Tahla: NMDA Encephalitis Lived Experience

  Рет қаралды 3,941

Encephalitis International

Encephalitis International

Күн бұрын

Пікірлер: 14
@__simplymia
@__simplymia Жыл бұрын
i got diagnosed with Anti NMDA Receptor Encephalitis at 18, but started showing symptoms at 17. this illness is so rough and needs more recognition.
@babyguinguin
@babyguinguin Жыл бұрын
I can relate to her story being diagnosed with LGI-1 Autoimmune condition back in end of November 2022. It has been an emotional rollercoaster as well as a physical one for me. Being in a foreign land with my 2 children who are still below 18yo makes it all the more challenging. There are so many times I wished I was back home in Malaysia where my parents and brothers are. Many times i question God why this has to happen to me as I'm known to be very healthy prior to getting sick and was regularly exercising. But reading and watching other people's stories and medical professionals explanations has helped me understand more about this condition. To all who are affected and to you Tahla, I wish you all the best in your recovery and may God always be beside to comfort you and guide you through this challenging journey ❤. Much love, Maureen.
@conorkilmartin6779
@conorkilmartin6779 Жыл бұрын
Don’t give up have faith in yourself we can keep going in life I had encephalitis 18 years ago when I was nine years old USA at Disney and happened took me 15 years to be recover I believe in your faith and our God, he would help us through it don’t give up on him Have a good day peace with you.
@encephalitisinternational
@encephalitisinternational 6 күн бұрын
Thank you for the lovely comment - Do reach out to our support team if we can be of any help - support@encephalitis.info
@NataliaRomero-m6f
@NataliaRomero-m6f 2 ай бұрын
Thank you for sharing. My daughter is currently in the Neuro-icu struggling. She has had many treatments still not aware yet. There is some glimmer and good changes. I am hopeful. I like that you reflect back as well as use art and music. You have come a long way. I look forward to my daughter returning as you have.
@encephalitisinternational
@encephalitisinternational 2 ай бұрын
I am sorry to hear this, I hope you are all managing to get by each day. We have a support line if you would like to talk to us +44(0)1653 699599 or email support@encephalitis.info
@АлександраЯкименко-д2х
@АлександраЯкименко-д2х Жыл бұрын
Tahla is so pretty! Tahla is so beautiful! Wish you all the best and full recovery!!! ❤
@Brooke-w6j
@Brooke-w6j Жыл бұрын
Proud of how far you have come Tahla. Love you so much xx
@BlondikaNikovska-pn3wl
@BlondikaNikovska-pn3wl Жыл бұрын
I wish all the best ,a full recovery 🙏 ❤️ Thank you for sharing for your story🍀
@brittanylightbourn8896
@brittanylightbourn8896 Жыл бұрын
I wish you all the best
@mauricebrown916
@mauricebrown916 Жыл бұрын
I know how you feel It’s such a life changing illness hard road I’m from Perth And have a rare case of LGI1 auto immune encephalitis
@babyguinguin
@babyguinguin Жыл бұрын
I can relate to this being recently diagnosed with the same LGI-1 Autoimmune condition too and being in a foreign country currently with my 2 children who are still below 18yo makes it all even harder for me. May God help us in our journey and here's wishing you all the best in your recovery journey.
@shakeelnawab5014
@shakeelnawab5014 Жыл бұрын
Dear sister how many months recovery period
@encephalitisinternational
@encephalitisinternational 6 күн бұрын
Do get in touch with the team if we can be of any support - support@encephalitis.info
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