Unravelling the mystery of MS | Jack van Horssen | TEDxUHasseltSalon

[@cissaac]

I know many of you might be feeling hopeless after watching it (I mean, I read the comments), but I have MS. I'm 22 now, but I was diagnosed last year, when I wasn't even 21 y/o yet. Of course I got sad and, most of all, pissed, because all the treatments were getting in the way of my academic life. But to be honest, I genuinely think all of this is so unpredictable that it's pointless to get hopeless. Life is chaotic for itself, like a lottery in many many ways. So, this is simply another element of chaos, the difference is that the other elements you're not fully aware of. It can get scary and all but there's no other way than to deal with it. There's no guarantees that in your own case all of this will happen and you'll lose the abilities that you treasure, so there's no point in freaking out because for all we all know there's a possibility that nothing will happen and you are getting stressed or even sad, feeling all of these negatives stuff in vain. There are new researches getting results everyday and they find new things out all the time, even if the knowledge is not complete now, that may not be the case in ten or even five years. So, really, don't let all this beat you, we're in this together and all we can do is hope things will happen in a great way and deal with our symptoms the best way possible until something really happens or some scientist discovers some game changing solution. Trust life and carry on!

[@janetpattison8474]

Cecilia Costa::: Lots of info is the documentary, living proof, it’s on Amazon prime, and it’s free, the authors of that documentary are also on KZbin with lots of information about how to heal oneself of the disease.

[@Spincushor]

thank you!

[@thisworldneedslove5478]

Your words helped me a lot ! I am recently diagnosed with MS and I am 23 years old! Thank you for sharing your point of view you really really helped me !

[@cissaac]

@@thisworldneedslove5478 You're welcome! I'm glad I could help someone, it's been almost 2 years since I was diagnosed and everything is the same, I haven't faced or felt anything different, so you really shouldn't be worried or frightened about this. It's just another detail you should have in mind but not let it rule your life! I hope everything works well for you!

[@cissaac]

@@Spincushor my pleasure!

[@__Wanderer]

Diagnosed 3 months ago - my optic neuritis never resolved - i am now blind in my left eye and I am still young :( i am fearful of the future - this disease is horrific. You are constantly in fear of having an attack that may leave you even more disabled or lose mental abilities. Gradually seeing yourself being destroyed - almost like being in a car crash every couple years.

[@dasunnirmitha7693]

I'm from Sri Lanka & I'm like one out of less than a dozen MS patients over here. I'm 27 btw. Diagnosed when I was 21.

[@Fatschwab]

As a person with MS, here's what I heard. If you have MS, that sucks for you. If you've had MS for 10 to 15 years it's even worse. Hang in there! There is hope!

[@BrainyLassie]

David Johnson 14 yeard Relapsing once a year remitting after 3 weeks Living with that 14 years No treatment they are free but i was anxious of side effects But next week i may start one

[@janetpattison8474]

FatSchwab : see the documentary. “ living proof” .... It’s on Amazon prime, and free. Many people are healing themselves of MS and other diseases by changing their diet’s. Lots of info and videos are on KZbin.

[@dharinisampathkumar5147]

I had my episode in the year 2010 nov. Change in diet including OMS diet and here I am 10 years later, no symptom. I have even forgotten that I had it .

[@haytamerrachid9930]

@@dharinisampathkumar5147 hey, i hope you are fine! Can you please tell me more about your diet?

[@garnix5612]

Well - I have Primary Progressive MS - but I am quite "lucky", as there is since 2019 a treatment for PPMS.

[@multiplesclerosistheowners2339]

This KZbin video, fortunately, is out of date. Primary Progressive MS now has a treatment, Ocravus, which has demonstrated some encouraging outcomes with quite mild side-effects. It's not a cure, but it is at least something.

[@janetpattison8474]

Multiple Sclerosis: The Owners Manual See the documentary living proof, the authors are also on KZbin, lots of info on diet and more.

[@sweetov5]

Memory problems Is more stressful to cope with than being in a wheelchair.

[@BrainyLassie]

Ornella Sonya Hernandez short term memory 🤣 i had several silly moments because of them Embarrassing too No one is perfect everyone forgets At least we have a reason

[@janetpattison8474]

OSV KM See the documentary on Amazon prime, it’s free, called. “ living proof”. They also have info on KZbin. There is hope.

