Spinal muscular atrophy in Tamil | SMA | தசைநார் சிதைவு நோய் | Zolgensma injection | Save Bharathi

[@UllangaiyilMaruthuvam]

Baby Mithra got required 16 crore rupees for Zolgensma injection on July 11th. 3,00,000 people have donated to save Mithra . Thank you everyone 🙏 for helping Mithra.

[@somashankarkp9821]

Long live Mithra God bless her

[@narumugilifestyle6891]

God bless u mithra...

[@UllangaiyilMaruthuvam]

🙏, baby Mithra got Zolgensma injection on August 7th , she doing good. One more baby named Bharathi is suffering from same SMA, please share this and help her 🙏

[@sangeethabalaji8026]

Vanakkam sir, I informed the details to the boys family, they wants your help sir

[@UllangaiyilMaruthuvam]

Ok mam

[@rameshpudhuvai6564]

Naanum oruvan...indha disease enaku iruku

[@purusothpurus4595]

Bro ipo ungaluku intha disease iruka what is the symptoms for this disease?

[@jvjv6332]

Ayya dr ayya🙏🙏

[@UllangaiyilMaruthuvam]

🤗🙏

[@abisherar6652]

You should tell more about the probability of getting autosomal recessive disorders when you marry within the family vs marring an unrelated person. Doesn't consanguinity increases the chances of such diseases?

[@frthiu]

@Abishera R , Good question bro , Actually consanguinity increases the chances of many disease starts from SMA to many physical disabilities too. That's why SMA is recorded more in other countries and they do have major check for this seperately and as our doctor said the gene causing the SMA might have acts as an carrier in both father and mother , We want to study more about this as within a year as of I know 6 are affected from SMA in India ...So we need to do study more on this

[@UllangaiyilMaruthuvam]

This being an awareness video ,I didn't explain much about autosomal recessive disorders,since they are the more common among hereditary disorders.Consanguinity is definitely is one of the major cause but the probability is different for each degree of consanguinity. I will put a separate video only on autosomal recessive disorders in future. This video is only to support Mithra🙏.

[@sangeethabalaji8026]

idhe pola same pblm en ammakku irundhadhu, but ippa avanga illa, first avangalum keela vilundhu vilundhu eluvaanga, apdiye konjam konjam a nadai koranju sutthama nadakkamudiyama aaiduchu, apram ukkaravum mudiyama padutthe irundhu apdiye avanga life um mudinjiduchu sir, bt kadaisi varaikkum enna pblm ne correct a therila sir,

[@UllangaiyilMaruthuvam]

SMA and other Genetic related muscular dystrophy children la than common ah varum, same symptoms adults la vantha athuku other causes irukku ex.Guillain -Barre syndrome, transverse myelitis, etc.

[@sangeethabalaji8026]

@@UllangaiyilMaruthuvam Thank u for the information sir

[@prettysecret6236]

@@sangeethabalaji8026 may be mnd

[@sivaneshwaran7033]

Good one

[@UllangaiyilMaruthuvam]

🙏😇

[@shamna9834]

Anna oru santhegam....intha noii varama thaduka mudiuma...prgncy la ye nalla food sapda ithu maathiri kuzhainthaiku varama thaduka mudiuma.. ??

[@UllangaiyilMaruthuvam]

Ithu oru rare disease bro , normal ah we are not screening for this disease, intha gene both father and mother la silent ah irukum pothu 25 % of affecting the baby.But romba close relatives la marriage pannum pothu , previous ah family la ethachum genetic diseases irukku na, then we have screen for these diseases.

[@singaravelanrm8225]

Good ,Informative 👍

[@UllangaiyilMaruthuvam]

Thank you so much sir, 👍

[@purusothpurus4595]

Sir pls reply panunga cpk level adhigama irunthalae confirm athu MD ah sir ila vera ethavathu reason irunthalum cpk level adhigama irukuma solunga plz

[@UllangaiyilMaruthuvam]

Muscle injury irunthalum cpk athigam aagum.

[@SUJINAcom]

Plz best doctor in Tirunelveli 🙏 for my baby this same issue

[@UllangaiyilMaruthuvam]

Vanakkam , I don't know anyone in Tirunelveli , please enquire in Tirunelveli medical college for Paediatric neurologist .

[@SUJINAcom]

@@UllangaiyilMaruthuvam 🙏 thz u bro

[@nancyjanu7590]

Hello Doctor .. first baby Ku intha problem eruntha second babykum varuma Doctor......

[@UllangaiyilMaruthuvam]

Vanakkam, both parents kitta carrier gene irunthal , each pregnancy layum 25% chance irukku.

[@rajal4874]

Thank You sir for detailed information... Sir 8 years boy affected by sma ...what can we do for him for his healthy living...

[@UllangaiyilMaruthuvam]

Vanakkam ,entha age la symptoms start Achu ? Enna symptoms lam irukku ? Test reports details lam whatsapp no.6369965537 ku anuppavum.

[@arulraj7722]

Sir my daughter also having the same problem.enna pandrathunu puriyala.

