Small Fiber Neuropathy and ARA-290 Results

Presented by the Foundation for Sarcoidosis Research and Dr. Daniel Culver of the Cleveland Clinic.
Small fiber neuropathy (SFN) is a common and underappreciated condition that affects many sarcoidosis patients. Predominately affecting peripheral nerve fibers which control perception of pinprick, cold, and heat, symptoms may include numbness, tingling (pins and needles sensation), and burning, stabbing, or electric-like pain. Often misdiagnosed as fibromyalgia, small fiber neuropathy can be devastating to patients with few reliable treatment options.
ARA 290 is a potential therapy currently being researched for its safety and efficacy for the treatment of neuropathic pain in patients with sarcoidosis, as well as its potential for disease modification and long-term functional improvement in this condition.
In this webinar, Dr. Daniel Culver of the Cleveland Clinic will provide an overview of small fiber neuropathy in sarcoidosis patients from diagnosis to treatment. He will also discuss the results of the most recent clinical trials looking at ARA 290 as a potential new treatment that may help sarcoidosis sufferers.
To learn more, visit www.stopsarcoidosis.org.

[@elsagrace3893]

I am so happy to see this! This trial began in Aug. 2014. 3 years ago.

[@phinehasfenne]

the best neurotphy information I have come across

[@safiyayy777yilmaz2]

Anyone here that was in the trial or tried the ara290 elsewhere?

[@zilandizayee5579]

Cosette is there a way I could contact you? I really need to get some information about this treatment

[@zilandizayee5579]

Cosette I don’t use social media but Email would be great. Thank you so much [e-mail]

[@zilandizayee5579]

Cosette Dear Cosette I haven’t received an email from you I was afraid you might have sent an email but my email sometimes doesn’t work. I can provide my whatsapp number or maybe this email will work [e-mail] Thank you

[@zilandizayee5579]

Cosette got it thank you so much

[@freethinker4597]

Does this need to be injected in the effect area ir it doesn't matter

[@prose1964]

It’s 2019. Any updated info?

[@eduardomartinez9924]

It’s going into phase 3 FDA trials

[@samfromboston225]

@@eduardomartinez9924 Could you please share with me a link to follow up on this?

[@michelemilesgardiner4522]

Where can I find ARA-290 or IV therapy in the Los Angeles area? My husband has terrible neuropathy. Thank you.

[@BoEnglish1]

Likely Dr Mark Ghalili or Dr Matt Cook with Bioreset. Or possibly Rand McCain DO