[@dagmar6546]

This is easily explained by the vascular theory. Basically vascular system is what is failing because it cannot let the blood flow properly causing reflux which then causes the immune system to march in to try to fix the damage the broken vessel has caused.

[@dagmar6546]

David Bonanno no it has not been debunked. The research continues daily and there is a professional association that does a conference every year on all neurovascular diseases. You cannot believe one study that cannot be replicated that was done in Canada. One person said it was debunked how can you fall for that? What you need to do is research and you will discover that it is being proven on many times. Even here in Canada they treat Meniere's disease with ccsvi.

[@deannalopes8205]

no

[@BlueBabyAngelBunny]

edit: im not actually hopeless, read my replies. This just made me feel hopeless about having MS...

[@stevendavis9999]

Angel P My wife gots ms we find hope in Jesus

[@TonyTony-jq5fc]

Check out the Coimbra Protocol. 95% success rate (complete remission) for 10+ years for 10s of thousands if patients worldwide already. Educate yourself and find a protocol doctor to help you on your journey to a new life.

[@BrainyLassie]

Dont give up I was diagnosed in 2005 I was 17 years old I was in final high school exam Now its 2018 i graduated highs school uni and studied 3 years abroad in the uk I’ve never had treatment for 14 yrs But next week i will Im not even 0.1 disable just spasm I’ve been stongly thinking all these yrs disability never suits me I didnt do anything special But trying to beat it and never be deppressed

[@danielsuttles1960]

I have faith in Jesus and the awesome herbs he gave us mentioned in genesis. I believe cannabis can be very helpful. It is a neuroprotectant and it has strong anti-inflammatory properties. It makes my spine pain almost fade away completely and I have more energy. Six years in with ms and I'm doing fine.

[@zilyx5448]

They said i was diagnosed with MS, getting attacks got almost fully blind on moth eyes, got disabled on the half of my body, and trouble looking when i had restored eye sight, One this was weird, they (the doctors) didn't knew what was the cause of it, so i went to a homeopathic doctor checking my vibrations my energy levels and it clearly showed my liver was the cause of all these symptoms, i had a virus in my liver and my liver was damaged because of it. now that i fixed it almost fully my symptoms are super small, almost as if im new and have no issues at all.

[@demoskunk]

There is now almost 1 million people with MS in the U.S. That means there's probably closer to 5 million people suffering from MS worldwide.

[@__Wanderer]

I also saw that a most mortem analysis of individuals showed that the prevalence may be closer to double - perhaps many never really go to the doctor with their symptoms as they can be vague / resolve somewhat in some individuals.

[@aliwahide676]

Anyone suffering with MS: please see research by Dr. Terry Wahls

[@__Wanderer]

she is a charlatan saying you can "Cure MS" by eating healthy food. That is a severe simplification of the problem - what she fails to mention is that she went on very heavy chemo treatment before going into remission. At around the same time she started her diet... So... was it the heavy drugs or diet? All i know is she gets quite a good chunk of money for her book sales and speeches - kind of sick to be honest. Nonetheless, eating healthy is of course good, that is a platitude.

[@mary-vy3mo]

She should be in prison...Clink...

[@medicinekeysformrcps5025]

For MSers, do not forget your vitamin D.

[@__Wanderer]

From the studies I have read it actually does very little for people with MS. It has shown that it can prevent the development of MS though, a little late though as you would / should be taking supplements since the age of 10 or so... Additionally many with MS live in northern-ish latitudes which means their environment (lack of sunlight) led to a systemic vit d shortage and probably a mistake when building up the immune system during development. I happened to live in norway during just that critical period 10-18, now several years later I have been diagnosed with MS. There is little you can do as a child living in a country where 50-60% of the year it is dark almost the entire day, and when it isn't dark it is mostly raining...

[@maureenk1635]

Isn't Dr. Swank's diet (see John McDougall also) a very successful treatment?

[@lindavanzwol2643]

The Swank diet (30 + years stabilisation of MS) is extended by George Jelinek to OMS ( Overcomming MS) - Ultra healty diet - no smoking - daily excercise, adapted to your ability - Vit D, between 150-225 nmol/l / 10.000 iu daily - meditate daily - tell relatives that in your shared dna there is the risk of MS, and vit D protects.

