Spinraza for All

[@DreamingCatStudio]

Congratulations! This is a BIG DEAL! The restrictions on that drug is criminal. Thanks for sharing that message. You are the perfect spokespeople for its benefits.

[@deniselong1071]

This is awesome. I hope im around to see you make leaps and bounds. Who knows what might be ahead. 🍀 Maybe your youtube will make it to people that run those departments and follow you and others as you continue treatments. But I agree the best thing to do to help support This tough disease is to contact Governers and state reps. Which I am going to do and share this video with family and friends. When the body is un anable to move it goes into a weak state where you cant move or theres to much pain to want to. I know first hand about that.. Every time im ill or down for even a short amount of time..it takes days to a few weeks for my muscles to loosten back up. Just that little bit is amazing. Im In hopes that more and more with the help of this drug youl be able to get some movement back. Youth is on your side.. Seriously..the younger we are the better we bounce back. Im excited for you both. Nows the time to share your videos with my family and friends. Ive mentioned both of you to a few. Sorry if any typos.. Sooper tired and will check it tomorrow for mistakes. 🍀😬🍀😳🍀

[@znyznyzny]

it's all about the money

[@bienvida]

I'm a Germany-based pharmacist. This drug was apparently pre-approved under the circumstances that it performed so well in the clinical trials... however the withhold in many (also European) countries with state health insurance seems to stem from the fact that it costs the system several million dollars for a very small number of patients. This is another example of pricing policies in the pharma industry blocking opportunities for treatment. There is a growing number of young health professionals like me who are becoming active in health politics, lobbying for patients and drug availability. We're gonna keep it up!! Promise

[@SwimSweetie100]

bienvida and this is exactly why I am not for socialized healthcare

[@shawnsorbom8907]

@@SwimSweetie100 Private insurers do the same thing. This isn't a public/private issue. This is a "Big Pharma" issue

[@BaNuj]

@@shawnsorbom8907 the proportions of bias if the system is the issue. In my country it's the same: you have a flu then the already cheap medicaments are cheaper, but if you have suffer something really bad then the insurance say "fuck off, pay milions". Therfore there are many PRIVATE initiatives to help PUBLIC hospitals to issue drugs, medicaments or medical equipment they need. I ask then: why socialism? what is the advantage of this oppressive and coercive system?

[@annagitana1]

@michji2, it's not oppressive or coercive. I am an American but my family is from Europe and I have friends in dreaded socialized medicine nations like New Zealand. My friend who moved to New Zealand? She got a free midwife and a free nurse to come out to her house and check on her baby over and over and help her with any issues that arose. Her oldest child's asthma was brought under control quickly when they moved there and he never again had issues like he did in the U.S. all their care is free. My father had to wait four months after diagnosis to begin chemo for his cancer, with the best health insurance possible in the US. His sister in Spain began chemo within DAYS of being diagnosed and she was able to move from Madrid to Sevilla in the midst of treatment, and continue treatment, so she could be with family. When I stayed there I was referred to a specialist for my atopic dermatitis/exczema that had plagued me since I was a baby. At the time my rash was head to toe, literally, and the doctors here had not been able to cope with it. In three days in Spain they had my skin cleared and for the last 25 years I get all my products for my skin shipped from Spain and have not ever had a reoccurrence anywhere close to that level. I also got an operation for a massive infection that almost resulted in me losing my leg, caused by getting an injection of cortisone in the US and my doctor brushing aside my complains of soreness a month later. They fixed that issue in Spain. Total cost of doctors, operation and skin specialist? ZERO. I paid for my medications which were reasonably priced. Socialized democracies are not great for rare diseases. But they are great for more common diseases, chronic illnesses like diabetes, asthma, heart disease, etc., and preventative medicine. There's no comparison to the profit-based system we have here which results in bankruptcies, lost homes, homelessness and death, on a large scale. Get educated.

[@victoriahull8852]

Hurray for soldiers like yourself will hold you and others like yourself in my prayers. God bless you🥁.

[@abieshleman8313]

Shane, I gasped out loud when you picked your head straight up on your own! It’s so amazing how this drug is able to help you! I wish both of you the best!

