SPECIAL NEEDS TODDLER CLIMBS OUT OF HIS CRIB Angelman syndrome

[@Joy-zf6cs]

Emily, Please let your community of friends and neighbors help you. You need and deserve it more than ever. Please do not feel bad about complaining and expressing your frustrations with us . You need to!

[@teriholliday9845]

I will be praying for your mom and family. I almost lost my dad last night. There are NO words to describe how painful that feeling is. YOU ARE WONDERFUL!!!!

[@chellow7]

10:45 DO NOT APOLOGIZE! I look forward to your videos! Doesn’t matter your content, your family’s story is important to me and I like to follow your daily life. I’ve been here since Posey was born, and went back to the beginning after that. You go ahead and tell us anything on your heart, I’m sure many of us watch because we relate to your struggles. It makes us feel better just like you mentioned how that podcast makes you feel better. Much love, girl ✌️💖

[@chelseamunson285]

Honestly, I am relieved to hear you speak of the troubles of motherhood, it's real. Shows we aren't alone and you aren't either. Your feelings are valid and I'd rather you be honest then pretend parenting toddlers is anything but a train wreck. Toddlers are no joke. I feel like i deserve a daily award for surviving the day with mine lol!

[@neahorton5351]

YES! THIS!

[@fionascheibel977]

You are not a miserable human being. You are an amazing daughter and mum and wife who is so tired and overwelmed and probably needs the world to pause while you catch your breath. I feel super privileged to be able to have a glimpse into your life. I dont need you to pretend to be all put together. I love your openness in sharing your brokeness. I appreciate people who are real.

[@Oreoandnilla]

Awww Emily didn’t ever apologize for what kind of content you are putting you if they don't like it they don't have to watch it, this is real life stuff its just what is happening now, hope everything calms down soon sending lots of love and positive energy 💕

[@foxgeirgesda]

Sending love and prayers for your mom-and for you, too...being a mom of lots of kids is exhausting, full of joyousness, fun, chaos, hard moments...all the emotions. You are doing GREAT, Emily-it’s just a lot to cope with. May your days become easier! A safe bed will ease your anxiety greatly-I hope that grant will come through quickly. MUCH LOVE 💕💕💕💕💕💕💕

[@jessicaputnam3973]

Start a go fund me for his bed! I know your subscribers would love to help!

[@peppanotpepper4672]

Thank you for being open, honest, and real. I work with individuals with different abilities and I see how much their families love them, but I also see how hard it is on them as well. I have seen how hard it is for many parents to say "Yes, I am having a hard time" "I am frustrated" "I am sad that they have [insert diagnosis here]" "I need help" "I need a moment to regroup" Thank you for opening the door to have these conversations and providing insight for those working with these amazing persons. I cease to be amazed by the incredible strength and tenacity of these families/parents - including your family ❤️

[@sarahbenz.h4647]

I loved Harrison's face when you said "then you won't need me anymore" LOL. The kids are growing so fast!!

[@diamondchamberlin6285]

I love you and your sweet family sooo much !! I also wanna add that your willingness to share each moment of your life and how real it is ( all the good , bad , ugly , crazy , and everything in between moments ) ; those are what personally keep me subscribed to , watching and liking each of your videos . Even though my children are all grown now and I have eight grandchildren ; I watch because I know what it feels like when they're young and you're overwhelmed . Just know that I ( and I'm sure a whole lotta other viewers ) will agree we love you just the way you are Emily !! Keep your head up and a smile on your face !!

[@jeanieengland8682]

Do NOT apologize- you are being honest and not fake! Be yourself! You are one of my fave KZbin persons!

[@jpepper6309]

We all go thru seasons in life. The last 7 years have been hard for me and sometimes I just want to throw myself on the bed and sob but then i realize i dont have the energy.😄 Sound familiar? Just know that we care and we want to know what is truly going on so that we can understand more about angel man syndrome. Go ahead let it out as you cant keep it bottled in.

[@kathleenhume9456]

Oh Dear Emily, I wish I lived closer to you (I do live in PA) . I would help in ANY way I could. I understand your frustrations will all that your going through. Many years ago now when my youngest was young (I'd say 2 thru 10 or so) he was diagnosed with ADHD & a couple of other things that made him very difficult. It wasn't anything like Angelman Syndrome I'll admit , but it was so difficult! AND to make it a bit more difficult, I was 45 when he was born.Emily, don't worry about your "burn outs " they can "help" to get you through. Don't worry about "us" ! We all love you no matter what!! I would like to say what a WONDERFUL husband is Will. 💙

[@patriciaquick6177]

Emily, god bless you! You are a wonderful mother, wife, and daughter. Keep your head up and there will be a light at the end of the tunnel!! You're so strong girl!!

