Stanford Doctor Discusses Thyroid Eye Disease: Understanding the Disease and New Treatments

[@ddfigueroa5618]

Excellent presentation Dr. Kossler! This is collectively the best video I’ve seen on the subject of TED. There’s not a lot of literature, or videos available to truly explain the process/sequela of the disease. It’s a debilitating, isolating and painful condition to live with. Thanks for the thorough delivery of information of this complex disease.

[@historyiship6630]

Thamk you!!! I so appreciate Stanford Univ medical talks...I have learned so much about my own conditions.

[@marcellowoodford4048]

How Warmly and Concisely Dr.Kossler spoke for that Very Informative presentation. I had TED 8 years ago with almost All the attendant problems brought-on during this talk-except any Surgery-and NoTepotumumab-perhaps it wasn't available yet. But What a Scary Time I had,and the NHS here in England was Great! All the Best and Thank you to you two Ladies,x M

[@jesusrico2347]

Thank for all you explanations of this health problem

[@dragon92768]

I am beginning to think I may have TED. I have had pain and light sensitivity in my one eye for around a year and a half. The first time I had problems, my eye hurt so badly that I made an eye patch to wear for a couple of days. I have had pain on and off since then, with headaches in the temple of that eye. Most of my swelling is in the morning, and I have begun to take photos of myself on both good and bad days. As far as an autoimmune disease, I have the titer for Lupus, but it is not full blown. My mother and her father both had Myasthenia Gravis, and my mother also had Crohns, and my nephew has had Crohns since he was around 15. He is now 23. I will be making an appointment with my Optometrist soon.

[@haripriyasingh444]

Thank you so much for the insight about this rare disease..

[@maureen9438]

Thank you for this video. I have had TED for 40 years. I’ve had decompression surgery, a mueller muscle replaced, and eye lid surgey many years ago. I am currently at my 7 infusion of Tepezza and hoping for good results.

[@clarissamck]

Great talk. I have TED and its rough..

[@ayfashionhouse3291]

Pls find the treatment 🙏

[@seemajagdalemandhare4949]

Thank you Dr. Kossler for fantastic presentation. Very informative with great pics and clips.

[@virginiahill7001]

Yes a brilliant lecture. Thank you. I have learned a lot.

[@ketinporta4994]

I had never heard of this disease before. Thank you 🙏 for sharing!♥️🕊🌸

[@rolijain3985]

I stopped eating ionized salt in any and every food . It helped a lot to bring swelling down. Stress was a big factor to increase it. Calm down and it will go back to normal....with help of homeopathy. No side effects of homeopathy. In 6 months I found no more pain and pressure.

[@truth-alwayswins]

What homeopathic treatments did you use? Tepezza has been linked to deafness in recent (Fall 2021) clinical trials.

[@Anyms_]

True , homeopathy medicine is very effective in these types of diseases

[@cj2590]

My optician suspects I have TED. The referral time is long and I'm struggling at the moment just to arrange a basic thyroid panel due to NHS backlogs. I envy anyone who has access to Teprotumumab. It's not available in the UK. Sounds like this doctor's patients are very lucky to have her, too - her warmth for her patients comes across so well here. :)

[@Lizmiller280]

Great information. Many thanks for this video!

[@PriscillaAlford]

Thank you for your video.

[@Mal17281]

Great video. I just had my 4th infusion tepezza and so far no eye pressure and pain...

[@clarissamck]

Thats great! How are you doing now?.

[@ruimingliu7267]

thanks for sharing, how are eyes doing now? hope they got fully recovered.

[@Mal17281]

@@ruimingliu7267 it recovered well.. I’m been good for 1.5 years so far

[@user-ek2fn3qg8w]

Thank you Dr.Kossler. I am in the mild thyroid eye disease phase. I need help! My team just diagnosed graves and mile TED at the Ann Arbor VA Medical Center. Great people. What are they waiting 3 months to see me again? I don't want to wait for more pain and bulging to have this treated. Help please.