[@aMarie1137]

I’m crying that’s so cool Shane!!! 🤗 you’re a brilliant cheerleader Hannah 🥰

[@kaileedani]

Ari Mont-Hubbard i cried too! You’re a badass Shane! 🔥💕

[@ovenmicrowavemamma1]

I thank our Lord God for this miracle drug. When I saw Shane lift his head...tears of joy rained from my eyes. You two are always in my thoughts and prayers. More happy days are yet to come for you. Big hugs. Love, Debbie

[@aMarie1137]

Kelsey Jay are you alright??

[@feliciatowner5334]

Another video! We're so spoiled. I love it! Love you two!

[@lisaakinlabi]

Wow - so excited for you - I will share this video to let people in Canada aware of this fact.

[@katiemcbride8235]

BC is already looking into funding it, But the drug costs approximately $708,000 for six doses in the first year of treatment and about half that for three doses each year after. The drug is intended to be delivered for life.

[@shellystack7142]

I'm an American living in Canada and have always like the health care system here...until now. Those restrictions are inhuman! I'm committing to find out who to write to about this. You two are the best! Thanks for sharing your lives with us!

[@katiemcbride8235]

Since last year they have been trying to make it available. But the drug costs approximately $708,000 for six doses in the first year of treatment and about half that for three doses each year after. The drug is intended to be delivered for life

[@ophiophagush.3926]

It’s not approved in the UK, I don’t think. Also in US depends on your insurance provider

[@03tifftiff]

I am from Canada and for sure will look more into Spinraza and try to make it more accessible for people with SMA if it can possibly help them! In Qc, it was just approved for type 2 and 3, so some people over the age of 12 years old can benefit from the treatment.Thanks for spreading awareness, love you guysssssssss!

[@sarahosinchuk445]

chng.it/NJ7dxHsdTr

[@bxbrexo]

i get my first spinraza loading dose in six weeks !! i’m so so thankful and hopeful for improvement

[@lisahall2577]

Keeping fingers and toes crossed for your spinraza shot and all goes well !!

[@IfoundMyMarblesXOXO]

Don't know you, statistically probs never will, but do know you got this random guy wishing you the best. ✌😃 💜💜

[@swallowedinthesea11]

Damn! Spinraza in the USA is $125,000 per injection!

[@sinjon]

11swallowedinthesea that’s absolute robbery. I have a love-hate relationship with pharmaceuticals in this country

[@sinjon]

Jack even if it’s not, I bet you the actual cost is about 2/3rds of that. Epipens are $700 and they don’t require you having to go into a hospital to have them injected. Shane’s injections are very delicate procedures so I’m sure it takes someone highly trained to do it. Point being, it’s not just the medication itself that factors into the cost.

[@CrazyStalkerPerson]

@@AFpaleoCon Your comment in itself is evidence of a massive flaw in the system! not everyone has medical insurance, so it's not true that "not one charged that". When insurance companies make these deals with the pharmaceuticals allowing them to arbitrarily raise the list price while still providing at the same lower cost to insurance companies, it greatly disadvantages uninsured people who see massive rises in their (usually already high) drug costs. I'm t1 diabetic so this comment is based on insulin not spinraza but still, there should be limits on the difference in prices between bulk buying by corporations and personal quantities.

[@pixiecakes1765]

That's probably why they mentioned Canada...

[@janejan9728]

And that's precisely why it's banned everywhere but America. 'free healthcare' systems can not afford it. That's not the real price, but it's still expensive. They usually wait 10 years until the drug is better established and cheaper. It's banned completely in the UK for that reason. Personally if it were me, I'd rather be broke than dead, but when your country offers free healthcare, the priority is always gonna be money.

[@PP-xn9bv]

Wow this made my night so much better thank you!!

[@PAPIKen0728]

WOW!! Im incensed. Im Canadian. And embarrassed. And dismayed. Im so happy for you Shane. I will bring this to my political reps and Health Ministers. Thanks and Bravo!

[@kalenmcclain6267]

As a therapist, this is SO exciting! Very happy for you!!

[@berglettemom6045]

Wow, great progress, Shane! I support your plea to make Spinraza available to everyone with SMA.

[@abethcook]

Yes!!! It's insane they aren't approving this for everyone. I'm so happy you're getting your strength back. I can't wait to see what you accomplish next ❤️

[@isabella7412]

This is amazing progress! I'm so happy for you Shane!! P.S. You and Hannah have an amazing channel and bring so much joy :)

[@TheNemosdaddy]

Absolutely amazing. Excellent Shane. This drug should be free to its patients. What an amazing medical advancement! Love you both.

