SoCal couple shares journey after early-onset Alzheimer's diagnosis

Рет қаралды 10,865

Күн бұрын

Пікірлер: 34

@ianhoyle8459 Жыл бұрын

I’m 53 looking after my wife 55 years old with EOD diagnosed October 2020 after four years of hell. We are slightly further on with the illness than these lovely people. I’m dealing with extreme mood change, Incontinence, not able to have true conversation and my wife does not remember my name anymore. We still love each other and muddle through the best we can. ❤

@cub2001 3 ай бұрын

My wife was diagnosed in 2020 at age 56. She graduated from Cornell, now she can't work her phone. What hits home for me in your comment is, " muddle through the best we can". Amen. As I put it, I'm making shit up as we go along. God Bless you.

@ianhoyle8459 3 ай бұрын

@@cub2001 Thank you for your reply and for your understanding, my thoughts are with you. My wife struggling to use her phone was one of the first indications there was something wrong. Along with buying the same items from the supermarket until the cupboard doors wouldn’t close. I decided to take part in the 100 mile cycle around London. My wife had a new car that year with sat nav and went shopping to pick me up later. I finished the ride at 3.30pm soaked to the skin, cold, hungry, exhausted, almost no money (enough to buy a coffee) and so after confirming I was finished I contently waited for my ride home. She was only 20 minutes away. By 10.30 at night I saw her drive by me got the third of fourth time like Mr McGoo completely oblivious to my presence. I was by that time standing in the middle of Park lane after many short but direct phone calls, incensed breathing in deeply the warm exhaust fumes! Eventually a black cab driver noticed me and came back around to find out what this idiot was doing. He immediately took charge told my wife to wait where she was and once he had the name of the street we were once again reunited… He accepted no money and saved my life that night. I know there can be much worse things that can happen but I can’t describe a more distressing experience where I just couldn’t understand what the problem was. Now of course I truly know poor thing. 🙏🤞☀️

@matw1x Жыл бұрын

The caretaker suffers the most when it comes to these things.

@JCourts2k23 Жыл бұрын

Id just like to say how sorry about this, its a terrible disease. I lost my dad 2 years ago this November at the age of 72. He and my mom would have been married 50 years the net month. He had it for about 4 years. We took care of him at home with help from Hospice at the end, and in the last week at the hospice hospital. By the end he didn’t remember me, it still breaks my heart till this day. He never got mean, or tried to go off by himself, he pretty much stuck by my moms side. I hope she gets all the help she can, and is blessed with an easy go of it, cause i know alot of people dont.

@frostynerd24 Жыл бұрын

Sorry to hear that, man. My grandmother died at 72 of the disease back in 2008. She would be 87 if she were still alive. She died before I even turned 4. She got diagnosed at 60. But my mom started noticing the symptoms in her when she was 56. I think about her every day. 🙏

@JCourts2k23 Жыл бұрын

@@frostynerd24 thank you, much appreciated.

@andreamiller1550 Ай бұрын

This made me cry. I feel for both of you but especially for the caregiver. Praying for you both.

@ThePurePlayaz Жыл бұрын

53 years old... omg I always thought it was 70+

@krystal2373 8 ай бұрын

Its mourning the death of a loved one while they are still here. Very sad.

@InternetKev Жыл бұрын

Thank you for posting.

@zoraidita2022 Жыл бұрын

There is a place in Jalisco, Mexico where this gene is very dominant in a couple of families... They even get diagnosed in the early 30s, and die in there early 50s... I'm hoping for a cure. Both of my parents had memory loss. And in Colombia too. They have a genetic studies at USC.

@gabriellalopez1017 5 ай бұрын

Oh man my dad has deep roots in Jalisco. ill have to learn more about this.

@zoraidita2022 5 ай бұрын

@@gabriellalopez1017 they have a study at USC, so might want to start there

@louise8752 Ай бұрын

Beautiful couple, incredible love

@zoraidita2022 Жыл бұрын

Its so hard. I hope that people in this situation get POA right away!!! Because conservatorship is very difficult to go through.

@lramos8966 Жыл бұрын

I'm sorry

@thisorthat7626 Жыл бұрын

❤❤❤ For Dawn and Cecil. She is handling a lot with an amazing attitude. Cecil is positive energy and obviously appreciates his wife's love and care. Please look into the power of diet to help with Alzheimer's. Our brain can thrive on a low carb, high fat diet. Sending you both blessings.