Stairs 4-7-13

A patient's experience with ALS.

[@denaodonnell]

Hi, I am Kevin's daughter. He passed away but thank you for watching and trying to help.

[@TheChildfreeCurlyGirl]

Hi Dena, sorry to hear about your loss. I watched all his videos. Its incredibly sad.

[@jeanettesilhouette5678]

I am so sorry for your loss hun :(

[@gaylelewis529]

I'm so sorry for the loss!! What a quick progression from the first video to this one. My heart aches!! I'm so sorry!!

[@DiscernmentNow]

Omygoodness I'm SO SORRY for your loss!! 😭 💙🙏

[@quitsevensix]

Your Dad was a badass to the end, just pushing forward no matter how hard this nonsense hit him. Amazing series of videos!

[@halgordonmdfacp3246]

He was my BEST friend when we were at USC. I miss him everyday ! Rest easy OD .

[@helloyall4355]

God bless this man! He was so brave and a hero to many people. He fought it to the end. RIP! (05/06/2023- the day i found out he passed.) Watched all the videos & felt so much pain. Bless his family.

[@johncullers]

Oh my so sad 😢😢😢😢

[@ksr622002]

This is only 3 years and one month after his first symptoms. Wow! this disease moves so fast. How cruel it is. Just awful. RIP Kevin

[@apacur]

His first video said he was diagnosed on 11/8/11

[@temamarshall92]

He was an amazing men, sharing his journey with the world. Rest well Kevin.

[@tdis7238]

RIP Mr. Kevin O. What a brave soul he was to tell his story to the nation. Always came across as extremely positive as he could be with this horrible illness. I will always remember you!!!!!

[@girishparulkar5935]

RIP Kevin My dad also passed away due to this horrific disease. I hope they find a cure or at least way to slow it down. It's not fair that mind becomes prisoner in your own body

[@ilike2run2]

I don't know this man, but I feel led to say how courageous he is. If he is still here, I pray God will give him comfort and peace. I pray for his family and his friends too. Kevin, thank you for allowing us to see your personal struggle. Thank you letting me write a few words, which I hope brings peace and comfort to all who read them.

[@helenakatrinelarsen277]

I'm so heartbroken right now. This makes me want to go to medical school and find a cure. Rest in peace beautiful strong soul

[@tenminutetokyo2643]

It is caused by sugar consumption. There’s a guy in Portugal who stopped progression entirely by diet change.

[@thomasjensen6243]

@@tenminutetokyo2643 Lou Gehrig's disease is NOT caused by sugar consumption.

[@deadlift305]

The system refuses to identify the culprits and causes; so, no cure or sound treatment, will be found by conventional medicine.

[@dr.sammypryor]

@@tenminutetokyo2643 1 of many possible causes!

[@purebride8600]

Jesus completely heals all sickness and disease by faith in him ALONE to do so.

[@robmastro8620]

God rest his soul. Brings back sad memories of myself and my siblings caring for my Mom who died from ALS in 1997 at age 60. Its a humbling experience caring for a loved one afflicted with this. I miss her very much.

[@Mrbarryofhollywood]

Crying now. My mom chose assisted suicide less than a year after her diagnosis. I’ve developed twitching and I’m scared. Seeing a neurologist soon. Thank you for these videos. The world needs to know how terrible and unfair life can be. I’m glad Kevin was surrounded by loved ones.

[@nozeycow024]

Oh I'm so sorry to hear this. It's so cruel, how are you coping? Have you had tests now for the twitching.. X

[@Mrbarryofhollywood]

@@nozeycow024 my health anxiety is through the roof. Have counseling session in a few days and my first neurology appt on May 30. With each ALS video I watch my paranoia is becoming unbearable.

[@Mrbarryofhollywood]

@@kittykittyxoxo thank u for responding. I’m in process of getting a psychiatrist for anti anxiety medicine. Each morning my twitching is worse and my mind goes to dark places.

[@mikejunior5825]

@@Mrbarryofhollywood hey man, i went through this health anxiety hell hole with the twitching. Hope youre doing okay brother.

[@gwyn6907]

They could have been a bit more sensitive to there dad they didn’t speak to him once they treated him like a object plus cut out the laughing they were carrying him like he was a sack of potatoes. They should have talked with him reassured him and carried him properly

[@POSS99]

God bless you, kevin.

[@MysticPrairie]

I just watched Kevin's video's. What an incredible brave man! I also just saw in the comments he passed away and my heartfelt sympathy to his family and friends. I hope you mainly remember him as the handsome man he was :) God Bless xo Thank you Kevin for sharing your journey ❤️

[@MRresievil310]

If I ever had this disease (or any other terminal illness), I would spend my last days watching the beauty of our world and smiling ( or trying to smile) over the fact that there are good people out there.

[@misanthrop1958]

Unfortunately our world is anything but beautiful and the vast majority of people are egotistical , vicious assholes. If I had this disease, I would kill myself to avoid going through that horror.

[@iamessence6268]

Euthanasia would be a good choice. I hope they make it legal in all States.

[@fwlweb5803]

Why is more compassion is shown for an animal?

[@jeaniecoudriet6201]

I am so sorry for your families loss! He lasted just as long as my grandfather did! Its just heartbreaking to see them so strong and healthy, then in a short span of time, they just lose everything . You can actually see them change! I miss my grandfather so so much! Again I am so sorry, he really seemed like a great guy!