[@travistrudeau4581]

YAAAAS Shane, that's what's up my dude!! Spinraza fir the win, n way to keep gettin stronger!! Were all rooting for you buddy 💪💪

[@loria1024]

Congratulations keep fighting you two! Much love from Florida! Notifications Always on!

[@thatretailguru]

Congratulations on the progress. I just found your youtube channel a month ago and its super entertaining to watch. From Hannah being the fun, supporting, beautiful person she is to Shane who brings humor and positivity to everything he is faced with in life. This inspires me because I was born with autism. Right now I am very high functioning. I know theyre 2 completely different disabilities but, with in the disabilities on this planet, we all sometimes feel isolated by others. Im glad to see the world including people with disabilities and being more kind and accepting. You guys inspire me to live life to the fullest and to be thankful for what I have. Im just thankful theres a treatment for sma.

[@ophiophagush.3926]

I am autistic too, think Shane is a great champion for invisible disabilities too. Shane: be more autistic friendly and line your beers up alphabetically please 🍺 😂

[@thatretailguru]

@@ophiophagush.3926 I agree. I hope this channel gets more viewers soon. It deserves it.

[@jbb2009]

Awesome, so happy for you Shane! And great advocacy piece at the end!

[@4shys2]

Yes the breathing and swallowing ! So happy for you,both!!

[@simonelove3319]

AMAZING! This progress is soooo cool to see! Sharing to spread the word!

[@cori020065]

How great to have your own cheering section!! You 2 rock. The best part is you’re using your channel for more then just “funny” content!! GOD BLESS

[@damianmartinez3315]

Thank you for the update! I was curious how you've been doing since your treatment started. Hope you get farther along! Some people don't get the small things are big deals. Proud of you man!

[@cmcd9213]

Spinraza!!! I call it the miracle treatment! My nephew just turned 30 yrs old. He recently got his first 3 injections and he can now move both of his little fingers! I am so excited for him and everyone who is able to get this treatment. Please Canada, get on board and help enhance human lives! The positive results people are experiencing are so numerous that it almost seems discriminatory to deny anyone. I love both of you! Thank you for being so transparent and for sharing this chapter of your life's story with all of us. {{{BIG HUGZ}}} & Blessings 💜💚💜💚💜💚💜💚💜💚💜💚💜💚💜💚💜💗💜

[@Alisha-fi3ih]

Thanks for the video guys...because of your video I looked up and have signed a petition going to parliament here in New Zealand to try and get spinraza funded for all people with SMA as currently it's only funded for people under 18 with type one. Have shared the petition on fb too. Thanks for encouraging us to get the message out there...I never would have thought to look it up otherwise. 💛💛💛 So glad that the drug is working so well for you!!!

[@Mezza]

Legit made me happy cry! It’s heartbreaking that so many people are being denied it

[@micheleallen7687]

Way to go Shane! I'm so happy the Spinraza is working for you. Love you and Hannah. You're both amazing 😘❤😘❤😘❤😘❤

[@Kiley28]

I am at work in tears cheering for you. This is a beautiful miracle! Bless you both!

[@daniellebaughman213]

Everyone should have the opportunity to have this medicine!

[@swallowedinthesea11]

Indeed, but I was surprised to see Spinraza is $125,000USD per injection.

[@katiemcbride8235]

@@swallowedinthesea11 and $708,000 for six doses in the first year of treatment and about half that for three doses each year after in Canada!

[@clumsymumsy2283]

So AWESOME Shane ! I’m happy for you both and I will be praying 🙏 that your message travels near and far in reference to this medication being available for anyone. 😊💕💕🦋

[@reason5591]

How exciting for you guys! I am so happy for you Shane, this is amazing! 👍WooHoo!

[@danettej5096]

This should be a commercial on tv , so everyone can see how much this needs to be approved everywhere! Congratulations Shane! This made me smile today!

[@erikatryingtogetby5712]

You guys are amazing!

[@sarahmorrison7025]

Thank you for always having captions. Love you both. Thank you. ❤️

[@emiliec4391]

Congrats!! You’re doing amazing and I’m so happy for you!!

[@mimisboys6574]

I was actually cheering you on. My family looked at me like I was crazy, cause I was yelling "Come on, you can do it, keep going!!"

[@katiekrzyzaniak5055]

Love you guys. Hope Shane's condition continues to improve.

