SYSNAV Healthcare supports CTNNB1 Foundation: Revolutionizing patient care with Syde technology

CTNNB1 Foundation is excited to announce our collaboration with SYSNAV Healthcare!
SYSNAV Healthcare is providing Syde, their Digital Health Technology (DHT) for our Dragonfly Study, the first international Natural History Study (NHS) for CTNNB1 syndrome patients.
See the video of our adorable CTNNB1 syndrome patients enjoying their Syde devices this summer. 🥰
💡 What is Syde?
Syde is a cutting-edge device that enables continuous, real-world monitoring of patient function. It captures objective, high-resolution data over extended periods, offering valuable insights into:
✔ Disease progression
✔ Individual variability
✔ Patient experiences
👇 Why is this collaboration important?
One of the greatest challenges we face is the lack of known biomarkers, making it difficult to measure treatment effectiveness. With Sysnav’s technology, we aim to break through this barrier by obtaining precise, real-world insightsinto movement and daily functioning. This will not only deepen our understanding of CTNNB1 syndrome but also help us evaluate and refine potential treatments with greater accuracy.
We’re one step closer to improving the lives of CTNNB1 patients and their families.
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Sysnav Healthcare developed SV95C and Syde®. Sysnav Healthcare, as the pioneer and leader for movement evaluation in clinical trials, is now building the next generation of digital health technologies so that patients benefit earlier and more reliably from life-changing treatments.
To learn more about Sysnav Healthcare, visit their website: healthcare.sys...