[@quitsevensix]

The fact that this illness leaves your mind intact is really crap, RIP Sir

[@chilinsnOball]

courageous for Kevin to let this be shared. It's amazing how his spirit is. I had a chance to meet with several people who had ALS and I was amazed at how they ALL had such incredible attitudes when we spoke. All said that losing independence and having to rely on caregivers and various equipment was the hardest parts. Also very hard was seeing loved ones hurt for them. Such a devastating disease that takes its toll on all involved. People that have suffered ALS deserve Heaven 2.0.

[@fwlweb5803]

Losing independence is the most difficult aspect. I'm on the verge of it now & will be making that trip to Colorado soon.

[@holger9588]

Pls provide evidence for a "heaven'

[@cindyjohns6222]

​@@holger9588 Please don't think I'm being rude. Cuz I don't mean it to be. Is there any evidence that Heaven does not exist? ❤

[@dr.sammypryor]

Thank God for his sons to help him. I hope all Kevin's children get tested for the genes that cause ALS. As an individual that specializes in ALS, I would suggest this so we can start treatment so at 50 you are not affected by ALS.

[@dovlab3089]

I am a female, 37 y.o. have numbness and twitching in the calf muscles, right sided weakness, swaying to the right while walking, ct, brain and cervical mri are fine, can I have als ? Neurologists saying I am ok, but my symptoms aren't going away.. What should I do ?

[@susanwedell7627]

God Bless his family and now he is in peace.

[@sasca854]

Damn, his ALS progressed quick... Horrible. I would not wish this on my worst enemy.

[@FORTHEBY_BY]

I’ve been looking for a video to compare to my sisters voice. Doctors think,she has ALS and this helped so much. Such a horrible illness! RIP Kevin.

[@kavcox1]

Love ya bro..... And God loves you even more !

[@penisternamusonge2149]

Rest in peace Kevin, have watched your video and saw that my beloved sister has gone through such pain and passed on this year 2nd of august 2020. This such a horrible disease seeing your beloved one becoming a prisoner in his/ her own body. I pray that God reveals the secret behind this disease

[@johncullers]

GOD BLESS YOU MY FRIEND BREAKS MY HEART...😢😢😢crying

[@zoeftaga]

This is a horrible disease. I am sorry this happened to you. I hope a cure is found

[@reynaayllon8447]

God bless your heart ❤

[@fwlweb5803]

Cruel is a word I often hear people use referring to this disease. What's cruel is it's been acknowledged since the 1800's and there's been absolutely no advancement. Negligent seems a more fitting word.

[@ohdwight]

an evil agenda of sufffering and then death is the agenda or else they would do more .

[@donblade5405]

Kevin- I know you are at peace.. REST in peace my brother.. Such a unfair diease..

[@aryananshu5538]

Hoping u r in a better place now🙏🙏🙏

[@canadasweetie]

This is the most debilitating disorder I know of: it is how rapid symptoms progress. It breaks my heart they still don’t have any treatments to keep symptoms at bay or increase life expectancy. 😢

[@MargieHernandez-um7gg]

😢😢😢May God comfort his family.

[@selocanselocan-qr8xi]

Allahım sen ALS hastalığına çözüm bulmayı doktorlarımıza nasip et kevin odonnell i cennetine kabul et .selçuk çelik. ordu, türkiye.

[@robertm8318]

Well... I guess this is what I have to look forward to. Yay.

[@rp1agufan]

I’m so sorry!!

[@tenminutetokyo2643]

See Cuehlo’s video in ALS. He lives in Portugal He stopped his progression. It is all caused by sugar consumption.

[@Mr_C5627]

@@tenminutetokyo2643 Whats link to video?

[@denisepickering9309]

What an amazing man his daughter is doing the camera. Just a wonderful guy. We're is his wife.

[@davidkellar6732]

Strong man believe me

[@ericvigen]

As I've seen so far, I guess ALS is a little more common in people originated from west of Europe specially Ireland. Maybe I'm wrong bcz it is just based on a few ALS patients.

[@TheYengirl]

OMG. I just watched your video from 2012.

[@ftse1]

How long ago did he pass ?

[@aaronying4989]

This is so terrifying. So sad

[@RezCaliber.177]

How is Jason Becker still alive this long with ALS¿¿¿ ... This really is scary ...R.I.P. brother 🖤🖤🖤

[@La_cubana]

Sad sad 😢 Just 9 months today my husband pass from ALS SUCKS 😢

[@thomasjensen6243]

They talk about him as if he is not there.....his mind and brain are exactly the same as they were before his nerves died.

[@laanaalove]

Yeah not a fan of that either I took note of it immediately n was like tikes

[@laanaalove]

Yikes*

[@shellyortiz1977]

Im so deeply sorry.your father was a handsome attractive man...saw his videos and it breaks my heart.rest in peace kevin

[@billielewis5562]

What a cruel cruel disease

[@funkyflights]

adele Griffiths .... It really is, it makes no sense, it’s just too much .. We need to find a cure or a way to stop it’s progression...

[@parthianwarrior1901]

@@funkyflights big pharma will never allow

[@funkyflights]

Parthian Zaza .... Remember though, USA is greedy, but other countries have universal system where pharmaceutical is controlled, so they’re the ones that could advance better treatments ...

[@parthianwarrior1901]

@@funkyflights I don't know what cause this cruel disease but I don't think there is a cure for this. All countries are coltrolled by the same person but in my opinion a cure may be found after 2040 because new world order will be established in 2040

[@parthianwarrior1901]

@Phil Fry central nervous system is too complex they won't

[@JGSnave]

Rest easy, sir.

[@gmogartoff]

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