the drug that could save my life: first 2 weeks (actual hell)

[@erikaswanson3871]

Proud of you, Sis. This is scary stuff and takes courage, nevermind documenting it for the world to see.

[@bbghoul_x]

@Bobbi Floss fuck off

[@erikaswanson3871]

@Bobbi Floss bravery depends on what scares YOU. To me, sharing very personal and difficult health journeys like this scary = brave

[@erikaswanson3871]

@Bobbi Floss ah, bravery and making skrilla can't exist at the same time, got it ok now we're on the same page

[@littlered77]

Bobbi Floss So what if she does profit... she’s obviously not capable of working whilst so ill and your health system is notoriously so sh*t at taking care of people... good on her for finding a way to support herself

[@littlered77]

@Bobbi Floss I dont know what you're trying to say with that message...

[@mruniverse9500]

I felt relief the moment you said "all the mucus is leaving your body" that's means the drug is working and the results are fast. You just gotta power through it, I believe in you stephy

[@joncase8735]

Can you make monthly updates of how you are improving on this drug? I would love to see you continue improving!! I’m glad that you were able to get a drug that helps!!!

[@StephiLee]

absolutely!! i go to the doctor in 2 weeks to check my lung function and see if it’s improved. i will definitely vlog it

[@JustJ-Me]

Looking forward to seeing the results. You're already sounding more clear.

[@joncase8735]

Stephi Lee I’m looking forward to seeing the updates!! You now have a long life ahead of you, and I’m so grateful for you!!!

[@meekokyjat92]

@Tonya Qweefs u anti white prick, go catch sickle cell

[@bunnielynn777]

Praise God🙏❣️Prayers for a long, happy & productive life🙏🙏🙏

[@dweelirfghv2661]

Can you imagine in years, people your age with CF won’t really have to know growing up with no hope of a drug that helps. What a time to be ALIVE. 👍🏻

[@Glados1080]

In years there will be a definite cure / way to prevent it entirely, most likely people won't even have cf, but that is probably a while from now

[@Worminthedirt]

You actually sound more clear too!!! 💜

[@hopelee9724]

Yeah she does!

[@jamiesmith2724]

She does!!!

[@skybrewer37]

Agree!

[@garyenwards1608]

its called clearerrr hellllo hellllo this is your friendly neighbourhood spiderman here to save the day one grammar error at a time its clearer dumdum

[@Worminthedirt]

Gary Edwards thanks buddy 😂 people still picked up what I was putting down 🙃

[@dmtudder]

Really wish Claire was still here for this.

[@babydublin01]

I was thinking the same thing.

[@davidkingraiders7294]

Dan Senior Bless you for that comment👍👍👍👍✌️✌️✌️✌️✌️

[@Lucia-yc9zj]

I wish that too. I miss her so much.

[@dmtudder]

@@Lucia-yc9zj I will be showing her videos to my grandkids, when they get old enough. She was inspiring for everyone.

[@tdoggo7614]

She was another beautiful soul like Stephi. It’s so sad.

[@ChainsawLust]

Your voice is sounding more clear! Sending good thoughts and vibes your way.

[@lydellb]

Indeed

[@alicegolightly9699]

Yes, wow--I thought maybe I was imagining it or wishful thinking! You can do this, Stephi!

[@Cognitoman]

Thought the same timhing

[@garyenwards1608]

i believe it's clearer

[@garyenwards1608]

you might not receive a heart or reply from Stephii Lee as your good thoughts and vibes may be interpreted as a form of prayer. as a wiccan practitioner Stephii Lee is engaged in that immortal battle of good vs evil. light vs dark. tyme vs old tyme. sides will be picked lines will be drawn and battles will be decided with the flip of a double sided coin. all of the above statements may or may not be interpreted perceived or believed to be truth

[@tdoggo7614]

Stay the course- your voice has never been this strong.

[@alannacarlson6715]

Whoever were the subjects during the clinical trials for this drug are heroes!