[@patmolnar8810]

All your kids have love and respect for each other. Just imagine them when they are adults, they will be so close.

[@tanya32757]

My love and prayers are with you all! 🙏❤️. Emily, your KZbin community is here for you to vent your emotions, tears and frustrations. You are blessed with such a wonderful husband to share your joys & heartaches and to be your rock. Get well wishes to your mother and may she find relief with her condition.💝

[@carlacrouch6785]

Don’t feel bad , there’s always a rainbow at the end of the storm ! I can’t wait to see your rainbow !! I know is coming really soon 🙏🏻 . I’m praying for your family !

[@TheNOISENOISEZETLAND]

Emily this is your channel we are here because we like your realness and your family's realness. You ARE going through a lot you don't have to pretend otherwise. You all are in my prayers

[@fredahensley3853]

Emily you have alot of stress on you right now. You are a great mother and it shows. I'm praying for you, and your mother's health.

[@lucyseven4187]

The reason we watch is because you are real. We have all been there in one way or another. We all have our struggles, but supporting each other and connecting through the internet/KZbin is a help to many. Thank you for documenting your life. Oh and Hi Harrison, you did great on your hair!

[@bonnie3994]

Prayers 🙏 for you all,,y'all are Wonderful 🙏💖😀👍🌟🌟🌟🌟🌟🌟🌟🌟🌟

[@Patty-jj4en]

Sending prayers for mom and dad griffin ,and your mom and dad. 🤗

[@lindablake1563]

I hope your Mum feels better soon, the kids are hilarious, Sawyer looks like Harrison, the way you are feeling is normal for all the stress and worry you have at the moment. Take care XXXXX💖💜💗

[@laurenmmendoza3215]

Don't forget YOU are wonderful too! We ALL have mom fails & get overwhelmed! This too will pass. 🙏🏻❤️

[@CrystalTara]

I just want to give you a big hug. You are amazing for all you do! 😘😘

[@alwaysaa5063]

Good job Harrison !! I would have left it exactly the way it was. I have learned to pick my battles over the years with my kiddos. Hair is definitely on the low end of the totem pole. Nice job big guy. You will only get better. Oh, Emily, please don't take that the wrong way. You are an amazing mother. I could never do what you tackle every day.

[@debrabutler9954]

Just do the best you can. We love you. Will and the kids love you!

[@juliealderson1180]

You are not a miserable human being! You are just handling life and everything it throws at you. Stay strong, your kids are really wonderful and your love shows in their faces. Hoping your mum makes a speedy recovery and supportive love wishes to your dad! Xxx keep your chin up Emily... YOU ARE WONDERFUL. XXXXXX!

[@ChloeMockridge-sg1no]

you guys are so strong

[@kimcressman6508]

Ur not being miserable 2 us this is ur life and ur doing well even though u don't think so at times love u guys prayers 4 mom!

[@susanschneider3683]

Have you considered converting Griffin's sleepers to "anti climb" sleepers? Examples are on Amazon and Etsy. They restrict mobility just enough so that legs cannot be swung over the crib. Might be a short term solution.

[@hutchiea1]

Would making a bed be an option? That's not an easy option either. Sending prayers. Love you guys.

[@kayleenking1835]

Don’t be so hard on yourself, you’re only one person. Don’t be afraid to ask for help! Sending more love and prayers! Side note: I thought I saw Griffin chewing on the end of a balloon or was I seeing things? I got a little scared.❤️🙏

[@tonisangel5024]

I'm praying for you sweetie and praying for mama...always remember I know that I can speak for all your viewers that we will never be sick of you and your troubles that's exactly what friends are for to listen and to help you also give it to God talk to him pray for strength and peace in your heart I wish I was closer to help y'all out! Sending big hugs and lots of love...🙏🙏🙏❤❤

[@sallycroft2191]

Oh dear girl, I wish you had more support. You can't be all things to all situations or you will burn out. Praying God will give you strength to get through your days. Do you have friends or parents of children at school that can do drop off and pick up of Harrison and Wynn? Order groceries online. A couple of teens that can come in after to school to play with the children. Can Will's Mom come for a visit? You and Will need support. Don't be afraid to ask for help!

[@kathleenharris2239]

If you can’t get a grant for the bed would you try a go fund me.You have a lot of us who would so love to help but we are so far away.But helping financially,we could.We just love you guys❤️

[@maritapersdatterolufsen5174]

I could not agree more! I hope they will start a go fund me. I would so much want to help them out. 😘 Love to watch all of their videos. ❤ I cross my fingers for both Griffin and grandma. 🤞❤

[@crohniequeenab]

Yes some other fundraiser the go fund me is not the best.