[@annamcdonald9712]

This is great news Shane! I foresee many more days of improvement coming your way.

[@onehuman801]

That's wonderful news! So glad this miracle drug exists and you have access to it. I hope you gain new abilities the following years.

[@peppermint303]

How exciting! 2 celebrations in one day! I'm happy for you guys!

[@TheMelbox68]

That's amazing! So happy this new drug is helping you so much!

[@Tablove46]

That is so awesome Shane. Congrats.

[@antiwrld1279]

Love you guys! Keep inspiring! Keep fighting :) So proud of Shane

[@mmom4969]

That’s Socialized Healthcare in Canada. So glad your strength is improving. You must be so JAZZED!!!

[@madik7446]

Noticed I am early so just wanted to say sending love and thanks for sharing yalls life and journey together!

[@matthewschwartz2225]

You two are great advocates. Congratulations on the newfound strength.

[@RC-lo4sq]

You go Shane!

[@heathermari83]

Shane, you’re doing so good!!!! Thank you both for sharing this impressive milestone!!! Love you both💕❤️💕❤️

[@natalimeshvildishvili8930]

Hi everyone, I would like to give you an update on Tekla’s conditions and on where we stand with the fundraiser. Tekla is stable now and her transportation is possible if we find the hospital that will admit us and start medication. However this is still a problem. Majority of hospitals refuse her admission, or tell us that we need relevant country’s residency status. We received such responses from Italy, Germany and France. Hospital in Luxemburg refused the medication; we are waiting to receive positive responses from Turkey and Austria; however in Turkey medicine is more expensive as it is imported from Europe. We are unable to get invoice, or any calculation, because according to the hospitals, the medicine Spinraza does not belong to them, and the total cost depends on the number of doses required that is impossible to determine in advance. After the first injection, second injection is required within two weeks, and then 2 injections over 2 months. Then, one injection once in every 4 months. In Europe the cost of the medicine is 80,165 Euro plus 19% tax, plus 6000 Euro for intensive care. This sums up to 100,000 Euro for one injection. Because we do not have full amount hospitals refuse to admit us. Even if we decide to move to any of the above countries and request refugee status, this would require at least 3 months of paperwork. However even this is not possible, as Tekla requires artificial respiration and cannot be moved without identifying admitting hospital first, which is impossible as we do not have full medication cost at hand. Because we do not have invoice, we cannot request support with the medication cost from the Ministry of Healthcare of Georgia. Some clinics tell us that Tekla’s condition is already difficult, however some of them (such Germany, Italy and France) agree to start the medication. We are also in contact with American hospitals (Cleveland, Texas), however their cost is very high and request up to 1,000,000 USD deposit. As we have identified a few clinics that are willing to start the medication, we try to work with them. However, in Italy they refuse to admit us without residency card, in Germany they request 400,000 Euro advance payment, but again they refuse to provide detailed calculations. Now about the fundraiser: I probably made a mistake when I started with a smaller amount and increased the total step by step; I did not want to scare people from the beginning. I was raising the target as we were approaching the initial amounts. Now the activities in the fundraiser is at the minimum. Maybe people think that the necessary funds are collected and we are safe… unfortunately it is not true. We need to collect the cost of at least 4 injections. Hope that it will be enough for some hospitals to admit us. At this point we have around 150,000 Euro. If we manage to raise another 150,000 Euro we might be able to start the medication. We have very little time, but very eager get the medication and live! I am asking everyone to share this fundraiser again to bring everybody’s attention to Tekla once again. We need more people to know that we need their support. We must give Tekla a chance. I am asking everyone to share this and help us if you can.

[@ninao6504]

Natali Meshvildishvili facebook.com/donate/277209099895306/?fundraiser_source=external_url you forgot to share fundraising link

[@rebeccastratton4114]

You are so thoughtful and giving. You just met a milestone for your own life and yet you think of others. You two are so beautiful inside and out. You ate a POWER COUPLE!!

[@ravenharris_xoxo]

Shane thank you for sharing your journey with all of us. I hope that one day Spinraza will be available for those who can truly benefit from it. Have a great evening Squirmy & Grubs

[@jacqueline9973]

Thanks for the update!! We love you guys!! Go spinraza!!

[@bleigh4927]

Praise God! “I can do all things through Christ who strengthens me.” 🙏

[@tatorb6623]

You two are incredible!