[@darlantro]

This is very true. Trikafta is actually 3 drugs in combination, which is a pretty big deal. Researchers are finally doing a lot of combination stuff, including with cancer drugs, where it's like a SWAT team coming at the disease from different direction to knock it back and cut off its escape. It's super complicated to demonstrate safety, but this kind of progress is amazing

[@ray_ayy]

I wish Claire Wineland was here for this. 😔

[@Rainamoon]

I’m so sorry you have to go through so much pain. But you still remain sunshine through all of it 🌞🧡🧡

[@StephiLee]

love u angel

[@Rainamoon]

Stephi Lee love youuu ☺️

[@archangel5395]

My best friend since we were in diapers passed away when I was 13 from CF we grew up and I saw everything. I cannot believe there's something out there now.... Her name is Orchid we are two months apart she passed when she was 12.

[@VitaminV29]

Shawnee Curtis sorry about your friend. Orchid is such a pretty name.. so is Shawnee

[@katiekawaii]

I'm so sorry you lost your friend.

[@archangel5395]

@@katiekawaii Thank you, but she was great and Im happy I am** her best friend for 12 year of her young life. Her condition was so aggressive she was the strongest person I know.

[@MixedMartian28]

R.I.P Orchid

[@archangel5395]

@@VitaminV29 Thank you, I've always liked the name Veronica (:

[@aldoranematzada8214]

Girl, push through it. Even from like a logical standpoint your intestinal pain should get better. And think of it like this, no pain no gain. Purging all that shit out at that intensity just means its actually freaking working!

[@anneatwoodlawn]

Reckless advice and 288 silly people give it a thumbs up. "No pain no gain" is just about the most dangerous thing you can say to a vulnerable, scared young woman with a disease that compromises her entire system. Go slow Stephi, reduce the dose if you need to , take a break if you need to. As someone who has been a guinea pig for trial meds - your vlog screams WRONG WRONG to me. And it should to your doctors. And pay no heed to the KZbin viewers - well meaning as they might be. You take care of you. You know that pain is your body saying No. You know this. We all know this. Or we should. Slow down. Reduce your dose. Take your time. You do not have to rescue yourself in one month. It took 23 years for you to get this ill - no medication is going to "purge" your body safely in a few weeks. Listen to your poor gut, reduce the dose, you can increase it again slowly when you feel able. All my love, kiss kiss Anne

[@aldoranematzada8214]

Anne Brennan Anne she liked this comment herself. Most people on this medication have had not just good but INCREDIBLE results. And she has the support of her doctor. Im sorry you had that experience, but Stephi should listen to what her doctors are telling her.

[@TheMEEEEEEE123]

sammmas except she’s being monitored very closely so if they have any legitimate concerns for her wellbeing they will stop

[@felicityaeh]

sammmas Stephi’s intestine aren’t inflamed though. It’s literally her body clearing mucus. It will pass over time as the mucus is cleared. Her drs would tell her to stop the med if it was dangerous for her.

[@litchtheshinigami8936]

@@anneatwoodlawn agreed.. my thinking exactly. though my first thought was that possibly the meds need a stomach protector to go with it.. i know exactly what it feels like to have meds that give you cramps.. in my own case i tried ritalin for my adhd and on top of it not working i got huge stomach cramps wich wasn't even in the list of side effects however nausea was wich i did not have whatshowever

[@susans.2010]

You even sound different when speaking. You sound clear. Like that slight raspy sound is gone. You really are a rockstar and I pray this new medicine works wonders for you. Hang in there honey! You got this! 👍

[@evek2501]

You go girl! Your voice sounds better too. Once the pain in your tummy subsides, you will have a brand new life. So happy for you!!!

[@charcoal386]

Your voice sounds stronger than the usual soft whisper

[@Missmarti77]

Yes.

[@KevBounce]

Yes.

[@Asdfghjkl-pb1ir]

I noticed that too

[@bassafratz]

.....YOU HAVE THE SAME FIRST *AND* LAST NAME AS MY DAD..... 😲😲😲😲

[@bassafratz]

@but like, IMA ASK HIM

[@frogman3102]

this is such an amazing thing for you to document, i'm glad to have been here since the beginning. there was a time i was worried for you, and now i'm so stoked. i hope this drug gives you long term relief, especially after all this horrible pain you've gone through with CF. rock on stephi

[@VEE3RDEYE]

This was an excellent video, really nice pacing, clean edits & voice over, the topic is interesting and gross at the same time. I'm happy they finally have a drug which can clear out that mucus. Keep us updated steppi :)

[@StephiLee]

aww thanks :’) i spent a long time on it!