[@UllangaiyilMaruthuvam]

Local pediatrician consult pannunga, local NGO kitta help kelunga.

[@TheClassickitchen]

After giving injection shall we go for ayurveda to make muscles & spinal chord strong

[@UllangaiyilMaruthuvam]

If Ayurveda can make muscles and Spinal cord strong ,why to waste 16 crore rupees in this medicine ?

[@sangeethabalaji8026]

vanakkam sir, enga family friendoda son kku indha same problem irukku, avangalukku help panna enna sir procedure , pls help me sir

[@UllangaiyilMaruthuvam]

Vanakkam mam,Please collect the test reports and hospital details and the proper attestation from the treating doctor regarding the treatment and there are multiple platforms for crowd funding like ketto,Milap, Impactguru and please contact the proper NGO's regarding this.

[@sangeethabalaji8026]

@@UllangaiyilMaruthuvam Thank u so much sir for replied me... i'll inform, once again thank u so much sir

[@UllangaiyilMaruthuvam]

Always welcome mam.🙏

[@prasanth5393]

சார் உங்க ஹாஸ்பிடல் அட்ரஸ் வேணும் எனக்கு இந்த பிராப்ளம் இருக்கு இருபத்திமூன்று வயசுக்கு அப்புறம் என்ன பிராப்ளம் இருக்கு உங்கள கன்சல் பண்ணனும் மொபைல் நம்பர் வேணும் சார்

[@UllangaiyilMaruthuvam]

வணக்கம், தங்களுடைய பிரச்சினை LGMD என்ற தசை அழிவு நோய் , இதற்கும் SMA நோயிற்கும் தொடர்பு இல்லை.

[@mujirami3957]

Anna enna blood test edutha sma disease nu kandu pdkalam pls tell me... genetic test edukanuma...

[@UllangaiyilMaruthuvam]

Lower limb Muscle weakness irukra children Ku, proper ana milestone age Ku etha mathiri reach agala na, genetic related test thevai padum.. Not for all children. Ithu oru rare disease than.

[@mujirami3957]

@@UllangaiyilMaruthuvam k anna thank u ....

[@UllangaiyilMaruthuvam]

Always welcome 🙏

[@fathireema2054]

First baby ki indha disease illama second baby ki vara chances iruka doctor?

[@UllangaiyilMaruthuvam]

Irukku mam, every pregnancy layum 25% chance irukku.

[@saranyaprabhu542]

Sir please help me enoda child 3 years intha disease affected agi irukanga engalukuku fund collect panrathu eppadi details kudukanga please.

[@UllangaiyilMaruthuvam]

Please collect the test reports and hospital details and the proper attestation from the treating doctor regarding the treatment and there are multiple platforms for crowd funding,but make sure you have the proper attested proofs of the condition, because many are questioning asking regarding the authenticity.

[@frthiu]

Hi mam , You can check with Ketto , Millap and Impactguru .. These are public crowdfunding options , Please collect the proper documents... Also check with proper NGO 's who can help on this

[@UllangaiyilMaruthuvam]

Thank u bro🙏👍

[@saranyaprabhu542]

Thank you sir

[@saranyaprabhu542]

Sir mitra parents contact mob numbers kidaikuma sir enoda ponnuku jibmer pondichery treatment edukurom sir .treatment details ketkanum sir ennoda babhy ku type 1 sma no physical work no walk no sitting. 3 years nangalum evolo try pannitom avnga contact number kidaikuma sir please kindly request sir.

[@skincareskincareskincare]

Starting motti lah vali irrukuma sir nadaka mudiyama perriyavagaluku .

[@UllangaiyilMaruthuvam]

Vanakkam, physical examination seithal thaanga solla mudiyum. Matra diseases la kuda ithey arikurigal yerapadalam.

[@ramcommunications3403]

Sir my husband kum , avanka ammavukum irukkuthu, , , , , , sir nan ippo bregnance ah irukken, child kum pathikkuma sir sollunka

[@UllangaiyilMaruthuvam]

Unga husband and mother in-law ku enna symptoms irukku ? Ithu SMA nu eppdi confirm panninga ? Report irunthal whatsapp la anuppavum 6369965537

[@jvjv6332]

Dr ninga entha hospital?

[@UllangaiyilMaruthuvam]

CNS Hospitals, Tiruppur.

[@senthamilselviraji496]

Sir recently i am bery scared about this disease.and also stress .enaku 30 age ipo indha disease vanthudum nu bayame irunthute iruku .ena test edukanum after 30 age idhu varuma sir.please reply sir

[@UllangaiyilMaruthuvam]

Comments la tests suggest panna mudiyathunga, local ortho doctor ah consult pannunga

[@prabhuathi1421]

Sir very good information I'm Coimbatore My sister 7 yrs old Nadakka mudium konjm thuram aprm kela viluntharanga but avanga nala enthurikka mudila Thirunalveli la oru hospital la treatment pattu iruntham feel better Idhuku Coimbatore la edhavathu specialist doctors irukangala sir

[@UllangaiyilMaruthuvam]

Yes bro,Maximum Medical Colleges and private hospitals in Coimbatore have specifically paediatric neurologist for managing this condition bro , definitely you can consult them.