[@chandyhovis5478]

Awww❤I'm so happy for you!

[@brookeoscarson2520]

Wooooohooooo!!!! Changes don't always come in leaps and bounds, but by little steps, day by day. I'm proud of you both.

[@lamersonnikki]

Okay if you keep using these muscles can you rebuild them?? Im happy you are getting more strength!!

[@Hevvur]

I was wondering this too!

[@davidhintz1]

Same here

[@matthewrandell5055]

I don't really know about the condition but if this drug stops the atrophy then I don't see any reason why he wouldn't be able to slowly build the muscle up, I think that's what allowed him to finally lift his head like in the video? It's very exciting

[@annagitana1]

My question too. Would physical therapy combined with the drug give even better results? I really hope Shane addresses that.

[@cherrissesharpe823]

Is this real

[@Halogirl237]

Love you guys!! You've really helped me stay positive these past few months. You've changed a lot of my view points and have opened my eyes to many things. Keep on rocking!

[@soupycargoshorts]

First also love your videos. 💙💙💙

[@kellymount4885]

SHANE!!!!!!! Great news, thank you for sharing with us.

[@mxmbob]

Dude!, By the looks of it, Spinraza could have done wonders for my stepmom. She died of PSMA 10 years ago... And sadly enough, in The Netherlands it is only paid for by the governement for kids under the age of 10.... While had you been born in Germany (25 km away) or in Belgium (300 km away), it would have been accessible for everyone, young and adults alike.. Big pharma and politics really suck!!

[@dalanbooras8349]

I love the support and excitement Hannah has for Shane! That’s pure love and encouragement, which is the basis of a happy and healthy relationship! Love keeping up with you guys and you guys bring a smile to my face every time I watch a new episode!

[@andreaskarlsson8128]

Hi Shane (and Hannah) Awesome videos! So glad I found you!! My son, 8 years, also have Spinal Muscular Atrophy (type 2) :) I was wondering what the app's name is that you use to type on the phone and get it on the computer. Also, do you have any other smart tools to get things more accessible ? I have always been curious about how it works being disabled in another country. Some things isn't a certainty - like getting a electric wheelchair, accessible car and house etc etc etc. Would love to hear more about what your country's welfare does for you. Is it something you really need and not getting , or have it been good etc etc etc ? Thanks for a great video

[@apriltaylor8804]

I have been thinking of Spinraza all day! That sounds funny to type but I would never had known about it if I had not known your story! And what I have been thinking about today was how much Shanes speech has improved! Actually its more like the effort it takes to speak has seemed to improve. I was cleaning house and turned on your channel and just let it play! You guys have talked me through my chores :) As it went to older videos you could tell how much Spinraza is a blessing! It would be the opposite cases if it were not for it. Thanks for your education on SMA and getting the word out. Blessings to you both, you have been a blessing to me! :)

[@daniellebaughman213]

Also--who the heck would dislike this video? Hmmm 🤔

[@karacarta3545]

Someone unhappy with their healthcare or perhaps they cannot get spinraza for themselves or their loved one.

[@amiedevoll7754]

Omg! You have ME crying! Congratulations to you both because it is easy to recognize this is a victory for both of you.

[@cuocoamatoriale8113]

Hallo. My 9 month old daughter Tekla have spinal muscular atrophy. We have fundraiser too and we need some person, who can halp to share other people information and collect money. do you halp me?

[@ninao6504]

ana no facebook.com/donate/277209099895306/?fundraiser_source=external_url this is baby Tekla’s facebook fundraiser link .. Please donate .. every penny counts ❤️❤️❤️❤️❤️❤️❤️

[@nanaeluashvili6941]

Please help our little angel Tekla , please

[@jenniferlasita5244]

This is so exciting for you guys! I love seeing the progress. It’s such a shame that this isn’t available for all who need it!

[@JerseyLynne]

Yay! YaY! Celebrate! This is just the beginning! We love you Shane!

[@carolynkid216]

Wow...praise the Lord. We take so many things for granted....just being able to lift your head is a miracle. May we always be grateful for everything that 'works' within our bodies. God bless.

[@jordanshaw5981]

you can just hear the absolute ecstaticism in Hannah’s voice. Shane, I am overjoyed for you, keep being an inspiration to all.

[@meebsinacrossfire9950]

This is a beautiful relationship. Absolutely beautiful. Shows me a lovely side of society. Stay strong you two.