[@smoorej]

I cannot even begin to imagine what it felt like for you when this drug was announced. You grow up with the knowledge that your Incurable disease means you won’t live past your 20’s or 30’s and then in the space of a few seconds everything changes. Mind blowing. Plus, often breakthroughs result from new and different ways of tackling a problem which leads to further improvements as more and more research is done. There may be more improvements in this treatment. I’m so happy for you.

[@Xx0GsaburzxX]

“I don’t know how to say this without it sounding gross, but basically I shit a lot” oh gosh idk why but that was funny 😂 That’s great that you’re feeling much better now (:

[@eddiew2325]

I thought girls don’t poop lol

[@lauranorwar]

Eddie W we do...but it’s usually flower petals.

[@eddiew2325]

lauranorwar ohh interesting

[@chaniiyabish8330]

I don't have CF but I do have MS so I can do know what it feels like to struggle everyday just watching this video brought tears to my eyes you are such an inspiration keep fighting you are strong and you got this girl 💕

[@Weepypeach]

[@picklep9812]

Chanii yabish I too have MS I take glatect. I was scared at first. It took me a few weeks to get into it

[@idahelensande2268]

❤❤

[@laylalendoza1427]

MS is a horrific disease. Sending you love 🧡💚

[@garyenwards1608]

ever tried flor-essence detox tea?? the root of most disease is an acidic pH

[@chazzbass]

is it just me or is the quality of your voice much stronger than before you were taking the drug, even the way you sounded at the start if VL vs towards the end was dramtically different.

[@dill7647]

When I started the pill I was fine for one day then I the second day I was coughing up like a cup of mucus every treatment for two days, and the same thing happened to me with the backup, it was the worst pain I have ever been though. But now I am feeling better and I have hopes for triple

[@StephiLee]

im so glad youre feeling better now!!

[@KateCarew]

I really hope that this drug leads to some real answers and breakthroughs for BOTH of you and every other person who has CF.

[@dill7647]

Stephi Lee thank you, hope that you get better as well.

[@garyenwards1608]

Have you ever tried flor-essence tea?? ive heard its VERY helpful for bronchiectasis . im a betting man and if i was wagering on this id wager large that flor-essence would beat the shit out of cf. prbly shatter both its orbital bones puncture a spleen and shove its head down the toilet

[@fotoschopro1230]

@@garyenwards1608 Stop spreading bullshit like that, I'd be triggered if people told me to drink detox tea if I had such a severe illness.

[@irelynncollins100]

I feel like I can HEAR your voice is stronger now?

[@karaeveland5885]

You sound much more “normal” after just two weeks. Incredible ❤️

[@StephiLee]

a couple people i know said my voice is starting to sound stronger! ❤️

[@Betty1819N]

Stephi Lee indeed, much more stronger!

[@JustJ-Me]

For real Stephi! I actually just commented that. It must be legit if so many people are recognizing it. I know it's rough, but I'm so hopeful and excited for the all the good possibilities that are in front of you.

[@PeterPauls]

Stephi Lee Your voice much cleaner. And all of the clotted mucus try to go out from your body. Looks good to me. I have a friend who suffered from CF and she was lucky, because she got new lungs, but the anti rejection meds destroyed her kidneys (this is how we met, I’m a veteran kidney warrior) so my finger crossed for you, because I want to see a lots of good content from you, I know selfish thing, but the other hand if you can “keep” your organs (it sounds strange) the best way to live, there is no robotic lungs, pancreas, kidneys, if you get a new one, you have the chance of rejcection. What I want to say in a nutshell for you, that I wish you the best.

[@fred290e]

Stephi Lee it sounds way stronger, it's amazing!