[@blakemama]

Please do not lose your mind. You kind of need it. You have the entire world on your shoulders right now. Will is there and supportive and is as generous with his time as you are. This chaos is so much. Doing your Mom's work on top of your own is just icing on a very full cake. I worked from home for 20 years and some days there just was no catching up so I stayed there at the computer until it was done. I had a commitment to keep. It's a big responsibility to be a work-at-home Mom. I did it with 3 kids a total of 14 years apart. Doing it with 6 under age 10 makes for a very busy life. I pray for your Mom's recovery and understand how ill she is from your words. You have a virtual support system here. Everyone who's here wants to hear what you have to say. I'm not going anywhere.

[@janicehall1611]

Sweetheart don't ever apologize for sharing your struggles everyone has them but you do have a lot on your plate like you said you got your mother you got your kids you have your husband you have work you're doing a great job a great job so just hang in there and your mother is in our prayer I love you guys

[@kimcressman6508]

Sawyer is resembling Harrison more and more! Posey is a smartie!

[@amandawireman535]

Praying for you and your family Emily no need to feel bed your being real and I appreciate you for that ...... bless your heart

[@donnafrance9608]

Praying for your Mom and lil Griffin

[@courtneygardner263]

you are doing amazing! we all have our ups and downs! you will get through this season and be so much stronger

[@joystevenson9014]

Hi why does griffen still need his dummy you r doing a great job. But you must find time for yourself.

[@gpbball6749]

I don’t know if u have thought about a crib tent - I was 100% against this tent but bc my grandson climbed out of his baby bed at 10 months & I have hardwood floor - so on Amazon I found a tent that the mattress sets on top and it zips - Bc I so feared him getting hurt I tried it & it was perfect & I love it & the fact is it really helped w sleep training on my granddaughter I bought it on Amazon & it’s Amazon choice crib tent - it was $139 when I bought my first one but I just looked it up on Amazon & it is only $75 - I have a camera in their baby rooms so for the first month all I did is watch them & it’s turned into one of my best purchases- & it’s made out of same material the new breathable net & all security ties are where a child can’t reach and bc the net has a base that fits in the crib & the mattress sets on top - a child is safe - just thought it may help - always sending prayers for your family & especially ur mom - hope this may help

[@kathleenharris2239]

Praying for you Emily❤️You’re having a tough time being pulled and worrying with your mum and Griffin.Remember you are doing it even though it’s so incredibly hard and you’re exhausted.I so wish I was close by to take on some of your load.Remember you guys are wonderful❤️❤️

[@jazzyj4765]

I think Griffin will be fine in the crib for a bit longer, especially now that the mattress is on the floor. I'm sorry you're going through so much right now. Please don't run yourself into the ground. Prioritize what's important and let the little things go. You cannot always be in control of everything...and sometimes it's better not to sweat the small stuff. You'll get through this! Sending you lots of hugs, love, and prayers.

[@goldilocks3752]

If your Wamart has curbside pick up or delivery, I'd for sure take advantage of that service. Prayers for your family.

[@cindyvanroekel4773]

Stay strong . You can do it. Girlpower. I love to watch the vlogs...💟 You have a beautifull family

[@jennymiles8609]

Sometimes the few minutes away from all the noise, even if it’s just going to the store can be awesome right mama? Don’t worry you’re doing great. Your kids are loved, fed and happy. Pick your battles. ❤️🤗

[@josieloveyou2624]

There's a sleep safe tall twin bed on eBay for $500

[@virgleo]

I want to bring this to her attention. I wish she had an email. It's a crib tent and could be a good solution until they have something more permanent. Also, why not turn the crib around so the short side is against the wall. www.amazon.com/Baby-Safety-Crib-Tent-KinderSense/dp/B07WHDGN2Y/ref=pd_sbs_75_t_2/147-5856218-9246153?_encoding=UTF8&pd_rd_i=B07WHDGN2Y&pd_rd_r=7d929236-87f2-4ceb-ba80-c0c46a5f6652&pd_rd_w=ykl8d&pd_rd_wg=nVtAK&pf_rd_p=5cfcfe89-300f-47d2-b1ad-a4e27203a02a&pf_rd_r=5VVBE2F8A8KS0A6MKT7Q&psc=1&refRID=5VVBE2F8A8KS0A6MKT7Q

[@josieloveyou2624]

Virginia Leone I think this is the bed they mentioned in the vlog but it's $5,000 and they're trying to get a grant or something like that to help pay for it

[@lisalamotte7247]

That's Inappropriate-Meredith Masony and Juggling the Jenkins-Tiffany Jenkins. I am a member of Hot Mess Express which is Meredith's Private group. She is a godsend for a lot of us in the group. We have made great friendships with so many people in that group.

