A Patient's Story - Dealing with C.diff

[@danpeters6874]

I was just diagnosed with c diff. My symptoms began almost 20 years ago. I was 24 and was given antibiotics for a bad case of bronchitis, symptoms began within a week or so. I was diagnosed with irritable bowel syndrome. My symptoms weren’t as bad as this woman’s, I could still function, but I’m a little frustrated at doctors attitudes that I’m just being a hypochondriac, or I just need to eat better. If it weren’t for their ignorance I would have been spared almost 20 years of suffering

[@maryhawker5003]

Were you also tested for SIBO? Apparently over 60% of IBS patients actually have SIBO instead.

[@danpeters6874]

@@maryhawker5003 They might have. I’m not sure. They did a bunch of tests back in November and that was when I got the c diff diagnosis. After a month of taking vancomycin, I still had symptoms, they did more testing and I was diagnosed with some sort of E. coli infection. After a week or so of amoxicillin, I still have symptoms. Haven’t been back to the doctor yet but I’ll probably go soon. I had some hope at first but now I’m very skeptical of both diagnoses.

[@maryhawker5003]

@@danpeters6874 amoxicillin?!? I’ve never heard of amoxicillin to treat this severe of an infection, c. Diff or not. But your story sounds identical (minus the amoxicillin) to so many people on KZbin who say in the comment section they now have SIBO after c. Diff treatment & their doctors gaslight them into believing it’s all in their head, just to get rid of patients they don’t know how to treat. Also, Doctors aren’t familiar with SIBO on a widespread scale yet, so I would highly recommend seeing a different GI doctor who can order the SIBO breath test that measures both hydrogen AND methane.

[@bolivar4537]

The carnivore diet has helped keep the symptoms "manageable".

[@blonde4u776]

Thank you for your story! I am 26 and unfortunately contracted cdiff from taking antibiotics for a uti and wisdom tooth extraction! 2 rounds of flagyl made me extremely ill with the side effects. Currently on vancomycin and feeling much better! I am hoping it takes care of it for good. Please don't get discouraged if u contracted this! Be patient- persistent- and you will beat it! Thinking and praying for those currently suffering with it... Xoxo

[@rqjgaming]

How long were you on vancomycin for

[@rqjgaming]

How long were you on vancomycin 4

[@rqjgaming]

It's a shame people suffer with this for 8+ months before getting on treatment because nobody knows what cdiff is until you have symptoms. Theres no signs on the hospital saying be aware of cdiff theres no warning signs of cdiff of antibiotics. Like honestly fuck America. Like I've been suffering for 8 months and they wont even give me vancomycin yet

[@hajnalrozaliaotten1958]

Im very sad I have cdiff and first time I take metronidazole 500mg 10 days then vancomycin 40 tablets now again recurrent cdiff what I do ...I don't wanna die😢😢

[@Liz-vs9og]

Hi! I made the original post (can’t believe it’s been 7 years!!) - just have a different UN. I’m so so sorry you’re dealing with this and had a recurrent infection after all the treatment you’ve done… I know that is so discouraging.. especially with the side effects of the meds. Hang in there. You will make it out the other side. I can’t give medical advice of course, but just know that you have to remain mentally strong and positive. I couldn’t see my life without c diff when I was in the thick of it, but it’s been years and I’ve made it to the other side without another infection! I will pray for you tonight - a prayer for peace, guidance for your doctors, and for physical well being. I totally know what you’re going through and how discouraging c diff truly is… God bless you 💖

[@onjoyful]

Thank you Anne, for your eloquent story. I have it now, month 9. I had 2 neg tests after 3 courses of Flagil and now it's back. Here in the U.S., any other medication is prohibitively expensive. A vegan diet and 100billion probiotics helped tremendously when I wasn't on the med. Flagil actually causes nausea, diarrhea and loss of energy, so it's as bad as the disease. It was developed for the original strain and I have the newer, stronger strain.I will try fecal transplant next. I will beat it.

[@majackl1]

This woman did an amazing job of describing what it's like to have it. It affects not only your physical health but your emotional well-being.

[@cindycordial1153]

Very well said. Thank you for explaining so well the mental and physical toll it takes on the patient.

[@victoriasellers7515]

Thank you for this information. I am just coming out of a bad spell with C Diff. The multiple hospitalizations in isolation and being all alone when I have been home has been awful. I’m trying to get past the fear of having it come roaring back or infecting someone is all consuming. I spent my birthday in the hospital and away from my family on Thanksgiving and am hoping to be with family at Christmas. I had never even heard of C Diff

[@chthehelpmate3694]

Hello. I understand how you feel. Allow me to suggest something for you. It's call Fecal Matter Transplant. I also recommend you look up a book called The Other Dark Matter explaining the great medical benefits of Fecal Matter Transplant. I wish you the best of luck.