[@Frederique-c8q]

When you were talking about day 4 I literally thought someone else was speaking. You talk so much better now! Hopefully you will feel like a new person soon. Also I had the laxative for coloscopy too and I feel you sike.

[@elenakk9125]

Frederique she didn't film day 4 at all, her talking abt day 4 is two weeks later i believe

[@Frederique-c8q]

@@elenakk9125 yea that's what I said: 'when you were talking about day 4..' not on day 4.

[@elenakk9125]

@@Frederique-c8q oh sorry i misunderstood

[@Frederique-c8q]

@@elenakk9125 np

[@paradiselife420]

You hang in there love.

[@10byrdie]

Omg so happy for the CF community. I am a pediatric Respiratory Therapist and our CF kids are family. We see them from babies to adulthood and it is a horrible disease. Keep fighting!

[@heather8831]

You’re doing so amazing. The first few days/weeks are always rough. You’re so strong and such a lovely soul. I’m so proud of you and happy that this is working. 💕 you can even tell in your voice! I love you SO much.

[@StephiLee]

thank you! love you too :’)

[@heather8831]

You’re so welcome 😊😊

[@blackbottomfilms1359]

Such a beautiful soul. She deserves 10 lifetimes

[@ernesthamm1813]

no doubt!! she's such a effin sweetie, and shows so much strength, you just wanna see nothing but happiness for her.

[@loriebrown6876]

I cant even imagine what you are going through! You are helping so many with cf by making these videos. Please continue to share your journey! I have been so worried about you and you are in my thoughts and prayers! You are a fighter Stephi Lee! You will win! I believe this with all my heart. God Bless you.

[@StephiLee]

thank you! that means a lot ❤️

[@the7thwreck]

Sweetie, I can imagine coughing that much will be giving your whole body an intense work out, your poor muscles being worked to their limit. The headache could be from dehydration maybe from expelling soooo much mucus. It's vital you're eating highly nutritious food to help you through such a big ordeal. Get some steaks, eggs, butter, veg and stay hydrated! Bone broth is good if you're having trouble eating. It will get easier as your body gets used to the drug. You are such an inspiration sweetie! Feel better soon!✨💗

[@scarythingmaya]

the7thwreck pretty sure she’s vegan tho:)

[@ShockResistor]

Shes a vegan, but she can consume foods that provide the same nutritional benefits than what you mentioned. :)

[@the7thwreck]

Shock Resistor That’s physically impossible. Vegetables don’t contain them.

[@b8665]

i love you stephi you are so strong and an inspiration.

[@elizabethbentley94]

Stop making me cryyy I'm too emotional for your videos lately but I love it I love it so much they are tears of happiness! I'm soooo frickin happy for you and so incredibly overwhelmed with joy for not just you but all the people who this amazing drug will help. You are so strong you will get through this adjustment period!!

[@Sarah8561]

Keep going! My cousin had that pain too, his first few weeks were brutal but it gets better!! Just ride it out, I know it sucks

[@MartinDeHill]

Well done Stephi! Abdominal pain from intestinal obstruction hurts like hell, but you made it through! So proud of you. Well done.

[@karaeveland5885]

Glad you were able to get through the hard parts ❤️

[@shouganaismile]

I wonder if the headache is partially from coughing so hard, cause I have severe asthma and when I have a day of constant coughing fits MAN I GET A Pulsing headache 😫

[@leannepoltowicz5055]

GIRL. I am having the same awful pains but I don’t understand because i’ve pooped so much on this damn pill

[@colecoley3473]

How are you 3 days later?

[@verse3000]

I sincerely hope you're feeling and doing much better. I don't have CF but I wish you all the best, I really do.

[@hollieordway6509]

There's definitely a certain strength in your voice by the end - I can't explain it, but it just sounds like it's less effort to speak, so your voice comes out stronger. I hope this is a sign for good things to come. Keep it up - I believe you can do it!

