and cold. “It doesn’t happen to me therefore it isn’t real.”

[@freakattack69]

​@@DynamicUnrealSounds all like psychosomatic to me, sorry! These symptoms come from the vegetative nervouse system and can be caused from stress and anxiety. Do you have a diagnose with cranioservical instability? I think this have only old people or after a car accident I've also heard that it appears combined with EDS and it hurts really bad, you cannot even move your head. But it doesn't come out of nowhere like a flew.

[@DynamicUnreal]

@@freakattack69 I haven’t been diagnosed, but I have all the symptoms. The base of my skull makes cracking and popping noises when I turn my head left and right. It’s more likely to happen with accidents and with EDS, but it doesn’t necessarily have to be the only way. It’s ligaments, repeated physical stress can wear them out. Ligaments from other parts of the body stretch and tear from overuse, why can’t those? In my case, I spent hours upon hours with my head tilted forward for decades. Sometimes in a lying position with extra pressure from a wall or object behind my head. One day out of nowhere my daughter tells me “dad, you’re shaking.” I look at my hands, and they’re vibrating like a Parkinson’s patient. I would wake up in the middle of the night with flickers in my eyes like fireworks, paparazzi-like camera flashes, my body vibrating like a cell phone as if I was being shocked with electricity. I wasn’t stressed at that time. Before that I felt I was at my mental peak, life was good and I was looking forward to my mid 30s. Now 2 years later, my life is a nightmare. I get in a car and after about 30 minutes I feel like I’m going to faint, all the symptoms hit me at once. You mention the nervous system. Why wouldn’t the nervous system be messed up? Your brainstem, vagus nerve, and blood vessels are slowly being compressed and decompressed who knows how many times a day? You don’t think that can impact the nervous system? Wouldn’t the nervous system have a chance to heal if it wasn’t constantly being compressed? The psychosomatic label is just something doctors made up when they are too lazy to do their jobs. This is real and human beings are suffering, perhaps unnecessarily.

[@wardy1461]

Did u ever have weak muscles in the neck and feel dizzy ?

[@theprolopatient]

Yes, a lot of muscle weakness all over my body. Vertigo/PPPD dizziness all the time

[@wardy1461]

@@theprolopatient i have trouble with muscles at the base of my skull and I have trouble with balance and vision and always feel strange it's so horrible but I have an EMG test next week

[@theprolopatient]

Would highly recommend a digital motion x-ray. That is the most accurate way to diagnose any cervical misalignments.

[@maritzaarroyo3692]

Good to learn. My MRI came with this diagnosis. I had been experiencing the same symptoms that you mentioned for 2 years. I hope this time I can get a treatment. 🫶🏻

[@DynamicUnreal]

What? How? I’ve gotten multiple MRIs and no such luck, despite having all the symptoms.

[@marygleeson352]

​@@DynamicUnrealDid you get a DMX at all?

[@DynamicUnreal]

@@marygleeson352 No. I am trying to rule out other things first before I decide to spend my life’s savings on out of pocket care. For the past month and a half - I have had severe autonomic nervous symptom issues so I am trying to get my doctors to determine if I have Multiple System Atrophy or not first. Depending on the outcome of that, then I will or will not seek out of pocket diagnosis/care for possible CCI. I want to know whether I am dying or not first.