[@Charliemmag]

Fantastic news! Very happy for you guys! Love from Brazil!

[@dianeaishamonday9125]

Y'all are working so hard for such a great cause. Love to you from Texas 💙💙💙

[@jenniferdesa3934]

I love how you guys celebrate every one of Shane’s achievements! It really keeps the relationship optimistic and increasing awareness!

[@JenniferMowan5]

You both complete each other and encourage one another in so many ways. So very proud of the both of you. I stumbled across your channel when you had about 50k subscribers and I've been watching every upload. Your personalities are amazing and no matter the situation you can make many people laugh, yet at the same time your teaching us valuable lessons in life. Thank you for sharing your journey with all of us and I'm looking forward to tagging along for many more to come. Your Subbie friend from the Hoosier State ❤❤❤

[@expertGH3]

Baby steps ! This is amazing , spinraza really needs to be available everywhere for sure.That makes me really happy to see this progress though ❤️

[@thecan2846]

Right on Shane! Your a beast brother! Love your videos 👍

[@elizabethc5290]

So happy for the results! Keep up the good work. Thank you for educating us.

[@deeanna8448]

I'm so glad this treatment is available! A friend of a friend has young son with SMA. He was one of the ones involved in the clinical trial for the drug, and he is doing much better than he would have without it. You might be familiar with him, because his mom posts on social media a lot. His name is Asher, and the Facebook page is called Arms for Asher

[@HannahTinsel]

I’m so happy for you Shane! I’ve been following you for around 5 years now, and I never imagined this could be possible. Lots of love!!

[@one.pretty.kitty.]

Oh-My-Gosh, Shane!!! That is so awesome, and amazing! I am so very happy for both you and Hannah. I totally agree that it is a real shame, and completely unfair that Spinraza isn't accessible to those that could really benefit from it. It should be available to ALL who need it, regardless of their situation, or where they live. It is ridiculous. You guys never cease to amaze me, and I can always count on you to put a smile on my face. Love you guys!! ❤😊

[@amandaw5326]

This is wonderful!! All of us watching had been making comments that you were look to have more strength. Youre looking great

[@lilacsun2108]

I called my husband over to watch this with me and we're both so happy for you. Spinraza has changed so many lives and I hope that it continues to do so!!

[@goatboy8032]

Thanks for so many videos so often!

[@MrsJusten]

Having personally worked with a kiddo with SMA who is currently getting Spinraza injections this is so exciting and encouraging!!! Loving your channel, your spirit, your relationship and your goal of spreading awareness and normalizing disabilities. Y’all are awesome!

[@foxarwen]

My heart leapt for joy when you lifted your head Shane!

[@TheWolfePit]

Shane way to go! I just had my first maintenance dose of spinraza after the first 4 initial injections. I haven't noticed any changes so far but seeing your increase of strength keeps me encouraged! Spinraza should be available for everyone with SMA regardless of the level, age, etc!

[@janie6316]

SO HAPPY FOR YOU!!!! Love you both ♡

[@mandieanderton1800]

Blush... I just clapped! SOOOOO happy for each stage of improvement for you, long may they continue, these actual improvements, not just maintaining your current abilities! So happy for you! xxxxxxx

[@jessicafermanelli28]

Hey guys! I'm from Argentina and this past friday Spinraza was approved here! 💚 you two are the best, thank you for all the information.

[@darlabalsemer1925]

AWESOME!!! Praise God for His blessings upon you!! So exciting 😁❤👍

[@sanfanticc2726]

Thanks for the positivity. I needed it.

[@ariannacoan2361]

Oh my god! I am literally crying I am so happy for you! Congratulations! I love you both!!!! ❤️❤️❤️❤️❤️

[@emilygurley2482]

That's so awesome Shane!!!! Praying that the Spinraza continues to help you!

[@daisythomas2160]

Im truly in disbelief! I had been thinking when Shane is alone and his head tilted back what did he do?? This is amazing. I was close to tears. Shane you are such an inspiration!!!

[@texas_sunflower3623]

I LOVE how you say, LIVE with SMA instead of the usual struggle with SMA. It doesn’t lesson the fact it’s very hard but it shows others you can LIVE a good life with it. Your optimism Shane is inspiring.

[@dianaa.4804]

I never been so happy about someone moving their head. I'm so happy for you. I got it becomes available for all the people who need it.💕💕