[@Moon52171]

You sound so much stronger, your voice and breathing.. wow amazing, sorry for the hard times that comes with taking that drug, hope it continues to improve for you x

[@Asdfghjkl-pb1ir]

My cousin passed from CF 10 years ago and I’m so incredibly happy that they’ve come out with a drug that doesn’t just treat the symptoms. I’m sorry the beginning has sucked so much and I’m praying/sending positive vibes that you’ll feel better soon

[@triple_gem_shining]

sending you the most love and strength. you deserve everything and more. we all love you! Hang in there girlfriend. Life is strange.

[@prettybirb9431]

A video hasn’t made me sob like this in months. Happiness that this could change so many lives, save so many lives, but grief that those who we’ve already lost never got this opportunity. I’m thinking of Claire tonight...

[@pandabella2525]

So proud of ya chicky for soldiering through! Sending you all my love, positivity and support! God Bless xo

[@loveme9597]

I went to church with a kid that had cystic fibrosis people picked on him I was the only one that stood up for him . Hopefully he gets this new drug if hes still around bless that kid .

[@fourscoressevenbeersago466]

Keep moving forward & staying strong! We love you and you are a true inspiration. Be safe, stay the course & all the best. We are here with you all the way!

[@babsstrijkert5365]

Stephi, I found your newer videos and you feel like such a special person. You have such a unique energy and you inspire me so much to live my life. I have so much admiration for you girl. Look at where you are now! With your doggy in your cozy home, living life for living, not for dying! You've pulled though and how!

[@rrhodes4433]

Aww Stephi, you were just full of poo! I hope you're feeling much better by now and that this drug is truly the miracle drug you need to live a long, happy life. Hugs to you!

[@sarahmyers60]

It broke my heart when you went to the ER and were crying :( I’m sorry Stephi

[@amberdavis3306]

I am SOOOOO incredibly happy for you and so proud of you for taking on this new journey...especially while sharing it with all of us. You are so much stronger than you know sweetie...positive thoughts and vibes are always coming your way! You got this!

[@MakenzieHallie]

I'm so happy for you, but I hate there has to be this painful period first. Like you said, imagine the day you can look back on this video, breathing well, and feeling fantastic! I'm hopeful for this drug and hope your feeling better already!!!

[@ShoNuff3K]

Much love to the warrior babe. ♥️

[@jimmijames6294]

100% rooting for you Stephi Lee. Keep you normal positive attitude and hopefully this medicine will keep you going strong for decades!

[@allpicturenosound]

I can't believe how much less husky you sound already Stephi. I'm so sorry the side effects are sucking hard right now but stick with it missis. It'll all be worth it ♥️

[@JadedJade_]

“I don’t know why I’m so nervous. Just take it.” Belches. That’s why I love you 🤟

[@ernesthamm1813]

lol right? not so much the fact that it happened, but that she chose to edit it into the vid haha!

[@Camden0203]

Prayers for you! Your a very strong young Lady.

[@KateCarew]

I wondered if you would document this, I’m really impressed you were able to do this, it’s so helpful for others, you’re part of a group of pioneers. Without people like you willing to subject themselves to extreme discomfort drugs like this can’t be made or improved. You know this, and I remember a phrase I heard ages ago in nursing school “it’s to hurt if it’s to heal” and as a person born with CF you know more than the majority of the population that for every drug there’s a cost. Stephi, I don’t know what to say to make this feel better, this is uncharted territory and all I can say is I’m so so PROUD of you, and I hope this pays off for you 🙏🏻 Mucus, you hear me? Get the eff out, Stephi does NOT need any bowel obstruction. You’re tough, keep being tough, we want a success story, we want to see you thrive and the truth is it’s your life and your trajectory and if you feel terrible you have to do what you want. I think you are currently in the position of people on chemo who need it to live but feel like absolute garbage...it’s up to you to go inside yourself and determine what the best course is. Selfishly your fans (including me) will ask you to keep going and be grateful you’ve got hope BUT we aren’t in your shoes. You are a trailblazer and I can’t wait for the day you look back and say “that was a shitty time but it was worth it”. 🙏🏻❤️🙏🏻

[@DavidBrann3]

Wow that’s so intense! Glad you are pushing through it. I’m sure it’s gonna be worth it!

[@1articoli]

Fortunately you're extremely intelligent and are able to rationalize that the rough stretches will all be worth it in the end. Pulling for you Stephi!