[@prabhuathi1421]

@@UllangaiyilMaruthuvam thanks sir Give your mobile number sir

[@UllangaiyilMaruthuvam]

Dr Vinothkumar 6369965537

[@SUJINAcom]

திருநெல்வேலி ல எங்கனு சொல்லுங்கள் 🙏🙏🙏🙏🙏🙏

[@UpcomingSTAARR]

Masquler Distropyku treatment & cure irukaa

[@UllangaiyilMaruthuvam]

Muscular dystrophy diseases , mostly genetic mutations nala than varathu, ithula Pala types irukku, muscular dystrophy entha age start agutho atharku yetra maathiri treatments amaiyum, mostly physio therapy treatment than to increase muscle strengthening , Heart muscles Also affected in some types , complications athigam. Muscular dystrophy is different from Spinal muscular atrophy. SMA has gene therapy but muscular dystrophy doesn't have specific drug therapy.

[@UpcomingSTAARR]

@@UllangaiyilMaruthuvam ungala contact pannamudima sir some clarifykuu

[@UllangaiyilMaruthuvam]

Kandippa sir, Dr VinothKumar Mobile number: 6369965537.

[@nithigurumoorthynithivarshini]

Sir en kulanthaiku thodai dippy pakuthiyel satrapi pallamaga aguthunga sir ithu sma va sir

[@UllangaiyilMaruthuvam]

SMA va nu genetic testing la thaanga theriyavarum, local pediatric doctor ah first consult Pannunga, avanga abnormal ah irunthal test Edukka solvaanga.

[@sadalai6945]

Vanakam sir en ponnu ku sma than eppom 2 yrs mudichitu sir ena pannanu theriyala sir

[@sadalai6945]

Nanga thirunelveli

[@UllangaiyilMaruthuvam]

Vanakkam ,2yrs mudinthal Zolgensma than kudukka mudiyathu.. mattra Medicines irukku.. oru paediatric neurologist ah consult pannunga. Avunga guide pannuvanga.

[@sadalai6945]

@@UllangaiyilMaruthuvam nanga thirunelvel medical clg kk poitu vanthudu avanga physiotherby tha panna solluranga sir

[@UllangaiyilMaruthuvam]

Thasaigal evvalo paathippu adanchirikku , entha type SMA enbatha poruthu than treatment kudupanga. Medicine start panlama venama nu doctor than decide panna mudiyum. Improvement illana Chennai irukka Paediatric neurologist ta consult pannunga.

[@sadalai6945]

@@UllangaiyilMaruthuvam thank you sir information pannathuku

[@Deepaprabhu-]

🙏🙏🙏

[@sasthamarbles4338]

👍👍👍

[@UllangaiyilMaruthuvam]

🙏🙏🙂

[@santhoshsanthvijay9704]

Sir This medicine is available in india

[@UllangaiyilMaruthuvam]

Available in India but not manufactured here.,have to be imported from USA , we have to apply to government for relief from tax on this medicine. because even the tax itself costs 6 crore rupees extra.

[@sangeethabalaji8026]

another one question sir

[@UllangaiyilMaruthuvam]

Sollunga mam

[@sangeethabalaji8026]

@@UllangaiyilMaruthuvam but doctors muscle weakness nu mattundhaan sonnanga adhukku treatment um kedaiyadhunnu sonnnga

[@arulkarthika1114]

Sir. Can u share details about the hospital where they took this test. Feel like my kid too have same symptoms. Pls help me with the details sir. 🙏 Which hospital in coimbatore..please share the details

[@UllangaiyilMaruthuvam]

KG hospital in Coimbatore, mam.

[@arulkarthika1114]

@@UllangaiyilMaruthuvam thank you so much sir. My kid is 2yr 10m old. Active kid. Can walk well. But falls often. Can't stand on her own but can walk independently. Finding difficulty in climbing stairs. Poor eater, but eats her favorite food by her self. What kind of tests have to be taken sir. And If you know pls tell me name of the doctor to consult.

[@UllangaiyilMaruthuvam]

Not only SMA but also other types of muscular dystrophies can also cause similar symptoms, it will be better if u consult a paediatric neurologist, First clinical examination is more important than any tests.If anything suspicious in the examination ,then the doctor will decide the need for tests based on the findings.Baby Mithra was diagnosed by Dr.Ramakrishnan sir ,in KG hospital Coimbatore.

[@arulkarthika1114]

@@UllangaiyilMaruthuvam thank you so much for the information sir 🙏

[@UllangaiyilMaruthuvam]

Always welcome mam🙏,stay strong.💪👍.

[@sangeethabalaji8026]

How can I contact you sir

[@UllangaiyilMaruthuvam]

My whatsapp no.6369965537 mam.

[@sangeethabalaji8026]

Thank u so much sir🙏🙏

[@sangeethabalaji8026]

We will contact you soon sir, once again thank you sir

[@UllangaiyilMaruthuvam]

Ok mam.

[@moulis4652]

sir

[@UllangaiyilMaruthuvam]

சொல்லுங்க sir