[@hral-aeen4206]

Wonderful lecture ❤️

[@ashleygaona7002]

Doctor I’ve noticed most patients with TED have more problems with their left eye I am one as well. I am on a group in Facebook with people who have thyroid eye disease and the left eye always seems worse than the right. Why is this ?

[@ricks1129]

same here

[@rolijain3985]

I took homeopathic medicine and doing great . No more pain , pressure. Listened to echert tolle channel. Doctor Gupta from umbra healing. Princeton

[@azadarehussain6932]

Which homeopathic medicine you are using

[@truth-alwayswins]

@@azadarehussain6932 I asked the same thing. Tepezza has been linked to hearing loss. So trying to avoid

[@jwiki1]

Thank you for this video. It makes me feel better about the radiation therapy that my surgeon recommended and the Tepezza treatment we are trying to get my insurance to approve

[@LoanNguyen-hi1iu]

I am thinking of getting the radiation. Did that help? Any side effects such as dry eye? Were you able to get Tepezza treatment?

[@ruthafuaserwaah1644]

What is the food type that patient with this eye thyroid disease should stop eating. Thanks

[@virginiahill7001]

I have hypothyroidism not hyper but my eyelids are now suddenly swollen over the top of my eyelids. You mentioned this just now as I am writing this. What treatment should I start to stop progression. I live in the U.K.

[@TheSshhhh]

Thank you for this great information session.

[@diabetesthyroidhormonecentre]

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[@esperansamhapa9023]

How I wish i could get Tepezza😢! It is not available in my country, and even of it was available still I could not afford since the price for ordering them is way toooo expensive! I wish I could get help

[@duyenom3864]

Thanks so much, I’d very much like to know whom I can contact in Missouri or Kansas to get this treatment. Please!

[@kimdiedrich9712]

What happens to the antibodies that are blocked and could they cause any other disease issues ? When speaking of a normal thyroid, is that standard clinical thyroid range or considering optimal range?

[@LoanNguyen-hi1iu]

Can Tepezza be used to treat mild TED?

[@nicefknmodel2201]

I'm 36. Had Graves disease diagnosis in November 2021. Hyperthyroidism was treated with radioactive iodine. NOW 2/7/2022 I was diagnosed with TED. I'm nervous. They put me on 60mg of prednisone.

[@Karlena_Lewin_Studio]

I have had swollen sore eyes for 7 months a doc just told me tonight I may have this. The doc said nothing would help no treatment

[@batman_2004]

Any update?

[@challo8067]

Does this treatment work after 3 orbital decompressions, and looking at a fourth in one eye?

[@donnaparrish7638]

My eyes right now feel like they are on fire. I’ve had total thyroidectomy due to thyroid cancer. Left lobe out in 1973 and the rest out in 2007. When my eyes are really burning and are worse, I also experience painful pinpricks all over my body. This is going on now too. The endocrinologist recently changed the dose of my Tirosint from 137 mcg to 88 mcg.. I am miserable.

[@ruimingliu7267]

I had a thyroidectomy as well in 1995. right now I just have been diagnosed with TED after two years compainting my ichy and watering eye to my eye doctor. my eyes started to feel burning now and getting worse about two years ago. my thyroid doctor changed the dose from 122 mg to 88mg, will this cause the problem? have you had any treatment? hope we all get better!

[@natthas.4961]

Thank you so much ❤ from Nuclear medicine

[@janmartell9792]

I have Hashimotos and something is wrong with my eyes. I'm told I just have allergies, but nothing helps. I'm desperate.

[@alisharasailee4303]

Thank u so much .

[@shivanichhabra1166]

one of my friend have baggy eyes then she start taking ayurvedic treatment from planet aurveda . now her bags are removed and she looks soo pretty ..

[@ayfashionhouse3291]

🙏🙏♥️