[@MatthewFrazierr]

You’re an interesting soul

[@michaelavalek2649]

KZbin made me change my name yes an interesting, beautiful soul. ❤️

[@cin3997]

Why cant you have your own documentary!!! Youre so inspiring ILY sm!!!!! Truly an angel! Keep on going girl! Legit would love to see a film all about your life!

[@naomi2000]

This was partly difficult to watch, I can't even imagine how it must have been to experience it. You are such a strong person, I really hope the next weeks will prove "worth" the initial pain! I look forward to the next updates :) I root for you! A hug from Vienna (the European one)

[@zaz4667]

GO Stephi GO! Big risk big rewards! Thanks for sharing your determination, hope, struggle and journey! Lots of inspiration!

[@sarahsmthrox]

Broke my heart to see you had to drive yourself. ❤

[@rickycoker5830]

this is my first time seeing this young lady. my heart really goes out to her. does she not have someone close to her to help her navigate this really bad time?

[@sarahsmthrox]

@@rickycoker5830 I don't personally know this beautiful woman but I bet she would have called an Uber if she wasn't able. ❤

[@colecoley3473]

U guys... as a medic.. call 911

[@dhaliadestrange]

@@colecoley3473 What country you in? A lot of Americans don't have a spare thousand dollars for a ride to the doctor.

[@colecoley3473]

@@dhaliadestrange sure but there are programs to help.... debt is worth your health imo.. I'm in jacksonville florida btw lol

[@stephaniepapaleo521]

Thank you for documenting your CF journey for us. I’m glad you’re doing what’s best for you. It made me sad for you when you had to cut your India trip short. You’re a free spirit no matter where you are, you inspire us all!!!

[@thecircledance]

Thank God you're okay. That blockage must've been so terrifying. You're a warrior and inspiration to us all.

[@gman5338]

Thanks for posting this! I have PTSD due to combat and my time as a cop. I VLOG my experiences too, to try and help folks. I can appreciate what your going through by posting this. Keep grinding lady! Just subbed! Stay up, stay strong! Peace

[@1607josh]

I'm a fat drunk and I hate myself every single day. You're vlogs make me feel less hatred for myself for a while. Thank you

[@silencio1234]

josh c don’t hate yourself. I’m sure your a great person if you love Stephi :) hugs

[@dagnydo2472]

I'm a chubby drunk and I like Stephi too!

[@officetechtyping]

Stop drinking Josh. You may feel better.

[@amyaugs9075]

I bet stephi wouldn't hate you...

[@hartlytartly]

Fellow drunk, hate myself too, bu I ain't fat, so I've got that going for me ;)

[@MsJenzito]

You are so strong Stephi. I hope and Pray that this Drug helps you Tremendously. I wish my niece was still here. Maybe this drug could have worked for her. Keep on Pushing! Prayers!

[@puzzledinnewmotherhood8247]

So glad for an update. I LOVE YOU!

[@StephiLee]

love u!!

[@odetedeabreu6466]

Stephi Lee, I have been following you on KZbin and instagram for a few months now. The first time i cam across one of your videos was such a beautiful experience. I am in awe of who you are. Despite your CF, you are one of the kindest, purest, realist people i have ever seen. You are such a beautiful being on both the inside and out! You inspire me and thousands of people around the world all the time. You inspire me to never give up. To keep moving forward, see new things, try new things. Watching your journey has impacted my journey greatly and in the best possible way! Thank you for not giving up. Thank you for loving yourself so much you fight through this pain. Thank you for you Stephi! I sincerely hope i cross paths with you one day. Sending you an abundance of love, positive energy on the highest of frequencies, light and a big hug. Namaste beautiful lady. Incredibly proud of you!

[@Smokeygirl420]

I’m glad your feeling a improvement stay strong

[@christierella]

Stephi, I'm so sorry you have to go through all of this...just to live. You are an inspiration, I'm praying this phase of misery has ended. That is he drug works, and you live a long and happy life.