[@lumafelic]

I have MS. I am from Brazil

[@LLI-cw1os]

Luciana Feliciano are you doing the Coimbra Protocol?

[@lumafelic]

@@LLI-cw1os I am taking on natalizumab and fampridine

[@jonathantodd2054]

Natilzumab is a wonderful treatment

[@aliwahide676]

Please please check out recent research by Dr. Terry Wahls

[@flavia9507]

Hi @@LLI-cw1os ! I'm also from Brasil and doing Coimbra Protocol since 2011. No more flare-ups or active lesions on my MRIs ever since.

[@rianneuijterwaal8349]

Is this still up to date? Is it a "guarantee" that relapse remission after 10/15 years moves to progressive MS????

[@mary-vy3mo]

yes...usually from 15-30 years after dx. to spms.

[@JanetWark]

WHY DOESN'T THE MS SOCIETY SUPPORT OUR ONLY OPTION FOR REMISSION??? DR.RICHARD BURT THE PIONEER OF HSCT, HIS FIRST BOOK "EVERYDAY MIRACLES" IS A MUST READ.

[@grifter_alert]

It’s because the National Mafia Society is corrupt and likely gets a massive kick back 💰 from Big Pharma and it’s not for research but to keep us sick. They are not going to sabotage there rice bowls 🍚

[@numbr6]

Ocrelizumab is effective against Progressive MS. Another predictor of disease course is the number of months / years between relapses. The more time between relapses, the less likely RRMS will transition over to progressive MS.

[@numbr6]

I was diagnosed 27 years ago, and I had symptoms I now know to be MS-related when I was a teen. I still work full-time, I can walk more than a mile, I live a mostly normal life. Sure, some things don't work right, but things could be worse. Positive attitude, taking care of yourself, and using the best MS therapies currently will extend and likely prevent the RRMS-progressive MS threshold past when you will die of just old age.

[@numbr6]

@David Bonanno Really? Was diagnosed 28yrs ago, and now know I had symptoms in H.S. You wouldn't know I have MS from looking at me. I've read the time between clinically significant relapses is a good metric for how progression will occur. Meaning if you have 3 relapses in the first year, you are likely to do more poorly than someone who has had one relapse 6yrs after diagnosis.

[@sequin99]

@@numbr6 True that. I was diagnosed 17 years ago. My first symptom was ON. I had a relapse 5 years later.And I am still walking. No drugs either.

[@aditya50499]

How effective is HSCT (bone marrow transplant) I for secondary progressive MS?

[@realitateatm]

TedX Talks, this video should not be on KZbin. This person refers to people as objects of study. When has that become acceptable? What hope or encouragement does this presentation give? What is the key outcome? Any groundbreaking discoveries? No. Just an extremely generalised introduction. I don’t see any value whatsoever.

[@traciebritton8064]

When have you become the arbiter of what someone should listen to or not? I still haven't seen the video where MS is a side effect of antidepressants...

[@renescarb6210]

I'm done with this video its depressing

[@katjones7050]

Clamedia can cause MS

[@mzkarla01]

I dont take MS drugs. Marijuana is good.

[@demoskunk]

Ridiculous and irresponsible advice to stop taking MS drugs. The earlier treatment is started, the better the long-term prognosis. No MS drugs=much worse progression and disability.

[@kittensmittens93]

@@demoskunk that's what all the doctors say and advide however it's not fully proven if ms drugs really help. in some cases the side effects can even worsen the symptoms/trigger ms.

[@demoskunk]

@@mzkarla01 Everyone's lesions will eventually shrink. They're being replaced with fluid. It's not a return of lost nerve tissue. Do not tell others to go off their MS meds. That will only result in a worse long term outcome for their CNS function.

[@sequin99]

@@demoskunk spoken like a drug rep

[@mzkarla01]

@@demoskunk thats what they say... I don't believe that. And I am doing better without! Me personally from my experience. You dont know what they are pumping into you and the effects it will have on your body. Thats what i believe... unto each they own...

[@Mr-gc2qr]

i didnt want ms