[@ms843]

I’m on day 10 of straight diarrhea from c diff and she is right. No nausea for me. I started vancomycin today. Nervous but hopeful. Slightly Feel like my intestines and lady bits and butt are going to fall down/out. Went back to urgicare and they said the swelling and pressure in those areas is the inflammation. Good Rx saved me 200$ on medicine btw. Broke down and cried tonight for first time. It does take a toll and it’s kind of scary to feel the inflammation/swelling. But I am eating everything I can with probiotics and electrolyte and whatnot. I hope anyone that goes thru this gets well soon. Don’t wait 10 days like me!

[@concernedhealers7951]

Thanks for this video I was really worried about my mom because she sooo sleepy but you put my heart at ease and I understand that that is a part of this.

[@timdevine8628]

I got C-diff after taking antibiotics and had my large colon remove.i had an ileostomy for 7 months but i had a great doctor who reconnected my small intestines to my rectum.Its been 7 months since that surgery and every day I'm getting better..

[@jillf2782]

thank you for this video. i have had c diff since june. at least i know i am not alone. failed vacco tappers. it sucks

[@rqjgaming]

How did you get rid of cdiff

[@joanhamby6247]

Thank you. i am going through it now and was supposed to return to work tomorrow after 10 day course of vancomycin but i am in no shape to return to work. I think I may have IBS now or something else but i am not back to normal at all GI/GU wise. . .

[@annberlin5811]

Take a probiotic during last day of an antibiotic for a week

[@Catfcy]

My vanco is a taper for 6 weeks 4,3.2,1 . 1 every other day and then one every 3 days. I wonder if that makes a difference.

[@Dwightinho56]

Thank you so much for telling your story. I am 10 weeks into an aggressive C Diff infection that I got in the hospital. Never heard about it. Just finished antibiotics cure nr.2 (10 days on Vancomycin and before that 10 days on Flagyl) and nothing helps. I am completely exhausted, lost lots of weight and generally in bad shape. Seeing my Doctor tomorrow and I expect a hospitalization. Don’t know what is worse. Isolation there or at home🤣. I fear further reoccurances no matter the treatment.

[@maryhawker5003]

Is fidaxomicin not an option? It shows better outcomes for c. Diff than vanco or flagyl but it depends on insurance

[@bimmerella]

Dificid cured me. After having a reaction on vancomycin in the middle of my pulse dose phase. It cured me but in a way it's after that's the hardest for me. I also have IBD Crohn's. Lost 50 pounds still not eating solid food. Live on Boost (protein drink frozen the only way I can tolerate it). K8dnet stones from the chronic dehydration & even eyesight damage. This is not a joke. Now I have envirocleen in every qtr to sterilize.

[@Dwightinho56]

@@bimmerella I feel for you. This bacteria is doing great damage. I wanted Dificid, but they didn’t want to give it to me. Since last I have done a FMT transplant and I got rid of C diff. that way but there are still a lot of symptoms. I’m in my 3rd week after the transplant and I hope my system will settle eventually. Very careful with what I eat.

[@annberlin5811]

Hello! I had cdiff and take a probiotic during last day of taking antibiotics for a week

[@carlapogson7024]

My husband just went through c-diff and it almost killed him. He’s on the mend now

[@dianabekele5777]

How did you deal with c. diff?

[@cheryllee2642]

Thank you.

[@letsthinkitover1]

I know some one with this, in hosiptail with bloted stomach. They kept giving antibiotics for other things.

[@RochelleDacre-u4d]

My mums in hospital atm with cedith 😢

[@BobbieH2011]

Clindamycin causes c-diff

[@rqjgaming]

How u get rid of cdiff

[@melissalevine8364]

Yea that is what gave it to me

[@whitama2]

@@rqjgaming Fecal transplant

[@ms843]

Yep this is my reason

[@maryhawker5003]

Clindamycin caused my c. Diff as well.

[@andreaberryman5354]

I never vomited, don't recall nausia. Your case was really bad! I remember the stench of rotten eggs and peeing out the wrong hole-not diarrhea-smelly yellow water. I had an accident in my sleep-that weakness, high fever, yeah. Went away on its own.

[@Roselynne1016]

It went away on its own...how?

[@brooke3081]

Probably wasnt cdiff

[@brooke3081]

Sounds like vaginosis

[@annberlin5811]

@@Roselynne1016 it will not go away on its own

[@Roselynne1016]

@@annberlin5811 of course it won't. That's why I questioned the OP.