[@thehollyannrose]

Omg I don't have CF, but I know the pain of serious constipation. That's why I avoid pain drugs for my scoliosis and arthritis. It's so debilitating

[@tishkaskogen3298]

Comfort magnesium is wonderful for constio, but also most of us are deficiency in almost all trace and major minerals. Collagen by healthrangerstore.com two kinds I just got 6 days ago and taking in morning with 2 tsps of vitamin c from there also ( this is after taking random organic collagen from Amazon for 5 months--- neck surgeon one year ago said I would be coming and begging in six months time for the surgery--- ( ( I also have 9 anchors bring my shoulder together and bicep muscle completely ripped from bone and tendon--- my Ortho said he has never seen one heal on its own ever and I would need surgery..the suture knots from the 12 inches he used on last surgery to tie up my rotator cuff has the top 3 knots exposed and cutting thru my skin from the inside out))--- so today I climbed 4 palms--- loaded fronds from 21 and mesquite branches( about close to ton weight) ran chainsaw on next job in pouring rain and did 13 pineapple palms( another 3/4 ton weight trimmed and loaded). And only took 3 pain pills ( usually took 6 per day--- just two weeks ago would have had to have taken 6!!) So definitely giving our body the correct building blocks is key and essential to it doing like ABBA created it to and heal, adjust, rebuild etc. All praise to Messiah for knowledge and direction back to basics ( also I cut out all processed foods 4 months ago and especially wheat since it all has Roundup in it and that was really messing me up while titanium anchors abrasion is creating metal blood poisoning as I work!!! So am always taking blood chelators of natural--- cilantro, spirulina, chlorella, nascent iodine, magnesium, sulfur, silica etc. So hoping this helps, I have client who I am taking the collagen and vitamin c to Friday to see if helps with his spine/ back pain since he is 62( I am 51 female) and he has injuries from rodeo life etc--- on pain meds also but like me and wants off ( i know I have to give up what I do--- 42 years acting and working like a man and we are not!!!! Never claimed to be equal and always grateful for Abba making men so strong and smart, I just love working outdoors( grew up in wilderness with native earthly Dad, hunting, fishing ,farming, logging, ) yet pressure of getting done for living purposes of money is not cool--- oh that's another lesson of the agenda against us who are free. Anyway Dr lidden, John Bergman, mercola etc are all great for review and knowledge. Above should help you tho for less than $60 and healthranferstore.com is China free and metal free and I can testify that it works major!! ARMOR UP EACH MORNING SINCERELY PRAY WITHOUT CEASING LET NO ONE DECEIVE YOU

[@klairemartin7379]

It’s worth it Stephie. Keep going darlin you can get through it. Remember to take small steps and don’t be pushing yourself to do things. You are amazing and you do sound much clearer 💕 keep going and we are all right behind you 💕

[@klairemartin7379]

You have been through so much to get this far

[@drlecter8145]

I think about you every day Dear Girl. Fight on!

[@BeccaReevesXX]

I'm not sure why this showed up in my suggested, but I'm glad it did. Thank you for educating me! Shamefully I didnt really know much about CF other than it was a test they give to pregnant women. You did an amazing job of not only educating people that have no idea what people with CF go through but also it was so sweet of you to put a video out into the world of your experience with this med. that is very honest and detailed so anyone getting ready to start this med can have an idea of what it might be like for them. I commend you for not only doing that and so well edited but also the battle you go through daily just to get through the day. My hope for you is that after this things will get much easier for you and you can have the happy and healthy life that you deserve 💕

[@laurenh1707]

Your gonna be part of medical history like cause of the drug

[@garyenwards1608]

people will look back through the veil of foggy tyme from far far away in a galaxy all too similar to our own

[@Godhelpus62]

Praying for you. You are so strong and brave. Those of us with chronic illness are getting hope and strength from watching you. May you continue to improve day by day! 💜🙏🏻👼🏻✝️

[@binflynn1]

Keep going it’ll take time , time that you have to enjoy life when it kicks inn , your doing well to blog I don’t think I could so keep positive 👍

[@ossotaylor4660]

Keep going Stephi , dont give up. You are such an inspiration to SO many with CF and those that dont or have family that suffer through this. ~ Keep your beautiful face lit with its smile. Merry Christmas !!!