[@crohniequeenab]

Also order your groceries and have them delivered or just pick them up. Walmart has it. Download Instacart they have the stores in your area and the same sales and you can add your loyalty cards to certain shops. The shopper shops and will deliver it to you. They can communicate with you through text in the app if something is sold out or needs substituted. It’s so nice. I use it all the time as a single mom with chronic illness and pain with Crohn’s disease and it’s a wonderful thing. Try it out. One less hassle.

[@debbiehardy8962]

Get one of those little WyzeCams. And put it in Griffins room where he cant get it. Very cheap and you can watch the videos on your cell or computer. That way you could see if he is seizing at night. They have night vision on them. I will be praying for you. Life can be exhausting sometimes. Hang in there. It will get better. 💋

[@samanthamartin3363]

Emily you do have another option US we are your KZbin family and we would all do anything to help keep Griffin safe x x PLEASE PLEASE let us help u set up a GoFundMe page and we will donate xx You are all going though a lot and it would make us all feel like we were taking some of the pressure off you all x x x x

[@emanuelaberaldo5272]

Emily sounds like your mom should still be in the hospital.....very unfair to put this kind of pressure on you. You are already soooo stressed with all these little children. Remember if you fall the entire house will fall. Take care of you first

[@kareenm175]

Emanuela Beraldo I know she loves her mom very much, but I agree that it sounds like mom needs to still be in hospital. Emily for the love of God, you cannot do it all.... you will burn out and then who take care of the kiddos. Sending love and prayers 🙏🏻

[@suecowlishaw9868]

Absolutely agree .

[@kristamorton4214]

Keep being real and you don't need to apologize! You're not living some kind of script. Life is very hard sometimes. If someone doesn't like you being real then they don't have to watch.

[@melissaalexander6736]

Does your grocery store have either delivery or a way you can just do a pickup? I’m in AZ but all of our stores have a way to order online and then I just go pick it up! It’s so much easier, especially with kids!

[@teresabowden1307]

Sending prayers for your mother and your family.

[@clarebear6736]

Remember YOU are wonderful! Yes we all go through hard times but you will get through. I keep reminding myself that there is always someone in the world worst of than me. It has helped me through some really tough times. You need to look after yourself because you will be no help to anyone if you fall to pieces. Will be praying for you all the way from Australia.

[@bionicprincess8008]

I understand what you mean about needing Griffin to walk. He is a big boy and growing all the time. You simply can’t carry or lift him. I sure hope your Mom gets better. You have so much stress. Be careful.. your kids need you to be healthy. Pls accept help from friends and/or neighbors. Hang in there sweetie 💗🙏🏻

[@tammyfountain3047]

Holy moly what a week...hang in there it will and has to get better eventually.

[@susanforget8133]

Emily... no need to reply. I was running with my very ill father for 18 months and I don't have children at home. I say how on earth do you balance it all. Take one day at a time. May God Bless you all at this very difficult time. Just know how special you all are. Love and hugs to my favorite family. Emily we are hear for you.. We are by far sick of you. I wish I could help you. I will pray very hard for you all Remember God will get you through.

[@cheriejones854]

You need to try walmart pickup- it would save you a lot of time

[@jenniferh.k.7123]

Your kids are adorable ❤️

[@ipickedjake]

I love your videos just the way they are. Mom life is tough. It is the hardest job there is. I had two kids and was a full time grandmother. You amaze me. Hugs! Wow! That s a lot of money for the bed. I hope you can find an option for some help. Hang in there. Continued racers for your mom.

[@samanthacameron-king5818]

Maybe a go fund me account I’m sure people that support ur channel would help support u with getting a special bed for griffin

[@crohniequeenab]

Listen. Its ok we all do it and you’re human. Keep showing the real life. It’s not all fun and happiness life happens and moms can get pushed to their limits too. Sometimes you can’t let your kids over take you. They don’t have to be wild to be happy. Especially in a tough time. You need to have quiet time or have them settle down because it makes the anxiety higher. It’s ok to tell them to stop yelling. Don’t apologize for being a mom and a human being. I love juggling the Jenkins and that’s inappropriate with meridith. They live in Florida and are funny. I hope she gets better. If she has Medicare the hospital could have referred her for a visiting nurse service. Her admitting dr or her primary can order one that’s covered by her insurance and send her hospital records. Have you looked at the crib tents?That you put over top to keep him from climbing out. Also look at eBay or buy sell trade on fb they may have some cheaper.