[@oneseeker2]

Contact Mary from The Frey Life, she was one of the first to go on the med, she was going on a transplant list at Duke, and then this med. Maybe you need a CF team like at Duke.

[@mygirldarby]

She wasn't going on the transplant list and she wasn't one of the first to take it. She was checked out by Duke and told she would be a candidate when the time comes, which could be years from now. Her health was not bad enough to be put on a transplant list before she got on the drug. She also didn't get to take the drug until after it became widely available to all cf patients. She couldn't be in the research studies because of her liver disease.

[@kaitlynmoose]

YOU CAN DO IT BABY GIRL!!!! Keep pushing.. you are so super freaking strong, you have made it through so much and you WILL get through this too! We got your back! So much love from North Carolina! You’re in my thoughts! ❤️

[@rbmh]

God Bless, Our Thoughts and Prayers are With You.

[@Simone-ow5kb]

You are doing this! You are saving yourself and it’s hard, painful and 100% worth it! Every single day you struggle is another day you are fighting for your life! Remember that and push on!!! Hugs!!!

[@litchtheshinigami8936]

the stomach pain makes me immideately feel like this drug needs a stomach protector.. at least in your case especially seeing as you did say the pain was so bad you didn't even want to pick up your camera though the mucus blocking your system does make sense.. ouch

[@TheSaltySiren]

Way to go Stephi!!!! I know this has been two weeks of sheer hell, but you persevered and those two weeks are over with! I hope and pray that this new drug continues to work for you. Hang in there, you’re fighting the good fight! 💪🏻💖🙏🏻

[@imkassidey]

I'm legit crying watching this I cant wait to get it even tho ik it's not ganna be easy

[@leroybrown7757]

..best of luck with obtaining the meds .. sending positive vibes ☮️&🌱's

[@arayofsunshine4556]

I can’t wait for you to get it either 🙂 best of luck to you!

[@imkassidey]

@@leroybrown7757 thank you v much :,)

[@imkassidey]

@Kyle Jeffery thank you!!!

[@imkassidey]

@@arayofsunshine4556 thank you!!! :))

[@LilGypsy69]

Stay strong Steffie it’s working!!! I’m very happy for u and all the CF community. Your voice also sounds stronger!!

[@animaloverdani10]

I can't imagine the hell you went through but holy shit this drug is amazing

[@jinwoah9031]

New meds suck so so much!! I had to take a whole ass week off work when I started some new pain meds cause they fucked me up so bad, vomiting and everything, which is absolutely nothing compared to what you went through!! I'm so incredibly proud of you and I hope you can push through this horrible time so you can continue to provide the world with your beautiful fuckin soul x

[@mariocean808]

This world is blessed to have you stick around much much longer

[@jcesararc2419]

Be strong... Be brave... Be daring ... Prevail... never give up beautiful girl!

[@fairychangeling8337]

What was in the blender you made for breakfast? It looks so so good, I need to try it🙏

[@carolinebearor548]

It looks like a "nice cream" which is just frozen bananas and chocolate soy? milk blended together. So simple and delicious!

[@pandaevee]

GIRL YOU WILL GET THROUGH IT!!! A few shitty (or not so 'shitty'.. 😅) weeks or even months will be sooo worth it in the long run! I'm sending you all my love from Germany!

[@markmark8174]

I was literally on your page 10 minutes ago hoping for an upload. Weird.

[@garyenwards1608]

WeIrDDdDdddD

[@taylaelizebet8583]

Manifestation 💫

[@garyenwards1608]

@@taylaelizebet8583 Mandalorian Manifest Destiny

[@garyenwards1608]

@@taylaelizebet8583 Paul Manafort Destiny

[@mishkamental807]

Keep fighting and keep updating. More people need to be educated about this disease. You are tough as nails girl I’ll be “praying” for you (in my own way) ❤️❤️❤️

[@Onedayatatimex]

I can hear a difference in your voice!

[@trinagolas9504]

Power on Steph.. you are a strong willed woman.. you go gurl...