[@lorilykins2939]

Emily We are your followers, we love you & your family from afar. If we lived closer we would unite with our loving working hands. You are not asking, We as your YT Family would like you to consider a GoFundMe page. Help for Griffin, extra sitters what your needs maybe, when you need to be with your Mom. Your Dad has been a huge help now he is helping Mom. Please take time to consider our request. Your are an Amazing person & Mother. We all need help at some point in our lives. Love & Prayers. 💗🙏

[@virgleo]

why not order groceries for delivery or for pick up? You could save a whole lotta time!!

[@captainsloth2255]

Is there a chance that Griffin would never walk properly ???

[@crohniequeenab]

Yes he’s actually doing well for angelmans syndrome. But yes there is a chance he could not walk or walk normally as the disease progresses. Especially if he’s having seizures

[@bethbupp445]

Wonder if you can get a special teacher aid to Come in and help give you and will a rest break. Or a college student that can come into help you guys with the kids. You are such great parents and you do need help. Or check with your church. Asking for help only makes you strong and you need a break

[@kendraolson8714]

They have a crib tents

[@megandunn1001]

I probably dont know what I'm talking about, but couldnt you just put his mattress on the floor and then install a baby bvb gate to gate off that corner of the room? Like maybe even do two gates to make it taller. I dont know. Just speaking my thoughts. I'm probably totally wrong. Haha

[@crohniequeenab]

Megan Dunn that is a good suggestion. She did say they were going to do something like that but he is strong and needs it to be tall enough for him not to climb out. Baby gates aren’t long like vertically. He could easily rip it out I bet. Unless it’s a real sturdy kind.

[@lizpecina6355]

Can someone in the states contact Ellen???

[@irelandkingumu8153]

I have EEGs because I have epilepsy and autism

[@amsnp20]

I love your vlogs and I’m so sorry this is all happening at the same time. When it rains it pours, but the rain will be over soon. This will not be your situation forever it will pass. Praying for you, your mom and Harrison.

[@bonnienash8585]

Surely it will be cheeper for a Carpenter to make you one from scratch? It seems awfully overpriced which is so wrong as it’s for someone who has a disability. I would set up a go fund me there is no shame in asking . We all want to help. You have 60k+ subs if we all gave $1 it would be enough for a few things that would help the kids . It’s also safer than people sending money in the post to you.

[@emanuelaberaldo5272]

what kind of work do you do?

[@crohniequeenab]

She can’t say. She keeps her work separate she works online at home

[@baileewilliams6823]

❤❤❤❤❤❤

[@kristam4765]

❤️❤️❤️❤️❤️❤️

[@frances7207]

:) xo many prayers xo

[@ediedowning]

❤️❤️❤️❤️❤️❤️❤️❤️

[@lindao7887]

I've heard of people talk of some sort of netting for the top of the crib that prevents them from being able to climb out. I'll do some research and let you know what I come up with. Yes, I agree with others, start a "Go Fund Me"......IT WILL WORK. I will contribute as I know many others will also. Our prayers are also with you, you are soooooooooooooooooooooooooo wonderful! X's and O's for all. In the mean time, they make pajamas for climbers so they can't get a leg up on the bar. Check out this pair on Amazon. If you like the idea and can't find a pair large enough, let me know - I can sew some real easy. These pj's just might help, then take them off in the a.m. Check out this Amazon page for the pj's and the net covers for crib. www.amazon.com/s?k=anti+climb+toddler+pajamas&ref=nb_sb_noss It shows other pajamas but I included the entire page because it has the crib nets, so scroll down once it opens. Or, one more option, sorry this is so long - Put him in one of those sleep sacks with a zipper in the back that he can't reach, FiveTwoLove had to do that for one of their little boys. He can stand, but can't climb. They said it works. (and if you can't find a sleep sack his size, please let me know, I can do that too) :-)

[@maryrobbins5497]

💐

[@carolinecox6686]

❤

[@valeriewilliams6720]

Do you have any siblings?

[@elliemay9672]

instead of calling him a special needs toddler why dont you call him by his real name 🤦‍♀️

[@crohniequeenab]

She does. She always calls him by his name. She doesn’t say “come here special needs boy”. Like why be here if you’re going to be negative move along. She’s dealing with enough. He IS special needs! Instead of bashing them how about you offer to help them since you know what goes on in their house and what is said 24/7. If you’re not then your comment and opinion is invalid and ignorant.